Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 Welcome Marilyn. I know you will get some very good advice here. I am sorry you had such a horrible time and hope you will get regulated soon. Lou marilyn wrote: >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 Vicki, Is there an actual technical name for the way we're dosing? I made the mistake of calling it 'sliding scale' and sorta confused my previous doc " Carb to Insulin Dosing " maybe? SulaBlue > The sliding scale concept is often used but is NOT very efficient > either. It is based on your BGs but corrects after the fact, i.e. after > your BGs are high. Much better is to count the carbs you eat then base > your insulin dose on that amount of carbs. This method requires some > preliminary testing to learn what your carb to insulin ratio is, but > there are many on this list who can help you with that. > > I belong to another list whose moderator is a retired diabetic engineer > who has devised an insulin dosing system that really works and if you're > interested, I can give you the signup information. He's helped lots of > people. > > Good luck and take care, > Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 Hi, Marilyn -- welcome to the list. Sorry you had such a horrible experience. That was really scary. It sounds like your diabetic education is sadly lacking and I think the dosing schedule your doc gave you was WAY off. I have a bunch of stuff to say to you at the end of the standard newby letter, so read on. First of all, I'm going to attach my " standard newby letter " . Read everything carefully, including all the links -- that'll keey you busy for a while. Ask any questions -- we're here to answer them for you. If you've already read the " standard newby letter " (because I recently posted it for another newby) just skip to the end of it for more from me. *** First of all, let me refer you to two of the best books about diabetes. Read 'em and you'll learn a lot: The first one is called " The First Year, Type Two Diabetes, An Essential Guide for the Newly Diagnosed " by Gretchen Becker. Gretchen is a list member and her book is an excellent guide. It's in paperback and available online from Amazon if your local bookstore doesn't have it. The second book is called " Dr. Bernstein's Diabetes Solutions " by K. Bernstein, M.D. You can get it from the library but it's such a good reference that you really should have it in your home library. Dr. Bernstein is a longtime type 1 who controls his diabetes using a lowcarb diet as well as insulin.. Many of us - both type 1 and 2 -- on this list have found great success using his plan or a modified version thereof. . And here's the URL to Dr. Bernstein's website, where there's lots of good stuff: http://www.diabetes-normalsugars.com/index.shtml These two books will give you good basic information on the ins and outs of diabetes management. I would further refer you to an excellent informational website titled " " What They Don't Tell You About Diabetes " http://www.geocities.com/lottadata4u/ If it isn't there for some reason, let me know and I can email you the contents -- I have it in my archives now. I would also refer you to Mendosa's website, where there's a wealth of diabetic information and good links. He also has an online diabetes newsletter which is very good. It's also an excellent source for information about the GI index (glycemic index). www.mendosa.com There's one thing that's sure to make BGs rise and that's carbohydrates. Cutting out high GI carbs is an excellent way to control your BGs and the more you cut, the better. Most of us find that the " whites " -- breads, cereals and pastas, in fact anything made with grain - will raise our BGs. Also, rice and potatoes will do the same. And of course, cakes and cookies and sweets of all kinds, including fruits and fruit juices. Watch out for " low calorie " foods; often they're higher in carbs. Learn to read food labels. Dr. Bernstein recommends about 40 carbs a day total. This is really only for the dedictated low carber and IMHO hard to maintain over the long run. However, I've read that the average American eats about 300 carbs a day, so the truth is somewhere in between. The best thing you can do for yourself (if you haven't already) is buy a meter and use it FREQUENTLY. At the beginning you want to learn how different foods affect your BG and to do this you need to eat one food at a time, testing first...then test one and two hours afterwards. Weigh out the amounts and keep good notes. You'll use up a lot of strips in the beginning but the rewards are definitely worth the expense and bother because in the end, you'll know what foods to avoid and which are okay. Diabetes is a very individual disease and we often say YMMV - " your mileage may vary " -- what works for one may not work for another. You want to aim for postprandial (two hours after meal) BG of 120. Keeping your BGs between 70 and 140 are your goals. If you can do this longterm, you can probably avoid the dreaded consequences of longterm poor BG control...and I'm sure I don't have to list those for you. (I will if you want, though). Here's my own list of pretty lowcarb veggies: Spinach Cauliflower Broccoli Summer squash (zucchini, crookneck) Spaghetti squash Mushrooms Asparagus Greenbeans Cabbage Sauerkraut And of course lettuce and avocados which aren't a veggie but a fruit ..but they're definitely lowcarb. I have a large mixed lettuce salad with avocado every night with dinner. You can eat a reasonable portion (4-6 ounces) of meat, chicken, fish without problem; it's all protein, no carbs. Berries are the lowest carb fruit but even so, you should eat them very sparingly. Here's the