Guest guest Posted July 31, 2004 Report Share Posted July 31, 2004 For several months, I took 10 mg of baclofen in the a.m. and again at night. About 2 weeks ago, I gradually increased the dose until I now take 20 mg in the a.m., 10 during mid-afternoon and 5 at night for a total of 35. This has helped my stiffness, but I can't keep my eyes open during the day. I sleep in my recliner in the early afternoon for 1-2 hours and again around 5-6 pm. I also fall asleep in the evening while reading or watching TV. I still sleep at night. Will this eventually go away? How long does it last? edith Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2004 Report Share Posted August 1, 2004 I guess I increased too fast. I went from 10 mg in the a.m. and before bed, to 15 in a.m., 5 in afternoon and 10 at night, then 20, 10 and 5, each increase after a week. I know you have to be careful about reducing the dose, so starting tomorrow I'll do 15, 5 and 10, then stabilize at 10, 5, 10. If that doesn't help, I'll try Zanaflex. Thanks for the input. Edith > Hi Edith, > > I gave up on Baclofen (and Zanaflex), I just couldn't shake the feeling like > a zombie. However some people have very good results. My instructions were > to start out VERY slow (about 1/4 tablet) for 3 days, then increase to 1/2 > tablet for 3 days, etc. I still have the directions for Zanaflex and it was 4 > mg tables. It states > > morning noon evening > 0 0 1/2 tablet > 0 1/2 1/2 > 1/2 tab 1/2 1/2 > 1 tab 1/2 1/2 > 1 1 1/2 > 1 1 1 > 1-1/2 1-1/2 1 > > you get the idea (remember this is the Zanaflex directions but was the same > idea for Baclofen) -- goes like this increasing dose every 7 days with a > maximum of 2 tablets. I think you just have to go nice and slow. And best of > luck, mine didn't help with spasticity so you at least get that benefit! > > . > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2004 Report Share Posted August 1, 2004 Hi Edith, I take 5 mg Baclofen at 8 am, 5 at 3 pm and 10 at 10 pm. This works for me. Have been on it for 2 yrs. Was told 60 mgs a day but couldn't handle it. Neuro said coincidence but when I increased to 60 a day is when I had to go to walker. Baclofen also relaxes the bladder. Sleepiness, gee, I wish! Nothing makes me sleep. I lay on one side at nite for about an hr, wake up with hip or leg hurting, turn to other side, same thing, finally lay on back for about an hr and wake up with leg or ankle hurting. Sleep with pillow between legs that helps some. Klonopin, .25 mgs, gives me a " jump-off " in the am. Good luck with your PCP and pass on any good info you get. Arlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2004 Report Share Posted August 1, 2004 --Arlene, I had terrible hip pain too, until I bought that memory foam pad from Penny's. It is 100 times more comfortable than those egg carton foam pads. I ordered it out of there catalog. I think it is a little more now. They have a whole bed like it, but it is pretty expensive. I think has one. CarolynIn PLS- FRIENDS , riddlea@w... wrote: > Hi Edith, > I take 5 mg Baclofen at 8 am, 5 at 3 pm and 10 at 10 pm. This works for > me. Have been on it for 2 yrs. Was told 60 mgs a day but couldn't handle > it. Neuro said coincidence but when I increased to 60 a day is when I > had to go to walker. Baclofen also relaxes the bladder. > Sleepiness, gee, I wish! Nothing makes me sleep. I lay on one side at > nite for about an hr, wake up with hip or leg hurting, turn to other > side, same thing, finally lay on back for about an hr and wake up with > leg or ankle hurting. Sleep with pillow between legs that helps some. > Klonopin, .25 mgs, gives me a " jump-off " in the am. > Good luck with your PCP and pass on any good info you get. > Arlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2004 Report Share Posted August 1, 2004 --Arlene, I had terrible hip pain too, until I bought that memory foam pad from Penny's. It is 100 times more comfortable than those egg carton foam pads. I ordered it out of there catalog. I think it is a little more now. They have a whole bed like it, but it is pretty expensive. I think has one. CarolynIn PLS- FRIENDS , riddlea@w... wrote: > Hi Edith, > I take 5 mg Baclofen at 8 am, 5 at 3 pm and 10 at 10 pm. This works for > me. Have been on it for 2 yrs. Was told 60 mgs a day but couldn't handle > it. Neuro said coincidence but when I increased to 60 a day is when I > had to go to walker. Baclofen also relaxes the bladder. > Sleepiness, gee, I wish! Nothing makes me sleep. I lay on one side at > nite for about an hr, wake up with hip or leg hurting, turn to other > side, same thing, finally lay on back for about an hr and wake up with > leg or ankle hurting. Sleep with pillow between legs that helps some. > Klonopin, .25 mgs, gives me a " jump-off " in the am. > Good luck with your PCP and pass on any good info you get. > Arlene Quote Link to comment Share on other sites More sharing options...
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