Guest guest Posted December 15, 2003 Report Share Posted December 15, 2003 Hi newbie Lupie Kim, I just want to welcome you to our group. My name is C, (aka) Lonewolf. I too have hypothyroidism and lupus. Lupus certainly can affect your thyroid function. I was diagnosed with hypothyroidism about a year before my first big lupus flare,and it cause my whole indochrine (sp?) system to shut down., and I went into a coma for 10 days. It was while I was in this coma that I was diagnosed with Lupus. You can find a good place to begin to learn about this complicated disease on ` Rion's' website. Her web page is at the end of every Email......just click on the www.itzarion.com/lupiesgroup/ link and it will take you there. Welcome again, Lonewolf/ C. Willis wrote: Hi,My name is Kim, Im 27 and live in Ohio, I just found the Lupies group and thought it might be a good thing to hear from others that have Lupus. I dont know a whole lot about it. I was just diagnosed 6 months ago and had never even heard of it. I had the rash and really terrible joint pain, I couldnt move my shoulder, then my knee then my wrist, I thought I was crazy! I was already dealing with hypothyroidism (since I was 3) so I have to take synthroid every day (and I still forget) I had back surgery when I was 13 so I have lower back pain from time to time, and then this lupus diagnosis, I have never broken a bone, rarely ever sick, but then I have all these other weird things happen to me! Back surgery, hypothyroidism, lupus....I really felt like a hypochondriac! And Im only 27! Most of the time I feel great, but I wanted to join the group for the not so good times, I was in alot of pain around the time they figured out what it was, but everyone around me thought I was nuts, or making it up because the symptoms were so out of the ordinary for someone my age. I was wondering if being on the synthroid for so long could have triggered the lupus, or what the two have in common, and can they affect each other? My doctor said that when I had my flare with lupus it sent my synthroid dosage out of whack, he said it was to a point that I could have put myself in a coma, all I knew is that I was really tired! I just dont understand how they affect each other, and the doctor was very vague. Does anyone else have both and know?"The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/gallery/view?username=lupies Quote Link to comment Share on other sites More sharing options...
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