Re: Diet Combining Experience: SCD/GFCF/Feingold

[Guest guest]

,

Hi my name is !My son's name is also Jake.We started the diet

almost 2 weeks ago.it was tough.But I realize now it isn't

impossible.

I can report that my son's stools are not yellow and loose or

diarrhea since day 2 of the diet.He was GFCf/SF since October but

the yeast was always a problem.Always diarrhea.GFCF did help with

eye contact and him responding to his name.Anyway,you're very lucky

to start at 2 yrs instead of 3 yrs old.So go for it!!that's the only

way you'll know if it is what he needs.

Also my son came to me with a toy yesterday and pulled me into the

livingroom from the kitchen to play with him.This is a first!!!

He is also 'noticing ' other kids' instead of looking right through

them.Wea re also able to try toiletting since he no longer has the

runs.

This may not seem like alot but it is really exciting for me.

Good Luck!!!

In pecanbread , " jacoboosmom " <stauro@u...> wrote:

> hi all!!

>

> as i write, i have a very skeptical(and negative) husband sitting

at

> my right hand side(literally ;-) ). our son jake(2 year 1 month)

is

> ASD, and has been GFCF/Feingold(phenols) for about 3 months. his

> yeast is off the charts, so his DAN doctor stated that we should

> start SCD to help get a handle on the yeast. i am trying to set a

> start date of next week.

>

> now... looking at the intro. diet, and taking into account my

son's

> allergies(apples, egg, grapes--phenols, dairy, ...) my husband is

> worried that our son is going to starve. he has also heard about

the

> need for IV glutathione to prep the liver for the diet in a case.

>

> will anyone with experience of the above please let him know how

you

> do it? as i speak he is complaining about not being able to eat

out,

> how do " these guys " travel? how long do we have to do this? how

long

> do we have to prolong this torture before we know this isn't

working

> for us? i don't think the whole family does this, only the kid

does

> this? how will we(him and I) survive without supplements?.... i'd

> love to send along a few inspirational messages if any of you out

> there would be willing to send them along.

>

> thanks ever so much!!

>

> shannon.

[Guest guest]

Tell your husband that a mom of a 9 year old autistic daughter says to him

be thankful that your son is so young and you have the chance to reverse his

autism. We do not have that hope since our daughter is older. We have been

through years of chronic diarrhea, constipation, food allergies (GFCF for 6

years!) laxatives, severe behavior problems, scopings, many, many doctor

visits, enzymes, medications, and just recently diagnosed with inflammation

of the esophagus and ulcerative colitis. Tell him he can avoid all that

pain for his son however inconvenient. This is a healthy diet, much more

than GFCF and food can be prepared and carried with you when it is

necessary.

Your son will not starve and there is a lot of healthy food choices on SCD!

Kathy

mom to Hannah-13, NT and Abby-9, ASD, UC and SCD

>

>

>

>

> will anyone with experience of the above please let him know how you

> do it? as i speak he is complaining about not being able to eat out,

> how do " these guys " travel? how long do we have to do this? how long

> do we have to prolong this torture before we know this isn't working

> for us? i don't think the whole family does this, only the kid does

> this? how will we(him and I) survive without supplements?.... i'd

> love to send along a few inspirational messages if any of you out

> there would be willing to send them along.

>

>

>

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

[Guest guest]

Hi ..... and welcome.....

No one has to use dairy if they don't want to. Many SCD families do introduce

SCD yogurt made with goat milk.... but later on..... and only when they feel

ready. The yogurt can be made with nut milk. I had to giggle when I read your

husband's concerns about " prolonging this torture " ....... as I would love to

bake him a batch of SCD peanut butter brownies and pass them through the

cyberspace lines for him to enjoy after dinner tonight. I assure you, he

wouldn't consider them torture! If I make a batch, I have to HIDE them from my

husband and 16 yr old son, or they'd inhale them in five minutes! Seriously,

though, I think it would be reasonable to commit to six months. You won't know

for sure if you only give it a few weeks.

Tell hubby that this diet is not difficult...... just different. Once it becomes

a habit, it will seem very " normal " .... and hopefully, very soon, you will see

some little rays of sunshine from your son that will encourage you to keep on

keepin' on. Many, many other families here have kids with intolerances and

sensitivities.... and they have to tweak the diet to keep those things out for a

while. Unless there has been a past anaphylactic reaction to a food, though,

many find that as the gut heals, they are able to introduce some of the foods

the child couldn't eat before. The leaky gut is what it's all about! How do

" these guys " travel? With insulated lunchkit and icepack...... and good

wholesome, homemade food.

