Re: June bug

July 30, 2004

Well Ms. Sandy, I think I am doing ok. I have so many things to do since I

retired that I stay sooooooooo tired all the time. But every morning I help

Charlie get dressed around 7:45 am and then I have coffee and my toast, and he

has 1/2 cup (he drinks iced tea all day) and then my day starts and ends around

1:00 am and if his legs are jumping or etc, he is getting up when I am ready

to go to bed so there we gooooooooooooo but I must say this, I still dance

with my group of women that my daughter teaches in another town 70 miles from

here in Apalachicola, Fla. I never get to rehearsal but a couple of times

before

a show but I get a video to watch and learn by thank goodness and since I

used to teach my daughter longgggggggg time ago she thinks I am suppose to learn

it over time but I just wing it, I try to get behind someone real big and hide

the whole show. We do Jazz, tap, clogging, ballroom (this year we did a

tango routine) but the reason I am telling you this is I do get to do something

every now and then that I love, but mostly try to take care of Charlie's needs

as he has always been so active and now his life has changed. I just hope and

pray that a miracle will happen and they will find a cure for PLS. He has 2

wheelchairs so sometimes I just get in the other one and sit with him watching

tv, I don't know why I do that, it's just different. We went to Orlando, Fl

recently like last week for a National dance competition July 11th and we had

a horrible time in what they called a handicapped room, Charlie couldn't even

get his wheelchair in the bathroom door so after arguing with them, they moved

us to another room, a " drive in shower " ....ha ha and he was able to get thru

the door. I wish I was smart enough to lobby for the handicapped cause there a

re so many things that I hate for the handicapped that I would just talk

myself to death to all our Senators and Representatives telling them all the

things " we all need " . Love and kisses to you too. June Bug

August 1, 2004

I wish I could see you and the girl do your dance's. It sounds like you all have

a blast. I have never been coordinated enough to dance. Before my hubbys stroke

he loved to dance, so we would go out with friends and he would get out on the

floor and shake his booty with our friends.

I am so sorry you and Charlie had such a hard time with the rooms you had. I

think people that dont have a disability need to act like they have one once in

awhile, like put them in a wheel chair and let them know how difficult things

can be. After my hubby had his stroke, which effects his left side. I had my

boys tie there left arm up so they couldnt move it, and had them put a weight

around there left ankle.

They said they wanted to know how it felt so they could relate to Bills

disability. They only lasted 1 hour and said o.k thats enough. They understood

better then.

Well I need to get out in the yard before it gets to hot. Have a great day,

Sandy

Re: June bug

Well Ms. Sandy, I think I am doing ok. I have so many things to do since I

retired that I stay sooooooooo tired all the time. But every morning I help

Charlie get dressed around 7:45 am and then I have coffee and my toast, and he

has 1/2 cup (he drinks iced tea all day) and then my day starts and ends

around

1:00 am and if his legs are jumping or etc, he is getting up when I am ready

to go to bed so there we gooooooooooooo but I must say this, I still dance

with my group of women that my daughter teaches in another town 70 miles from

here in Apalachicola, Fla. I never get to rehearsal but a couple of times

before

a show but I get a video to watch and learn by thank goodness and since I

used to teach my daughter longgggggggg time ago she thinks I am suppose to

learn

it over time but I just wing it, I try to get behind someone real big and hide

the whole show. We do Jazz, tap, clogging, ballroom (this year we did a

tango routine) but the reason I am telling you this is I do get to do

something