Guest guest Posted March 16, 2003 Report Share Posted March 16, 2003 Nice to meet you clennister, I am sharon I too am fairly new here, it is truly a great place and I have received a LOT of great help and advice and support. I Like scroll back looking for the start of a message as well . I hope you find this group as HELPFUL and NICE as I have, they have been Great for me (I was only diagnosed about 6 months ago and with HMS in August 2001). Sharon (Shazinoz) from Canberra, Australia > Hi everyone. I am newly diagnosed (known for a while, though) with > HMS and awaiting confirmation of hypermobile EDS (EDS III). > > I don't normally put in a message just to say hello, but I can't work > this board and I am hoping someone will come to my rescue! > > I can find all the replies once I have located the beginning of the > message, but how on earth do you find the original question when all > you have is the reply?! I am going off my head trying to read this > thing. > > Hope you can rescue me. Oh, and hi to , I am Clara/Clarabel from > the EDNF and HMS boards... Hi. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 Sabi, Welcome to the group, I'm Lori. I live in Florida, near Ft. Lauderdale, am single/no kids sadly, and am 32 years old. My family is far away from me and I have lost most of my friends due to the RSD as most of us have. This is a great group and you will find we understand what you are going through more than anybody, as we are all going through it too. I am still working at the momen, only because my company is letting me work at home for the most part, but the RSD has spread through my whole body and my hands are getting worse and worse. I don't know how much longer I will be able to work. I'm basically bed-ridden, only go to the office sometimes and the grocery store. Everything else I do online. Many of us have had to adjust our lifestyle because of the RSD, and many feel as you do - alone and isolated. How is your son with all of this? Does he and his girlfriend live near you? I hope that he is near you and that he is supportive. Anyway, I'm glad that you introduced yourself and I look forward to getting to know you better. You will find that this is a warm, supportive, upbeat group of people...you have found a home here. I hope that you have a good day today. I don't remember what the time difference is, if you could let me know I would appreciate it. Also, I love the name you gave it, I will have to remember that! You mentioned the RSD is in your right arm, but you did not say how you got it...if you want to that is, if not that is fine too. Well I will stop asking all the questions....welcome again! <hugs> Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 Welcome Dawn. Everyone here is great, they will answer any questions you have, etc. Tell us a little about yourself.. how did you get RSD? What kinds of treatments, meds, etc. have you been using? Hugs, Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 Hi sabi, welcome my austrailian friend.Me a kiwi.I have a daughter with rsd she is 14 this is her 4th year with this problem.Vicki lost alot of her friends over the past 4 years.The only true friends seem to be those that have long term illness of differing degrees. My husbands brother also has rsd and my husband is suspected of having it in his neck.And now my phsio is question my back pain as it.So we are keeping it in the family. Its a devistating disorder not just because of the pain but the emotional impact and the total disrupting to goals and plans. So many in the support groups often only cope with hour to hour rather than day by day. Please know anytime you need a box of tissues or just want to vent i offer support.I cannot say to you i know how you feel that would be unfair of me as i have noticed this syndrome effects people in different ways.But friendship i do offer. I am 37 mother of 5 girls one deseased and ages ranging from 14 down to 7.Married 18 years in november and have my mother living with us.She is 83.So we are a household of 7.Plus two rabbits they are called Gin and tonic and 3 cats and four goldfish.Plus assorted visitors who leave there worries but hay they have to leave them somewhere lol!! WELCOME TO THE GROUP. lois and vciki from christchurch NewZealandsabcha1962 wrote: Hi I am a new member of this group and just wanted to introduce myself.I have suffered for the last year with complex regional pain syndrome..which I now would like to call completly rational person syndrome... hense having been treated like a nut case for the past yr and a half.I live in melbourne, australia and hve lost a few friend due to this horrid situation.I am only 41 and feel that my life is now at a transitional phase... transitional as Im still not sure what and how I will be the person I used to be.I was a practice manager for a dr for 10 yrs...my crps is in my right arm.... and only one mth ago I lost my job.I am single and have a 23 yr old son who lives with his beautiful girlfriend of 4 