Re: Patty; was,Re: sudden blood pressure drop

[Guest guest]

thmicom wrote:

> Hi Patty,

>

> I've been studying CFS-FMS. My thinking is that CFS-FMS can

> progress into type 2 diabetes. If my hypothesis is correct CFS-FMS

> is a condition which is the result of impaired metabolism. Which I

> think type 2 diabetes may have some similar roots.

>

> Since you seem to be aware of low blood volume in yourself, I

> wonder if you may have observed some other symptoms in yourself that

> are common in CFS-FMS?

The dehydration/low blood volume began when I was a small child. I

have been kept in the ER or hospitalized many times for it. One

problem is that I choke when I drink water. Another is that I just

don't " care " if I am thirsty. It registers, but I don't get the urge

to do anything about it.

I know nothing about those initials. I just looked them up on the

internet.

> cognitive impairment, difficulty remembering things. This I think

> is connected to low blood volume and blood pH being too alkaline.

I was diagnosed with autism when I was about 6 or 7 (about 1951/1952).

A lot of my symptoms are consistent with autism. I also have more

recent diagnoses of Central Auditory Processing Disorder, visual

scanning problems, learning disabled - not otherwise specified. I have

zero built-in concept of time, which leads to extreme Executive

Function problems -- I can't remember to stop doing one thing and do a

different thing. However, my long-term memory is extraordinarily

complete and detailed. Extreme sensitivity to being touched, to

smells, to sounds and light are consistent with autism. My

difficulties with spoken language and language-based thinking are

consistent with autism.

> light headed upon getting up, or occasional dizziness when standing.

Only if I have recently eaten, after a long fast since the previous

meal.

> shallow breathing, also related to blood being too alkaline.

I forget to breathe, and have great difficulty coordinating my

breathing with efforts to speak more than a few words at a time. This

is another symptom that is consistent with autism.

> fatigue

I wasn't all that fatigued until my ex-spouse dumped me overseas with

two kids to raise on my own, after which I worked two and three jobs at

a time for about 15 years. At one point I had hypnogogic hallucinations

(caused by lack of sleep), and have been VERY slowly recovering some

semblance of health since a near-collapse I had about ten years ago

from overwork/under-nutrition.

> What is more common to FMS and may not be so common in diabetes is

> the all over the body aching.

I have a very high pain threshold. I usually don't notice I have hurt

myself until some time later, then can't figure out how it happened. I

have noticed an occasional " achy " day, especially when the weather is

changing. But I'm 60 years old. Isn't that " normal " for my age?

> digestive problems such as acid reflux and irritable bowel.

Celiac disease, untreated for 55 years (after having been diagnosed

about 1950 and dx ignored), and chronic reflux.

> All the best,

> Jim

After all that, I am wondering, " Best of what???? "

Patty

[Guest guest]

thmicom wrote:

> Hi Patty,

>

> I've been studying CFS-FMS. My thinking is that CFS-FMS can

> progress into type 2 diabetes. If my hypothesis is correct CFS-FMS

> is a condition which is the result of impaired metabolism. Which I

> think type 2 diabetes may have some similar roots.

I'm continuing to answer this, as I was continuing to mentally process

the information all night long (weird dreams!). I think sharing this

information is a good thing. I notice that people specialize in their

particular interests, and things commonly known in one doctor or

patient group are not known across the various fields to be common to

all the groups.

To begin, I was diagnosed with the celiac disease (gluten intolerance)

about age 7, and I have memories back to then of being frantically

hungry well before mealtime. I have a history of LOW blood glucose

events, and still get amazing lows in spite of being Type 2 diabetic.

The lows were so threatening when I took diabetes medications that I

(personally, not advice for anyone else) felt I had to stop taking them

to prevent disaster. This led me to a research prowl of the internet

to find alternative ways to control my blood glucose levels.

> Since you seem to be aware of low blood volume in yourself, I

> wonder if you may have observed some other symptoms in yourself that

> are common in CFS-FMS?

Yesterday, I looked up those initials and " conditions or syndromes " on

the internet. So, with my slow processing of language, I was busily

coming up with ideas all evening and all night, and woke suddenly this

morning mulling over symptoms.

