Guest guest Posted July 22, 2003 Report Share Posted July 22, 2003 HI ML! Readin back on some postS which i have 2,000 or more so I can research back, I came across this post which makes me wonder.HOW are u? Did u continue the meds or were they too costly? Are u even in this group anymore? My next step is too look into what the healthy Maine prescription progrm will kick in for meds to start me on therapy.When I went for my blood work last mth rhuemie said time for methotrexate shots to control the ulcers lesions on my head ,ears ,mouth, feet, hands, arms & chest area so hubby an i said not yet! We are lookin into another form of treatment. So we left it at that to go back end of this mth. He will write what I need he said it.They think I know more then they do about my dosage at this point.I upped to 19 mg from the 17(prednsione) I had low dosed to last week an the lesions are ever so slowwwwllyyy fading.O.k so bad verus good.I will clear this up by the time the 31st comes when i see a completly new doc. He treats Lupus auto immune symptoms.Not looking forward to going over 17 yrs of my history with him AT ALL>More blood work I can see that coming.BUT I figure good time to bring the protocol that I printed give him copy to keep. Maybe he already knows of it.I can only pray.Wish me luck.I wish u good health.Please reply ML when u can. from Maine* rheumatic terrible news Hello everyone, Since my insurance went up to a $50 co-pay for the Doryx, I have made the painful decision to stop the AP. It's been a little over 7 months with no improvement except for my bowels. I just can't afford it right now...my son has many medications he takes and I just can't justify it. Maybe I am not bad enough to keep going--I don't know how I will justify it when the pains come again, but I really don't feel I have a choice. I've decided to try the olive leaf extract in place of the AP. It is affordable. Does anyone have recommendations on dosage or maybe another suggestion? Thanks, ML Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2007 Report Share Posted September 8, 2007 Hi to all: I am not sure who I am writing to. This rheumatic group shows up many times on Martha's emails so I wanted to send you a note to let you know what has happened. First, my name is and I am her oldest daughter. She was a valiant fighter in the war against Rheumatoid and she took great pleasure in these posts and the various chat rooms she visited. She wanted to much to help find a cure for this terrible illness. This past Wednesday, she suffered a severe heart attack. The Doctors did everything they could for her, but the end result is extensive brain damage due to lack of oxygen. She is in Critical Care right now. A deep coma without any responses. They have done 2 brain scans since the attack but no improvement has been found. They let us know the reality of the situation yesterday is that she will never be able to come back to us in any reasonable quality of life. We can make the decision to keep her on life support and she can stay that way until infection or something else takes her from us. Martha had a Living Will and was adamant about how she wanted to handle things if this should ever come about. We will honor her wishes. By law, they must do one more scan of her brain (72 hours later) but then we will make the decision to remove her life support. No arrangements have been made past that point. Please call the shop mid-week to find out more funeral arrangements as I may not be able to remember who I need to contact again. We are all grieving deeply because she was the center of our family. She influenced so many lives, especially those of her daughters and grandchildren. Please keep us all in your prayers. There is now a huge aching hole in all of our hearts that needs healing. God Bless, Minneci McVay ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2007 Report Share Posted September 8, 2007 Please accept my heartfelt condolences for what has happened. I do not know Martha well, but she has always been such a positive, strong and helpful person to the rheumatic group. My thoughts and prayers are with you and your family. Sincerely, Re: rheumatic terrible news Hi to all: I am not sure who I am writing to. This rheumatic group shows up many times on Martha's emails so I wanted to send you a note to let you know what has happened. First, my name is and I am her oldest daughter. She was a valiant fighter in the war against Rheumatoid and she took great pleasure in these posts and the various chat rooms she visited. She wanted to much to help find a cure for this terrible illness. This past Wednesday, she suffered a severe heart attack. The Doctors did everything they could for her, but the end result is extensive brain damage due to lack of oxygen. She is in Critical Care right now. A deep coma without any responses. They have done 2 brain scans since the attack but no improvement has been found. They let us know the reality of the situation yesterday is that she will never be able to come back to us in any reasonable quality of life. We can make the decision to keep her on life support and she can stay that way until infection or something else takes her from us. Martha had a Living Will and was adamant about how she wanted to handle things if this should ever come about. We will honor her wishes. By law, they must do one more scan of her brain (72 hours later) but then we will make the decision to remove her life support. No arrangements have been made past that point. Please call the shop mid-week to find out more funeral arrangements as I may not be able to remember who I need to contact again. We are all grieving deeply because she was the center of our family. She influenced so many lives, especially