Re: Can Antibiotics be in Pill Form Only?

[Guest guest]

Brande... try going to rheumaticsupport.net/

As far as I know it is still up and running. Also google The Roadback

Foundation. Either of these sites can help you find a doctor in your area.

I came to antibiotic therapy after eight years of standard treatment.

My disease was well entrenched and many of the docs would like to start out

long standing cases of RA with intravenous antibiotics. However, because I was

traveling a long distance, had to pay for everything myself, I asked the doc

to just try the Minocin in pill form for a few months and it worked wonders.

Did not need the IV's at all. I have been mostly in remission for six

years now and still doing great. My local doctor (a general practitioner) is

happy to give me the Minocin. I gave him a copy of Henry Scammells book The

arthritis Breakthrough.

I started with A great doctor in Dalton, Georgia and have spent the

last five years going to ones in Nashville, Tennessee. I have found most

rheumatologists refuse to have anything to do with Minocin, most gen

practitioners

take one look at my lab tests from my AP doctor and are glad to prescribe

it. Most had heard of the treatment, just never had any proof that it worked!!

Compared to my friends who stayed with traditional treatments, I can run

circles around them. My disease has stayed in remission, and when stress or

something starts the aches and pains.....I go back to the 100 mg twice a day

pills and poof!!! Back in remission.

Why use name brand Minocin you ask??? Mainly because the name brand is

time released and stays in the body longer. That keeps the mycoplasmas at

away better. Those it does not remove go into hiding (remission) to await a

time they feel they can come back...like when your immune system is low, you

are

tired, or you are really stressed. That's why sleeping well, good diet and

hopefully a life that keeps stress low are so good for us. Just my story

of what happened to me. Good luck, Hope you give this a try. Martha

[Guest guest]

Brande,

I checked, and www.rheumatic.org seems to be down at the moment. I'm sure

it will be up again. That's where all the information is located that

relates to the antibiotic protocol many of us are on . Many stories of

people on this list are also there. Keep checking.

Take care,

Ute

[Guest guest]

I'll try to give you some answers, but these are just starters, not hard and

fast. The important thing to understand is that these diseases are a little

different in everyone, and variations on the basic approach are used as

needed.

On 2/3/07 12:09 PM, " Brande " <brandewood@...> wrote:

> I am having trouble finding information on the antibiotic therapy and

> no replies to first inquiry.

Besides rheumatic.org, check out the book " The New Arthritis Breakthrough "

by Henry Scammel. This is a must-read, for information and inspiration. It

should be available online and at major bookstores, hopefully at your

library, too.

> 1.) Does the therapy have to involve IVs, needles, etc.? Can it be

> pill or liquid form only?

Many people take minocycline orally, and for many this is enough. I think

minocycline mostly comes in capsules, but that is undoubtedly within the

scope of your question.

Some do require the IV treatments.

> 2.) Why do the antibiotics have to be brand name? What is wrong with

> generic? I read that in the text info that is posted in the files

> section.

You do not necessarily need the brand name, but if in doubt, that is the

surest way to go. I have had success with minocycline, both the old Wyeth

generic (which was said to be equivalent to the brand but is no longer

available) and with two of the generics which are commonly available now.

Those generics are by and Teva. If you cannot afford or obtain the

brand name, try to find one of those generics, or try to buy the Stiefel

brand from Canada.

Read more about our various experiences with brand and generics in Harald

Weiss's notes on minocin

http://www.tmgp.com/minocin.htm

> 3.) How do I find a local doctor who understands the therapy? The

> link provided in the info is no longer working.

That part is different for everyone. Where are you located?

Have you discussed this with your GP or dermatologist? Often those

individuals will try the minocycline therapy, even though they never have in

the past used it for arthritis. Your dermatologist may know more about

minocycline.

> Does anyone have any advice for someone to get started?

Your first question here included a question about safety during pregnancy

and nursing. You should not use minocycline in either of these

circumstances. You need a good doctor's advice here, we are not qualified to

advise you, although you may hear from other women who ha been through the

experience, and tell you how their physicians handled this issue. But you

need a doctor's advice on this.

> Thank you,

> Brande

[Guest guest]

Ute, Thank you! I will just keep checking.

Cordially,

Brande

>

> Brande,

> I checked, and www.rheumatic.org seems to be down at the moment. I'm

sure

> it will be up again. That's where all the information is located that

> relates to the antibiotic protocol many of us are on . Many stories

of

> people on this list are also there. Keep checking.

