New

[Guest guest]

Hi All,

I am new to the group. I live about 20 miles north of Pittsburgh

Pennsylvania. On Friday I was diagnosed with RSD. About 8 years ago

I had a deep vein thrombosis (Blood clot) under my right arm. 2

years later I developed another one. Ever since the 1st blodd clot I

have had constant achiness and swelling. Sometimes the achiness is

so bad that I can't stand to be touched. It makes me very tired all

the time. I feel useless so much of the time. After working all

day, I go home and crash in my favorite easy chair and I am out for

the day. I have no quality of life. I would not call my pain a

burning pain, but it is a deep aching pain. I don't like to be

touched on my arm. I am scheduled for QSART (autonomic) testing on

Monday. My neurlogist put me on neurontin, but I am having

coordination and memory problems since I started taking it. I called

the DR. today, waiting to see what his recomendation is about the

med.

Sorry for the rambling, but just wondering if there is anyone else

out there with a similar situation and looking for words of

encouragement. Since my right arm is my dominant arm, I'm not sure I

am going to be able to continue to work. I do a lot of typing and

computer work as part of my job all day so that is probably one

reason I am so wiped out by the end of the day.

Anyway, HI to all, and I look forward to participating in the group.

Thanks,

Sandy T.

[Guest guest]

Welcome to the group ! I am also new to the group. Isn’t Springfield

near Dayton? I live north of Richmond, IN.

Wow, three kids under 6. I feel for you! At least my kids are old enough to

cook, clean and do laundry if needed. You really need help.

~~~~~

_____

From: Fibromyalgia_Support_Group

[mailto:Fibromyalgia_Support_Group ] On Behalf Of

Sent: Saturday, November 10, 2007 2:08 PM

To: Fibromyalgia_Support_Group

Subject: New

Hi everyone,

I'm new to this group and to having FMS. I am 26 y/o, mother

of three under 6 y/o. I have been married for seven years and I live

in Springfield,Ohio with my family. It has taken me a year to be

diagnosed with FMS. All the women on my mother's side of the family

all have FMS. I am so glad I was able to find this group because I

don't know anyone besides my family that have FMS and it will be nice

to be able to chat with you all about flare ups or symptoms I'm having

and if I don't understand something I'm feeling or going through.

Anyway, thank you so much for allowing me to join this group.

[Guest guest]

***Note from Co-Owner: The reason that the scientific community doesn't use

families with a strong history of this condition in studies to find out more

about it is because every case of fibro is different. Also, alot of people with

fibro don't have a family history of fibro that we know of as of yet. In order

to find out there would be need for a huge survey to be conducted. Now that

would be very enlightening. We'll start with this group to get an idea from

members here. "

Welcome. I just don't understand why the scientific community doesn't use

families with a strong history of this condition in studies to find out more

about FM. It would seem like a sensible starting point to me. I'm sorry you

inherited it too. Nobody else in my family has been dx'd with it, though that

doesn't necessarily mean that nobody else has had it, but at least your family

understands what you are going through without having to be 'educated' about it.

That must be a comfort.

Peace and Love

Caroline

Hi everyone,

I'm new to this group and to having FMS. I am 26 y/o, mother

of three under 6 y/o. I have been married for seven years and I live

in Springfield,Ohio with my family. It has taken me a year to be

diagnosed with FMS. All the women on my mother's side of the family

all have FMS. I am so glad I was able to find this group because I

don't know anyone besides my family that have FMS and it will be nice

to be able to chat with you all about flare ups or symptoms I'm having

and if I don't understand something I'm feeling or going through.

Anyway, thank you so much for allowing me to join this group.

____________________________________________________________

FREE 3D EARTH SCREENSAVER - Watch the Earth right on your desktop!

Check it out at http://www.crawler.com/earth

[Guest guest]

***Note from Co-Owner: The reason that the scientific community doesn't use

families with a strong history of this condition in studies to find out more

about it is because every case of fibro is different. Also, alot of people with

fibro don't have a family history of fibro that we know of as of yet. In order

to find out there would be need for a huge survey to be conducted. Now that

would be very enlightening. We'll start with this group to get an idea from

members here. "

Welcome. I just don't understand why the scientific community doesn't use

families with a strong history of this condition in studies to find out more

about FM. It would seem like a sensible starting point to me. I'm sorry you

inherited it too. Nobody else in my family has been dx'd with it, though that

doesn't necessarily mean that nobody else has had it, but at least your family

understands what you are going through without having to be 'educated' about it.

That must be a comfort.

Peace and Love

Caroline

Hi everyone,

I'm new to this group and to having FMS. I am 26 y/o, mother

of three under 6 y/o. I have been married for seven years and I live

in Springfield,Ohio with my family. It has taken me a year to be

diagnosed with FMS. All the women on my mother's side of the family

all have FMS. I am so glad I was able to find this group because I

don't know anyone besides my family that have FMS and it will be nice

to be able to chat with you all about flare ups or symptoms I'm having

and if I don't understand something I'm feeling or going through.

Anyway, thank you so much for allowing me to join this group.

____________________________________________________________

FREE 3D EARTH SCREENSAVER - Watch the Earth right on your desktop!

Check it out at http://www.crawler.com/earth

[Guest guest]

HI , and welcome!

I'm Melody in Texas.

wrote:

> Hi everyone,

> I'm new to this group and to having FMS. I am 26 y/o, mother

> of three under 6 y/o. I have been married for seven years and I live

> in Springfield,Ohio with my family. It has taken me a year to be

> diagnosed with FMS. All the women on my mother's side of the family

> all have FMS. I am so glad I was able to find this group because I

> don't know anyone besides my family that have FMS and it will be nice

> to be able to chat with you all about flare ups or symptoms I'm having

> and if I don't understand something I'm feeling or going through.

> Anyway, thank you so much for allowing me to join this group.

>

>

>

> 1. While it is wonderful to share our experiences with everyone on the list as

to what treatments do and don't work for us, pls always check with your dr.

Some treatments are dangerous when given along with other meds as well as to

certain health conditions or just dangerous in general.

>

> 2. If you are in a difficult situation (doesn't matter what it is) pls don't

be afraid to ask for help. It is the first step to trying to make that

situation better.

>

> 3. To unsubscribe the e-mail is:

Fibromyalgia_Support_Group-unsubscribe

>

> 4. Also, it is not uncommon for more than one member to be feeling bad at the

same time when it comes to flares and b/c of that potentially take something

another member says the wrong way. And that includes the things that one member

may find funny (even if it's laughing at fibro itself) even though we who deal

with illness whether one such as fibro or multiple illnesses try to keep a sense

of humor.

>

> 5. Pls let's be gentle with each other, and if you are having a bad day pls

let us know so that we can do our best to offer our support.

>

> Have a nice day everyone.

>

>