Hi Friends - I am new to the group

[Guest guest]

My Name is Maritza and I am 47 years old and I have had a severe external

case of Scleroderma for the past 4 years. My doctors have tired their best with

different treatments one of which was Cytoxin for 6 months which is a chemo

drug that I just got off of. The Cytoxin didn't work it just made me sicker

and more ulcerated.

My blesssing came just a month ago when I went to visit my best friend Suzie

who also has Scleroderma. She has been on Minocycline for a few years and

her skin is soft now.

I am also on a trial called Cellcept which I was on before the Chemo.

When I got back from my visit with Suzie I asked to be put on Minocycline. I

am going into week three. It isn't easy. My skin has alrerady shown slight

softening. But My body isn't used to this new med. I sometimes feel tired,

nausea, feverish, etc...just a mix bag of feelings.

I have been through alot with Scleroderma. I am also a full time college

student. My hands are in real bad shape. Ulcers and curvatures but I think

keeping busy with school helps me alot. I also go to PT/OT twice a week..

Please if anyone can let me know if their bodies felt weird the first few

weeks of Minocycline and how it has helped you with your Scleroderma I would

appreciate it.

Thank you - God Bless

my email address is _atbeach270@..._ (mailto:atbeach270@...)

with gentle thoughts from the beach,

Maritza

Myrtle Beach, SC

[Guest guest]

Sweetiepie, feeling weird in the beginning on minocycline is good. It means the

drug has declared war on the micoplasmas and you're feeling the toxins that the

dying buggers are emitting as they die off. They don't go easily. They are

nasty critters.You'll feel like crap at first, but you will get better. Trust

me. I'm on my 8th month of Minocin (which is the same drug) Yours is the

generic brand. If you can get the Minocin, it is supposed to work better, but

no matter, as long as you're on the antibiotic, you are on the right path at

last. This is not an overnight quick fix. Be ready to be in this battle for

the long haul and don't get discouraged. That's why we are all here listening.

This is a one step forward, and two steps backward disease. Doc's are either

too busy or don't want to get into A/P. You've got to take control of you're

own cure. You tell them what you want as you learn more along the way. Go to

Roadback.org and read the bulletin board.

Also write to Lynne G.(lynne & santos@...). You'll find their e:mail

among the posts. She has had the S/D for more than ten years, is in remission,

and has an entire encyclopedia running around in her head. She is the angel who

introduced me to A/P. Also, get the books. " The Roadback, by Dr.

Macpherson Brown & Henry Scammell " , " Scleroderma, The proven therapy that can

sve your life by Henry Scammell " and " Arthritis Breakthrough " also by Henry

Scammell. Try the library or buy them on line thru Amazon.com new or used.

They are not expensive. About $10-$15.each. It's your lifeline. Good luck &

God bless, Dolores & Mike

atbeach270@... wrote:

My Name is Maritza and I am 47 years old and I have had a severe external

case of Scleroderma for the past 4 years. My doctors have tired their best with

different treatments one of which was Cytoxin for 6 months which is a chemo

drug that I just got off of. The Cytoxin didn't work it just made me sicker

and more ulcerated.

My blesssing came just a month ago when I went to visit my best friend Suzie

who also has Scleroderma. She has been on Minocycline for a few years and

her skin is soft now.

I am also on a trial called Cellcept which I was on before the Chemo.

When I got back from my visit with Suzie I asked to be put on Minocycline. I

am going into week three. It isn't easy. My skin has alrerady shown slight

softening. But My body isn't used to this new med. I sometimes feel tired,

nausea, feverish, etc...just a mix bag of feelings.

I have been through alot with Scleroderma. I am also a full time college

student. My hands are in real bad shape. Ulcers and curvatures but I think

keeping busy with school helps me alot. I also go to PT/OT twice a week..

Please if anyone can let me know if their bodies felt weird the first few

weeks of Minocycline and how it has helped you with your Scleroderma I would

appreciate it.

Thank you - God Bless

my email address is _atbeach270@..._ (mailto:atbeach270@...)

with gentle thoughts from the beach,

Maritza

Myrtle Beach, SC

[Guest guest]

Do you think, or have you heard, of Minocin/Minocycline working for

Lupus? This is an antibiotic? They have had me on 2 different

antibiotics for years now for my facial 'rash' and the latest one,

Tetracycline is working but barely.. I can still see it hovering

ready to break out full fledged, it's like Tetracycline isn't strong

enough. I will have to read up on that site you mentioned. The first

antibiotic they had me on for a long time was Cephalexin and it

worked better than Tetracycline. Both of these were prescribed to me

prior to any knowledge of me having Lupus.

