AP side effects

July 8, 2004

Hi all,

I've been taking doxy 100mg/day since may. I read the info on herxing. I

have a scaley rash on my hands. At first my hands get bright red and then

scaley and itchy. I also have huge blisters on my toes and hands. at first I

thought it was a sun reaction like an extreme burn, but now I'm not so sure. My

joint pain is getting worse and i was expecting that, but this skin thing is a

mystery. I'm going to make a dermotologist appt. I was just wondering if

anyone has had a similar reaction from AP. I'm thinking about cutting the doxy

to m,w, and fri. Any thoughts? Best wishes of health and happiness to all.

Jodi rauch

July 24, 2008

SD is Scleroderma

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July 24, 2008

I don't want to seem like a dummy but can you tell me what S/D means? I

can't remember

ever hearing of it before...............J.L

Re: rheumatic AP side effects

rheumatic

Date: Saturday, July 19, 2008, 6:21 PM

Am I the only one with SD that found this post a little more than gloom and

doom as well as discouraging and depressing? Just what I wanted to read on

my

lunch hour is a reminder that my disease is fatal, and that it will get me

SOONER than later. I don't view this disease with rose-colored glasses, but

I

thought for those just starting out, and having a difficult time enough just

adjusting to the fact that they have this disease more thought should have

gone

into a post like that.

Everyone should be trying to give positive input and helpful hints and

suggestions I believe.

Had to vent - been burning my butt for hours! Gail

July 24, 2008

Sorry I tend to forget that the newbies have never heard the use of initials

S/D. I use them when I write on the computer. S/D stands for Scleroderma and

A/P stands for Antibiotic Protocol. If you have S/D, Arthritis or any disease

that attacks the immune system, please read these books. " Scleroderma, The

Proven Therapy That Can Save Your Life " written by Henry Scammell. " The New

Arthritis Breakthrough " , by Henry Scammell and " The Road Back " , by

McPherson Brown. M/P is the Marshall Protocol which is also an antibiotic

protocol but uses more antibiotics than just Minocin. I was on A/P for two

years and then started on M/P. Ask me why so long! It is because the (CWD)

{Cell-Wall-Deficient} bacteria/virus is a very slow growing organism making you

ill until you die. Minocin will weaken these CWD microorganisms and help your

immune system to get back on track, killing them off and that is why this

Protocol works. But you need

to have great patience for it to happen. You may feel sicker when you first

start. That is because the CWD bacteria/virus emits a toxin when it begins to

weaken and die off. These toxins make one feel worse, but that is a good sign

as it means the antibiotic is working and soon you will start seeing a big

difference. Some of you may have underlying symptoms and overlapping diseases

which first need to be conquered so it may take a bit longer for those people.

It also takes longer for people who have been on Immune deppressant drugs like

Prednisone or Cortisone. If you are not on them, don't start and If you are

already on any of these toxic drugs, wean off with help. The antibiotics will

start doing their job, but it will take a bit longer. So, it is best for all of

you who can read this to get started on antibiotics asap. Yesterday, if

possible. Don't wait another second. Your lives depends on it.~~~~ Love,

Dolores & Mike

From: ONYX8257aol (DOT) com <ONYX8257aol (DOT) com>

Subject: Re: rheumatic AP side effects

rheumatic@grou ps.com

Date: Saturday, July 19, 2008, 6:21 PM

Am I the only one with SD that found this post a little more than gloom and

doom as well as discouraging and depressing? Just what I wanted to read on

my

lunch hour is a reminder that my disease is fatal, and that it will get me

SOONER than later. I don't view this disease with rose-colored glasses, but

I

thought for those just starting out, and having a difficult time enough just

adjusting to the fact that they have this disease more thought should have

gone

into a post like that.

Everyone should be trying to give positive input and helpful hints and

suggestions I believe.

Had to vent - been burning my butt for hours! Gail

July 25, 2008

So let me get this straight........when you die Dolores, you're suggesting that

everybody should just look at it like....'she's dead......so what?'

OK, fine with me, you got it! But I'm betting that most others will take a

different perspective on their own eventual loss of life and surely the loss of

any of their loved ones. Think, I'll also look for my rah-rah's someplace else,

when they aren't basking in self-satisfied fatalism and distorted resignation.

But of course, my best to you also Dolores

rheumatic

From: j.mccrary@...

Date: Thu, 24 Jul 2008 19:14:19 -0500

Subject: Re: rheumatic AP side effects

I don't want to seem like a dummy but can you tell me what S/D

means? I

can't remember

ever hearing of it before...............J.L

Re: rheumatic AP side effects

rheumatic

Date: Saturday, July 19, 2008, 6:21 PM

Am I the only one with SD that found this post a little more than gloom and

doom as well as discouraging and depressing? Just what I wanted to read on

my

lunch hour is a reminder that my disease is fatal, and that it will get me

SOONER than later. I don't view this disease with rose-colored glasses, but

I

thought for those just starting out, and having a difficult time enough just

adjusting to the fact that they have this disease more thought should have

gone

into a post like that.

Everyone should be trying to give positive input and helpful hints and

suggestions I believe.