website of the USDA, which you'll find very helpful. It has carbs, calories, protein, etc. http://www.nal.usda.gov/fnic/cgi-bin/nut_search.pl It's helpful to have a food scale. A cup measure isn't nearly so accurate. I use a Salter scale. It weighs in both grams and ounces and cost me somewhere around $35. I got mine at a local gourmet shop but they're available online too. Just do a Google search for " Salter food scales " . The A1C is a test that measures your average BG for a three-month period with slightly more weight given to the latest month. All diabetics should have this test every three months. And you should ask for, and keep, copies of all your lab reports. Good luck. And keep those questions coming. There's a really steep learning curve at the beginning of your diabetes education but hang in there -- it will all make sense eventually. And remember -- the only stupid question is the one you didn't ask. Vicki, diabetic since 1997, A1Cs comsistently under 6 for a long time, no complications, planning on forever no complications,smile. ** Now for my additional comments: It sounds as though your doctor (hopefully your former doctor) prescribed a " standard dose " of insulin. This rarely works, because you're not eating the same thing every day, although " standard dosing " assumes this. And your doctor's standard dosing was WAAAAYYY off. Did he even mention eating a specific amount of carbs to cover that amount of insulin? Even so, it is bad. The sliding scale concept is often used but is NOT very efficient either. It is based on your BGs but corrects after the fact, i.e. after your BGs are high. Much better is to count the carbs you eat then base your insulin dose on that amount of carbs. This method requires some preliminary testing to learn what your carb to insulin ratio is, but there are many on this list who can help you with that. I belong to another list whose moderator is a retired diabetic engineer who has devised an insulin dosing system that really works and if you're interested, I can give you the signup information. He's helped lots of people. Good luck and take care, Vicki Blood Sugar Dive While Driving -So Scared! > I'm new here. New to having low blood sugar for a change, as it > had been much too high for the last year (I nearly died twice last > summer while in the hospital for congestive heart failure; up to > that point I had only taken micronase but when I finally came home > (after two months in the hospital, we began the insulin regimen) and > my doctor had prescribed large amounts of insulin 3 x a day. Last > Thursday, I left my dentist's office (no meds given there) intent on > stopping by the grocery store on the way home. This was at 4:30 pm. > At 6:30 pm, some kind gentleman waved me over to the side of the > road, 50 miles from my home, and I was sobbing loudly because I > didn't know where I was. My brain had ceased to function. I had > been on the interstate in a complete fog and fortunately, I turned > off onto a state highway where this man was able to wave me over. > He had evidently been following me and had already called the > highway patrol and an ambulance. He asked me, " Lady are you okay? " > And I said, " I'm a diabetic, and I don't know where I am. " He asked > me to sit in the back seat and he took over the driver's seat > (probably so I wouldn't start driving again) then told me he had > called an ambulance already; then a state trooper was at my car door > and started asking me quesions, too. He found a peppermint in the > depths of my car console and told me to take it to bring my blood > sugar up. When I told him my address, he said, " You're a long way > from home. " It crossed my mind that I might have Alzheimer's. The > paramedics arrived, took my blood sugar, which was 46 and we called > my daughter to come and get me at the hospital, since the paramedics > said they wouldn't let me drive even after I took the glucose in a > tube and I started " coming to. " I said that was fine with me, I was > so scared about what I had done. I could have had a horrible > accident and killed somebody and/or myself. I didn't have enough > sense to realize I was going the wrong way or to pull over and take > some sugar. All I can remember is driving and screaming, I was so > scared. Not stopping! Not until the man pulled me over on the > state highway. He was truly an angel. Anyway, when the ambulance > got me to the hospital and I was checked over, they decided I needed > to eat some dinner before my family came to get me. Then the ER > doctor came in and asked me about my insulin doseage. I told him I > was taking 23 units before breakfast, 40 units before lunch and > dinner, and 60 lantus at bedtime. He frowned and said, " That's too > much insulin. " I thought about it and said, " My blood sugar was 64 > before lunch, I gave myself 40 units of insulin, as instructed > daily, and I went to the dentist at 3:30. " Probably stress helped > cause the rapid drop in blood sugar, he suggested. But he wanted me > to take insulin on a graduated scale until I could get hold of my > doctor the next day (Friday). > On Friday morning, I began calling my endocrinologist's office to > ask questions and tell him about the event. I demanded to talk to > his nurse, if I couldn't talk to him, and told her of my incident. > She said through the receptionist she couldn't tell me anything > until she talked to him, and my chart was put on his desk. His > nurse finally called me back late in the afternoon and she had new > numbers for me. I didn't have enough sense to question these new > numbers, and when I told my family members, they pitched a fit and > said I probably needed to stay on the sliding