> My Name is Maritza and I am 47 years old and I have had a severe

external

> case of Scleroderma for the past 4 years. My doctors have tired

their best with

> different treatments one of which was Cytoxin for 6 months which is

a chemo

> drug that I just got off of. The Cytoxin didn't work it just made

me sicker

> and more ulcerated.

>

> My blesssing came just a month ago when I went to visit my best

friend Suzie

> who also has Scleroderma. She has been on Minocycline for a few

years and

> her skin is soft now.

>

> I am also on a trial called Cellcept which I was on before the

Chemo.

> When I got back from my visit with Suzie I asked to be put on

Minocycline. I

> am going into week three. It isn't easy. My skin has alrerady shown

slight

> softening. But My body isn't used to this new med. I sometimes feel

tired,

> nausea, feverish, etc...just a mix bag of feelings.

>

> I have been through alot with Scleroderma. I am also a full time

college

> student. My hands are in real bad shape. Ulcers and curvatures but

I think

> keeping busy with school helps me alot. I also go to PT/OT twice a

week..

>

> Please if anyone can let me know if their bodies felt weird the

first few

> weeks of Minocycline and how it has helped you with your

Scleroderma I would

> appreciate it.

> Thank you - God Bless

> my email address is _atbeach270@..._ (mailto:atbeach270@...)

> with gentle thoughts from the beach,

> Maritza

> Myrtle Beach, SC

>

>

>

[Guest guest]

Hi Maritza,

I found that by helping my body get rid of the toxins resulting from the die

off of 'nasty critters' my feeling awful days were minimal. To do this I

used frequent ion cleanses, saunas at the gym (some will give you a free

pass for a week to try their facility so I took advantage of those near me

with saunas), and hot soaks in the tub with Epsom salts and hydrogen

peroxide. These are all good things to do any time but especially when you

start feeling icky. Hope this helps. El

Re: rheumatic Hi Friends - I am new to the group

Sweetiepie, feeling weird in the beginning on minocycline is good. It means

the drug has declared war on the micoplasmas and you're feeling the toxins

that the dying buggers are emitting as they die off. They don't go easily.

They are nasty critters.You'll feel like crap at first, but you will get

better. Trust me. I'm on my 8th month of Minocin (which is the same drug)

Yours is the generic brand. If you can get the Minocin, it is supposed to

work better, but no matter, as long as you're on the antibiotic, you are on

the right path at last. This is not an overnight quick fix. Be ready to be

in this battle for the long haul and don't get discouraged. That's why we

are all here listening. This is a one step forward, and two steps backward

disease. Doc's are either too busy or don't want to get into A/P. You've

got to take control of you're own cure. You tell them what you want as you

learn more along the way. Go to Roadback.org and read the bulletin board.

Also write to Lynne G.(lynne & santos@...). You'll find their e:mail

among the posts. She has had the S/D for more than ten years, is in

remission, and has an entire encyclopedia running around in her head. She

is the angel who introduced me to A/P. Also, get the books. " The Roadback,

by Dr. Macpherson Brown & Henry Scammell " , " Scleroderma, The proven

therapy that can sve your life by Henry Scammell " and " Arthritis

Breakthrough " also by Henry Scammell. Try the library or buy them on line

thru Amazon.com new or used. They are not expensive. About $10-$15.each.

It's your lifeline. Good luck & God bless, Dolores & Mike

atbeach270@... wrote:

My Name is Maritza and I am 47 years old and I have had a severe external

case of Scleroderma for the past 4 years. My doctors have tired their best

with

different treatments one of which was Cytoxin for 6 months which is a chemo

drug that I just got off of. The Cytoxin didn't work it just made me sicker

and more ulcerated.

My blesssing came just a month ago when I went to visit my best friend Suzie

who also has Scleroderma. She has been on Minocycline for a few years and

her skin is soft now.

I am also on a trial called Cellcept which I was on before the Chemo.

When I got back from my visit with Suzie I asked to be put on Minocycline. I

am going into week three. It isn't easy. My skin has alrerady shown slight

softening. But My body isn't used to this new med. I sometimes feel tired,

nausea, feverish, etc...just a mix bag of feelings.

I have been through alot with Scleroderma. I am also a full time college

student. My hands are in real bad shape. Ulcers and curvatures but I think

keeping busy with school helps me alot. I also go to PT/OT twice a week..