> Take care,

> Ute

>

[Guest guest]

Dear Martha,

Thank you so much for taking the time to reply, for answering my

questions and for sharing your experience! That all makes more sense

to me now - however, I was really hoping that generic would be an

option because we have the $4 walmart generics here. I am so happy

that it is possible to do the treatment without IVs. I am so phobic

and have tried for years to overcome my fear of needles or at least

become more tolerant of them - no change, I am feeling shaky and a

bit queasy just typing about it.

I will look up the information you provided and go to the website.

Thank you so much!

Brande

>

> Brande... try going to rheumaticsupport.net/

> As far as I know it is still up and running. Also google The

Roadback

> Foundation. Either of these sites can help you find a doctor in

your area.

> I came to antibiotic therapy after eight years of standard

treatment.

> My disease was well entrenched and many of the docs would like to

start out

> long standing cases of RA with intravenous antibiotics. However,

because I was

> traveling a long distance, had to pay for everything myself, I

asked the doc

> to just try the Minocin in pill form for a few months and it

worked wonders.

> Did not need the IV's at all. I have been mostly in remission

for six

> years now and still doing great. My local doctor (a general

practitioner) is

> happy to give me the Minocin. I gave him a copy of Henry

Scammells book The

> arthritis Breakthrough.

> I started with A great doctor in Dalton, Georgia and have

spent the

> last five years going to ones in Nashville, Tennessee. I have

found most

> rheumatologists refuse to have anything to do with Minocin, most

gen practitioners

> take one look at my lab tests from my AP doctor and are glad to

prescribe

> it. Most had heard of the treatment, just never had any proof

that it worked!!

> Compared to my friends who stayed with traditional treatments, I

can run

> circles around them. My disease has stayed in remission, and

when stress or

> something starts the aches and pains.....I go back to the 100 mg

twice a day

> pills and poof!!! Back in remission.

> Why use name brand Minocin you ask??? Mainly because the name

brand is

> time released and stays in the body longer. That keeps the

mycoplasmas at

> away better. Those it does not remove go into hiding (remission)

to await a

> time they feel they can come back...like when your immune system

is low, you are

> tired, or you are really stressed. That's why sleeping well,

good diet and

> hopefully a life that keeps stress low are so good for us. Just

my story

> of what happened to me. Good luck, Hope you give this a try.

Martha

>

>

>

[Guest guest]

Dear

Thank you! Well, if I can't take it until after baby and nursing,

that gives me plenty of time to research, get and read the book and

find a local doctor. And, lots of time to read the past postings. I

appreciate your responce very much!

My mother suffers from Lupus, I am going to pass all of this on to

her and hopefully it can help her!

Thank you,

Brande

>

> > I am having trouble finding information on the antibiotic therapy

and

> > no replies to first inquiry.

>

> Besides rheumatic.org, check out the book " The New Arthritis

Breakthrough "

> by Henry Scammel. This is a must-read, for information and

inspiration. It

> should be available online and at major bookstores, hopefully at

your

> library, too.

>

> > 1.) Does the therapy have to involve IVs, needles, etc.? Can it

be

> > pill or liquid form only?

>

> Many people take minocycline orally, and for many this is enough. I

think

> minocycline mostly comes in capsules, but that is undoubtedly

within the

> scope of your question.

>

> Some do require the IV treatments.

>

> > 2.) Why do the antibiotics have to be brand name? What is wrong

with

> > generic? I read that in the text info that is posted in the files

> > section.

>

> You do not necessarily need the brand name, but if in doubt, that

is the

> surest way to go. I have had success with minocycline, both the old

Wyeth

> generic (which was said to be equivalent to the brand but is no

longer

> available) and with two of the generics which are commonly

available now.

> Those generics are by and Teva. If you cannot afford or

obtain the

> brand name, try to find one of those generics, or try to buy the

Stiefel

> brand from Canada.

>

> Read more about our various experiences with brand and generics in

Harald

> Weiss's notes on minocin

>

> http://www.tmgp.com/minocin.htm

>

> > 3.) How do I find a local doctor who understands the therapy?

The

> > link provided in the info is no longer working.

>

> That part is different for everyone. Where are you located?