scale, since my blood > sugar was between 80 and 120 all that day, and I didn't have to take > any insulin according to the sliding scale. If I had taken 30 units > when my blood sugar was 80, it would have nose-dived again, right? > So, this morning I'm faxing him my numbers (as I have always done > weekly) and putting on the fax sheet that I want to continue on the > sliding scale insulin, as my family insisted. (My dad was a diabetic > before he died of cancer 6 six years ago, and my mother was > horrified that I had taken 40 units of insulin when my blood sugar > was only 64.) > I'm losing faith in my doctor because of all this. Of course, maybe > I should have known when I left the dentist's office that my blood > sugar was dropping and taken a snack or glucose tablets (which I > hadn't been told to carry in the first place!) before I blacked out > on that crazy 50 mile drive. And even though he has reduced the > insulin since then, I'm really scared to take 20 units when my blood > sugar is in the 60s. > Am I wrong? I'm getting ready to call the doctor's office again to > let them know I'm keeping with the sliding scale, per the ER > doctor's advice.....maybe that statement will get them to call me > back. I've never been so scared in my 67 years on this planet, > feeling completely out of control and screaming while driving on the > interstate, with double vision, no less. I now have glucose tablets > in my purse and will take them the minute I get that " funny feeling " > as before and not ignore it. Sorry this is so long a post. > Any comments? > Marilyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 One more thing, Marilyn..do you carry your meter with you at all times? If you don't, you should. And when you get that " funny feeling, " check your BG first. The good thing about glucose tablets is that they raise your BG a set, specific amount EVERY TIME. So you need to test and find out what your parameters are. To do this, right before you take any insulin, before a meal, check your BG. Eat a glucose tab. Wait 10 minutes then start checking your BG every 5 minutes. Use a timer. When things level off, i.e. when you get 2 readings that are approximately the same give or take 5 points or so, that's the amount of time it takes for a glucose tab to work. Then you'll know. Make a note of it. Let's say you feel " funny " and you check your BG. It's 55. Well, you've tested before and you know that one glucose tab raises you 20 points (this is fairly typical for type 2s) Since a hypo is considered anything below 65, and you know that 1 tab raises you 20 points, you take 1 tab and there you are - at 75, which is out of danger territory. Or you could even take 2 safely; 95 is an excellent number. You should try to maintain BGs as close to 100 as possible. I can't believe your doctor didn't tell you about glucose tabs. Get a new doc! Vicki Blood Sugar Dive While Driving -So Scared! > I'm new here. New to having low blood sugar for a change, as it > had been much too high for the last year (I nearly died twice last > summer while in the hospital for congestive heart failure; up to > that point I had only taken micronase but when I finally came home > (after two months in the hospital, we began the insulin regimen) and > my doctor had prescribed large amounts of insulin 3 x a day. Last > Thursday, I left my dentist's office (no meds given there) intent on > stopping by the grocery store on the way home. This was at 4:30 pm. > At 6:30 pm, some kind gentleman waved me over to the side of the > road, 50 miles from my home, and I was sobbing loudly because I > didn't know where I was. My brain had ceased to function. I had > been on the interstate in a complete fog and fortunately, I turned > off onto a state highway where this man was able to wave me over. > He had evidently been following me and had already called the > highway patrol and an ambulance. He asked me, " Lady are you okay? " > And I said, " I'm a diabetic, and I don't know where I am. " He asked > me to sit in the back seat and he took over the driver's seat > (probably so I wouldn't start driving again) then told me he had > called an ambulance already; then a state trooper was at my car door > and started asking me quesions, too. He found a peppermint in the > depths of my car console and told me to take it to bring my blood > sugar up. When I told him my address, he said, " You're a long way > from home. " It crossed my mind that I might have Alzheimer's. The > paramedics arrived, took my blood sugar, which was 46 and we called > my daughter to come and get me at the hospital, since the paramedics > said they wouldn't let me drive even after I took the glucose in a > tube and I started " coming to. " I said that was fine with me, I was > so scared about what I had done. I could have had a horrible > accident and killed somebody and/or myself. I didn't have enough > sense to realize I was going the wrong way or to pull over and take > some sugar. All I can remember is driving and screaming, I was so > scared. Not stopping! Not until the man pulled me over on the > state highway. He was truly an angel. Anyway, when the ambulance > got me to the hospital and I was checked over, they decided I needed > to eat some dinner before my family came to get me. Then the ER > doctor came in and asked me about my insulin doseage. I told him I > was taking 23 units before breakfast, 40 units before lunch and > dinner, and 60 lantus at bedtime. He frowned and said, " That's too > much insulin. " I thought about it and said, " My blood sugar was 64 > before lunch, I gave myself 40 units of insulin, as instructed > daily, and I went to the dentist at 3:30. " Probably stress helped > cause the rapid drop in blood sugar, he suggested. But he wanted me > to take insulin on a graduated scale until I could get hold of my > doctor the next day (Friday). > On Friday morning, I began calling my endocrinologist's office to > ask questions and tell him about the event. I demanded to talk to > his nurse, if I couldn't talk to him, and told her of my incident. > She said through the receptionist she couldn't tell me anything > until she talked to him, and my chart was put on his desk. His > nurse finally called me back late in the afternoon and she had new > numbers for me. I didn't have enough sense to question these new > numbers, and when I told my family members, they pitched a fit and > said I probably needed to stay on the sliding scale, since my blood > sugar was between 80 and 120 all that day, and I didn't have to take > any insulin according to the sliding scale. If I had taken 30 units > when my blood sugar was 80, it would have nose-dived again, right? > So, this morning I'm faxing him my numbers (as I have always done > weekly) and putting on the fax sheet that I want to continue on the > sliding scale insulin, as my family insisted. (My dad was a diabetic > before he died of cancer 6 six years ago, and my mother was > horrified that I had taken 40 units of insulin when my blood sugar > was only 64.) > I'm losing faith in my doctor because of all this. Of course, maybe > I should have known when I left the dentist's office that my blood > sugar was dropping and taken a snack or glucose tablets (which I > hadn't been told to carry in the first place!) before I blacked out > on that crazy 50 mile drive. And even though he has reduced the > insulin since then, I'm really scared to take 20 units when my blood > sugar is in the 60s. > Am I wrong? I'm getting ready to call the doctor's office again to > let them know I'm keeping with the sliding scale, per the ER > doctor's advice.....maybe that statement will get them to call me > back. I've never been so scared in my 67 years on this planet, > feeling completely out of control and screaming while driving on the > interstate, with double vision, no less. I now have glucose tablets > in my purse and will take them the minute I get that " funny feeling " > as before and not ignore it. Sorry this is so long a post. > Any comments? > Marilyn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 Thank you, Vicki. I'm glad I found this group. I will now be carrying my meter with me; I took it last night to dinner at a friend's house (another friend came by and picked me up; no way am I gonna drive for a while until this all settles down!) and it was 124, I think. Marilyn whimsy2 wrote: One more thing, Marilyn..do you carry your meter with you at all times? If you don't, you should. And when you get that " funny feeling, " check your BG first. The good thing about glucose tablets is that they raise your BG a set, specific amount EVERY TIME. So you need to test and find out what your parameters are. To do this, right before you take any insulin, before a meal, check your BG. Eat a glucose tab. Wait 10 minutes then start checking your BG every 5 minutes. Use a timer. When things level off, i.e. when you get 2 readings that are approximately the same give or take 5 points or so, that's the amount of time it takes for a glucose tab to work. Then you'll know. Make a note of it. Let's say you feel " funny " and you check your BG. It's 55. Well, you've tested before and you know that one glucose tab raises you 20 points (this is fairly typical for type 2s) Since a hypo is considered anything below 65, and you know that 1 tab raises you 20 points, you take 1 tab and there you are - at 75, which is out of danger territory. Or you could even take 2 safely; 95 is an excellent number. You should try to maintain BGs as close to 100 as possible. I can't believe your doctor didn't tell you about glucose tabs. Get a new doc! Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 >whimsy2 wrote: >Hi, Marilyn -- welcome to the list. Sorry you had such a horrible >experience. That was really scary. >It sounds like your diabetic education is sadly lacking I took the diabetes education classes at the hospital for three months....it all went over my head, so much technical jargon, and eat this and don't eat that....at the time, I wasn't having any low BG readings, so a lot of what they were saying didn't apply. Plus, I'm glad to know you agree that we're not all alike. My doctors last summer were astounded at how my body reacted to different doses of different medications. I say " I went to the hospital with CHF and then when I got there, they tried to kill me. " >and I think the dosing schedule your doc gave you was WAY off. Everybody I've talked to agrees with you. I just faxed my doctor's office a note that I'm not taking his new dosage schedule, but doing the sliding scale -- that ought to get me a return phone call, don't you think? <G> >I have a bunch of stuff to say to you at the end of the standard >newby letter, so read on. > >First of all, I'm going to attach my " standard newby letter " . Read >everything carefully, including all the links -- that'll keey you >busy for a while. Ask any questions -- we're here to answer them for >you. Thank you. Marilyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 > Samante wrote: >Wow!! What a story. You are one lucky lady to be able to relate the >story. I'm aware of that...God was looking out for me. And everybody else! >There are several factors in your story that I would like to address. > >1- I take it that you do not take your meter with you when you leave >home? Given the recent events, do you think it might be beneficial to >do so in the future? And of course use the meter liberally so that >you do not have a repeat experience. Sounds like I'll have to do that, which is no problem, considering the consequences of not doing so! >2- Dentist Visits. It seems that many doctors forget to caution DMers >about how they should treat visits to the Dentist. Dmers on oral meds >should know beforehand whether they should stop certain meds several >days before their appointment depending on what the Dentist plans to >do. I know that metformin is one oral med that has to be stopped >temporarily before oral surgery. Insulin users have to also treat >dentist visits like they would treat comparable medical tests/>treatment. My dentist is aware that I have lupus, but not so sure he knows about the diabetes. Will be sure to let him know next time. >Several years ago, when beginning extensive dental work I checked >with my doctor who took my off handed inquiry very seriously. I >tested before going to the dentist, brought a can of regular coke >with me to each appointment and left it with the nurse/tech? and >explained that if there was a problem, this was the solution and if I >didn't need it, just add ice and enjoy. My doctor insisted on talking >to the dentist before I started having the work done. He wanted to >make sure that the dentist knew what signs to look for and how to >handle any given situation. I tested before leaving the dentist's >office and depending on the results had a snack or just drove home. From now on, I'll test when I'm out and about, just in case.....don't want to EVER go through that awful experience again. >3- There was a discussion about hypo remedies on this list just last >week. First you have to be aware of the signs of a hypo. I think >there are at least three types of hypos, the slow dropping kind that >comes from not eating, a quick onset type hypo that has no overt >reason or warning and a quick onset type hypo that you can trace the >reason and there are warning signs. These descriptions are purely my >own assessment of my situation and may not in total relate to you. >Regardless, you have to become aware of what your body is telling you >and be prepared to treat a hypo as quickly and effectively as >possible. I will pay more attention to what my body is telling me. For sure! >You need to be prepared for any hypo situation. I always keep my >hypo remedy of choice in the car console, my office, and on my person >when away from home or office. Some people use milk, orange juice in >those cute little cans, hard candy, jelly beans, glucose tabs. Some >people will tell you glucose tabs are the best way to go. Some will >tell you that there are many alternatives that work as well and are >cheaper than glucose tabs. I am in the later group. At home I use 2 >tablespoons of Ben and Jerry ice cream because I prefer to think that >if you are going to have a hypo there should also be some enjoyment >you can get out of it, even if it is ice cream. I like your style! >In my car, office I keep Smarties which are just pastel pieces of >sugar. In the US there are sweet tarts or hard candies. Dosage of >hypo rememdies are important because if you over compensate with the >remedy you create another problem, too many carbs that raise your bgs >to very high numbers and then you have to work to bring those those >numbers down and then you are in a seesaw situation that can be >avoided. >4- Too much insulin. IMHO the ER doctor was correct in saying you >were taking too much insulin and it is not just too much insulin but >taking set amounts of insulin regardless of what your meter says or >what you are eating can lead to serious problems, one of which you >experienced. You did not say what type of insulins you are using but >if your doctor did not tell you that if your meter tells you that you >are in the 60's you should not take any insulin then maybe you might >consider having a heart to heart talk with the doctor about your >treatment find a doctor who better understands insulin dosing. With >diabetes, the patient has to be in control of their own treatment, >not the doctor. If your present doctor doesn't understand this, it >might be time for you to shop around for a new doctor. You know, it's funny that I took charge of my lupus care years ago and became very assertive with all my doctors, and still am. I don't know why I haven't done this with the diabetes before, but believe me, my doctor and his nurse will receive my faxed questions to them this afternoon, more or less asking " what the heck am I doing taking 40 units of insulin when my blood sugar reading is in the 60s? And I'm following the sliding scale, and not your new figures. " That ought to get a response. The funny thing is, this doctor is highly recommended. So I'm sure I'll be labeled " non-compliant " but I don't care. I just need him to explain his rationale for my taking high doses of insulin even when my BG is low. Thanks for your response and your help. Marilyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 Marilyn, Don't do anything you are not comfortable doing, but I urge you not to let this incident scare you off of driving. As long as you have your meter with you and use it, and you have something to raise your sugar if you need to, then you should be fine. I try not to let diabetes get in the way of living, if you know what I mean. I don't remember if you had any warnings of being low. For me, I get a little sweaty and light headed. For my wife, she gets grouchy and ditzy. (Thank goodness she no longer gets mad at me when I point out she is grouch and ditzy, but instead agrees and goes and eats something.). Luckily for me, I funciton well even as low as 42, so I would