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Re: ebrel use with AP therapy

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Amy... The Minocin may take many months to kick in really good, even a

year or more. As much as I dislike embrel it may make sense to follow your

doctors directions and go off slowly. That will allow your immune system to

gear

up slowly and maybe keep you from some of the major herx problem many of us

have had.

When I first started Minocin I decided I would give it a year. I wrote

several paragraphs down on a paper and put it in the top of my jewelry box to

review at the end of the year and see if I was truly better or worse.

Having never been on any of the major immune suppressing drugs, I was fortunate

my

immune system was still in fairly good shape. I did much better, much

faster than the average AP patient. I was also on a high dose...100 mg twice a

day everyday....for the entire time. I was in remission after six months. I

occasionally experience a flair and have gone back on the twice a day minocin

for awhile. I have done this for six years. I have no further joint damage

and am so glad I found people to tell me about this great therapy. Just

remember...we all start off at various places. Some of us are much sicker than

others. Some have been on meds so long their own immune system will take

months or even years to rebuild. This treatment requires patience and

persistence. But its benefits for those who persevere can be enormous.

Martha

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Martha,

Thanks for the advice. It is sound. I will follow doc and be patient!!

Amy

>

> Amy... The Minocin may take many months to kick in really good,

even a

> year or more. As much as I dislike embrel it may make sense to

follow your

> doctors directions and go off slowly. That will allow your immune

system to gear

> up slowly and maybe keep you from some of the major herx problem

many of us

> have had.

> When I first started Minocin I decided I would give it a year.

I wrote

> several paragraphs down on a paper and put it in the top of my

jewelry box to

> review at the end of the year and see if I was truly better or worse.

> Having never been on any of the major immune suppressing drugs, I

was fortunate my

> immune system was still in fairly good shape. I did much better, much

> faster than the average AP patient. I was also on a high

dose...100 mg twice a

> day everyday....for the entire time. I was in remission after six

months. I

> occasionally experience a flair and have gone back on the twice a

day minocin

> for awhile. I have done this for six years. I have no further

joint damage

> and am so glad I found people to tell me about this great therapy.

Just

> remember...we all start off at various places. Some of us are much

sicker than

> others. Some have been on meds so long their own immune system

will take

> months or even years to rebuild. This treatment requires patience and

> persistence. But its benefits for those who persevere can be

enormous. Martha

>

>

>

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