new idea??? watcha think???

[Guest guest]

,

I have been engaged in writing just that sort of thing for the past year. It

will be published in 18 months. It isn't exactly as you described with stories

from the group but could be similar. Let's make sure we don't step on each

other's toes! Emma

[Guest guest]

Check the rheumatic.org website and you can read those case histories

Den and Skip

rheumatic new idea??? watcha think???

Greetings all

Being a writer, as that is one of the few things that I am able to do,

I, go figure, write things And one email, from courttneey gave me an

idea. I would like to write a book with all of your stories, about how

your various diseases came about, what you are doing to treat them and

how you have been doing as of late. I don't know, but maybe someone

just needs to show others a day in the life of, or a few days in a few

lives of

I'd like to see it published, but it would also be a good thing for

the moderators to pass on to newcomers ya think??? Anyone??? Anyone???

Email me what you think, and I'll see in a couple weeks if there is

enough interest and see what to do from there. Remember, this can all

be anonymous

michael

_____

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[Guest guest]

,

I think you have a wonderful idea!! Number one reason, nobody knows

anything about this horrible disease we have. When people want to know why I

am

disabled I tell them I have rheumatoid arthritis, because they have heard of

that one. Plus, a little notoriety might get more research done for us. I can

see it now, on the Montell Show, describing our disease and pushing

his new best seller. I would like to send one of the first ones to places

like UC and Oregon Health Sciences University, places that are doing

research on various forms of arthritis. Just let me know when you plan to

begin.

Janet in Ca

[Guest guest]

Ok by me....but I want you to change my name to Bets instead of Betz, ok? No z.

S. No z. I think it's a great idea . It's much more inspirational than

the books I have been working on...fictional stuff. And I have an idea that it

might just touch more people than you think. Maybe it will help people be

thankful for each step they take or each word they type...something that is not

easy for some of us. Yes...it's good. I'm in. -BetZ

Betsy Jack itsbetsy@...

[ ] new idea??? watcha think???

Greetings allÂ…

Being a writer, as that is one of the few things that I am able to do,

I, go figure, write thingsÂ… And one email, from courttneey gave me an

idea. I would like to write a book with all of your stories, about how

your various diseases came about, what you are doing to treat them and

how you have been doing as of late. I don't know, but maybe someone

just needs to show others a day in the life of, or a few days in a few

lives ofÂ…

I'd like to see it published, but it would also be a good thing for

the moderators to pass on to newcomersÂ… ya think??? Anyone??? Anyone???

Email me what you think, and I'll see in a couple weeks if there is

enough interest and see what to do from there. Remember, this can all

be anonymousÂ…

michael

[Guest guest]

Hi ,

Great idea, anything to get out the word to the rest of the world.

Jeanette

[ ] new idea??? watcha think???

Greetings all.

Being a writer, as that is one of the few things that I am able to do,

I, go figure, write things. And one email, from courttneey gave me an

idea. I would like to write a book with all of your stories, about how

your various diseases came about, what you are doing to treat them and

how you have been doing as of late. I don't know, but maybe someone

just needs to show others a day in the life of, or a few days in a few

lives of.

I'd like to see it published, but it would also be a good thing for

the moderators to pass on to newcomers. ya think??? Anyone??? Anyone???

Email me what you think, and I'll see in a couple weeks if there is

enough interest and see what to do from there. Remember, this can all

be anonymous.

michael

[Guest guest]

Hi,

Or even have a character that has this illness and what she/he goes through with

it, and the relationships it effects...

Jeanette

[ ] new idea??? watcha think???

Greetings allÂ…

Being a writer, as that is one of the few things that I am able to do,

I, go figure, write thingsÂ… And one email, from courttneey gave me an

idea. I would like to write a book with all of your stories, about how

your various diseases came about, what you are doing to treat them and

how you have been doing as of late. I don't know, but maybe someone

just needs to show others a day in the life of, or a few days in a few

lives ofÂ…

I'd like to see it published, but it would also be a good thing for

the moderators to pass on to newcomersÂ… ya think??? Anyone??? Anyone???