those of her daughters and grandchildren. Please keep us all in your prayers. There is now a huge aching hole in all of our hearts that needs healing. God Bless, Minneci McVay ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2007 Report Share Posted September 8, 2007 , I'm so sorry for your loss. Thank you for letting us know what has happened to Martha. My heart goes out to you and your family. We will miss Martha's contribution to this list. blessings, Ute Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2007 Report Share Posted September 8, 2007 , thanks for letting us know so we don't wonder. Martha was an asset to this group giving many RA patients hope that they too can get well. Just 2 weeks ago she was posting. It's all unbelievable. I know many people here will miss her. I wish you and your family the best during this difficult time. Please come back and let us know if there is anything we can do. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2007 Report Share Posted September 8, 2007 , Please accept my sympathy also. I used to love reading your mom's emails. Keep us posted. jan --------------------------------- Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2007 Report Share Posted September 8, 2007 I am so sorry about Martha. She has provided so much support and encouragement. My very best wishes to all her family and friends. Emma ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2007 Report Share Posted September 8, 2007 Forgive me Emma, but did I miss something re Martha, and which Martha are you referring to? Thank you. Judy ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2007 Report Share Posted September 9, 2007 hi heather so so sorry re your mom. she wrote to me helping me a few times with advice. such an inspiration and such a nice lady. i am sorry for her loss. thanks for letting us know blessings to you and your family monique Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2007 Report Share Posted September 9, 2007 I'm so very sorry for your loss, may God bless you and the rest of your family. My prayers are with you. Ana in Alaska Re: rheumatic terrible news Hi to all: I am not sure who I am writing to. This rheumatic group shows up many times on Martha's emails so I wanted to send you a note to let you know what has happened. First, my name is and I am her oldest daughter. She was a valiant fighter in the war against Rheumatoid and she took great pleasure in these posts and the various chat rooms she visited. She wanted to much to help find a cure for this terrible illness. This past Wednesday, she suffered a severe heart attack. The Doctors did everything they could for her, but the end result is extensive brain damage due to lack of oxygen. She is in Critical Care right now. A deep coma without any responses. They have done 2 brain scans since the attack but no improvement has been found. They let us know the reality of the situation yesterday is that she will never be able to come back to us in any reasonable quality of life. We can make the decision to keep her on life support and she can stay that way until infection or something else takes her from us. Martha had a Living Will and was adamant about how she wanted to handle things if this should ever come about. We will honor her wishes. By law, they must do one more scan of her brain (72 hours later) but then we will make the decision to remove her life support. No arrangements have been made past that point. Please call the shop mid-week to find out more funeral arrangements as I may not be able to remember who I need to contact again. We are all grieving deeply because she was the center of our family. She influenced so many lives, especially those of her daughters and grandchildren. Please keep us all in your prayers. There is now a huge aching hole in all of our hearts that needs healing. God Bless, Minneci McVay ************ ********* ********* ******** See what's new at http://www.aol. com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2007 Report Share Posted September 11, 2007 > I am sorry to hear what happened to Martha. Martha & all the family are in my thoughts and prayers. > Sincerely, > Sharla -- In rheumatic , " Ken and " <kglg@...> wrote: > > Please accept my heartfelt condolences for what has happened. I do not know Martha well, but she has always been such a positive, strong and helpful person to the rheumatic group. My thoughts and prayers are with you and your family. > > Sincerely, > > Re: rheumatic terrible news > > > Hi to all: > > I am not sure who I am writing to. This rheumatic group shows up many times > on Martha's emails so I wanted to send you a note to let you know what has > happened. > > First, my name is and I am her oldest daughter. She was a valiant > fighter in the war against Rheumatoid and she took great pleasure in these > posts and the various chat rooms she visited. She wanted to much to help find a > cure for this terrible illness. > > > This past Wednesday, she suffered a severe heart attack. The Doctors did > everything they could for her, but the end result is extensive brain damage due > to lack of oxygen. She is in Critical Care right now. A deep coma without > any responses. They have done 2 brain scans since the attack but no > improvement has been found. They let us know the reality of the situation yesterday > is that she will never be able to come back to us in any reasonable quality > of life. We can make the decision to keep her on life support and she can > stay that way until infection or something else takes her from us. > > Martha had a Living Will and was adamant about how she wanted to handle > things if this should ever come about. We will honor her wishes. By law, they > must do one more scan of her brain (72 hours later) but then we will make the > decision to remove her life support. No arrangements have been made past > that point. Please call the shop mid-week to find out more funeral arrangements > as I may not be able to remember who I need to contact again. > > We are all grieving deeply because she was the center of our family. She > influenced so many lives, especially those of her daughters and grandchildren. > Please keep us all in your prayers. There is now a huge aching hole in all > of our hearts that needs healing. > > God Bless, > Minneci McVay > > ************************************** See what's new at http://www.aol.