Guest guest Posted July 28, 2004 Report Share Posted July 28, 2004 > Has anyone tried a modified SCD? By this I mean using a few grains > (quinoa, brown rice, etc.) in great moderation. I know that Dr. Hicks > recommended this, but has anyone tried it? If so, how has it been for > you? Are you seeing positive results? Any feedback or opinions would be > appreciated! > Thanks, Cathie Cathie, Have you read BTVC thoroughly?:-) The molecule in the starch of grain cannot be split and digested. It remains in the gut and ferments, feeding bacteria which proliferate rapidly and a re believedd to impair the brain gut connection. It has often been suggested and the case pleaded by those using other dietary interventions that a little of these type of grains be added occasionally but it is simply not-nrgotiable. When healing takes plave and one year has elapsed without symptoms one may elect to reintroduce such grains. But for now, it has to be " thumbs down. " Please read the BTVC chapter on Gluten and also " The Autism Connection. " Even though the amount of legal carbohydrates can vary from person to person, there is no such thing as modified SCD. Those who have elected to do there own interpretation of the diet cannot in fairness, call it SCD. Carol F. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2004 Report Share Posted July 28, 2004 > > > Has anyone tried a modified SCD? By this I mean using a few > grains > > > (quinoa, brown rice, etc.) in great moderation. I know that Dr. > Hicks > > > recommended this, but has anyone tried it? If so, how has it been > for > > > you? Are you seeing positive results? Any feedback or opinions > would be > > > appreciated! > > > Thanks, Cathie > > Cathie - > > I have been doing strict SCD for that last ten months and my son has > done very well. I do plan on adding other things back into his diet > eventually as Elaine's book gives me hope that I will be able to do > that. > > There is a list at ANDI-ADI where there are people > who are doing " modified SCD " . > > > Zachary 4.10 SCD 10 months and Cathie, Not to be argumentative --just clear--SCD TM is a trade marked diet. Some of the people who have tried combining it have seen their children relapse or become more ill. The group you mention is experimental and refers SCD questions right back here. The only diplomatic thing I can say about comparisons between SCD and GFCF is that they are at opposite poles. ( All the best to those who have been healed by other diets) SCD in it's established format has never been suggested as the answer for everyone but here on Pecanbread there is an 80% rate of improvement and that includes some complete recoveries too. We do SCD with NO GRAINS and must continue to do so for the sake of our kids and the integrity of the diet. There is scientific research illustrated by slides from light and electron microscopes that clearly shows the thick over layer of mucous that stifles digestion and also the collapse and erosion of the micro villi that process digestion of carbohydrates when polysaccharides are introduced to a compromised digestive system. I have been on SCD three years. i can tolerate the occasional food containing sugar but not grain. So we know our mileage can vary even after a long period on the diet.. So I reiterate for the benefit of newcomers,, NO GRAIN while on SCD. One year after the last symptom has vanished, cautious experimentation can be tried. At the moment most of us here have not reached that point. Carol F. Celiac Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2004 Report Share Posted July 28, 2004 I think Dr. Hicks, or anyone who suggests using a " modified SCD " which includes rice and other grains simply does not get the science behind it at all. They also must not realise that SCD is trademarked by Elaine and is in the process of being patented at the moment...... so they really should not be calling their diet " modified SCD " . They need to give it their own name..... because if it includes grains of any kind, it's NOT SCD. Period. I know there are certain prominent people out there who just can't resist the temptation to take something wonderful and somehow put their own stamp on it..... to make it their own and try to be a part of it....... but they need to be very wary of using the initials " SCD " when prescribing their own diets...... and, in my personal opinion, parents need to be very wary of taking their advice and feeding their kids grains. Patti, mom to Katera, SCD 14 months Modified SCD Has anyone tried a modified SCD? By this I mean using a few grains (quinoa, brown rice, etc.) in great moderation. I know that Dr. Hicks recommended this, but has anyone tried it? If so, how has it been for you? Are you seeing positive results? Any feedback or opinions would be appreciated! Thanks, Cathie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2004 Report Share Posted July 28, 2004 I agree with Carol and Patti. If you're doing " SCD " with grains, you're not doing SCD; and the other folks don't get the science behind it. My friend's son lost the diagnosis of autism via being on gf/cf, yeast mitigation, chelation, supplements, educational ed, etc., from