Re: Have any of ya'll ever had to go by ambulance for spasms in...

[Guest guest]

June, what I don't see in that list is one of the newer muscle relaxers

(baclofen, zanaflex). I have a baclofen pump so my baclofen is kept at a

steady state night and day. Also I have found quinine to be very helpful

and have added neurontin about a year ago. My spasms are few and far

between now and not terribly painful. Lavon

At 11:34 AM 8/9/2004, you wrote:

>Thanks , has had PLS since 2001 and he thinks he had it also in 2000,

>and he takes vicodan, valium, sleeping pill every night and mirapex and he

>still

>is up and down all night, so it appears to me that those are not helping - I

>am going to let his dr. know all this. Thanks, June bug

>

>

>

[Guest guest]

Hi June,

I take Celebrex 200 mg. 2x a day for pain and it helps plenty, maybe you should

ask the doctor about giving him something for the pain. So sorry he's going

through this, I know it's bad, but it will get better. I'll be in prayers.

Take care and...

God Bless

Yoly

Re: Have any of ya'll ever had to go by ambulance for

spasms in...

Thank you Yolanda for e-mailing me back, yes he walks the rails and does all

of his exercises - has therapy 3 times a week and hot baths (shower) and all

that but his legs/hips hurt all the time he says even though he is on all this

medicine so I was just wondering if any of ya'll ever get without pain or etc.

Thanks, June bug

[Guest guest]

Thank you soooooo much Yoly, you are so sweet and I appreciate your prayers.

June bug

[Guest guest]

Hi Lavon, yes Charlie takes Baclofen too and quinne but he still has those

darn jumping legs - spasms and hurts every day.

Sorry about the big print above, but I just can't figure Charlie out, his

speech is a little worse and I am just going to keep on. thanks and God Bless.

June bug