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[Guest guest]

Actually ,here is another way of asking about the seeding/mets question.

Last week oncology described Louis' tumor as evidence of 'active disease'.

My question to crew>>>>>> has anybody had any periods with no

tumors??????(of course I mean after tumors have started appearing, and you

have had them all excised, not the bit before they start appearing).

In other words, after a period of active disease, and you have all tumors

removed, then you have a period of no active disease.????

[Guest guest]

Answering this even though I can't say have not had inactive period. Once

diagnosed with c2, 3 tumor at age 14, I did go til 21 thinking no tumors, but

I'm pretty sure my AN's started right after my c 2,3 were removed even though

not diagnosed (in a picture of me at 15 I can see a crooked smile) with the

advent of MRI's I was diagnosed immediatly. since then Ive always had tumors

but all very slow growing. I am at a point now where the bad ones have been

removed and have a small one at c2,3 (regrowth) and very small AN regrowth and

questionable scar tissue. so i am prayingcan a longgg time with no growth

now. we'll see....

Rosemary Lee wrote:

> Actually ,here is another way of asking about the seeding/mets question.

> Last week oncology described Louis' tumor as evidence of 'active disease'.

>

> My question to crew>>>>>> has anybody had any periods with no

> tumors??????(of course I mean after tumors have started appearing, and you

> have had them all excised, not the bit before they start appearing).

>

> In other words, after a period of active disease, and you have all tumors

> removed, then you have a period of no active disease.????

>

>