a very early age. However, he was scoped not too long ago, and he still has gut issues, and the pediatric gastroenterologist still recommended SCD. Who knows, perhaps with the help of SCD, he will come off the spectrum completely. Modified SCD > > > Has anyone tried a modified SCD? By this I mean using a few grains > (quinoa, brown rice, etc.) in great moderation. I know that Dr. Hicks > recommended this, but has anyone tried it? If so, how has it been for > you? Are you seeing positive results? Any feedback or opinions would be > appreciated! > Thanks, Cathie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2004 Report Share Posted July 28, 2004 I have noticed in the last 3 months of being on this listserve that Dr. Hick's name keeps coming up along with his negative comments regarding this diet. (A person on another listserve that I was on quoted him as saying not to try this diet because he had seen kids on this diet go into renal failure and die. When I tried to get his phone # so our moderator could speak with him, the Mom refused.) I would hope that any patient of Dr. Hick's would encourage him to actually read the book (and the science) behind this diet and if he has such great concerns, that he would address them directly to Elaine and provide evidence of the harm he has supposedly seen happen to children on this diet. It seems that I also remember reading that Dr. Hicks has a conflict of interest (he promotes other interventions) with this diet which may explain his adversion. It is sad that us parents have to wade through all of this stuff to help our kids. Laurel On Wed, 28 Jul 2004 08:56:54 -0700 " Patti " writes: I think Dr. Hicks, or anyone who suggests using a " modified SCD " which includes rice and other grains simply does not get the science behind it at all. They also must not realise that SCD is trademarked by Elaine and is in the process of being patented at the moment...... so they really should not be calling their diet " modified SCD " . They need to give it their own name..... because if it includes grains of any kind, it's NOT SCD. Period. I know there are certain prominent people out there who just can't resist the temptation to take something wonderful and somehow put their own stamp on it..... to make it their own and try to be a part of it....... but they need to be very wary of using the initials " SCD " when prescribing their own diets...... and, in my personal opinion, parents need to be very wary of taking their advice and feeding their kids grains. Patti, mom to Katera, SCD 14 months Modified SCD Has anyone tried a modified SCD? By this I mean using a few grains (quinoa, brown rice, etc.) in great moderation. I know that Dr. Hicks recommended this, but has anyone tried it? If so, how has it been for you? Are you seeing positive results? Any feedback or opinions would be appreciated! Thanks, Cathie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2004 Report Share Posted July 28, 2004 >>>>It seems that I also remember reading that Dr. Hicks has a conflict of interest (he promotes other interventions) with this diet which may explain his adversion. Hicks' wife is in the GFCF business and this is a direct conflict of interest because their income is tied to that (to say nothing of harmony at home). So it is a very unobjective source. Does this mean that they also fully support modified-GFCF? You really don't need to be 100% GFCF afterall and just add in whatever dairy or gluten is needed for good health? That would be consistent, of course with the reasoning. And it would be admitting that what was told parents over the past 6-8 years wrong afterall. It seems that best course of action would be to focus on the child and do what is best to get them better. That was always my concern for my family. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2004 Report Share Posted July 28, 2004 <<.....Dr. Hick's name keeps coming up along with his negative comments regarding this diet. A person on another listserve that I was on quoted him as saying not to try this diet because he had seen kids on this diet go into renal failure and die.>> WHAT?? That is just plain CRAZY..... unless the kids he was seeing were not really fully on SCD at all but were severely limited and eating WAY too much protein and hardly any carbs, veggies or fruits. If they were doing that, then it could not be said that they were *really* on SCD anyway. It sounds like he is mistaking SCD for a " low carb " diet...... which it is not, as we all well know. What an irresponsible blunder....... and very unprofessional to boot!! I would certainly urge parents to use extreme caution in taking his advice. Then again, something he said may have been somewhat exaggerated by the parent that posted it..... which might explain why that parent refused to respond to your inquiry. Patti, mom to Katera Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2004 Report Share Posted July 28, 2004 > > On Wed, 28 Jul 2004 08:56:54 -0700 " Patti " <durovchic@c...