Guest guest Posted April 16, 2001 Report Share Posted April 16, 2001 , My partner was diagnosed with lupus a few years ago, as well as my mom's best friend and a few other acquaintances. Knowing them and talking to them, they all seem to have one thing in common...long term use of artificial sweetener (particularly aspartame/diet soda), and low grade, long term dehydration from not drinking much water. I'm curious to know if your mother fits this scenario also. I've heard artificial sweeteners linked to immune problems before, but not much evidence. Hope you don't mind my asking. Thanks in advance! w/peace wes bennett wesbenn@... <A HREF= " http://www.knowledgeisthecure.com/ " >www.knowledgeisthecure.com</A> <A HREF= " http://www.wesbennett.com " >wes bennett photography & design</A> > > Jim, > > > > Mom was taking saunas, and I think it will help her Lupus. She is doing > pretty good now, mainly just fatigued, but when she had her spell with it, > she had spent the day outside in the sun, and that really put her down for > two weeks with pain in the hands and knees. That's when we discovered it. > I think she is doing as good as she is because she took good supplements, > but we couldn't get her to eat right. She's making an effort to eat right > now and pacing herself more. > > jp > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2001 Report Share Posted April 17, 2001 My partner was diagnosed with lupus a few years ago, as well as my mom's best friend and a few other acquaintances. Knowing them and talking to them, they all seem to have one thing in common...long term use of artificial sweetener (particularly aspartame/diet soda), and low grade, long term dehydration from not drinking much water..... WES, you would be amazed how well people get when they stop drinking diet drinks and start drinking large amounts of pure water ! It is simply amazing, and not hard to do ! kat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2001 Report Share Posted April 17, 2001 Wes, Mom has never used artificial sweetener, nor does she drink any kind of sodas, but despite our efforts to get her to drink an abundance of water, she has failed to drink enough. She is doing better, but coffee is her drink of choice, so she may be dehydrated, but we monitor her closely. I noticed that we had to get her off mineral water onto distilled to bring her out of a heart attack zone several years ago. She had a severe allergic reaction to macrodantin over 20 years ago (she broke out in hives for over a year), and I've seen a drug reaction implicated in the literature as a cause for lupus. I've had to change her diet, because echinacea, melatonin, even alfalfa, is listed as bad for lupus since they stimulate an already hyper immune system. She also has not eaten as well as she should have. Right now, the fatigue is the main symptom, but she is doing pretty good compared to any other 79 year old, so I'm thankful for that. She used to have psoriasis real bad, which implicates the liver, but after several years of good " vitamins " that has gone away completely and not come back. jp Re: lupus question , My partner was diagnosed with lupus a few years ago, as well as my mom's best friend and a few other acquaintances. Knowing them and talking to them, they all seem to have one thing in common...long term use of artificial sweetener (particularly aspartame/diet soda), and low grade, long term dehydration from not drinking much water. I'm curious to know if your mother fits this scenario also. I've heard artificial sweeteners linked to immune problems before, but not much evidence. Hope you don't mind my asking. Thanks in advance! w/peace wes bennett wesbenn@... <A HREF= " http://www.knowledgeisthecure.com/ " >www.knowledgeisthecure.com</A> <A HREF= " http://www.wesbennett.com " >wes bennett photography & design</A> > > Jim, > > > > Mom was taking saunas, and I think it will help her Lupus. She is doing > pretty good now, mainly just fatigued, but when she had her spell with it, > she had spent the day outside in the sun, and that really put her down for > two weeks with pain in the hands and knees. That's when we discovered it. > I think she is doing as good as she is because she took good supplements, > but we couldn't get her to eat right. She's making an effort to eat right > now and pacing herself more. > > jp > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2001 Report Share Posted April 17, 2001 Hi , I have read that colostrum supposedly is am immune system balancer. In other words, if it is high it brings it down and if it is low it pumps it up. Don't know for sure. That is just what I have read. Donna Re: lupus question Wes, Mom has never used artificial sweetener, nor does she drink any kind of sodas, but despite our efforts to get her to drink an abundance of water, she has failed to drink enough. She is doing better, but coffee is her drink of choice, so she may be dehydrated, but we monitor her closely. I noticed that we had to get her off mineral water onto distilled to bring her out of a heart attack zone several years ago. She had a severe allergic reaction to macrodantin over 20 years ago (she broke out in hives for over a year), and I've seen a drug reaction implicated in the literature as a cause for lupus. I've had to change her diet, because echinacea, melatonin, even alfalfa, is listed as bad for lupus since they stimulate an already hyper immune system. She also has not eaten as well as she should have. Right now, the fatigue is the main symptom, but she is doing pretty good compared to any other 79 year old, so I'm thankful for that. She used to have psoriasis real bad, which implicates the liver, but after several years of good " vitamins " that has gone away completely and not come back. jp ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2003 Report Share Posted January 29, 2003 Hi , From what I have read this type of lupus limited to skin fairs quite well with proper treatment . I don't know much more then just that . Oh sorry you have another hurdle but I think you will be OK as long as you get the right treatment quickly . Good luck warm regards, socjog Hi Everyone, Like many of you know I have been on AP along time My RA for 12 yrs has been gone from AP on treatment for 15 yrs. My question is now since bad Pempoid Flare where I lost a nail or 2 and had to take 3 big shots to get this bacterial infection under control is I am told I have Discoid Lupus (of the skin only) is How does this affect others with this kind of Lupus? I know many on here have Lupus but this was a bad attack and if it is the just the skin is there anyone else on here with just Discoid Pemphoid Lupus with anything close to this. Thank You from Ohio. Any answer is welcome nice or not LOL just need info Quote Link to comment Share on other sites More sharing options...
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