Email me what you think, and I'll see in a couple weeks if there is

enough interest and see what to do from there. Remember, this can all

be anonymousÂ…

michael

[Guest guest]

Micheal,

I am all for it so lets get started on it. Also, I know this is out of

line but I have a very odd name and I would love to see it in a book or on tv.

So if anyone gets the stories going on CSI ,Monk, or House will you please use

my name. Name is ZOELLA pronounced like ZO -- long O, Ella Zoella. Thank you.

" The only people to get even with are those who have helped you. "

---------------------------------

How low will we go? Check out Messengers low PC-to-Phone call rates.

[Guest guest]

Actually, I have another novel I am working on... No actually two others, where

I am basing the main character in one, and a secondary character in the other,

have various forms of arthritis, and how they deal with it and how society deals

with them.

michael

Jeanette French <yonder@...> wrote:

Hi,

Or even have a character that has this illness and what she/he goes through with

it, and the relationships it effects...

Jeanette

[ ] new idea??? watcha think???

Greetings all…

Being a writer, as that is one of the few things that I am able to do,

I, go figure, write things… And one email, from courttneey gave me an

idea. I would like to write a book with all of your stories, about how

your various diseases came about, what you are doing to treat them and

how you have been doing as of late. I don't know, but maybe someone

just needs to show others a day in the life of, or a few days in a few

lives of…

I'd like to see it published, but it would also be a good thing for

the moderators to pass on to newcomers… ya think??? Anyone??? Anyone???

Email me what you think, and I'll see in a couple weeks if there is

enough interest and see what to do from there. Remember, this can all

be anonymous…

michael

[Guest guest]

Wow... Hey guys, keep talking about these things, this idea from Janet gave me

another idea... It would be nice to include a laymans explanation of the

diagnosis of the diseases.. I guess I need a place to look, maybe a specific

book, with an explanation of the diseases. I'll go google, but if anyone knows

of somewhere specific to look for, please tell...

michael

cameronparkmom@... wrote:

,

I think you have a wonderful idea!! Number one reason, nobody knows

anything about this horrible disease we have. When people want to know why I am

disabled I tell them I have rheumatoid arthritis, because they have heard of

that one. Plus, a little notoriety might get more research done for us. I can

see it now, on the Montell Show, describing our disease and pushing

his new best seller. I would like to send one of the first ones to places

like UC and Oregon Health Sciences University, places that are doing

research on various forms of arthritis. Just let me know when you plan to

begin.

Janet in Ca

[Guest guest]

I think it is a wonderful idea! It is amazing how hard it is to get a

diagnosis, how many people are unaware of the disease. and how little

info there is out there about it. I am horrified when I read how

insurance can decide what is best for people. It sucks! Knowing that

there are other people out there suffering with this crap somehow

makes me feel better! I know that sounds terrible, but I know my

family gets sick of hearing how bad I hurt and it is nice to know that

some people here understand. I want my life back!! I especially want

my energy back. I used to go at a hubdred miles an hour all day

long, now it takes me until noon just to get the engine started and

then it stalls so often before it eventually just runs out of gas! I

would love to read about other peoples experiences, if tor nothing

else, to know that some people are worse off than I am so I quit

feeling sorry for myself!

One of the worse parts of this is that I feel like I am a crappy mom

to my 10 year old. With my older boys (22 and 20), we were constantly

on the go, outside playing, something all the time. Now I just can't

do all of that and it bugs me. Although he thinks I am the breatest

mom in the world, I know that I am not. I am just so tired all the

time. Oh well, hopefully the Enbrel is going to give me back my life.

Today will be my 8th shot (4 weeks), I am not sure if it is helping

or not. I thought at first it was but I think that may have been

wishful thinking. Can anyone tell me how long it takes to feel the

full effects? Any info would be appreciated. Thanks,

So , go for it, I will be glad to contribute anything I can.

I hope everyone has a wonderful holiday!

