Re: newly diagnosed with fibro

[Guest guest]

>

> Hi,

>

> I was wondering if someone out there that has fibro could tell me

> alittle more about what they have gone through. A rheumatologist just

> started me on amitryptiline. Right now I hurt so bad all over. By

> evening it is getting so bad that I just kinda lock right up when I

> sit down.

>

> Does amitryptiline really do the trick. How long before I notice a

> change? He is starting me on 10mgs with instructions to double it in 2

> weeks.

>

>

>

Dear , I hate to be the bearer of bad news and I hope I'm wrong

and the amitryptiline that the doctor gave you will help you!

Unfortunately, I have been from doctor to doctor and experience so many

severe syptoms that I hope you will never feel. I have what's called "

Fibrofog " in which I get very vague and have lost much of my bearings

and memory, I've had a cystic ovary removed which was the size of a

grapefruit, I also have irritable bowel syndrome which is alternating

constipation and loose bowels.... all these along with the pain are

typical of fibromyalgia. I would advise taking a few books out of the

library or purchasing a book that I believe is called Myofascial Pain

Syndrome and Fibromyalgia. I'll get back to you with the exact name of

the book and the author's name. I have such severe pain that I can

hardly bear it and have been put on many pain medications. I'm

surprised that your doctor didn't give you a medicine to help you sleep

as sleep is the main defense against the daytime pain we fight. Please

feel free to email me ANY time you feel the need to as I completely the

questions you must have and the difficulties wihich you are suffering.

I also have Mixed Connective Tissue Disease which is, as I understand

it, kind of a special type of several diseases including Lupus rolled

into one and Acute Adrenal Failure or at least those are some of the

diagnoses which I have been given so far. I just try to hang in there!

I know that and I would appreciate any info from the group, they

are a vast body of knowledge and I have learned so much from them

already. I'll be routing for you, Lynda Evers []

[Guest guest]

,

For I while I thought that I had fibromyalgia, so I researched

treatment alternatives -- of which there are few. The most claims

were made for the guaifenesin protocol, of which Dr. St. Amand is the

main spokesmen. Guaifenesin is a natural substance, is available from

many sources, and is quite inexpensive. Allegedly, the guaifenesin

protocol only works if there are no salicylates in a patient's diet.

I suggest that you go to www.google.com and enter the following search term:

+fibromyalgia +guaifenesin +Amand

Sincerely, Harald

At 12:26 PM 10/8/2006, you wrote:

>Hi,

>

>I was wondering if someone out there that has fibro could tell me

>alittle more about what they have gone through. A rheumatologist just

>started me on amitryptiline. Right now I hurt so bad all over. By

>evening it is getting so bad that I just kinda lock right up when I

>sit down.

>

>Does amitryptiline really do the trick. How long before I notice a

>change? He is starting me on 10mgs with instructions to double it in 2

>weeks.

>

>

>

[Guest guest]

>Hi,

>

>Does amitryptiline really do the trick. How long before I notice a

>change? He is starting me on 10mgs with instructions to double it in 2

>weeks.

>

Hi,

Personally, that category of medication intended for fibro and pain,

even in low doses, put me in a daze. I was helped more through diet,

other methods of improving sleep (have you looked into whether you

have sleep apnea?), lots of magnesium and calcium, plenty of pure

water, green powders, and high quality food supplements (capsules,

not tablets). Hooking up with a skilled naturalpath doctor could

help you a lot. Water exercise in a warm pool helps. If the pool is

cool, try using a rash guard shirt intended for the ocean--it helps

greatly. If you can afford to get body work such as massage,

Hellerwork, and Rolfing, these can really help. Good luck, ew

[Guest guest]

,

One more thought about fibromyalgia. You may want to go to

www.google.com and read up on polymyalgia rheumatica (PMR), which can

provide the same muscle pain as fibromyalgia and the same joint pain

as rheumatoid arthritis. If your pain disappears after taking 10 mg

of Prednisone for two consecutive days, you may have PMR, not fibro.