and a half yrs..The isolation is as hard as the pain.regardssabi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 I don't even know where to start. A little over two years ago I completely tore my ACL in my right knee. I told my doctor for about 8 months that something was really wrong! when he finally believed me, we found out that I had a tear in my menicus, another surgery! My knee has never been right since my first surgery. I was also recently diagnosed with optic neuritis (which basically means I lost alotof sight in my left eye and also helped in diagnosing my ms) I have also had 2 other major surgeries in the past two years. I had a large ovarian cyst and the worst abdominal adheasions my doctor said he has ever seen! I dont want to seem depressing, but if I dont laugh, Ill cry! At the moment I take methadone for my rsd and back pain, I used to take neurontin and oxycontin. I have a nurse coming to my home tommorow to show me how to give myself injections.I will be taking Avonex for my ms. The worst news of all is I just turned 40!!!!!!!!!!!!!!!!! Do you think life will get better?jomal1@... wrote: Welcome Dawn. Everyone here is great, they will answer any questions you have, etc. Tell us a little about yourself.. how did you get RSD? What kinds of treatments, meds, etc. have you been using? Hugs, Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 8, 2004 Report Share Posted June 8, 2004 Sabi - My sincere welcome to the group. Please pull up a chair, put your feet up, and know that you're not alone. Although most of us are across the sea and our toilet flushes in the opposite direction, we have an understand ing of what you're experiencing. I hope that you find us to be a warm and friendly group. Barbarasabcha1962 wrote: Hi I am a new member of this group and just wanted to introduce myself.I have suffered for the last year with complex regional pain syndrome..which I now would like to call completly rational person syndrome... hense having been treated like a nut case for the past yr and a half.I live in melbourne, australia and hve lost a few friend due to this horrid situation.I am only 41 and feel that my life is now at a transitional phase... transitional as Im still not sure what and how I will be the person I used to be.I was a practice manager for a dr for 10 yrs...my crps is in my right arm.... and only one mth ago I lost my job.I am single and have a 23 yr old son who lives with his beautiful girlfriend of 4 and a half yrs..The isolation is as hard as the pain.regardssabi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 tonia thanks for your emial. Yes I think you did email me but this one has been cement in my brain. what was a practice manager.... well I will try to elaborate.... my boss didnt know how much he had in his bank accounts x 7, companies x 6 to 8 depending on business. night clubs, medical practices , 2 or 3. personal practices.... assisting in hair transplants,,, hair removal... minor surgerys... it was all so exciting to me.... now its just a blurrrrrrr. I was a all rounder if that is any excuse for being a total idiot....... I put my self in this position... I used to complain to him for about a yr before my arm siezed up... but the joke was """""" he wasnt aware that I was In love with him...I was in pain for so long but I just tried to keep going to make him proud of me. for him to see that I could work as hard as he could .... Ive never in my life seen someone work as hard as my boss,,, even when his father died he was at work the next day....... so sad really..... but Im lucky he has sold the business and Im now free of him,..... with tears rolling down my face Im free... thank you for welcoming me into the group. sabiTonia wrote: Hi Sabi,I can't remember if I welcomed you to the group yet or not....(darn CRS..can't remember sh*t) so, welcome!lol, if Barbara hadn't said something, I wouldn't have even noticed that youlive in Australia....(or that the toilets flush funny...)What is a Practice Manager? Is that like being a Nurse at a Doctor's office?(s*rry, a bit 'other countries' challenged here, lol)As for being lonely and isolated.....not any more! We've all lost friends once we've been cursed with this disease and aren'table to go and do what we used to do with them. It really sucks....but, likesomeone else said....if they disappeared just because of that, they wasn't aReal friend to begin with. They was only using you for something....and onceyou couldn't do whatever it was anymore...they could care less about you.As for being in a Transitional Stage......well, inside, you will be theexact same person as you was before, just a tiny bit altered due to havingto deal with the pain. But, once you get used to RSD, and get it in yourmind that You have RSD, BUT it doesn't have you......you will still be ableto do everything you used to be able to do before, but just now inmoderation and take plenty of rest breaks inbetween.But, you really won't change too much. The Biggest change you will have isthe Mood Swings. In the morning, you might be cheerful like you used to be,but come afternoon....you are biting off anyone's heads that even dares tocome 10 foot near you or talk to you....and then that night, you realizewhat you had done and are in the sympathetic mood.Or, it could be totally mixed around. You never know....The BEST thing about having RSD? Coming into this group, that is just like adopted" brothers, sisters, Mother's, Fathers, Aunts and Uncles........andbeing able to spill your guts and fears to everyone, and actually havingsomeone else understand exactly what you are feeling.It can't happen anywhere else......