> > writes: > I think Dr. Hicks, or anyone who suggests using a " modified SCD " which > includes rice and other grains simply does not get the science behind it > at all. They also must not realise that SCD is trademarked by Elaine and > is in the process of being patented at the moment...... so they really > should not be calling their diet " modified SCD " . They need to give it > their own name..... inks > Last year the Dr. Hicks issue surfaced and I responded to his concern about ketosis and renal failure. It appeared the doctor did not fully comprehend that SCD is not a low carb diet. I was invited to post my response to Dr. Hicks on the ANDI ADI or GFCF list or newsletter( can't recall which) and declined as there is no point in correcting a physician--who is not or was not familiar with the diet so I chose to pass. We do not aim at confrontation just clarity. Hopefully he has now familiarized himself with BTVC but I have no way of knowing. Many in the DAN community have made it their business to explore the scientific findings put forth in BTVC about SCD and have embraced Elaine's work and acumen warmly and children will benefit from this development I am certain. Carol F. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2004 Report Share Posted July 29, 2004 >> Has anyone tried a modified SCD? By this I mean using a few grains (quinoa, brown rice, etc.) in great moderation. << Cathie, Not to be rude, but " modified SCD " , in my opinion, doesn't exist. The objective of SCD is to eat only what can be easily digested and to starve out the bad bugs. If you continue to feed grains, you continue to feed stuff that cannot be digested and which will feed the bad bugs. So, by feeding grain of any sort, or any other illegals, you defeat the purpose. I have been on SCD almost three years. One of the supplements which I use for another medical condition contains and illegal, and cannot be compounded. My alternative is codeine. I discussed the matter with Elaine, and she agreed that I should continue with the supplement rather than take a narcotic which left me unable to function. HOWEVER, it has taken me about three times as long to reach the level of healing that most people achieve in a year. Therefore, I, personally, would absolutely state that if you are feeding grains, you are not on SCD. -- Marilyn (New Orleans, Louisiana, USA) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2004 Report Share Posted July 29, 2004 Patti and Carol, Perhaps I should not have posted this question here. I don't know that anyone else used the term " modified SCD. " It was simply the best way that I could think of to express something that I had run accross. My son will be three in a few months and I am trying to find answers as quickly as possible. I stay up late into the night trying to understand what the most promissing avenues are. I rarely have time to read a whole book, but I have read four this month. I simply wanted a little more info before beginning yet another new diet. I did have a chance to read more of Elaine's book today. I have actually eliminated all grains as an initial experiment and it feels very good. Please be a little more gentle with us newcomers so as not to scare us away. Thanks, Cathie Patti wrote: > I think Dr. Hicks, or anyone who suggests using a " modified SCD " which > includes rice and other grains simply does not get the science behind > it at all. They also must not realise that SCD is trademarked by > Elaine and is in the process of being patented at the moment...... > so they really should not be calling their diet " modified SCD " . They > need to give it their own name..... because if it includes grains of > any kind, it's NOT SCD. Period. I know there are certain prominent > people out there who just can't resist the temptation to take > something wonderful and somehow put their own stamp on it..... to make > it their own and try to be a part of it....... but they need to be > very wary of using the initials " SCD " when prescribing their own > diets...... and, in my personal opinion, parents need to be very wary > of taking their advice and feeding their kids grains. > > Patti, mom to Katera, SCD 14 months > Modified SCD > > > Has anyone tried a modified SCD? By this I mean using a few grains > (quinoa, brown rice, etc.) in great moderation. I know that Dr. Hicks > recommended this, but has anyone tried it? If so, how has it been for > you? Are you seeing positive results? Any feedback or opinions would be > appreciated! > Thanks, Cathie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2004 Report Share Posted July 29, 2004 I can't see how a diet that is so full of healthy proteins, fruits and veggies could cause harm. Good grief. I'm thrilled my kids are eating so healthy now! That's not to say that another diet might not be healthy with some grains, but I have to agree - if the goal is to heal the gut, I can't see how adding any grains would help at all after understanding the science behind the diet. Robbie I have noticed in the last 3 months of being on this listserve that Dr. Hick's name keeps coming up along with his negative comments regarding this diet. (A person on another listserve that I was on quoted him as saying not to try this diet because he had seen kids on this diet go into renal failure and die. When I tried to get his phone # so our moderator could speak with him, the Mom refused.) I would hope that any patient of Dr. Hick's would encourage him to actually read the book (and the science) behind this diet and if he has such great concerns, that he would address them directly to Elaine and provide evidence of the harm he has supposedly seen happen to children on this diet. It seems that I also remember reading that Dr. Hicks has a conflict of interest (he promotes other interventions) with this diet which may explain his adversion. It is sad that us parents have to wade through all of this stuff to help our kids. Laurel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2004 Report Share Posted July 29, 2004 Thank you Carol, This makes me feel more welcome. We're actually planning on adhering strictly to the diet. I just wanted to prepare in case I saw signs that the diet was not working for my son. He is a very picky eater and I'm hoping that he opens up to new foods as a result of the diet. He's still breast feeding which is why I've been experimenting with eliminating grains for myself. The interesting thing is that he ate two new foods yesterday: plums and cashews! Could this have something to do with what I've been eating? This is very promising. Of course once we're on the diet, I'll be cooking his fruit. Cathie cfrilegh wrote: > I have actually eliminated all grains as an > > initial experiment and it feels very good. Please be a little more > > gentle with us newcomers so as not to scare us away. > > Thanks, > > Cathie > > > Oh Oh- Cathie , > I was trying to scare you away from grain not SCD:-) Grain is the > enemy of SCD and also the diet simply cannot be followed without > reading the book. > > Many times, people associated with other dietary interventions have > pleaded with Elaine and asked why a little grain once in a while would > not hurt and it is vital that we are clear and firm in opposing it. I > am really concerned if you found this intimidating but people who come > here often have just about given up hope and we have a moral > obligation to guide them along the right path to give them the best > opportunity to heal their children. > > SCD holds great promise but it comes with a caveat which is stated in > BTVC. SCD demands fanatical adherence and that means no grain. This > reality has discouraged some parents and caused a few to leave because > the strictness of the diet was something they felt they could not > comply with. But those who persisted- and we are well over one > thousand now- have, for the most part made progress that eluded them > in the past. Some that had the most doubts and fears have become real > supporters. It is never easy to learn something new that requires > abandoning the habits of a lifetime. > > One thing about SCD that has been noted is it's really a lot about > what we can't have but when the smoke clears, it's amazing how much we > can have. > > I pray this diet goes well for your family and you come to understand > the importance of maximum compliance. > Try to compare it to baking a sponge cake. If you failed to separate > the eggs and the cake fell, you might wonder what went wrong from > overlooking an important part of the recipe. > > If I/we sounded tough, believe me the grains are a lot tougher on an > injured gut :-) > > Carol F. > > > > For information on the Specific Carbohydrate Diet, please read the > book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the > following websites: > http://www.breakingtheviciouscycle.info > and > http://www.pecanbread.com > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2004 Report Share Posted July 29, 2004 I have actually eliminated all grains as an > initial experiment and it feels very good. Please be a little more > gentle with us newcomers so as not to scare us away. > Thanks, > Cathie Oh Oh- Cathie , I was trying to scare you away from grain not SCD:-) Grain is the enemy of SCD and also the diet simply cannot be followed without reading the book. Many times, people associated with other dietary interventions have pleaded with Elaine and asked why a little grain once in a while would not hurt and it is vital that we are clear and firm in opposing it. I am really concerned if you found this intimidating but people who come here often have just about given up hope and we have a moral obligation to guide them along the right path to give them the best opportunity to heal their children. SCD holds great promise but it comes with a caveat which is stated in BTVC. SCD demands fanatical adherence and that means no grain. This reality has discouraged some parents and caused a few to leave because the strictness of the diet was something they felt they could not comply with. But those who persisted- and we are well over one thousand now- have, for the most part made progress that eluded them in the past. Some that had the most doubts and fears have become real supporters. It is never easy to learn something new that requires abandoning the habits of a lifetime. One thing about SCD that has been noted is it's really a lot about what we can't have but when the smoke clears, it's amazing how much we can have. I pray this diet goes well for your family and you come to understand the importance of maximum compliance. Try to compare it to baking a sponge cake. If you failed to separate the eggs and the cake fell, you might wonder what went wrong from overlooking an important part of the recipe. If I/we sounded tough, believe me the grains are a lot tougher on an injured gut :-) Carol F. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2004 Report Share Posted July 29, 2004 It's better to be tough on parents than tough on the kids' guts. Your child's gut is what should scare you, not what Carol said to protect your child. Re: Modified SCD > I have actually eliminated all grains as an > > initial experiment and it feels very good. Please be a little more > > gentle with us newcomers so as not to scare us away. > > Thanks, > > Cathie > > > Oh Oh- Cathie , > I was trying to scare you away from grain not SCD:-) Grain is the enemy of SCD and also the diet simply cannot be followed without reading the book. > > Many times, people associated with other dietary interventions have pleaded with Elaine and asked why a little grain once in a while would not hurt and it is vital that we are clear and firm in opposing it. I am really concerned if you found this intimidating but people who come here often have just about given up hope and we have a moral obligation to guide them along the right path to give them the best opportunity to heal their children. > > SCD holds great promise but it comes with a caveat which is stated in BTVC. SCD demands fanatical adherence and that means no grain. This reality has discouraged some parents and caused a few to leave because the strictness of the diet was something they felt they could not comply with. But those who persisted- and we are well over one thousand now- have, for the most part made progress that eluded them in the past. Some that had the most doubts and fears have become real supporters. It is never easy to learn something new that requires abandoning the habits of a lifetime. > > One thing about SCD that has been noted is it's really a lot about what we can't have but when the smoke clears, it's amazing how much we can have. > > I pray this diet goes well for your family and you come to understand the importance of maximum compliance. > Try to compare it to baking a sponge cake. If you failed to separate the eggs and the cake fell, you might wonder what went wrong from overlooking an important part of the recipe. > > If I/we sounded tough, believe me the grains are a lot tougher on an injured gut :-) > > Carol F. > > > > > For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: > http://www.breakingtheviciouscycle.info > and > http://www.pecanbread.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2004 Report Share Posted July 29, 2004 Hi Cathie, I'm sorry you felt uncomfortable..... nothing personal was meant towards you in our responses. We have a lot of mail to respond to ...... and little time to do it in. I'm up to my eyeballs in my daughter's issues, just like everybody ...... and I try to pitch in to help out here with responding to mail. Just knowing that we have over 1000 members on the list, reading whatever information comes up, we sometimes jump on a subject like that with a strong response.... to the subject matter, not meaning to be harsh to the poster...... just because there is the chance that some other list readers might misconstrue or misunderstand. It's been such an issue on this list in the past.... with others outside the SCD community misleading parents and making recommendations to modify the diet... we tend to get a little defensive. I'm so sorry you felt it was personal. Please accept my apologies. Patti, mom to Katera, SCD 14 months Modified SCD > > > Has anyone tried a modified SCD? By this I mean using a few grains > (quinoa, brown rice, etc.) in great moderation. I know that Dr. Hicks > recommended this, but has anyone tried it? If so, how has it been for > you? Are you seeing positive results? Any feedback or opinions would be > appreciated! > Thanks, Cathie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2004 Report Share Posted July 29, 2004 > Thank you Carol, > This makes me feel more welcome. We're actually planning on adhering > strictly to the diet. I just wanted to prepare in case I saw signs that > the diet was not working for my son. He is a very picky eater and I'm > hoping that he opens up to new foods as a result of the diet. He's still > breast feeding which is why I've been experimenting with eliminating > grains for myself. The interesting thing is that he ate two new foods > yesterday: plums and cashews!> > Store bought roasted cashews have often been dusted with starch and are not allowed. RAW cashews are allowed and can be roasted easily at home) Nuts should not be started at all until after the introduction diet in the book. Fruit should be peeled, seeded and cooked at the beginning plums also not started until after the introductory diet. other parents will attest that picky eaters often develop broad or menus and better appetites as healing progresses. Oh dear, here I go sounding strict again :-( Carol F. