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Re: Fw: sarc commune

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--- Rose wrote:

>

> Re: checking in - from

> Joan

> >

> >

> > >

> > >

> > > --- pickstands@... wrote:

> > > >

> > > >

> > > > In a message dated 4/9/2005 11:15:59 P.M.

> Eastern

> > > > Standard Time,

> > > > belltown_mac@... writes:

> > > >

> > > > Recently i have read several others posts

> > > > concerning how our friends have

> > > > deserted us. It

> > > > amazes me that people aren't more sympathtic

> to our

> > > > situation. We didnt

> > > > chose to get sick

> > > > and you would think that our friends could be

> there

> > > > to help/ be supportive.

> > > > I was a social

> > > > worker for 19 years before i stopped working

> and

> > > > several times helped

> > > > friends get services

> > > > they needed- but have yet had anyone offer to

> help

> > > > me-

> > > > I was in a long term relationship(10 years)

> with

> > > > someone who died suddenly

> > > > of a heart

> > > > attack in Oct 2003. It has been hard dealing

> with

> > > > that on top of my

> > > > illness-This person

> > > > was a nurse and very supportive of me in

> dealing

> > > > with Sarc.

> > > >

> > > >

> > > >

> > > > Okay, Matt ... pain or not, this deserves

> another

> > > > post ....

> > > >

> > > > Oh, , how sooooo very sorry (great,

> great

> > > > understatement!) I am at

> > > > your loss!!!!! Feel hugs from the group and

> me!!!!

> > > >

> > > >

> > > > Regarding the unhelpful friends ... well, I

> was

> > > > thinking about this

> > > > (actually, crying about it) just yesterday

> .... ya

> > > > know, if we had cancer (which I

> > > > actually would have preferred over this, and

> no, I

> > > > am not going to apologize

> > > > for saying that!!), anyway, we would have

> most, if

> > > > not ALL, of our friends here

> > > > at our homes not being able to do enough! Not

> one

> > > > friend has even called to

> > > > ask if I needed help with cleaning (which I

> need

> > > > desperately) ... a simple

> > > > vacuum would make me feel better.

> > > >

> > > > Ah well, what's the old saying, ce'la vi

> > > > (...help with the spelling

> > > > please!).

> > > >

> > > > , I guess all your friends are

> " Sleeping in

> > > > Seattle " ... sorry,

> > > > corny--I know--but couldn't resist.

> > > >

> > > > Very awake in NJ and wishing I were asleep!,

> > > > Joan

> > > > Dear Joan- You are right- I think if we had

> cancer

> > > our friends would be more understanding- with

> Sarcoid

> > > they dont understand it and therefor i think are

> > > afraid that they can get it from us. Joan,i will

> make

> > > a deal with you. When i am having one of my good

> days

> > > i will gladly come over to your house and vacuum

> for

> > > you.. By the way where in Jersey do you live- I

> am a

> > > geography nut and spend a lot of time looking at

> maps.

> > > Take care and i hope you are hjaving a good

> day- Matt

> > > in Seattle

> > > > " I believe that friends are quiet angels who

> lift

> > > > us to our feet when our

> > > > wings have trouble remembering how to fly. "

> > > >

> > >

> > >

> __________________________________________________

> > >

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