> cognitive impairment, difficulty remembering things. This I think

> is connected to low blood volume and blood pH being too alkaline.

I think we can assume that if I have a diagnosis of autism, and

everyone who knows me agrees with it, that I am some kind of cognitive

impairment!

The " difficulty remembering things " seems (to me) to be more a problem

of brain organization or slow processing than actual forgetting. I can

almost always remember something later, when it's too late. I also

suddenly get a " rush " of memory of a temporarily-misplaced idea if I am

reminded of it.

> light headed upon getting up, or occasional dizziness when standing.

Yesterday's answer: Only if I have recently eaten, after a long fast

since the previous meal.

Today's answer: As a pattern, frequently in the past, before I

developed such high blood pressure, yes.

> shallow breathing, also related to blood being too alkaline.

Shallow breathing BUT a higher than usual oxygen saturation of the

blood outside the brain (of course, we have never tested the saturation

INSIDE the brain, but I have my suspicions, based on my behavior ...).

> fatigue

Yesterday's answer: perfectly logical reason to be exhausted.

Today's answer: I had some chronic fatigue symptoms before I went

gluten free eight years ago. Muscle pain when walking, great

difficulty rising out of a chair and walking across a room. These have

actually improved so much, and I am so much less aware of them, that I

considered that " all gone. " However, I still collapse if I push myself

at all (having to recover with a few " sick days " in bed just from

spending a weekend having fun, or attending two events in a week- -

like a meeting plus church). One of the things I discovered in my

research is the helpfulness of guaifenesin in relieving symptoms of

chronic fatigue, and I have used that for about five years. I become

bedridden with exhaustion and sinus/ear problems within a few days if I

stop taking the guaifenesin.

However, anyone reading this should know that collapse after intense

effort (even intellectual effort -- listening, speaking, being with

people) is a characteristic of autism. Also, it was recently shown

that people with autism have an inflammation process in their brains,

which hasn't been investigated further yet. I have to wonder if people

with chronic fatigue syndrome have that, also.

Yesterday, I read that people with chronic fatigue have channels in

their fingernails. I have bizarre channeling in mine, and so does my

life partner, who also has collapses and drives himself too hard. I

also know that this channeling and chipping of nails is a well-known

phenomenon to people who exchange information on the Celiac email list.

So we have another overlapping connection between the

celiac/gluten/autoimmune group and the chronic fatigue group and this

diabetes group.

Another interesting point: We know that Ayurvedic and Chinese medicine

consider the immune system and the neurological system to be " the same "

system, and that " it just works " to treat them that way in their

medical practice. So, here is another example of

mysteriously-connected immune/auto-immune/neurological connections that

we don't yet understand in Western medicine --autism as an immune

disorder found in the brain, chronic fatigue as a vague perhaps-immune

condition that seems connected to brain dysfunction of some sort.

This could certainly use more research!!

> What is more common to FMS and may not be so common in diabetes is

> the all over the body aching.

Yesterday's answer: I have a very high pain threshold.

Today's answer: That threshold is for cuts and bruises, and for

getting blisters. But after the injury swells up, I feel a great deal

of pain from it. Also, I perceive pressure as pain, which I attributed

to autism in my lifelong efforts to avoid being squeezed or pushed by

people near me. So, there may be a connection between my touch

avoidance and the " fascia " pain described in chronic fatigue syndrome.

> digestive problems such as acid reflux and irritable bowel.

addressed that

> All the best,

> Jim

Food for thought, certainly.

Patty

[Guest guest]

thmicom wrote:

> Hi Patty,

>

> I've been studying CFS-FMS. My thinking is that CFS-FMS can

> progress into type 2 diabetes. If my hypothesis is correct CFS-FMS

> is a condition which is the result of impaired metabolism. Which I

> think type 2 diabetes may have some similar roots.

I'm continuing to answer this, as I was continuing to mentally process

the information all night long (weird dreams!). I think sharing this

information is a good thing. I notice that people specialize in their

particular interests, and things commonly known in one doctor or

patient group are not known across the various fields to be common to

all the groups.

To begin, I was diagnosed with the celiac disease (gluten intolerance)

about age 7, and I have memories back to then of being frantically

hungry well before mealtime. I have a history of LOW blood glucose

events, and still get amazing lows in spite of being Type 2 diabetic.

