Thanks for encouragement

August 14, 2004

Kirk,

You are going about it the right way as saying one day at a time. There are days

I can get a whole lot done, then there are days that I feel like a rag doll.

This group has helped in so many different ways, I have cried, laughed and have

met just fantastic friends. I have only met one PLS friend but feel I know each

and everyone personally.

I too have a very loving and careing family, that means so much to me. I have a

fantastic hubby and two of the greatest sons around.

I too have problems with the cold, but mainly I have troubles with the heat, I

feel like a wilted flower if I get over heated. I have never been a sweater

until the last couple of years, now it just rolls off me.

Tell your wife hi for me and let her know she is more than welcome to post her

concerns or questions also, its not just you going threw this disease she also

is.

Have a great day, Sandy

Thanks for Encouragement

Thanks to all who responded. The adjustment to this diagnosis isn't

as easy as I thought. I had, over the past year, resigned myself to

probably not making it another year based on how rapidly my symptoms

were getting worse. Now I have to accept a probable long life

basically the way I am. It sounded easy (a relief) at first. Then I

got to dwelling on it until I started getting depressed. Your

message, to accept and live each day doing what I CAN do and leave

the rest for tomorrow, is finally sinking in. Today was a good day,

and that's all that counts!

We are located in the beautiful hills of northern Pennsylvania. The

cold bothers me very much in the winter, but we don't have giant bugs

or hurricanes. We just moved into a small ranch house in town

(Coudersport) because I could no longer take care of our log home in

the country which we built as a family project 21 years ago. I have

a wonderful wife, and children nearby, that provide support as I need

it. I have always done everything for myself, so I find it very hard

to watch others do things for me.

I'm at 30 mg of Baclofen now, working my way up to 60. I actually

believe I can " feel " a difference already in the mobility of my

tongue and legs. I hope its a good sign.

Thanks to everyone again. I'll keep reading the posts and asking

questions as I think of them.

Kirk

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