- In , " michaelr_321 "

<michaelr_321@...> wrote:

>

> Greetings all…

>

> Being a writer, as that is one of the few things that I am able to do,

> I, go figure, write things… And one email, from courttneey gave me an

> idea. I would like to write a book with all of your stories, about how

> your various diseases came about, what you are doing to treat them and

> how you have been doing as of late. I don't know, but maybe someone

> just needs to show others a day in the life of, or a few days in a few

> lives of…

> I'd like to see it published, but it would also be a good thing for

> the moderators to pass on to newcomers… ya think??? Anyone??? Anyone???

> Email me what you think, and I'll see in a couple weeks if there is

> enough interest and see what to do from there. Remember, this can all

> be anonymous…

>

> michael

>

[Guest guest]

,

Kewl, but what I meant was if you ever get a movie going of some type

would you use my name. I do not know anyone else with my name except one.

Everyone tells me they like my name so I would like to hear it in a movie.LOL

Blessings, Zoella

" The only people to get even with are those who have helped you. "

---------------------------------

Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates

starting at 1¢/min.

[Guest guest]

Hey ya'll,

I've been getting great response from everyone. Some are ready to

submit their stories, others are busy writing, still more are just

waiting for a sign... So here's the sign:

" CURVE AHEAD "

So, go ahead and write and submit. Write anything you feel is

relevant and anything else you just want people to know... Put it in

a word processing document, such as MS Word, and send it directly to

me as an attached file. It'll help me keep track of whose is whose...

Also, pretend I am rhuemetology-stupid... write the abreviations and

what they mean (PA-psoriatic arthritis, etc.)

I'm just beginning to see what kind of format to use so don't get

discouraged if I don't complete it by next week. After I get the

format, I have to adapt it to each person's story.

Send 'em send 'em send 'em...

Also, anyone else busy trying to write something as well, please let

me know who and how you are doing yours, so I don't take someone

elses ideas... I don't want to duplicate someone elses work...

Thanks ya'll for your help and input... I look forward to reading

about ya'll and getting to know you better...

michael

michaelr_321@...

[Guest guest]

Hey ya'll,

I've been getting great response from everyone. Some are ready to

submit their stories, others are busy writing, still more are just

waiting for a sign... So here's the sign:

" CURVE AHEAD "

So, go ahead and write and submit. Write anything you feel is

relevant and anything else you just want people to know... Put it in

a word processing document, such as MS Word, and send it directly to

me as an attached file. It'll help me keep track of whose is whose...

Also, pretend I am rhuemetology-stupid... write the abreviations and

what they mean (PA-psoriatic arthritis, etc.)

I'm just beginning to see what kind of format to use so don't get

discouraged if I don't complete it by next week. After I get the

format, I have to adapt it to each person's story.

Send 'em send 'em send 'em...

Also, anyone else busy trying to write something as well, please let

me know who and how you are doing yours, so I don't take someone

elses ideas... I don't want to duplicate someone elses work...

Thanks ya'll for your help and input... I look forward to reading

about ya'll and getting to know you better...

michael

michaelr_321@...

[Guest guest]

...

Sounds like a faboo idea....

Count me in!

Jody

> From: michaelr_321 <michaelr_321@...>

>

> Greetings all…

>

> Being a writer, as that is one of the few things

> that I am able to do,

> I, go figure, write things… And one email, from

> courttneey gave me an

> idea. I would like to write a book with all of your

__________________________________________________

[Guest guest]

Ah, ..

that sounds very good too..

Jeanette

[ ] new idea??? watcha think???

Greetings all.

Being a writer, as that is one of the few things that I am able to do,

I, go figure, write things. And one email, from courttneey gave me an

idea. I would like to write a book with all of your stories, about how

your various diseases came about, what you are doing to treat them and

how you have been doing as of late. I don't know, but maybe someone

just needs to show others a day in the life of, or a few days in a few

lives of.

I'd like to see it published, but it would also be a good thing for

the moderators to pass on to newcomers. ya think??? Anyone??? Anyone???

Email me what you think, and I'll see in a couple weeks if there is

enough interest and see what to do from there. Remember, this can all

be anonymous.

michael

[Guest guest]

,

When is our deadline? I am leaving soon on a trip,

and probably won't have time to do it before I leave.

