»Ø¸´£º RE: Weaning off Prednisone

[Guest guest]

Therasa,

On and off, I took pred for one year. I have RA for

three years and AP for more than two months.

Usuaully, if you get off pred, you have to add another

drug if taking conventional drugs such as MTX or

Enbrel. But with AP, I am not sure. I felt so good

when I first started AP and stopped all MTX and Enbrel

at once. Now, symptoms all come back after five or

six weeks. I have sweollen elbows and knees. I took

pred for a few days, and have to be off it for fear of

dependency. But things are not good. I wonder if You

have tried Celebrx 200 meg X 2. I want to ask yu why

your doc put you on daily dosage, not pulsing?

Hope you are doing well.

Nan

--- mike rosner <martysfolks2004@...>дµÀ:

> Hi Cathleen, This is Dolores again. I just read

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> Scammell, and " Scleroderma, the proven therapy that

> can save your life " by Henry Sammell. Get it even

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> that other post too. Dolores

>

> Cathleen etto <beachcat_6@...> wrote: Hi,

> Am weaning off pred slowly, from 10 mg in April, now

> at 5 1/2 per day. I

> reduce by 1/2 mg about each week. No side effects

> like you mention, only an

> increase in pain and fatigue with each reduction

> that gets be

>

>

> >From: " merriams_rcn_com "

> >Reply-rheumatic

> >rheumatic

> >Subject: rheumatic Weaning off Prednisone

> >Date: Wed, 12 Jul 2006 15:14:33 -0000

> >

> >Hi everyone,

> >

> >I was wondering if anyone can tell me if there are

> any symptoms

> >associated with weaning off of prednisone. I was

> only on pred for 6

> >months. I was about two months into a flare and my

> rheum at the time

> >was saying I had to go on MTX. I flat out refused

> so he put me on

> >10mg daily of pred until I could decide what to do.

> That was on

> >12/30/05. Hoping to start the AP, I switched

> rheumys and started

> >going to Dr. Trentham in Boston. He said he wanted

> me to get off the

> >prednisone and start on minocin. I started minocin

> 200mg daily on

> >2/24/06. On 3/1, I dropped my pred dose to 5mg

> daily. No problems.

> >On 4/16 I dropped pred to 2.5mg daily. Sometime in

> May, I started

> >having ankle swelling and pain in my lower legs

> mostly at night but

> >lately it seems like it's all day. I went to my PCP

> in early June

> >and he said he thought it might be the pred but

> didn't really tell me

> >to stop. He said I should wear support stockings. I

> tried, they

> >don't help. On 6/16 I went to Dr T and he said stop

> the pred which I

> >did that day. Now I'm only on Minocin 200mg daily.

> I'm still having

> >the ankle swelling and leg pain as well as being

> tired all the time.

> >Occasionally I take Aleve (wow does that work

> great) just so I can

> >cook dinner and clean up after or if my kids (dd8,

> ds6) have swimming

> >lessons or a baseball game.

> >

> >Sorry this is so long. I wanted to see if anyone

> else that weaned

> >off of pred has experienced any of these symptoms

> (or any others I

> >didn't mention).

> >

> >TIA for any input.

> >Theresa

> >RA 6 yrs, AP 4 months

> >

> >

> >

> >

>

>

>

>

>

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