(and I have been in almost every singleRSD Group there is!!!)Tonia-------Original Message-------sabcha1962 wrote: Hi I am a new member of this group and just wanted to introduce myself.I have suffered for the last year with complex regional pain syndrome..which I now would like to call completly rational person syndrome... hense having been treated like a nut case for the past yr and a half.I live in melbourne, australia and hve lost a few friend due to this horrid situation.I am only 41 and feel that my life is now at a transitional phase... transitional as Im still not sure what and how I will be the person I used to be.I was a practice manager for a dr for 10 yrs...my crps is in my right arm.... and only one mth ago I lost my job.I am single and have a 23 yr old son who lives with his beautiful girlfriend of 4 and a half yrs..The isolation is as hard as the pain.regardssabi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 Sabi - I too am continuing to work full-time and giving it my best shot. I'm not sure that we're any more medically advanced here in the States than you are down under. They run the full gamut of medications here as well as various kinds of blocks, catheters, and implants. There are also ketamine treatments and trials of thalidomide going on as well as other experimental clinical trials. How have they been treating your RSD/CRPS thus far? I have had it diagnosed in my left arm and foot and questioned in other parts of my body. In the 13 years since I was first diagnosed, I've received varying treatments with coinciding varying degrees of success. Currently I have an SCS which has been pretty problematic, a continuous axillary catheter for the next three weeks (clonidine, bupivicaine, and fentanyl directed towards the axillary nerve), and am currently using lidoderm patches and taking, flexeril and valium currently to deal with muscle spasms and contractures. The catheter, although only temporary, is providing brief and extremely welcomed respite. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 hello sabi. what caused the rsd. my name is cathy and i have had rsd for 11 years. yes i have lost my family due to the nasty disease. they cannot accept me for who i am. i am 53 and have been married for 35 years. yes it can be trying on a marriage, but so is life. write when you can and welcome to the group. cathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 my god barbara.... the amount of drugs your on would kill me... I have a strange prob with drugs..... off my face or sick,,,,, or they do nothing... my god how do you cope;;;; I dont cope and Im not on anything,,,,, mind you... I really dont cope..... the pain.... the pain..... is so intense... times I cant think......WHEN ON DRUGS I CANT MOVE OR EVEN TYPE. MY BRAIN GOES BLANK.... CANT BELIVE I DROVE ONE MORPHINE FOR 8 MTHS .... SUCH A FOOL,,,,, AM NOW ON NOTHING AND CANT SAY LIFE IS GOOD BUT AT LEAST I CAN THINK... WELL ONLY SLIGHTLY..... HA HA.... .... IF I CANT LAUGH THE RIVERS WOULD CONSUME ME.......... WHEN I JOINED THIS CLUB I THOUGHT PEOPLE COULD COMFORT ME AND HELP ME TO DEAL WITH THIS CRAP...... NOW IM SO HUMBLE AND REALISE IM LUCKY CAUSE SO MANY PEOPLE ARE DEALING WITH SO MUCH MORE CRAP...... IM ASHAMED.... MY PAIN JUST IS SO INSIGNICANT..... NEED TO GO...NITE.... SABIBARBARA TORREY wrote: Sabi - I too am continuing to work full-time and giving it my best shot. I'm not sure that we're any more medically advanced here in the States than you are down under. They run the full gamut of medications here as well as various kinds of blocks, catheters, and implants. There are also ketamine treatments and trials of thalidomide going on as well as other experimental clinical trials. How have they been treating your RSD/CRPS thus far? I have had it diagnosed in my left arm and foot and questioned in other parts of my body. In the 13 years since I was first diagnosed, I've received varying treatments with coinciding varying degrees of success. Currently I have an SCS which has been pretty problematic, a continuous axillary catheter for the next three weeks (clonidine, bupivicaine, and fentanyl directed towards the axillary nerve), and am currently using lidoderm patches and taking, flexeril and valium currently to deal with muscle spasms and contractures. The catheter, although only temporary, is providing brief and extremely welcomed respite. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 HI LORI,I WAS DIAGNOSED WITH RSD ABOUT A YEAR AGO, BUT I BELIEVE THAT I HAVE HAD IT FOR AT LEAST 2 YEARS. IT WAS AFTER MY THIRD OPINION THAT I GOT THE RSD DIAGNOSIS. I LOVE MY DOCTOR, BUT AS HE SAYS I WAS ONLY HIS SECOND PATIENT TO EVER HAVE IT. SOMETIME I FEEL LIKE A SCIENCE EXPERIMENT GONE TERRIBLY WRONG!!!!!!!!!!!!!!!!!!!!!!!!! I WAS LIVING IN ROCKLAND COUNTY N.Y.,BUT MOVED UPSTATE IN JANUARY TO BE CLOSER TO MY MOM AND WHAT FRIENDS I HAVE LEFT. I HOPE TO TALK TO YOU SOON.AlwayzLoRi@... wrote: DAWN L Dawn, Welcome to the group, I'm Lori. My RSD started in my right knee too, but has now spread through my whole body. I had reconstructive surgery and the RSD developed from that. Where do you live and how long have you had RSD? This is a wonderful group, I look forward to getting to know you better. Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 from doing laser hair removal for 4yrs 6 days per week and not really stopping for a break from 9 to 6 somedays... when not lasering I was doing the book work for 6 to 8 companies.. so complete overload.,. but having now only been in the group for 2 days am just so overwhelmed by the strength of these wonderful people... I have it bad but these people are going through a lot more than me... How did you get your rsd and what area... am sorry to hear you have lost your family... mine are there but not really if that makes sense...but have lost 3 friends which was very sad and the saddest is I have just recently lost my job as well, one that I truly enjoyed...my clients were like family.. Cant imagine the strain this would put on your partner... but hey didnt he say for better or for worse.... and its in writing... My question is does it ever get any easier... or does the pain ever go away.. had a call from a dr friend last night and she told me she has just told an 18yr that she has this condition.... this is just so unfair... sabifishthatsmiles@... wrote: hello sabi. what caused the rsd. my name is cathy and i have had rsdfor 11 years. yes i have lost my family due to the nasty disease. theycannot accept me for who i am. i am 53 and have been married for 35years. yes it can be trying on a marriage, but so is life. write whenyou can and welcome to the group. cathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 sandi thanks for your welcome and how long have you been in the group for and how long have you had your condition.. have never been able to chat to people with this condition and from the indication I get its a long term thing. sabiPINEY7@... wrote: Sabi, Welcome to the group! Hoping for Pain Free Days!Sandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 Sabi - No pain is insignificant. RSD is RSD. Please don't discount how difficult this is for you. I generally manage fairly well and thankfully I have been able thus far to keep my functioing at a level that is compatible with working. However, it's very hard sometimes. Even with meds, the other things that you do in life to help you get through the day, I think, are the most critical. Although many of us have not been able to have this arrested at an early stage and now deal with the propsect of having it for life, early intervention and treatment can make make all of the difference in the world. I personally know two people who were identified as having RSD/CRPS within the first four months of the appearance of symptoms. They received good treatment and have never had a return of symptoms. Even if the diagnosis comes late in the game, it is possible to have treatments reduce the severity of symptoms. Some of us can work. Some cannot. I would imagine that the differences between those two groups of people are more than just the severity of their symptoms. Different jobs have different demands. Additionally, each of us have different coping skill levels. I think that it's great that you've joined us and really hope that you can get some support here. It can make a huge difference. Barbarasabiha kasar wrote: my god barbara.... the amount of drugs your on would kill me... I have a strange prob with drugs..... off my face or sick,,,,, or they do nothing... my god how do you cope;;;; I dont cope and Im not on anything,,,,, mind you... I really dont cope..... the pain.... the pain..... is so intense... times I cant think......WHEN ON DRUGS I CANT MOVE OR EVEN TYPE. MY BRAIN GOES BLANK.... CANT BELIVE I DROVE ONE MORPHINE FOR 8 MTHS .... SUCH A FOOL,,,,, AM NOW ON NOTHING AND CANT SAY LIFE IS GOOD BUT AT LEAST I CAN THINK... WELL ONLY SLIGHTLY..... HA HA.... .... IF I CANT LAUGH THE RIVERS WOULD CONSUME ME.......... WHEN I JOINED THIS CLUB I THOUGHT PEOPLE COULD COMFORT ME AND HELP ME TO DEAL WITH THIS CRAP...... NOW IM SO HUMBLE AND REALISE IM LUCKY CAUSE SO MANY PEOPLE ARE DEALING WITH SO MUCH MORE CRAP...... IM ASHAMED.... MY PAIN JUST IS SO INSIGNICANT..... NEED TO GO...NITE.... SABIBARBARA TORREY wrote: Sabi - I too am