Muscle spasms

[Guest guest]

Thank you Caro for your response and for the tip, but no, since now,

nobody told me to! What about you, did you have them too (the spasms)?

What type of EDSER are you? I'm sorry, but I just registered yesterday

and I don't know much about all of you.

I'm looking forward to share everybody experiences and knowledge, as

feel quite lost here!

Thanks again!

Filaretia

Re: Muscle spasms

In a message dated 12/14/2003 2:34:54 PM Eastern Standard Time,

ptclub@... writes:

muscle spasms

Are you taking your vitamins? Especially vitamin D, calcium and Vitamin

C.

Caro.

[Guest guest]

Dear Filaretia,

To try and answer your questions -

1.Is there any new meds with less side GI effects?

Everyone is going to react differently to the same meds. So what causes GI

side effects for you may not for others and vice versa. You don't state what

your GI side effects are. With narcotics the most likely side effect would be

constipation. This usually will go away after being on the med for a while but

you still may get occasional bouts. I've been on the Fentenyal patch for 5 years

now and will occasionaly get constipation and if bad enough I use a stool

softener, not a laxative, which gets me through.

The most common meds that people seem to be on, on this list, are

oxycontin, methadone, morphine and fentenyal.

2.Is there any one else experiencing this problems and especially

the muscle spasms?

This one I can't help with as I only get the " normal " occasional spasms,

save for my back. When it spases I either go in my spa or more likely, go lie

down till it passes. Having been a weight lifter in the past though it sounds to

me like the abdomnial muscles are what's triggering this. Not that it helps you.

Have to say you are one of the rare exceptions who has found relief by

excercise. I envy you :-) It might be due to your having a problem with range of

motion rather then with too much range of motion. Again different things work

for different people.

Jill has an extensive list of docs recommended by people on this list. Have

you asked her if there is one near you?

Hugs,

B.

HEDS, New Jersey, USA

[Guest guest]

Hi-

I do not get muscle spasms anywhere usuallly but my legs and they are sometimes

severe - often lasting 2 weeks- it is indescribably painful as all get go- I

finally found a medication that does help to a certain degree and no longer have

them for such a great length in time- it is quinine prescribed by dr of course

and is 260 mgs- I take one a night. * Admits sometimes pops an extra one when

severe* - I did try calcium etc- and it did help for a while but not long

enough- I guess I began having an immunity to it- but the quinine is very

helpful.

Hugs all Around- Sorry not doing much input- gathering information for

tomorrow's hearing at 9 AM.

Wish me luck !!

Custody child support battle.

Moon aka TJ

[Guest guest]

Hi,

I get some relief from Back, knee and surgical complications of my right

ankle using Lidoderm 5% Patches...unfortunately, you must have a prescription to

obtain them and can only use them 12 hours on and 12 hours off.

They take the edge off...but anything is better than nothing.

Before I found out about the 5% Patches, I used liquid Lidoderm 4% solution

and put it in a small spray bottle and sprayed it directly on the area or 2%

Fiscus Solution which is thick and will stay put awhile but again they require a

prescription. These last two can be sprayed on a gauze patch and taped on to

the area.....hey it worked for me....

My Rheumy Doc. prescribed Soma for a muscle relaxer but what is even better

is Valium...Yes it is an old " Nerve Pill " ....but today they use it for muscles

too.... My Ortho Doc prescribed it for post-op pain for my ankle.

Good luck, honey....

Take care,

[Guest guest]

I hate to make suggestions on medications; but maybe you could call the hospital

and get an idea of what you could take. For example, I take 6 tramadol per day.

Dr. Wallace's Fibro book says 6-8 per day is what he prescribes. So depending

on what you are taking now, you might be able to take more. Since you obviously

can't get the lidoderm patches over the weekend, you might try the OTC Salonpas

ones. Also, since I take tramadol and naproxen every day; you probably could

add some Aleve to the combo.

I sure hope that helps you get through the weekend.

Angie Harley Mama Double-D

Carson City, NV; Single, five children (3 at home), 2 dogs, 5 cats, snow skiing,

camping, Harley Rider, Lone Wolf, Blue Thong Society/High Sierra Thong Snappers

member, LFA Advocate, independent, opinionated, outspoken, and open minded.

" It's always something. " ~~~Gilda Radner

" While we have the gift of life, it seems to me theonly tragedy is to allow part

of us to die - whether it is our spirit,our creativity or our glorious

uniqueness. " ~~~Gilda Radner

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