Please if anyone can let me know if their bodies felt weird the first few

weeks of Minocycline and how it has helped you with your Scleroderma I would

appreciate it.

Thank you - God Bless

my email address is _atbeach270@..._ (mailto:atbeach270@...)

with gentle thoughts from the beach,

Maritza

Myrtle Beach, SC

[Guest guest]

Hi Maritza;

Your story sounds very familiar but believe me you will bounce

back.Remember it is slow going ,my hands took almost 3 years to get

straight but the rest of me did a lot better and a lot faster. I think I

spent the first year napping.Remember that the body heals while you

sleep Lynne G.

atbeach270@... wrote:

> My Name is Maritza and I am 47 years old and I have had a severe external

> case of Scleroderma for the past 4 years. My doctors have tired their

> best with

> different treatments one of which was Cytoxin for 6 months which is a

> chemo

> drug that I just got off of. The Cytoxin didn't work it just made me

> sicker

> and more ulcerated.

>

> My blesssing came just a month ago when I went to visit my best friend

> Suzie

> who also has Scleroderma. She has been on Minocycline for a few years and

> her skin is soft now.

>

> I am also on a trial called Cellcept which I was on before the Chemo.

> When I got back from my visit with Suzie I asked to be put on

> Minocycline. I

> am going into week three. It isn't easy. My skin has alrerady shown

> slight

> softening. But My body isn't used to this new med. I sometimes feel

> tired,

> nausea, feverish, etc...just a mix bag of feelings.

>

> I have been through alot with Scleroderma. I am also a full time college

> student. My hands are in real bad shape. Ulcers and curvatures but I

> think

> keeping busy with school helps me alot. I also go to PT/OT twice a week..

>

> Please if anyone can let me know if their bodies felt weird the first few

> weeks of Minocycline and how it has helped you with your Scleroderma I

> would

> appreciate it.

> Thank you - God Bless

> my email address is _atbeach270@...

> <mailto:_atbeach270%40aol.com>_ (mailto:atbeach270@...

> <mailto:atbeach270%40aol.com>)

> with gentle thoughts from the beach,

> Maritza

> Myrtle Beach, SC

>

>

[Guest guest]

Hi ;

My sister has Lupus but is almost in total remission.She only used

doxycycline 50mg 3 times a week.Doxy is a second generation tetracycline

and minocin is 3rd generation. Lynne G. SD

wrote:

> Do you think, or have you heard, of Minocin/Minocycline working for

> Lupus? This is an antibiotic? They have had me on 2 different

> antibiotics for years now for my facial 'rash' and the latest one,

> Tetracycline is working but barely.. I can still see it hovering

> ready to break out full fledged, it's like Tetracycline isn't strong

> enough. I will have to read up on that site you mentioned. The first

> antibiotic they had me on for a long time was Cephalexin and it

> worked better than Tetracycline. Both of these were prescribed to me

> prior to any knowledge of me having Lupus.

>

>

> > My Name is Maritza and I am 47 years old and I have had a severe

> external

> > case of Scleroderma for the past 4 years. My doctors have tired

> their best with

> > different treatments one of which was Cytoxin for 6 months which is

> a chemo

> > drug that I just got off of. The Cytoxin didn't work it just made

> me sicker

> > and more ulcerated.

> >

> > My blesssing came just a month ago when I went to visit my best

> friend Suzie

> > who also has Scleroderma. She has been on Minocycline for a few

> years and

> > her skin is soft now.

> >

> > I am also on a trial called Cellcept which I was on before the

> Chemo.

> > When I got back from my visit with Suzie I asked to be put on

> Minocycline. I

> > am going into week three. It isn't easy. My skin has alrerady shown

> slight

> > softening. But My body isn't used to this new med. I sometimes feel

> tired,

> > nausea, feverish, etc...just a mix bag of feelings.

> >

> > I have been through alot with Scleroderma. I am also a full time

> college

> > student. My hands are in real bad shape. Ulcers and curvatures but

> I think

> > keeping busy with school helps me alot. I also go to PT/OT twice a

> week..

> >

> > Please if anyone can let me know if their bodies felt weird the

> first few

> > weeks of Minocycline and how it has helped you with your

> Scleroderma I would

> > appreciate it.

> > Thank you - God Bless

> > my email address is _atbeach270@..._ (mailto:atbeach270@...)

> > with gentle thoughts from the beach,

> > Maritza

> > Myrtle Beach, SC

> >

> >

> >