Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 I want to wish everyone a blessed New Year. May God be with you all. And, may this year be the best you have ever had. I pray that God will resolve every or any problem that you have. And, if things are good, I pray God keep you. I know that I for one resolve to get well this year. So, that is my years #1 resolution for 2002. And, I receive the blessing that I know God promises. That is, His blessings are yes and amen, and by His stripes we ARE healed. Thank you all for being here for me this last year. And, I hope to continue friendships for years to come. As far as an update with me and the recent RHS (Ramsay Hunt Syndrome) It is still pretty bad. But, I have pretty good care around here for this problem and everyone is doing pretty much what they can for me. I have follow-up appointments to check me out again this week. I have read about this and the prognosis is not the best, but it can resolve completely in some rare cases. And in most cases there is 50% resolve. I take the 100% one as I said. I ask for prayer for my continuing healing on this. The eye is pretty bad since you cannot blink it, so it gets dry and damage to the cornea. I will see an eye dr. this week, and there is a surgery for that where they can put some gold in your eye-lid to make it heavy and blink with your other one. Kinda always wanted a gold something in my body, guess this is my one chance. I don't think I want the gold tooth. No offense if you have one. I just really don't even wear but one ring and that is the wedding band to keep all those men away. The pain is under pretty good control, and as I said, thanks to the steroids the ACM symptoms are lessened these days. I hope this stays this way. Still going ahead with the decompression surgery, it is moved to Feb. 25th as I said. About 8 weeks away. Plenty of time to get well from this ug of a thing. Thank you all for the recent letters of concern, and I am glad to see that there are some great ideas coming out to help all of us with getting the public to know more about ACM. Public awareness, and as Chip is saying early intervention by having the health care workers more informed and trained in the first place, even at the levels of their schooling. So, they won't come out of med school never hearing about us. And, patients getting tested earlier, better chances for MRI's, so they can get earlier treatment. One of the cardiologists that saw me in the hospital, very good dr. too, said that he will be reading a researching this for me, because he finds it to be a mystery, all of the strange things that I have associated with it. He feels that it is not an accident, and is hoping with me that the decompression surgery will clear some of it up. He thinks that the dysautonomia might be connected to the compression of the hind-brain. He is most interested in the affects that ACM has on my heart. So, although he admitted I was his FIRST cardiac ACM patient he ever had even after 4 years of private practice, he seems exited enough to study now to find out how he can help me. This is a step. He could just dismiss me to another dr. like most of the others do. We'll get there. Just keep talkin' in Ala. ACM-I 7mm, spinal stenosis, spinal fusion C3-7, Ramsay Hunt Syndrome, dysautonomia ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/web/. Quote Link to comment Share on other sites More sharing options...
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