continuing to work full-time and giving it my best shot. I'm not sure that we're any more medically advanced here in the States than you are down under. They run the full gamut of medications here as well as various kinds of blocks, catheters, and implants. There are also ketamine treatments and trials of thalidomide going on as well as other experimental clinical trials. How have they been treating your RSD/CRPS thus far? I have had it diagnosed in my left arm and foot and questioned in other parts of my body. In the 13 years since I was first diagnosed, I've received varying treatments with coinciding varying degrees of success. Currently I have an SCS which has been pretty problematic, a continuous axillary catheter for the next three weeks (clonidine, bupivicaine, and fentanyl directed towards the axillary nerve), and am currently using lidoderm patches and taking, flexeril and valium currently to deal ! with muscle spasms and contractures. The catheter, although only temporary, is providing brief and extremely welcomed respite. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2004 Report Share Posted June 10, 2004 Faith, Hi!!! I'm Chrystine, I am 21 yrs old and from New Jersey... I have had rsd for almost 6 years, I got it from a cortisone injection... I have rsd in both feet, both hands, and my abdomen... Chrystine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 Sabi, That is very sad about your friend saying an 18 year old has RSD. I know sometimes I feel that it is so unfair that I got this so young - and I'm 32. I could not imagine having this at 18. In this book I'm reading it says the number of cases in children are rising - that thought breaks my heart, children are so innocent and don't understand what is happening to them and have to live with this so much longer than I do....it's all so sad. I hope that you are feeling better and having a good weekend so far. <hugs> Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2004 Report Share Posted June 12, 2004 Dawn L, I have had mine for almost a year now too, though I was not diagnosed until around Feb/March of this year and am still sitting around waiting for treatment. It's so frustrating and difficult to find the right doctor. When all of this started to get real bad the surgeon who did my knee was just not listening to me or helping me, so I went to my primary doctor. I really like him too, I know how you feel, but at this point it is beyond his ability to treat me, and I respect him for being honest about that and not pretending to know alot about RSD as some doctors do. I still do not like the neurologist that I'm seeing now, and am looking for a new one but it is hard to find anyone willing to give me the level of medications that I am on, so I have to stay with him for now. How do you feel about the doctor you are seeing now...I'm assuming the one who diagnosed you? I'm so glad you were able to move closer to your mom and you friends. I am stuck here alone because I need my health insurance and money to pay my bills, but if I had a choice I would move back to be closer to my sisters too. Has your RSD spread any and are you getting any treatment right now? I hope you are having a good weekend so far and I'll talk to you soon. <hugs> Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 Welcome to the group faith im late i know but im 367 emails behind.. JBfaith burger wrote: Hi! My name is Faith. I am 41 years old & I have RSD in my left ankle & foot. I'm new to this group thing (this is my first) so I'm not quite sure what to do. I'm just glad to have someone to talk to who knows what I'm going through. My family doesn't quite get it. Sometimes I don't think they want to. Ya know what I mean? Faith Stop worrying about overloading your inbox - get MSN Hotmail Extra Storage! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 welcome to the group... There are alot of wonderful people here. enjoy JBRSDPrincess@... wrote: Faith, Hi!!! I'm Chrystine, I am 21 yrs old and from New Jersey... I have had rsd for almost 6 years, I got it from a cortisone injection... I have rsd in both feet, both hands, and my abdomen... Chrystine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2004 Report Share Posted June 16, 2004 Sabi - Well, Sabi, I can' t help but think that all of the stress and pain of RSD and you situation might be taking a toll on you. I checked back to the old emails and sure enough found numerous notes that I had written to you and, in fact, that you had responded to. I've copied just a couple of them and added them to the bottom of this note. Please know that many of us have really tried to reach out to you. I only wish that you weren't going through such a hard time right now so that maybe it would be easier for you to take in the support that some folks have tried to offer. We all know how difficult it can be to have to deal with RSD day in and day out and are doing the best that we can to be supportive to others even when we personally are going through a lot. Here are a few of the notes: From: sabiha kasar <sabcha1962@y...