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RE: Digest Number 2856

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C. Coate,

I have had wonderful results with gamma globulin administered intravenously

every three weeks. Yes, it helped the flu like symptoms, gave me more energy

and had fewer infections. There were no negative side effects. It was

wonderful.

My new Doctor is trying to get it approved thru my insurance company so I can

start getting it again. It is VERY expensive but well worth every cent.

I live in Florida so I have no conections in your neck of the woods.

Keep me posted on your progress and good luck!

jenae954@...

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  • 2 years later...
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Dear Groups,

I am back on AP (100 mg 2x day 7 days wk) (Minocin) now for almost 6 mos. I

am having problems with nausea and vomiting. When I have tried to wean back

to M_W_F I have severe flares.

I have tried Pro-biotics, but cannot keep them down.

My nausea seems to be related to sinus and phlegm not settling in my

stomach. I seem to have developed a bad " Gag " reflex when I try to swallow

large pills.

My MD has prescribed Zyretec; which helps about 40% of the time, but then it

makes me sleepy.

Anyone else experiencing these problems?

Jo Ann

New to Group

Just wanted to say hello. My name is Nichol and I am 32. I am going

to be seing a reumy here soon. I have been having some major aches

and pains that are uncontrolable at times, fevers lasting weeks,

etc. Thought I had the flu. Went to the Dr. and have an auto immune

disorder. I was diagnosed with Graves disease about 17 years ago.

Had a Total Thyroidectomy. Last year ended up having Fevers that

lasted for 4 weeks. Ended up getting noduals on my legs and was

diagnosed with Erythmia Nedosum (EN). Was down and out for about 14

weeks total. About a month ago I started running a low grade fever

again for about 3 weeks. Went to the Dr. No EN but had a whole bunch

of tests done. Diagnosed with RA. Have to go see a Reumy but cant

get in to one for another 6 weeks.

I have a few questions. I did have really bad all over joint and

body aches when I had my fever. But, now my fever is gone and I

can't walk or even hold the phone at times because my muscels hurt

so bad. My joints don't hurt as much, they might be but my muscels

hurt way more! I can't even straighten my left leg all the way, to

walk for about the first 50 steps or so. I feel like my

muscels are burning, week and tired all the time. In fact tonight we

went to A & W for dinner and my arms ached from driving the car and my

jaw ached for hours after eating. My arms are killing me from just

typing this... Is this normal? What do I do in the mean time before

my apt. I sit down for more than 15 mins and I can't walk and have

to get my muscels working again. Please Help!!! Worried and

concerned. Also, Some days I feel ok other days I feel like dropping

dead.

Nichol

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