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2004 Report Share Posted July 29, 2004 I am here because my child's gut is what scars me. But I do not feel parents should be intimidated with scare tactics to do this diet the way everyone else does. We are all up late and when you are a newcomer you are researching like crazy and I thought this question was a good question for beginners that are just trying to understand the SCD diet. This woman had a question and needed help if she was an expert she would not come here and post questions. To make her feel guilty because you feel she is not paying adequate attention to her sons gut is ridiculous. If she was not paying attention she would not have posted, read the book, began a diet or asked questions. This kind of post is what gives this website a bad name on other sites. You can be gracious to people who are learning without intimidation or guilt trips. If not there should be another site for beginners who can ask questions without being scared away. Just my opinion and from other emails I see here some other also. Becca Re: Modified SCD > I have actually eliminated all grains as an > > initial experiment and it feels very good. Please be a little more > > gentle with us newcomers so as not to scare us away. > > Thanks, > > Cathie > > > Oh Oh- Cathie , > I was trying to scare you away from grain not SCD:-) Grain is the enemy of SCD and also the diet simply cannot be followed without reading the book. > > Many times, people associated with other dietary interventions have pleaded with Elaine and asked why a little grain once in a while would not hurt and it is vital that we are clear and firm in opposing it. I am really concerned if you found this intimidating but people who come here often have just about given up hope and we have a moral obligation to guide them along the right path to give them the best opportunity to heal their children. > > SCD holds great promise but it comes with a caveat which is stated in BTVC. SCD demands fanatical adherence and that means no grain. This reality has discouraged some parents and caused a few to leave because the strictness of the diet was something they felt they could not comply with. But those who persisted- and we are well over one thousand now- have, for the most part made progress that eluded them in the past. Some that had the most doubts and fears have become real supporters. It is never easy to learn something new that requires abandoning the habits of a lifetime. > > One thing about SCD that has been noted is it's really a lot about what we can't have but when the smoke clears, it's amazing how much we can have. > > I pray this diet goes well for your family and you come to understand the importance of maximum compliance. > Try to compare it to baking a sponge cake. If you failed to separate the eggs and the cake fell, you might wonder what went wrong from overlooking an important part of the recipe. > > If I/we sounded tough, believe me the grains are a lot tougher on an injured gut :-) > > Carol F. > > > > > For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: > http://www.breakingtheviciouscycle.info > and > http://www.pecanbread.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2004 Report Share Posted July 29, 2004 Thanks Patti, I did ask for " any opinions. " I just didn't realize that my question would touch a tender point; so now I've learned something new and it's good information. It did make me feel uncomfortable, but your explanation fills in some blanks for me and is greatly appreciated. I feel quite resolved now. Good Luck to you and your daughter, Cathie Patti wrote: > Hi Cathie, > I'm sorry you felt uncomfortable..... nothing personal was meant > towards you in our responses. We have a lot of mail to respond to > ...... and little time to do it in. I'm up to my eyeballs in my > daughter's issues, just like everybody ..... and I try to pitch in to > help out here with responding to mail. Just knowing that we have over > 1000 members on the list, reading whatever information comes up, we > sometimes jump on a subject like that with a strong response.... to > the subject matter, not meaning to be harsh to the poster...... just > because there is the chance that some other list readers might > misconstrue or misunderstand. It's been such an issue on this list in > the past.... with others outside the SCD community misleading parents > and making recommendations to modify the diet... we tend to get a > little defensive. I'm so sorry you felt it was personal. Please > accept my apologies. > > Patti, mom to Katera, SCD 14 months > Modified SCD > > > > > > Has anyone tried a modified SCD? By this I mean using a few grains > > (quinoa, brown rice, etc.) in great moderation. I know that Dr. > Hicks > > recommended this, but has anyone tried it? If so, how has it > been for > > you? Are you seeing positive results? Any feedback or opinions > would be > > appreciated! > > Thanks, Cathie > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 I have been down this road, too - hours and hours and hours of research and one thing conflicts another... and it's so frustrating to keep trying new things and nothing working... I