Re: /optic nerve tumor

[Guest guest]

Rosemary Lee wrote:

> how long have you been watching your optic nerve tumor?

I thought it was longer, but my ma says it's only been three years.

> where/what is it?

I don't have the mri reports handy here. I'll look on the new ones in late

Sept. (my first full body mri is scheduled), and report back to you if you

remind me.

> and if it grows, what are your docs recommending? Rosemary.

>

We don't deal with ifs in too much detail. It's been awhile since I've

talked about or thought about the tumor. It was one of those that we

hopefully won't have to touch because it's in such a sensitive area. I guess

all my answers to your questions really should be, " I don't know. I'm living

with it and maybe I'm just here to let other people know that sometimes you

just live with it. " I don't think I could develop enough contingency plans

to prepare for every possible tumor scenario (I have way too many and really

do have to think wholistically), so I just go on living the best I can and do

what I need when something demands my attention. I have a team of docs I can

trust, though, based on a relationship that has been built over more than ten

years. That probably doesn't help very many other people, but then we're all

so different in the combination of things that need attention at different

times, so maybe the general strategy will be beneficial for someone else too.

Crooked smiles,

[Guest guest]

Thanks , always such great replies. Your first full body mri???? sheesh

we've had 2 already, they must be really expecting good things from us.

> Rosemary Lee wrote:

>

>> how long have you been watching your optic nerve tumor?

>

> I thought it was longer, but my ma says it's only been three years.

>

>> where/what is it?

>

> I don't have the mri reports handy here. I'll look on the new ones in late

> Sept. (my first full body mri is scheduled), and report back to you if you

> remind me.

>

>> and if it grows, what are your docs recommending? Rosemary.

>>

>

> We don't deal with ifs in too much detail. It's been awhile since I've

> talked about or thought about the tumor. It was one of those that we

> hopefully won't have to touch because it's in such a sensitive area. I guess

> all my answers to your questions really should be, " I don't know. I'm living

> with it and maybe I'm just here to let other people know that sometimes you

> just live with it. " I don't think I could develop enough contingency plans

> to prepare for every possible tumor scenario (I have way too many and really

> do have to think wholistically), so I just go on living the best I can and do

> what I need when something demands my attention. I have a team of docs I can

> trust, though, based on a relationship that has been built over more than ten

> years. That probably doesn't help very many other people, but then we're all

> so different in the combination of things that need attention at different

> times, so maybe the general strategy will be beneficial for someone else too.

>

> Crooked smiles,

[Guest guest]

Oh Rosemary, sorry Louis has already been in the tube for such extensive

scanning.

I usually get head and spine (and then they'll keep me in longer than planned

for

bonus ones with those), but this time the nurse said it would be full body and

I'm

not sure what to expect, really. I have had a tumor removed from behind my

right

knee, so maybe they want to have a look at how things are doing now 7 years

later?

I was joking with Marcus that I've survived so long after my 1996 surgery when I

had the blood infection and almost didn't pull through, that they probably want

to

see what the deal is. I'll find out when I see my NS after the scan. It's nice

to

be kicking around still, though. I bet Louis has the same sort of spirit in

him!

I'll keep you guys in my thoughts. Hugs,

Rosemary Lee wrote:

> Thanks , always such great replies. Your first full body mri???? sheesh

> we've had 2 already, they must be really expecting good things from us.