be able to pull off to the side of the road if I needed to, but I have never gotten that low when driving, thank goodness. > Thank you, Vicki. I'm glad I found this group. I will now be carrying my meter with me; I took it last night to dinner at a friend's house (another friend came by and picked me up; no way am I gonna drive for a while until this all settles down!) and it was 124, I think. > Marilyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 No, I don't think it has a name other than " Ron's system " <g> which is really a bit more precise than " carb to insulin ratio " because he also factors in other things such as protein, argnine, and other more arcane things known only to engineers chasing diabetic numbers. But " carb to insulin ratio " dosing is close enough, I guess. Certainly more accurate than " sliding scale " . Vicki Re: Blood Sugar Dive While Driving -So Scared! > Vicki, > > Is there an actual technical name for the way we're dosing? I > made the mistake of calling it 'sliding scale' and sorta confused > my previous doc > > " Carb to Insulin Dosing " maybe? > > SulaBlue > >> The sliding scale concept is often used but is NOT very > efficient >> either. It is based on your BGs but corrects after the fact, i.e. > after >> your BGs are high. Much better is to count the carbs you eat > then base >> your insulin dose on that amount of carbs. This method > requires some >> preliminary testing to learn what your carb to insulin ratio is, but >> there are many on this list who can help you with that. >> >> I belong to another list whose moderator is a retired diabetic > engineer >> who has devised an insulin dosing system that really works > and if you're >> interested, I can give you the signup information. He's helped > lots of >> people. >> >> Good luck and take care, >> Vicki > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 Pft. Just tell him you're compliant to the readings on your meter SulaBlue > The funny thing is, this doctor is highly recommended. So I'm sure I'll be labeled " non-compliant " but I don't care. I just need him to explain his rationale for my taking high doses of insulin even when my BG is low. > > Thanks for your response and your help. > > Marilyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 Hi Marilyn, Wow! Glad you've recovered, somewhat, from that experience. What a scare! Do be prepared to be labeled non-compliant. My first doctors told me I was better controlled than 99% of their patients, but since I wasn't following their " standard " one-size-fits-all method of control I was non-compliant, and they fired me. I kinda suggested to them that they might want to listen to me instead of telling me to go away, but that didn't earn me any points, so I went away. Now I've got a doctor who not only listens to me, but asks me to bring in print-outs of the stuff I've learned online, has set me up for standard blood tests so I only have to see the nurse, not him, and writes scripts for whatever I ask for. Much better way to handle this thing. I don't even know what the " sliding scale " is because I've been on this list since before I started using insulin and knew about matching dose-to-carbs from day one, so just started doing that right away. I did leave home one day without my meter/insulin/glucose tabs, and of course, regretted it. Wound up eating a Snickers bar because it was the only thing available when I started getting shaky and woozy - tasted kinda good, tho - it had been a long time since I'd had a real bad no-no like that. CarolR Marilyn wrote: > > The funny thing is, this doctor is highly recommended. So I'm sure I'll be labeled " non-compliant " but I don't care. I just need him to explain his rationale for my taking high doses of insulin even when my BG is low. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 Marilyn - did you ever mention what insulin it is that you're taking so much of? If it's 3 times a day I'm assuming it's a meal-dosing, fast-acting insulin like Humalog or Novalog, but a standard amount no matter what? Sheesh. Scary. CarolR whimsy2 wrote: > I'd sure like to hear the answer to that one too. Please let us know. > Take care, > Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 I'd sure like to hear the answer to that one too. Please let us know. Take care, Vicki < I don't know why I haven't done this with the diabetes before, but believe me, my doctor and his nurse will receive my faxed questions to them this afternoon, more or less asking " what the heck am I doing taking 40 units of insulin when my blood sugar reading is in the 60s? And I'm following the sliding scale, and not your new figures. " That ought to get a response. The funny thing is, this doctor is highly recommended. So I'm sure I'll be labeled " non-compliant " but I don't care. I just need him to explain his rationale for my taking high doses of insulin even when my BG is low. Re: Blood Sugar Dive While Driving -So Scared! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 Ya know, you might be surprised by how much of a 'no-no' that Snickers might not be (in comparison to what you think it is, at any rate - I'm certainly not saying they're health food!). I remember looking at the GI list in Prevention magazine one day, and being utterly boggled by the fact that, according to them, a Snicker's bar would cause me less glucose issues than canteloup. Not that I've been brave enough to test that theory! SulaBlue > > > > The funny thing is, this doctor is highly recommended. So I'm sure I'll be labeled " non-compliant " but I don't care. I just need him to explain his rationale for my taking high doses of insulin even when my BG is low. