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Hi Dr. Chiu and group:

I am in need of some wisdom/experience from the group. I have CREST SD and have

been doing very well. I have been on the AP protocol for about 4 years and have

had success with it. However, here's my problem. I'm hoping that with the advise

from the group I can go back to my doc when I have my appointment in June with

some suggestions.

I'm waiting for the latest blood tests measuring the SD antibodies. There were

down to 530 (down from >5,000). In December we changed the antibiotics from

flagyll to Doxy due to the gut problems with the flagyll. I had a major flair

with Doxy from which I have yet completely recovered. Prior to changing to Doxy

my hands were " normal " and I could get my wedding ring on. Now the joints in my

fingers are swollen and I can't get my rings on, yet I don't have any pain.

I'm back on the minocin dosage on M-W-F. I started with this, but we changed

the from the minocin to flagyll because I seemed to be at a standstill. To try

to get me back to previous levels, my doc also has me on Tindamax with the

minocin(a modern version of flagyll). However, my " gut " feeling is not

comfortable with this.

I discovered that I have parasites and I in a colon and parasite cleanse. So I

am trying to get my body " clean " and as healthy as possible. I don't eat sugar,

starch or wheat.

Any suggestions as to what could help me get these finger joints down and back

to where I was?

Thanks so much everyone.

Roni

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Hi,

Are you able to try alternating courses? I think Nicholson uses for

that for Gulf War etc. 6 weeks of Minocin, and then 6 weeks of

Flagyl.

On 5/30/06, rb09322@... <rb09322@...> wrote:

>

>

> Hi Dr. Chiu and group:

>

> I am in need of some wisdom/experience from the group. I have CREST SD and

> have been doing very well. I have been on the AP protocol for about 4 years

> and have had success with it. However, here's my problem. I'm hoping that

> with the advise from the group I can go back to my doc when I have my

> appointment in June with some suggestions.

>

> I'm waiting for the latest blood tests measuring the SD antibodies. There

> were down to 530 (down from >5,000). In December we changed the antibiotics

> from flagyll to Doxy due to the gut problems with the flagyll. I had a major

> flair with Doxy from which I have yet completely recovered. Prior to

> changing to Doxy my hands were " normal " and I could get my wedding ring on.

> Now the joints in my fingers are swollen and I can't get my rings on, yet I

> don't have any pain.

>

> I'm back on the minocin dosage on M-W-F. I started with this, but we

> changed the from the minocin to flagyll because I seemed to be at a

> standstill. To try to get me back to previous levels, my doc also has me on

> Tindamax with the minocin(a modern version of flagyll). However, my " gut "

> feeling is not comfortable with this.

>

> I discovered that I have parasites and I in a colon and parasite cleanse. So

> I am trying to get my body " clean " and as healthy as possible. I don't eat

> sugar, starch or wheat.

>

> Any suggestions as to what could help me get these finger joints down and

> back to where I was?

> Thanks so much everyone.

> Roni

>

>

--

Graham Chiu

http://www.compkarori.com/forum/

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