> Date: Wed Jun 9, 2004 12:47 am Subject: Re: new member ADVERTISEMENT barbara thankyou for your warm wishes and for the insiteful toilet info. wasnt aware of the opp flushing dynamics. will notice next time what diretion it goes..it has opened up a new insite to life and the universe.LOL. Last nite I got to send my greeting to you all and today have responded to ten people who know me by my pain and who have sent such wonderful emails.... I feel Like Im Home....evern though we are miles apart. Have tried to find a support group like this in melbourne but sadly there is non.... Hey thats an idea... maybe I can start one up. thanks again sabiBARBARA TORREY wrote: Sabi - My sincere welcome to the group. Please pull up a chair, put your feet up, and know that you're not alone. Although most of us are across the sea and our toilet flushes in the opposite direction, we have an understand ing of what you're experiencing. I hope that you find us to be a warm and friendly group. Barbarasabcha1962 wrote: Hi I am a new member of this group and just wanted to introduce myself.I have suffered for the last year with complex regional pain syndrome..which I now would like to call completly rational person syndrome... hense having been treated like a nut case for the past yr and a half.I live in melbourne, australia and hve lost a few friend due to this horrid situation.I am only 41 and feel that my life is now at a transitional phase... transitional as Im still not sure what and how I will be the person I used to be.I was a practice manager for a dr for 10 yrs...my crps is in my right arm.... and only one mth ago I lost my job.I am single and have a 23 yr old son who lives with his beautiful girlfriend of 4 and a half yrs..The isolation is as hard as the pain.regardssabi sabiha kasar wrote: Well barb this is the amazing thing about down under I have just recieved your first email. Cant explain..... feel like Im dead except for the god dam pain... it makes me know Im alive.... well if thats living....so now I get your strange response from second email which I got first....... time frame thing I spose... Yep having a really bad day and cant talk to family and really cant talk to anyone.... Im feel Ilke Im about to explode or cry my self to death... Am just so lifeless,,,, but in so much pain.... does that make sense ,,, dont really know who Im anymore.... wish I could take meds... but cant....have put on so much weight.... am a pig.... and feel so unatractive... Lost my job.... but it was more... it was ment to be my future.... my business... anyway... am so lost and feel if I say anymore I will be sorry.... thanks nite. sabi ps when anyone speaks to lori pls send my love she is such a lovely person and deserves all the best as you all do..... In god we trust.... what a load of crock... sorry Im not a believer... and now Im even worse when in pain.... he has karma to come not us.... we have gone through enoughBARBARA TORREY wrote: Awww, Sabi. It sounds like you're having one of those absolutely awful days. Those kind of days sure make it hard to see that there are days that are relatively decent and fulfilling. When I get into one of those nasty emotional spaces, I try to focus on the fact that while RSD does in fact suck canal water, things could be worse and that I have days that life looks pretty darn good. Awfully hard tho sometimes.Would it help to make a list of things that give you pleasure (and it you find yourself drifting off into garbageland try to just bring your focus back) and then pick one or two of them to do? We're not talking superwoman kind of stuff here.....just some of the simpler things that give you even a little smile inside. I hope that today looks better to you. Barbarasabiha kasar wrote: Hi everyone ... not the best way to introduce myself.... Have just had a day from hell in rehab.... just cried in pain and feel like Im back in kindergarden.... its just so hard not being on any meds....sometimes I can cope with the pain other times its just so over whelming I just sit there and cry... yes I know getting stressed or upset wont help but Im just so over this .... I used to have such a good life and feel its all gone...they have told me I may be able to work part time one day in the distant future but they cant give me any guarantees......so my life consists of sleeping when I can... and maybe a visitor once or twice a week.... I have lost my job of 10 yrs and dont think I could get any lower than I feel today... no thats not true Im sure I can slip into the void a bit further.... I see everyone else going about there lives.... and having control.... I cant even control my pain and my mind (depressed if you guys havent noticed).... Everyday is the same... rehab makes me take stuff home to read and to practice.... like looking at 82 pics and trying to work out which is a rt and which is a lt hand... kindi stuff.... and mirroring.... the