The lows were so threatening when I took diabetes medications that I

(personally, not advice for anyone else) felt I had to stop taking them

to prevent disaster. This led me to a research prowl of the internet

to find alternative ways to control my blood glucose levels.

> Since you seem to be aware of low blood volume in yourself, I

> wonder if you may have observed some other symptoms in yourself that

> are common in CFS-FMS?

Yesterday, I looked up those initials and " conditions or syndromes " on

the internet. So, with my slow processing of language, I was busily

coming up with ideas all evening and all night, and woke suddenly this

morning mulling over symptoms.

> cognitive impairment, difficulty remembering things. This I think

> is connected to low blood volume and blood pH being too alkaline.

I think we can assume that if I have a diagnosis of autism, and

everyone who knows me agrees with it, that I am some kind of cognitive

impairment!

The " difficulty remembering things " seems (to me) to be more a problem

of brain organization or slow processing than actual forgetting. I can

almost always remember something later, when it's too late. I also

suddenly get a " rush " of memory of a temporarily-misplaced idea if I am

reminded of it.

> light headed upon getting up, or occasional dizziness when standing.

Yesterday's answer: Only if I have recently eaten, after a long fast

since the previous meal.

Today's answer: As a pattern, frequently in the past, before I

developed such high blood pressure, yes.

> shallow breathing, also related to blood being too alkaline.

Shallow breathing BUT a higher than usual oxygen saturation of the

blood outside the brain (of course, we have never tested the saturation

INSIDE the brain, but I have my suspicions, based on my behavior ...).

> fatigue

Yesterday's answer: perfectly logical reason to be exhausted.

Today's answer: I had some chronic fatigue symptoms before I went

gluten free eight years ago. Muscle pain when walking, great

difficulty rising out of a chair and walking across a room. These have

actually improved so much, and I am so much less aware of them, that I

considered that " all gone. " However, I still collapse if I push myself

at all (having to recover with a few " sick days " in bed just from

spending a weekend having fun, or attending two events in a week- -

like a meeting plus church). One of the things I discovered in my

research is the helpfulness of guaifenesin in relieving symptoms of

chronic fatigue, and I have used that for about five years. I become

bedridden with exhaustion and sinus/ear problems within a few days if I

stop taking the guaifenesin.

However, anyone reading this should know that collapse after intense

effort (even intellectual effort -- listening, speaking, being with

people) is a characteristic of autism. Also, it was recently shown

that people with autism have an inflammation process in their brains,

which hasn't been investigated further yet. I have to wonder if people

with chronic fatigue syndrome have that, also.

Yesterday, I read that people with chronic fatigue have channels in

their fingernails. I have bizarre channeling in mine, and so does my

life partner, who also has collapses and drives himself too hard. I

also know that this channeling and chipping of nails is a well-known

phenomenon to people who exchange information on the Celiac email list.

So we have another overlapping connection between the

celiac/gluten/autoimmune group and the chronic fatigue group and this

diabetes group.

Another interesting point: We know that Ayurvedic and Chinese medicine

consider the immune system and the neurological system to be " the same "

system, and that " it just works " to treat them that way in their

medical practice. So, here is another example of

mysteriously-connected immune/auto-immune/neurological connections that

we don't yet understand in Western medicine --autism as an immune

disorder found in the brain, chronic fatigue as a vague perhaps-immune

condition that seems connected to brain dysfunction of some sort.

This could certainly use more research!!

> What is more common to FMS and may not be so common in diabetes is

> the all over the body aching.

Yesterday's answer: I have a very high pain threshold.

Today's answer: That threshold is for cuts and bruises, and for

getting blisters. But after the injury swells up, I feel a great deal

of pain from it. Also, I perceive pressure as pain, which I attributed

to autism in my lifelong efforts to avoid being squeezed or pushed by

people near me. So, there may be a connection between my touch

avoidance and the " fascia " pain described in chronic fatigue syndrome.

> digestive problems such as acid reflux and irritable bowel.

addressed that

> All the best,

> Jim

Food for thought, certainly.

Patty

[Guest guest]

E. wrote:

> This led me to a research prowl of the internet

> to find alternative ways to control my blood glucose levels.

What alternatives did you discover?

Amber