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2007 Report Share Posted September 11, 2007 Wasn't there a little hope though? Martha's daughter said that they have to so another brain scan in 48 hours which was yesterday. Miracles have happened and doctors have been wrong many times. I am just wondering if there has been a positive change at all..... It will mrs_sears_guy1999 <mrs_sears_guy1999@...> wrote: > I am sorry to hear what happened to Martha. Martha & all the family are in my thoughts and prayers. > Sincerely, > Sharla -- In rheumatic , " Ken and " <kglg@...> wrote: > > Please accept my heartfelt condolences for what has happened. I do not know Martha well, but she has always been such a positive, strong and helpful person to the rheumatic group. My thoughts and prayers are with you and your family. > > Sincerely, > > Re: rheumatic terrible news > > > Hi to all: > > I am not sure who I am writing to. This rheumatic group shows up many times > on Martha's emails so I wanted to send you a note to let you know what has > happened. > > First, my name is and I am her oldest daughter. She was a valiant > fighter in the war against Rheumatoid and she took great pleasure in these > posts and the various chat rooms she visited. She wanted to much to help find a > cure for this terrible illness. > > > This past Wednesday, she suffered a severe heart attack. The Doctors did > everything they could for her, but the end result is extensive brain damage due > to lack of oxygen. She is in Critical Care right now. A deep coma without > any responses. They have done 2 brain scans since the attack but no > improvement has been found. They let us know the reality of the situation yesterday > is that she will never be able to come back to us in any reasonable quality > of life. We can make the decision to keep her on life support and she can > stay that way until infection or something else takes her from us. > > Martha had a Living Will and was adamant about how she wanted to handle > things if this should ever come about. We will honor her wishes. By law, they > must do one more scan of her brain (72 hours later) but then we will make the > decision to remove her life support. No arrangements have been made past > that point. Please call the shop mid-week to find out more funeral arrangements > as I may not be able to remember who I need to contact again. > > We are all grieving deeply because she was the center of our family. She > influenced so many lives, especially those of her daughters and grandchildren. > Please keep us all in your prayers. There is now a huge aching hole in all > of our hearts that needs healing. > > God Bless, > Minneci McVay > > ************************************** See what's new at http://www.aol.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2007 Report Share Posted September 13, 2007 I am so very sorry . Martha has been posting in our group for many years now. Her messages were always insightful and well thought out. She helped so many people here and she will be very much missed. There is nothing I can say to help your grief but I am thinking of you. Chris. > Hi to all: > > I am not sure who I am writing to. This rheumatic group shows up many > times > on Martha's emails so I wanted to send you a note to let you know what > has > happened. > > First, my name is and I am her oldest daughter. She was a > valiant > fighter in the war against Rheumatoid and she took great pleasure in > these > posts and the various chat rooms she visited. She wanted to much to > help find a > cure for this terrible illness. > > > This past Wednesday, she suffered a severe heart attack. The Doctors > did > everything they could for her, but the end result is extensive brain > damage due > to lack of oxygen. She is in Critical Care right now. A deep coma > without > any responses. They have done 2 brain scans since the attack but no > improvement has been found. They let us know the reality of the > situation yesterday > is that she will never be able to come back to us in any reasonable > quality > of life. We can make the decision to keep her on life support and > she can > stay that way until infection or something else takes her from us. > > Martha had a Living Will and was adamant about how she wanted to handle > things if this should ever come about. We will honor her wishes. By > law, they > must do one more scan of her brain (72 hours later) but then we will > make the > decision to remove her life support. No arrangements have been made > past > that point. Please call the shop mid-week to find out more funeral > arrangements > as I may not be able to remember who I need to contact again. > > We are all grieving deeply because she was the center of our family. > She > influenced so many lives, especially those of her daughters and > grandchildren. > Please keep us all in your prayers. There is now a huge aching hole > in all > of our hearts that needs healing. > > God Bless, > Minneci McVay Quote Link to comment Share on other sites More sharing options...
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