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 Well, bg aside, there are a whole lot of reasons for me to choose melon over Snickers, and most of them are hanging around my middle parts. But, we do what we must... CarolR SulaBlue wrote: > Ya know, you might be surprised by how much of a 'no-no' that > Snickers might not be (in comparison to what you think it is, at > any rate - I'm certainly not saying they're health food!). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 On Mon, 11 Jul 2005 12:11:17 -0700, Carol wrote: >Hi Marilyn, Wow! Glad you've recovered, somewhat, from that experience. > What a scare! Do be prepared to be labeled non-compliant. My first >doctors told me I was better controlled than 99% of their patients, but >since I wasn't following their " standard " one-size-fits-all method of >control I was non-compliant, and they fired me. I kinda suggested to >them that they might want to listen to me instead of telling me to go >away, but that didn't earn me any points, so I went away. You know, this is the sort of doc who really needs to be reported. That is horrible malpractice. This isn't going to stop until we the people who pay their salaries put our feet down. >Now I've got >a doctor who not only listens to me, but asks me to bring in print-outs >of the stuff I've learned online, has set me up for standard blood tests >so I only have to see the nurse, not him, and writes scripts for >whatever I ask for. Much better way to handle this thing. Good deal. My doc is getting like that since he's still having a hard time believing my numbers. He's coming around, though. When I get him to toss all his " welcome to diabetes " kits from the ADA, then I'll know he's a convert. > > I don't even know what the " sliding scale " is because I've been on >this list since before I started using insulin and knew about matching >dose-to-carbs from day one, so just started doing that right away. Here are the numbers my doc gave me the day of my diagnosis, just to show how bad things are: Lantus 10 units a day and Novolog Scale 150-200 4 201-250 6 <<<<< this is BAD, BAD, BAD 251-300 8 <<<<< Do not even think about 301-350 10 <<<<< actually using this scale. 351-400 12 <<<<< For illustration only. No way in H*ll I'd let my sugar hit 150, much less " 351 " ! My intuition told me that this was wrong. It took me about a day on the net to learn how wrong. On Day 2 I started tuning the Lantus dose to achieve a fasting level of, initially 140, to give my body time to acclimate to not drowning in sugar again, and then down to the current 85-95. That requires 30 units of Lantus. >I >did leave home one day without my meter/insulin/glucose tabs, and of >course, regretted it. Wound up eating a Snickers bar because it was the >only thing available when I started getting shaky and woozy - tasted >kinda good, tho - it had been a long time since I'd had a real bad no-no >like that. I know what you mean. Maybe I'm overly aggressive but my Diabetes Assault Kit, aka my butt bag has become welded to my waist. About the only time it comes off is for the shower or bed. I also keep mini-kits in my car and in my motorhome. The kit contains a Relion meter (only $8 at Wallyworld), some strips, some glucose tabs and a couple of syringes loaded with 10 units of Novolog. In the car I keep the kit in the trunk inside a small but thick styrofoam container of the type used to ship small quantities of hazardous or fragile chemicals. The thick insulation effectively average the daily temperature swing, keeping it from getting too hot or too cold. I've tested it in my walk-in freezer at -20F and the interior didn't get below freezing in 12 hours. I have reminders set in my PalmPilot to remind me to cycle these out every 3 weeks. I put new ones in the car kit and use the old ones. So far, no indication of loss of potency. In the motorhome, I keep the kit in the fridge. I decided on these backup kits after I went on a camping trip right after diagnosis when I was still getting my Novolog pens as samples from my doc, one at a time. I managed to lose the pen while out in the woods and had to go into the nearby town and schmooze the pharmacist out of a single pen without a prescription. I learned something else too. Keep spare prescriptions in your Assault Kit and your Backup kit. With my doc's knowledge I scanned in the scripts and can print out as many as I need. --- De Armond See my website for my current email address http://www.johngsbbq.com Cleveland, Occupied TN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 On Mon, 11 Jul 2005 16:50:07 -0000, " SulaBlue " wrote: >Vicki, > >Is there an actual technical name for the way we're dosing? I >made the mistake of calling it 'sliding scale' and sorta confused >my previous doc If you're taking a basal dose and then dosing to the meal, it's called " basal-bolus " . You're coming pretty close to the control a pump user achieves if you're careful. --- De Armond See my website for my current email address http://www.johngsbbq.com Cleveland, Occupied TN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2005 Report Share Posted July 12, 2005 , I don't use a basal insulin, though I've started considering one. I don't like my morning numbers much, but a bit more metformin may do the trick. I generally only need between 3-15 (depending on if I'm eating mostly protein, or splurging and having " low carb " *snort* pancakes or somesuch - my body doesn't believe me when I tell it it can subtract the fiber!) units of Humalog in the morning, and then maybe 2-3 with my evening snack. My carb-to-rise ratio is thus: 1:5 in the am 1:1 or 1:1.5 in the middle of the day 1:1.5 or 1:2 in the later evening (I sometimes don't eat dinner until 8pm, as that's the