>

> Have you discussed this with your GP or dermatologist? Often those

> individuals will try the minocycline therapy, even though they

never have in

> the past used it for arthritis. Your dermatologist may know more

about

> minocycline.

>

> > Does anyone have any advice for someone to get started?

>

> Your first question here included a question about safety during

pregnancy

> and nursing. You should not use minocycline in either of these

> circumstances. You need a good doctor's advice here, we are not

qualified to

> advise you, although you may hear from other women who ha been

through the

> experience, and tell you how their physicians handled this issue.

But you

> need a doctor's advice on this.

>

> > Thank you,

> > Brande

>

[Guest guest]

Hi all,

rheumatic.org is up and running so some of you must be having trouble

somewhere along the line accessing it.

Chris.

On 04/02/2007, at 6:17 AM, Ute wrote:

> Brande,

> I checked, and www.rheumatic.org seems to be down at the moment. I'm

> sure

> it will be up again. That's where all the information is located that

> relates to the antibiotic protocol many of us are on . Many stories of

> people on this list are also there. Keep checking.

> Take care,

> Ute

[Guest guest]

I take pills and am doing very well.

rheumatic Can Antibiotics be in Pill Form Only?

I am having trouble finding information on the antibiotic therapy and

no replies to first inquiry.

1.) Does the therapy have to involve IVs, needles, etc.? Can it be

pill or liquid form only?

2.) Why do the antibiotics have to be brand name? What is wrong with

generic? I read that in the text info that is posted in the files

section.

3.) How do I find a local doctor who understands the therapy? The

link provided in the info is no longer working.

Does anyone have any advice for someone to get started?

Thank you,

Brande

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[Guest guest]

I am taking generic and am doing very well. the generic by watso.

rheumatic Can Antibiotics be in Pill Form Only?

I am having trouble finding information on the antibiotic therapy and

no replies to first inquiry.

1.) Does the therapy have to involve IVs, needles, etc.? Can it be

pill or liquid form only?

2.) Why do the antibiotics have to be brand name? What is wrong with

generic? I read that in the text info that is posted in the files

section.

3.) How do I find a local doctor who understands the therapy? The

link provided in the info is no longer working.

Does anyone have any advice for someone to get started?

Thank you,

Brande

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[Guest guest]

Brande... That is the thing about Antibiotic therapy, everyone is so

different. You can always start with the generic and switch to the standard if

you find it does not work. You can start at a low dose and increase as

necessary. I needed the name brand twice a day to achieve remission, others

made it

on the three day a week schedule. I use the three day schedule to maintain

my remission. Each of us is different. I do believe it is best to start on

the name brand if you can possibly afford it and do the larger daily dose if

possible. The biggest problem to this therapy in my opinion is the patience

and persistence you must have to. We are used to quick fixes in our dealings

with modern medicine and this is definitely a slow road to recovery. People

get exasperated and quit before they finally turn that last corner. Some,

like myself, take a few months to come around....others take a few years. It

is difficult to be patient while you are hurting.

If I ever come out of remission and cannot get back in...I will definitely

use the IV's as a back up. Life has been to good on the Minocin to give it

up easily. Martha

[Guest guest]

Brande,

I hope my answers below help you out.

~Jeff

>Can Antibiotics be in Pill Form Only?

>Posted by: " Brande " brandewood@... brandewood

>Sat Feb 3, 2007 10:09 am (PST)

>I am having trouble finding information on the antibiotic therapy and

>no replies to first inquiry.

>1.) Does the therapy have to involve IVs, needles, etc.? Can it be

>pill or liquid form only?

The method for AP(antibiotic protocol) varies from person to person, but I

believe most start out with the pill form of minocycline, then add or change to

another antibiotic if that doesn't work. IVs are for those that don't respond to

the pill form. Learn more by going to www.rheumatic.org

>2.) Why do the antibiotics have to be brand name? What is wrong with

>generic? I read that in the text info that is posted in the files

>section.

I don't know why the generics have not been working as well as the brand-name

Minocin, but I think that it is fairly well documented based on experience.

>3.) How do I find a local doctor who understands the therapy? The

>link provided in the info is no longer working.

You can find a good, holistic doctor in your area by visiting www.acam.org

" Holistic doctors " use both traditional methods (ie. antibiotics) as well as

naturopathic methods (ie. vitamins, minerals, herbs, enzymes, natural hormones,

etc)

>Does anyone have any advice for someone to get started?

>Thank you,

>Brande