reallllly know where you are coming from. I think that because of the nature of SCD people are stern because it's either you're doing it or not doing it - and people who add things in that aren't on the diet but think they are still SCD compliant, could say 'SCD doesn't work' when they really didn't try it. We had a very minor infraction last Sunday - just some spices that had sugar and starch in them - and had a major setback that we still haven't recovered from. If I doubted before, I don't any more. Wishing you ONLY the best and total healing for you!!!! Robbie Re: Modified SCD Patti and Carol, Perhaps I should not have posted this question here. I don't know that anyone else used the term " modified SCD. " It was simply the best way that I could think of to express something that I had run accross. My son will be three in a few months and I am trying to find answers as quickly as possible. I stay up late into the night trying to understand what the most promissing avenues are. I rarely have time to read a whole book, but I have read four this month. I simply wanted a little more info before beginning yet another new diet. I did have a chance to read more of Elaine's book today. I have actually eliminated all grains as an initial experiment and it feels very good. Please be a little more gentle with us newcomers so as not to scare us away. Thanks, Cathie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 It was our experience that after 1 week of total compliance, both my kids were open to trying just about anything. This blew me away, really. Especially with my 4 yr old who hated trying new food. What a difference! And - I say this not to scare you away - but as long as you're breastfeeding, your child will not be totally SCD compliant. I'm in the same boat - my 16 month old is still nursing. BUT I have still seen amazing progress with him, but am really thinking I need to wean him. He eats homemade yogurt so I'm thinking he will get the calcium, fats and nutrients he needs without bfding. Breast milk has a LOT of lactose in it - it's obviously God made in such a way that it's easy to digest, BUT with a damaged gut, lactose is hard to digest... Just wanted to throw that out there for you to consider. Robbie Re: Re: Modified SCD Thank you Carol, This makes me feel more welcome. We're actually planning on adhering strictly to the diet. I just wanted to prepare in case I saw signs that the diet was not working for my son. He is a very picky eater and I'm hoping that he opens up to new foods as a result of the diet. He's still breast feeding which is why I've been experimenting with eliminating grains for myself. The interesting thing is that he ate two new foods yesterday: plums and cashews! Could this have something to do with what I've been eating? This is very promising. Of course once we're on the diet, I'll be cooking his fruit. Cathie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 It is my understanding that breastmilk has casein in it, but no lactose. In Elaine's book, she mentions a baby whose mother was put on SCD and who recovered from his gastrointestinal issues while breastfeeding. Will more experienced SCD'ers please give us information about breastfeeding? Tali > It was our experience that after 1 week of total compliance, both my kids were open to trying just about anything. This blew me away, really. Especially with my 4 yr old who hated trying new food. What a difference! > > And - I say this not to scare you away - but as long as you're breastfeeding, your child will not be totally SCD compliant. I'm in the same boat - my 16 month old is still nursing. BUT I have still seen amazing progress with him, but am really thinking I need to wean him. He eats homemade yogurt so I'm thinking he will get the calcium, fats and nutrients he needs without bfding. Breast milk has a LOT of lactose in it - it's obviously God made in such a way that it's easy to digest, BUT with a damaged gut, lactose is hard to digest... Just wanted to throw that out there for you to consider. > > Robbie > > Re: Re: Modified SCD > > > Thank you Carol, > This makes me feel more welcome. We're actually planning on adhering > strictly to the diet. I just wanted to prepare in case I saw signs that > the diet was not working for my son. He is a very picky eater and I'm > hoping that he opens up to new foods as a result of the diet. He's still > breast feeding which is why I've been experimenting with eliminating > grains for myself. The interesting thing is that he ate two new foods > yesterday: plums and cashews! Could this have something to do with what > I've been eating? This is very promising. Of course once we're on the > diet, I'll be cooking his fruit. > Cathie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 I don't have to be a more experienced SCDer to know that breast milk has lactose in it. Nursing moms with babies who are lactose intolerant have to put drops of lactase on their breasts to help babies tolerate the lactose in breast milk. If a baby is sensitive to grains or other starches, a mom going scd compliant would definitely help her baby, but lactose is definitely present in breast milk. That is why