Thanks,

Jody

--- Jeanette French <yonder@...> wrote:

> Hi :

> I am still working on my story. I have been pretty

__________________________________________________

[Guest guest]

Hey...please tell me that you are not putting a quick deadline on us....it's

taking me awhile. -Betz

Betsy Jack itsbetsy@...

[ ] new idea??? watcha think???

Greetings allÂ…

Being a writer, as that is one of the few things that I am able to do,

I, go figure, write thingsÂ… And one email, from courttneey gave me an

idea. I would like to write a book with all of your stories, about how

your various diseases came about, what you are doing to treat them and

how you have been doing as of late. I don't know, but maybe someone

just needs to show others a day in the life of, or a few days in a few

lives ofÂ…

I'd like to see it published, but it would also be a good thing for

the moderators to pass on to newcomersÂ… ya think??? Anyone??? Anyone???

Email me what you think, and I'll see in a couple weeks if there is

enough interest and see what to do from there. Remember, this can all

be anonymousÂ…

michael

[Guest guest]

,

I would be willing to share my story to help someone else..To educate people

who dont have it so they can understand and to educate people who do have it but

maybe are newly diagnosed..

Let me know when you are ready...

Vickey

michaelr_321 <michaelr_321@...> wrote:

Greetings all…

Being a writer, as that is one of the few things that I am able to do,

I, go figure, write things… And one email, from courttneey gave me an

idea. I would like to write a book with all of your stories, about how

your various diseases came about, what you are doing to treat them and

how you have been doing as of late. I don't know, but maybe someone

just needs to show others a day in the life of, or a few days in a few

lives of…

I'd like to see it published, but it would also be a good thing for

the moderators to pass on to newcomers… ya think??? Anyone??? Anyone???

Email me what you think, and I'll see in a couple weeks if there is

enough interest and see what to do from there. Remember, this can all

be anonymous…

michael

---------------------------------

Music Unlimited - Access over 1 million songs.Try it free.

[Guest guest]

I think that is a great idea!

~

michaelr_321 <michaelr_321@...> wrote:

Greetings all…

Being a writer, as that is one of the few things that I am able to do,

I, go figure, write things… And one email, from courttneey gave me an

idea. I would like to write a book with all of your stories, about how

your various diseases came about, what you are doing to treat them and

how you have been doing as of late. I don't know, but maybe someone

just needs to show others a day in the life of, or a few days in a few

lives of…

I'd like to see it published, but it would also be a good thing for

the moderators to pass on to newcomers… ya think??? Anyone??? Anyone???

Email me what you think, and I'll see in a couple weeks if there is

enough interest and see what to do from there. Remember, this can all

be anonymous…

michael

---------------------------------

Sneak preview the all-new .com. It's not radically different. Just

radically better.

[Guest guest]

Now, would I do that to you??? Never mind, don't answer that... No, no deadline.

I just had somewhere to go... keep writing... I will be back soon. In the

meantime, I'm just trying to keep up with the emails on my laptop. I managed to

find a connection while I am here... just write away at your own paste. Just

remember all, send as an attatchment in a word processor...

michael

Betsy Jack <itsbetsy@...> wrote:

Hey...please tell me that you are not putting a quick deadline on

us....it's taking me awhile. -Betz

Betsy Jack itsbetsy@...

[Guest guest]

Jody...

no hurry. I'm gathering right now and doing a little experimentation with the

format... At your leisure. I can always add people on the end... Spread the word

ya'll... I want lots of stories since everyone is different. Even if you have

never told anyone, it's a chance to share your wisdom with others, and I can

keep things anonymous if you want... Come Ya'll!!! Write write write... just

send them to me as a word processing attatchment...

michael (Maybe thor can ghost write this for me...)

Jody son <jodpaulson@...> wrote:

,

When is our deadline? I am leaving soon on a trip,

and probably won't have time to do it before I leave.