The good nows with PMR is that the disease can go away after 2 years

of treatment with decreasing dosages of Prednisone -- at least that's

what I hope. Nearly all people with PMR are over 50.

Sincerely, Harald

At 12:26 PM 10/8/2006, you wrote:

>Hi,

>

>I was wondering if someone out there that has fibro could tell me

>alittle more about what they have gone through. A rheumatologist just

>started me on amitryptiline. Right now I hurt so bad all over. By

>evening it is getting so bad that I just kinda lock right up when I

>sit down.

>

>Does amitryptiline really do the trick. How long before I notice a

>change? He is starting me on 10mgs with instructions to double it in 2

>weeks.

>

>

>

[Guest guest]

,

I just recently moved from Detroit to Seattle. But, while I was in Seattle, I

had a holistic doctor by the name of Nusbaum of the Center for Holistic

Medicine. He is an associate of Dr. Brownstein. Dr. Brownstein has written

a book titled " Overcoming Thyroid Disorders " . Fibromyalgia is covered in this

book. Please visit http://www.drbrownstein.com/thyroid.shtml

I was diagnosed with rheumatoid arthritis 2-1/2 years ago. For the past two

years, I have gone to Dr. Nusbaum. Once I had my second visit, he was able to

prescribe natural medications that have successfully fought the inflammation all

the way. And, though I haven't yet reached my goal of remission, I am able to

enjoy practically any sport that I wish. In my spare time, I race sailboats, get

horseback riding lessons and snow ski. And, I don't have any pain, other than

the pain of not being able to eat products from cow's milk, eggs, wheat

(gluten), barley and malt. And, I have to take a lot of natural medications.

But, it certainly beats the alternative.

I apologize for those that have already seen my story a hundred times, but

hopefully, you will benefit from it, . Here it is (again)....

Jeff

(248)345-5266 (cell)

_____________________

My name is Jeff and I have RA. I have gotten a lot of useful information from

this Group and I wanted to pass on what I have learned from my experience

with RA.

I don't know of anyone that I am related to, by blood, that also has RA. I

contracted scabies in January of 2004. I was prescribed in March, 2004, two

drugs which I believe caused my RA:

1) On 3/19/04, ne lotion (USP 1%), generic for Kwell, Bio-Well

* This is a pesticide of the organochlorine type, in the same group as DDT

* This is classified as a carcinogen

2)On 3/24/04, Permethrin Cream, 5%, generic for Acticin, Elimite, Nix, Rid

* Each gram contains 50mg of permethrin

* Less than 2% absorbed into bloodstream

On 4/21/04, I was diagnosed with RA by a rheumatologist. But, he later confessed

that he could not do anything for me until my RA got really bad at which point

he would " hit me really hard " with some cancer-fighting drugs. I stopped going

to him and soon after made an appointment with a holistic doctor, Dr. Nusbaum,

from the Center for Holistic Medicine in Bloomfield Hills, Michigan. Dr. Nusbaum

is an associate of Dr. Brownstein. See www.drbrownstein.com and

www.centerforholisticmedicine.com

Dr. Nusbaum confirmed by tests that I had RA and was infected with mycoplasma.

He then prescribed for me:

For inflammation:

1) Traumeel, 10 drops three times a day

2) Vitalzym X, 500mg tablets, now 8 tablets three times a day

3) Kaprex by Metagenics, 440mg - four a day

3) Ultra Inflam X (detoxification for a short period)

For mycoplasma infection:

1) Minocin (AP- antibiotic protocol)100mg twice a day on M,W,F

2) Bifa 15 (to restore my good bacteria)1.1g a day

For hormonal balance:

1) Testosterone cream, 10% transdermal gel

2) Pregnenolone, now 50mg twice a day

3) Armour Thyroid Hormone, now 75mg a day

For vitamin D deficiency:

1) Bio-D-Mulsion Forte, Emulsified Vitamin D, 4000 IU per day, which is 1000%

RDA

__________________________________________________

I did a search through the past year of postings in this Group and I have

not found anyone talking about it.