first chance I get after getting off work at 5 or so, then hitting the gym, traveling, etc.) SulaBlue > If you're taking a basal dose and then dosing to the meal, it's called > " basal-bolus " . You're coming pretty close to the control a pump user > achieves if you're careful. > > > --- > De Armond > See my website for my current email address > http://www.johngsbbq.com > Cleveland, Occupied TN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2005 Report Share Posted July 12, 2005 Snickers or pay days aren't bad things when someone is coming out of a low and isn't someplace where a meal can be eaten. They will bring BG up slowly and keep it up for a while. I bring one with me when kayaking as even though I carry glucose tabs, they are quick through your system and are meant to pull you out of danger but should be followed by some food. I used a snickers last week at the grocery store to pull me out of an unrelenting low that wasn't responding to glucose tabs. I ate 12 of them and was still shaky and sweaty, so bought the snickers. My meter was in the car (I know, I know). When I got home about a half hour after eating it, my BG was 150, and at 2 hours it was 115, so no damage done, and it did the trick. The fat and protein in the snickers slow down the glucose absorption, so unlike glucose tabs, the glucose stays in your system longer. Stacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2005 Report Share Posted July 12, 2005 > I used a snickers last week at the grocery store to pull me out of an > unrelenting low that wasn't responding to glucose tabs. I ate 12 of > them I first thought you meant you'd eaten 12 Snickers bars and I thought, " Yikes! That's some low. " Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2005 Report Share Posted July 12, 2005 > > I first thought you meant you'd eaten 12 Snickers bars and I thought, > " Yikes! That's some low. " > > >>>>>>>>> Yikes is right...LOL LOL Even when I was at the worst point of my lifet of dieting and binge eating back in the bad old days of my 20s I don't think I ever ate 12 snickers bars! Six, maybe...LOL Stacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2005 Report Share Posted July 12, 2005 Rotramel wrote: Marilyn, Don't do anything you are not comfortable doing, but I urge you not to let this incident scare you off of driving. As long as you have your meter with you and use it, and you have something to raise your sugar if you need to, then you should be fine. I try not to let diabetes get in the way of living, if you know what I mean. Yes, I do know what you mean. Funny thing: When I got lupus in 1988, I determined then that I wasn't going to quit living just so I could live. Don't know why I didn't think of this with diabetes, unless my absolute terror got in the way, as I haven't driven my car since last Thursday. I don't remember if you had any warnings of being low. For me, I get a little sweaty and light headed. For my wife, she gets grouchy and ditzy. (Thank goodness she no longer gets mad at me when I point out she is grouch and ditzy, but instead agrees and goes and eats something.). I get a funny feeling and tremble a bit, sometimes sweat. This time, tho, I pushed those signs to the side, determined to go to the grocery store on the way home. Will never do that again! (Learning experience!) Marilyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2005 Report Share Posted July 12, 2005 ROFL! Will do. <G> Marillyn SulaBlue wrote: Pft. Just tell him you're compliant to the readings on your meter SulaBlue > The funny thing is, this doctor is highly recommended. So I'm sure I'll be labeled " non-compliant " but I don't care. I just need him to explain his rationale for my taking high doses of insulin even when my BG is low. > > Thanks for your response and your help. > > Marilyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2005 Report Share Posted July 12, 2005 Carol wrote: Hi Marilyn, (snipped) Now I've got a doctor who not only listens to me, but asks me to bring in print-outs of the stuff I've learned online, has set me up for standard blood tests so I only have to see the nurse, not him, and writes scripts for whatever I ask for. Much better way to handle this thing. Well, I have been faxing him my numbers once a week; he looks at them and then his nurse calls me to adjust the amount of insulin to take. For months and months, my bg was too high and we've worked like heck to get it down. Now, all of a sudden, I'm sending him LOW readings; he probably didn't even look at it since he's so used to labeling me as resistant. Pfft. Shame on him. I'll see him on the 28th and he'll get an earful. Marilyn Marilyn wrote: > > The funny thing is, this doctor is highly recommended. So I'm sure I'll be labeled " non-compliant " but I don't care. I just need him to explain his rationale for my taking high doses of insulin even when my BG is low. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2005 Report Share Posted July 12, 2005 It's humalog. 3 times a day, before meals. But not any more -- <G> Now I'm doing the sliding scale, like the ER doc recommended. I'm still feeling somewhat scared over the whole thing, tho. God, what could have happened! Thanks, Carol. Marilyn Carol wrote: Marilyn - did you ever mention what insulin it is that you're taking so much of? If it's 3 times a day I'm assuming it's a meal-dosing, fast-acting insulin like Humalog or Novalog, but a standard amount no matter what? Sheesh. Scary. CarolR whimsy2 wrote: > I'd sure like to hear the answer to that one too. Please let us know. > Take care, > Vicki Quote Link to comment Share on other sites More sharing options...
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