Elaine gives a recipe for a baby formula in her book to help babies who have severe D - it is completely lactose free - but it can't sustain a baby nutritionally long term. Robbie Re: Modified SCD It is my understanding that breastmilk has casein in it, but no lactose. In Elaine's book, she mentions a baby whose mother was put on SCD and who recovered from his gastrointestinal issues while breastfeeding. Will more experienced SCD'ers please give us information about breastfeeding? Tali > It was our experience that after 1 week of total compliance, both my kids were open to trying just about anything. This blew me away, really. Especially with my 4 yr old who hated trying new food. What a difference! > > And - I say this not to scare you away - but as long as you're breastfeeding, your child will not be totally SCD compliant. I'm in the same boat - my 16 month old is still nursing. BUT I have still seen amazing progress with him, but am really thinking I need to wean him. He eats homemade yogurt so I'm thinking he will get the calcium, fats and nutrients he needs without bfding. Breast milk has a LOT of lactose in it - it's obviously God made in such a way that it's easy to digest, BUT with a damaged gut, lactose is hard to digest... Just wanted to throw that out there for you to consider. > > Robbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 Compostion of Human Milk CONSTITUENT (per 100 mL) COLOSTRUM 1-5 DAYS MATURE MILK > 30 DAYS COW MILK Energy (Keal) 58 70 66 Lactose (g) 5.3 7.3 4.8 Total protein (g) 2.3 0.9 3.4 Re: Re: Modified SCD > > > Thank you Carol, > This makes me feel more welcome. We're actually planning on adhering > strictly to the diet. I just wanted to prepare in case I saw signs that > the diet was not working for my son. He is a very picky eater and I'm > hoping that he opens up to new foods as a result of the diet. He's still > breast feeding which is why I've been experimenting with eliminating > grains for myself. The interesting thing is that he ate two new foods > yesterday: plums and cashews! Could this have something to do with what > I've been eating? This is very promising. Of course once we're on the > diet, I'll be cooking his fruit. > Cathie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 " Will more experienced SCD'ers please give us information about breastfeeding? " I have e-mailed Elaine and I will post her response. Jody mom to -5 and -7 SCD 18 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2004 Report Share Posted August 6, 2004 Yes, I just went through trying this and am running back to strict SCD. My child was show regression in more ways than one. After Fully BM potty training finally after only 3 weeks SCD, 3 months later Hick suggested the same thing to me for my son and after a gluten-free pancake, went back to having formed BM's in his underwear. He went back to holding onto me for dear life in grocery stores. And he had the most disappointing speech evaluation (bad enough for the lady to respond after I questioned her about continuing speech therapy throughout the school year) that " we'll have to see, we have to show improvement or else it's considered maintenance therapy. " Giving a reason for not showing improvement to be " plateauing. " This is the absolute worst blow to my major HOPE and EGO since my child's initial diagnoses. He has made INCREDIBLE progress and IMPROVEMENT in the last 6 months. And this is the 1st time this therapist has seen him in a year. I personally think SHE has PLATEAUED or has a problem !!!! But I can't go through their guessing games with diet when SCD has done the most for him.. I agree, I need to find more vegetables and cut down on meat to stay on it long tem, but giving rice is not an option. >>> durovchic@... 7/29/2004 11:22:58 AM >>> Hi Cathie, I'm sorry you felt uncomfortable..... nothing personal was meant towards you in our responses. We have a lot of mail to respond to ...... and little time to do it in. I'm up to my eyeballs in my daughter's issues, just like everybody ..... and I try to pitch in to help out here with responding to mail. Just knowing that we have over 1000 members on the list, reading whatever information comes up, we sometimes jump on a subject like that with a strong response.... to the subject matter, not meaning to be harsh to the poster...... just because there is the chance that some other list readers might misconstrue or misunderstand. It's been such an issue on this list in the past.... with others outside the SCD community misleading parents and making recommendations to modify the diet... we tend to get a little defensive. I'm so sorry you felt it was personal. Please accept my apologies. Patti, mom to Katera, SCD 14 months Modified SCD > > > Has anyone tried a modified SCD? By this I mean using a few grains > (quinoa, brown rice, etc.) in great moderation. I know that Dr. Hicks > recommended this, but has anyone tried it? If so, how has it been for > you? Are you seeing positive results? Any feedback or opinions would be > appreciated! > Thanks, Cathie > > > > Quote Link to comment Share on other sites More sharing options...
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