Thanks,

Jody

--- Jeanette French <yonder@...> wrote:

> Hi :

> I am still working on my story. I have been pretty

__________________________________________________

[Guest guest]

In a message dated 01/07/2006 14:34:36 GMT Daylight Time,

michaelr_321@... writes:

… And one email, from courttneey gave me an

idea. I would like to write a book with all of your stories, about how

your various diseases came about, what you are doing to treat them and

how you have been doing as of late. I don't know, but maybe someone

just needs to show others a day in the life of, or a few days in a few

lives of…

Hi ,

I am probably too late to help with this but I hope it is all going well.

Good luck,

[Guest guest]

,

Never too late... And as a progress report, I have 4 stories made out

in first draft... Still waiting for all ya'lls stories. Write 'em and

I'll... oh geez... I'll write 'em back to ya... Feedback, feedback,

feedback... Come on People... Lets hear it from ya... We all want to

know about you and how you contracted the disease(s)... It will help

other newbies learn about us'ns and what we are like... Keep

writing!!!

... (Thor and spot are doin' the typing these days... so bear

with me...)

>

>

> In a message dated 01/07/2006 14:34:36 GMT Daylight Time,

> michaelr_321@... writes:

>

> … And one email, from courttneey gave me an

> idea. I would like to write a book with all of your stories, about

how

> your various diseases came about, what you are doing to treat them

and

> how you have been doing as of late. I don't know, but maybe someone

> just needs to show others a day in the life of, or a few days in a

few

> lives of…

>

>

>

> Hi ,

>

> I am probably too late to help with this but I hope it is all going

well.

>

> Good luck,

>

>

>

>

>

[Guest guest]

-- I'll write you my story. Is there a length limit here?

Jayson

[ ] Re: new idea??? watcha think???

,

Never too late... And as a progress report, I have 4 stories made out

in first draft... Still waiting for all ya'lls stories. Write 'em and

I'll... oh geez... I'll write 'em back to ya... Feedback, feedback,

feedback... Come on People... Lets hear it from ya... We all want to

know about you and how you contracted the disease(s)... It will help

other newbies learn about us'ns and what we are like... Keep

writing!!!

... (Thor and spot are doin' the typing these days... so bear

with me...)

>

>

> In a message dated 01/07/2006 14:34:36 GMT Daylight Time,

> michaelr_321@... writes:

>

> â?¦ And one email, from courttneey gave me an

> idea. I would like to write a book with all of your stories, about

how

> your various diseases came about, what you are doing to treat them

and

> how you have been doing as of late. I don't know, but maybe someone

> just needs to show others a day in the life of, or a few days in a

few

> lives ofâ?¦

>

>

>

> Hi ,

>

> I am probably too late to help with this but I hope it is all going

well.

>

> Good luck,

>

>

>

>

>

[Guest guest]

I will try to sit down here and do mine.... I think this is an AWESOME

idea!!!!!

On 8/3/06, michaelr_321 <michaelr_321@...> wrote:

>

> ,

> Never too late... And as a progress report, I have 4 stories made out

> in first draft... Still waiting for all ya'lls stories. Write 'em and

> I'll... oh geez... I'll write 'em back to ya... Feedback, feedback,

> feedback... Come on People... Lets hear it from ya... We all want to

> know about you and how you contracted the disease(s)... It will help

> other newbies learn about us'ns and what we are like... Keep

> writing!!!

>

> ... (Thor and spot are doin' the typing these days... so bear

> with me...)

>

>

>

> >

> >

> > In a message dated 01/07/2006 14:34:36 GMT Daylight Time,

> > michaelr_321@... writes:

> >

> > & And one email, from courttneey gave me an

> > idea. I would like to write a book with all of your stories, about

> how

> > your various diseases came about, what you are doing to treat them

> and

> > how you have been doing as of late. I don't know, but maybe someone

> > just needs to show others a day in the life of, or a few days in a

> few

> > lives of &

> >

> >

> >

> > Hi ,

> >

> > I am probably too late to help with this but I hope it is all going

> well.

> >

> > Good luck,

> >

> >

> >

> >

> >