Although it is not cheap, I noticed an immediate improvement in my inflammation

after taking Vitalzym X from World Nutrition www.worldnutrition.info/index.html

or www.vitalzymx.com . Since I am not a physician, I am not going to pretend to

tell you how enzymes can naturally consume inflammation and pass it out of your

body naturally. But, I highly recommend that anyone fighting an inflammatory

condition like RA look very closely at this natural method. It can be purchased

at www.centerforholisticmedicine.com . Vitalzym is the older, weaker version and

Vitalzym X is the stronger version. To purchase Vitalzym X, you must create a

user id and password. As with any medication, you should be under supervision of

a doctor. I was prescribed 3-500mg pills, three times a day. I was told to

increase to 4 pills, three times a day after two weeks. And, I should keep

increasing by one pill (three times a day) until the inflammation subsided. Some

patients were taking as many as 10

pills, three times a day. Too many pills, and you could have diarrhea, too few

and your inflammation would not go away.

____________________________________________________

I know of two ways that someone can find an AP doctor, using two websites:

1) American College for the Advancement in Medicine www.acam.org

There is a referral section. From the home page, go to " Public " / " Find a

Doctor " . Enter your zip code, city, or state.

2) International Academy of Compounding Pharmacists (IACP) www.iacprx.org

There is a referral section. From the home page, go to " Referral Service " .

Find the compounding pharmacist nearest you, and ask them who they'd recommend

for the condition that you have, or the protocol that you want to use.

I did a search through the past year of postings in this Group and I have

not found anyone talking about

_______________________________________________

Food allergies can contribute to inflammation if you have an inflammatory-type

condition like RA. Both traditional and holistic doctors can perform a blood

test for food allergies. One test that I recently took tested for 9 types of

Dairy, 7 types of Meat, 10 types of Grains, 9 types of Fish, 6 types of Nuts, 5

types of Shellfish, 19 types of Fruits, 23 types of Vegetables, and 7 types of

Miscellaneous Items.

My blood test was done at Meridian Valley Lab in Renton, WA. And, while they are

willing to test blood sent to them by mail, I am told by Meridian , that some

states won't allow individuals to purchase a test without a doctor's

prescription. If your doctor doesn't know how to do a blood test for food

allergies,you could contact Meridian: www.meridianvalleylab.com

info@... (425)271-8689. Meridian told me that they're

working on a blood spot allergy test which will allow someone to take the test

in their own home.

______________________________________________________________________________

www.loosechange911.com 9/11 truth

www.constitutionparty.com restoration of constitution

1a. newly diagnosed with fibro

Posted by: " cycledaze " breezy@... cycledaze Sun Oct 8, 2006 12:28

pm (PST)

Hi,

I was wondering if someone out there that has fibro could tell me a little more

about what they have gone through. A rheumatologist just started me on

amitryptiline. Right now I hurt so bad all over. By evening it is getting so bad

that I just kinda lock right up when I sit down.

Does amitryptiline really do the trick. How long before I notice a change? He is

starting me on 10mgs with instructions to double it in 2 weeks.

[Guest guest]

I was @ my Holistic doctor today getting a celation treatment, and the nurse

gave me a magazine to read. The mag is called " Alternative medicine " , and in

this months issue, there is a GREAT article on how to treat Fibromyalgia. It

stated that the Meyers cocktail is helpful.

I asked the nurse if the celation I was getting have the same nutients, and she

said, it has most of the same things.

I would recommend getting this magazine, and reading it. Remember it is in the

Oct 2006 issue.

Because of this article I scheduled another treatment next week. Insurance does

NOT cover the Meyers cocktail, but I would rather try something out of pocket,

if it work, rather than spin my wheels.