Had to vent - been burning my butt for hours! Gail

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safety_072008

July 26, 2008

Me too to much of this. I have been on Minocin for almost a year, but

for the last two months I have taken Clindamycin twice a week. I

guess I'm herxing, but it's not like a flu. Everything hurts--hands,

lower back, elbows, knees. My head feels weird, and I too I have the

itchies in my nether regions and sometimes other places, and I am

taking an anti-fungal (Diflucan). I also take ibuprofen every day

(only one though I need more) 'cause I can't take the pain. Like

Leonie, I feel I am taking too many pills, and I wonder how long this

will go on! I feel like screaming at the moment!!

On Jul 26, 2008, at 10:08 PM, mumpup2000 wrote:

> Hello,

> I'm feeling confused about the side effects and don't know what to

> do. How does one know whether symptoms are just the usual die-off,

> or if it's the candida going nuts ? I am terrified of getting

> candida overgrowth as then i will have to go off AP and onto some

> other stoopid drugs like TNF therapy or something. I have a

> prescription for Nilstat (anti-fungal) pills, and i believe the doc

> expected me to take them concurrently with minocin. Does everyone

> else take anti-fungals with the AP ? I feel like a flippin walking

> chemist shop at the moment.

>

> The reason i think my candida is going nuts, is cos i have a

> full/dizzy feeling in my head which sometimes goes into a headache, a

> crook gut and also the " itchies " are starting to come on in my nether

> regions. Is that candida or just die-off of mycoplasmas etc ?

>

> I'm trying to get off some of the drugs I'm on, but it seems i need

> more and more. I also take heaps of top quality probiotics and watch

> my diet to exclude sugars and carbs. Actually, I'm on a combo of the

> anti-candida diet and Gut and Psychology Syndrome diet. I do cheat a

> bit by eating a few pieces of dried fruit, which i guess doesn't help

> but sometimes you need to stay sane.

>

> Does anyone have any ideas ?

>

> all the best,

> Leonie

>

July 26, 2008

> Does anyone have any ideas ?

If you can afford it, have a GI test (stool sample) to test for fungus/yeast in

the gut. My MD

ordered a GI test from Diagnos-Techs labs.

Be sure to take your probiotics on an empty stomach.

You can also use a probiotic capsule as a vaginal suppository to head off

vaginal yeast

infections. I use Natren's Megadophilus, once a week.

There are other anti-yeast supplements, herbals or enzymes, which can be

effective. There

are also heavy duty probiotics available to help repopulate the gut.

July 26, 2008

Hi , These are great ideas. Thanks for putting them out there. Now I

have a question for any one out there with this problem. My feet and legs love

to cramp especially at night when I am just getting cozy in bed and preparing

for a good nights sleep. I know this is a herx and so I'm not worried knowing

this will go away eventually. But, other than a heating pad to warm the sheets,

warm booties and a massage with muscle cream like Ben Gay, what other

suggestions can anyone share with me. These cramps often rob me of a good

nights sleep and I end up on the computer at 1 a.m. asking these

questions. ~~~~Thanks in advance for suggestions~~~~Dolores

From: mmc2315 <m.chelap@...>

Subject: rheumatic Re: AP side effects

rheumatic

Date: Sunday, July 27, 2008, 1:04 AM

> Does anyone have any ideas ?

If you can afford it, have a GI test (stool sample) to test for fungus/yeast in

the gut. My MD

ordered a GI test from Diagnos-Techs labs.

Be sure to take your probiotics on an empty stomach.

You can also use a probiotic capsule as a vaginal suppository to head off

vaginal yeast

infections. I use Natren's Megadophilus, once a week.

There are other anti-yeast supplements, herbals or enzymes, which can be

effective. There

are also heavy duty probiotics available to help repopulate the gut.

July 27, 2008

Hi Leonie, et al: Yes, the itchies can drive a person nuts and so can

taking all these pills. These diseases are not easy to deal with. From my past

experiences, the itchies is usually a fungal type of infection. As a diabetic,

whenerver I would have to take an antibiotic, I knew that the following week, I

would have to start on an antifungal. That was long before I was diagnosed with

Scleroderma. For me the exact opposite has happened over the course of the last

three years. I started on A/P Minocin in January 2006. I fully expected to

have to resort to antifungals and did in the beginning. However, the fungal

infections have gone away just like the Raynaud's, anemia, irregular heart

rythms and some other symptoms I have completely forgotten about. The itchies

were the worst and I thought I would never survive the scratching, but I did and

now this is gone too. Yes, by all means take the antifungals. Experiment with

the

ones that do you the most good. Who says we can't kill fungus and bacteria at

the same time. And I know it's very difficult to deal with. I've been there.

Hang on, there is a light at the end of the tunnel. It's been at least 18

months or more since my last yeast infection and whenever I need a psychological

boost to deal with life, I pop a small piece of sugar free hershey chocolate on

my tongue and let it melt there. It gets me through, so don't feel guilty about

allowing a small treat once in a while. It's good for the soul, if for nothing

else. My feet are cramping tonight because I increased the clindamycin, so here

I am at 1 am sitting on the computer with my warm booties on reading the posts.

Thank God for this site. We are all we have. Love you all ~~~Dolores