Hint: Cook in big batches so you always have leftovers to bring for lunch the

next day or whatever. Another hint: You pantry will suddenly have LOTS of room

in it..... and your fridge and freezer with be stuffed to the limits of their

capacity!

Good luck!

Patti, mom to Katera, SCD 14 months

Diet Combining Experience: SCD/GFCF/Feingold

hi all!!

as i write, i have a very skeptical(and negative) husband sitting at

my right hand side(literally ;-) ). our son jake(2 year 1 month) is

ASD, and has been GFCF/Feingold(phenols) for about 3 months. his

yeast is off the charts, so his DAN doctor stated that we should

start SCD to help get a handle on the yeast. i am trying to set a

start date of next week.

now... looking at the intro. diet, and taking into account my son's

allergies(apples, egg, grapes--phenols, dairy, ...) my husband is

worried that our son is going to starve. he has also heard about the

need for IV glutathione to prep the liver for the diet in a case.

will anyone with experience of the above please let him know how you

do it? as i speak he is complaining about not being able to eat out,

how do " these guys " travel? how long do we have to do this? how long

do we have to prolong this torture before we know this isn't working

for us? i don't think the whole family does this, only the kid does

this? how will we(him and I) survive without supplements?.... i'd

love to send along a few inspirational messages if any of you out

there would be willing to send them along.

thanks ever so much!!

shannon.

[Guest guest]

Welcome shannon!

We started off with Feingold as well. We were not GFCF before

starting SCD. Sam is not autistic but had lots of behavior problems I

believe were caused by yeast overgrowth from yearly use of

antibiotics. We started Feingold in Oct. 2003 and we just kept having

to remove foods. His behavior got very violent and aggressive after an

antibiotic shot in Dec. 2003 and we decided to give SCD a try in Feb 2004.

Intro was hard, but it was only 2 days for us. We substituted all the

high salicylate stuff for low. Instead of grape juice we used Dole

pineapple. We had pear sauce instead of apple - which Sam wouldn't

touch anyhow!! LOL His fruit choices were pretty slim until he was

able to handle raw fruit. Now he eats pears, cantaloupe, bananas,

mango, papaya and can handle cucumbers, tomatoes, blueberries and

strawberries on occasion.....I can't believe it!!!

We've been on the diet for 6 months. Sam was in yeast die-off for 3

months straight in the beginning. It was very hard to tell if the diet

was working, but thankfully we'd have a day or two in of excellent

impulse control and ability to calm himself that kept us going.

Definately give it 6 months. I was so close to transitioning off SCD

in the next month and then he had another day or two of die off!

There's still yeast in there battling it out! Sam gets a rash around

his mouth and his behavior gets very impulsive during die off; I'm

lucky the signs are so easy to pick out.

Sam's impulse control is great now! I can tell immediately what he is

reacting to. We tested grapes and peaches which didn't work out yet,

but I could tell what the reaction was and that it's a different

reaction than die-off.

We do go out to eat occasionally. We have had success at Chili's. They

have a plain chicken breast and plain steamed broccoli *and* mini

cans of Dole pineapple juice that they happily mixed with seltzer so

Sam could have his " soda! " It is possible. If you know where you are

going, you can call in advance to see if arrangements can be made. We

have a soft sided six pack cooler that is our best friend! We haven't

tried travelling yet, but it is doable. We are going camping in a

couple weeks.....I can't wait!!!

Check out the pecanbread website. There's loads of egg free and

casein free recipes on there. It is possible and soooooo worth it!

Good luck!

Chrystee

Sam, 5, sensory/behavior issues, salicylate senstive

SCD 6 months

> will anyone with experience of the above please let him know how you

> do it? as i speak he is complaining about not being able to eat out,

> how do " these guys " travel? how long do we have to do this? how long

> do we have to prolong this torture before we know this isn't working

> for us? i don't think the whole family does this, only the kid does

> this? how will we(him and I) survive without supplements?.... i'd

> love to send along a few inspirational messages if any of you out

> there would be willing to send them along.

>

> thanks ever so much!!

>

> shannon.