Josie

Personally, that category of medication intended for fibro and pain,

even in low doses, put me in a daze. I was helped more through diet,

other methods of improving sleep (have you looked into whether you

have sleep apnea?), lots of magnesium and calcium, plenty of pure

water,

[Guest guest]

Hi,

Thanks for all the info. There is alot to consider. I have been taking

Magnesium and calcium for a long time. I have found it helps a good deal

with heart palpitations. As far as the sleep apnea. I probably have it to a

small degree but I know its not the real crux of the problem. I spend alot

of time just staring at the ceiling. This started years ago and the pain has

just escalated this past year. The sleep problem has been an ongoing thing.

Its rather amazing how doctors don't think disturbed sleep is that big of a

deal. I would catch myself nodding off driving to work in the mornings. And

I worked at a clinic. Never was I offered sleeping pills. Maybe if a doctor

had really tackled that problem I wouldn't be in such bad shape now.

[Guest guest]

Hi ,

Sleeping pills aren't the answer for sleep issues. See a sleep

specialist who will determine if you have apnea. Do a bit of

research on sleep apnea--it has serious consequences for your health,

heart, and overall well-being. Nodding off while driving is one of

the classic symptoms among many others. Getting evaluated is simple

and non evasive and it could change your whole life! e

>Hi,

>

>Thanks for all the info. There is alot to consider. I have been taking

>Magnesium and calcium for a long time. I have found it helps a good deal

>with heart palpitations. As far as the sleep apnea. I probably have it to a

>small degree but I know its not the real crux of the problem. I spend alot

>of time just staring at the ceiling. This started years ago and the pain has

>just escalated this past year. The sleep problem has been an ongoing thing.

>Its rather amazing how doctors don't think disturbed sleep is that big of a

>deal. I would catch myself nodding off driving to work in the mornings. And

>I worked at a clinic. Never was I offered sleeping pills. Maybe if a doctor

>had really tackled that problem I wouldn't be in such bad shape now.

>

>

>

>

>

>To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

[Guest guest]

I have already done a sleep study. So they didn;t think it was the cause.

Re: rheumatic newly diagnosed with fibro

> Hi ,

>

> Sleeping pills aren't the answer for sleep issues. See a sleep

> specialist who will determine if you have apnea. Do a bit of

> research on sleep apnea--it has serious consequences for your health,

> heart, and overall well-being. Nodding off while driving is one of

> the classic symptoms among many others. Getting evaluated is simple

> and non evasive and it could change your whole life! e

>

>

>

>

>>Hi,

>>

>>Thanks for all the info. There is alot to consider. I have been taking

>>Magnesium and calcium for a long time. I have found it helps a good deal

>>with heart palpitations. As far as the sleep apnea. I probably have it to

>>a

>>small degree but I know its not the real crux of the problem. I spend alot

>>of time just staring at the ceiling. This started years ago and the pain

>>has

>>just escalated this past year. The sleep problem has been an ongoing

>>thing.

>>Its rather amazing how doctors don't think disturbed sleep is that big of

>>a

>>deal. I would catch myself nodding off driving to work in the mornings.

>>And

>>I worked at a clinic. Never was I offered sleeping pills. Maybe if a

>>doctor

>>had really tackled that problem I wouldn't be in such bad shape now.

>>

>>

>>

>>

>>

>>To unsubscribe, email: rheumatic-unsubscribeegroups

>>

>>

[Guest guest]

, Esther,

Are sleep disturbances not part of the disease picture of fms? You'd think

it would be addressed.

You may want to look into some yoga type breathing techniques. They are

pretty amazing for pain control and stress relief.

Take care,

Ute

[Guest guest]

Yeah sleep disturbance is a big part of it. Now that they have diagnosed me

with fibro I am getting sleep meds. But what about all the years prior?

Re: rheumatic newly diagnosed with fibro

> , Esther,

> Are sleep disturbances not part of the disease picture of fms? You'd think

> it would be addressed.

> You may want to look into some yoga type breathing techniques. They are

> pretty amazing for pain control and stress relief.

> Take care,

> Ute

>

>

>

>