newest stuff here in Australia only recently (1 yr ) found out... For anyone interested.... I have a good book have told lori about it... www.noigroup.com explains all about rsd and crps from experts here down under... ps ::: non gov funded research and is really good at explaining about the pain cycle....stimulation etc.. Anyway just needed to get some crap out of me .... not sorry I have.....am just so frustrated with me and my life.... I never used to complain but it seems to be all I do now.. Hope someone somewhere is pain free today cause if Im in this much pain and someone else isnt free just for today.... god has got some serious explaining to do sabi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2006 Report Share Posted June 29, 2006 Hi Everyone, So excited to have found this group! I am shopping for a doctor to do the lap band and I have been approved to have the surgery at Coastal Obesity Center in Orange, CA but I am looking around for recommendations. The cost is coming out of my pocket, cash and it is so expensive. Humana declined my request...of course! lol I am here looking for any recommendations in the states of CA, WA, & OR and I am excited to get to know people. Hugs, mysticpwr Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2006 Report Share Posted June 30, 2006 Mystic, I'm sure everyone will have a different opionion on doctors. I used Wish Center here in Florida, I know they have a branch in WA (Renton). I liked it because they have everyone on staff that you need to see, psychatrist / exercise physolgoist, nutriesnt, surgeon. I took the hassel out of me having to make seperate appointments with everyone and waiting for them to send things back and forth between them. Everyone was in one building so it made communication easy. They will help you with the insurance as well. I think you need to find one that your comfortable with, interview them ask them questions. If you would like to look at the Wish Center in WA their website is www.wishcenter.org. Alice mysticpwr wrote: Hi Everyone, So excited to have found this group! I am shopping for a doctor to do the lap band and I have been approved to have the surgery at Coastal Obesity Center in Orange, CA but I am looking around for recommendations. The cost is coming out of my pocket, cash and it is so expensive. Humana declined my request...of course! lol I am here looking for any recommendations in the states of CA, WA, & OR and I am excited to get to know people. Hugs, mysticpwr --------------------------------- Want to be your own boss? Learn how on Yahoo! Small Business. --------------------------------- How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2006 Report Share Posted June 30, 2006 > Hi Everyone, > > So excited to have found this group! > > I am shopping for a doctor to do the lap band and I have been approved > to have the surgery at Coastal Obesity Center in Orange, CA but I am > looking around for recommendations. The cost is coming out of my > pocket, cash and it is so expensive. Humana declined my request...of > course! lol > > I am here looking for any recommendations in the states of CA, WA, & > OR and I am excited to get to know people. > > Hugs, > mysticpwr > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2006 Report Share Posted June 30, 2006 > Hi Everyone, > > So excited to have found this group! > > I am shopping for a doctor to do the lap band and I have been approved > to have the surgery at Coastal Obesity Center in Orange, CA but I am > looking around for recommendations. The cost is coming out of my > pocket, cash and it is so expensive. Humana declined my request...of > course! lol > > I am here looking for any recommendations in the states of CA, WA, & > OR and I am excited to get to know people. > > Hugs, > mysticpwr > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2006 Report Share Posted July 1, 2006 Hi Selina, Welcome to the group, it is nice to meet you. I look forward to sharing this journey with you. It is a very big desicion and being nervous is normal. We are here for you. If you have any questions, ask away! Shauna 343/83/260 Surgery: 1-19-06 Pittsburgh, Pa. selina_doing_work wrote: 1. Name: Selina 2. City and state: Orem Utah 3. Are you a Southern California resident? n 4. Would you like to be added to our in person luncheon guest list? sure 3. Email address: 4. Obesity Help Profile name and/or OH URL:selina 5. Are you: Considering Surgery, Pre Op or Post Op 6. Date of WLS:7/11/06 7. Surgeon's Name:Dr. Cannon 8. Type of Surgery: Gastric bypass 9. Highest Pre Surgery Weight: 287 10. Insurance or self pay:insurance 11. What is the name of your insurance company that covered your WLS: 12.Birthdate: aug 13.Occupation: customer service 14.Hobbies: reading 15.Anything you would like the other members to know about you? I have been waiting to do this for 10 years now. I am very nervous. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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