Guest guest Posted September 7, 2004 Report Share Posted September 7, 2004 , Welcome to the group. Many of us have multi-system sarc. It is a horrible disease, and not being able to find competent medical care is an issue we all deal with. I wanted to say that I do understand your "suicidal thoughts." It many times seems like it may be an easier path. However, when you step aside from the "you" in that thought and look at what it would do to those you love, and that love you-- you realize its not an option. Let us know how we can help. Sincerely, Tracie Co-owner/moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 Hi , I replied twice to your earlier message so please check your email and it should be there........... Welcome to our list. We are sorry that you have this disease but glad you found us. We have a lot of knowledgeable, caring people who are in various stages of this disease and have various symptoms......ALL are sick......... You can read through the archives and find tons of info and please feel free to ask questions. We only have a few rules and they are easy to follow. Again, welcome to the list. Darlene Co-Owner/Moderator To Everyone: Hello:I sent an e-mail in fact a very long e-mail to Neurosarcoidosis last week about my situtation and apparently I missed up or the moderator didn't post this. I sent another e-mail last friday to moderator about what to do because I'am Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 , You can rest easier now. You are amongst people who will understand. Your disease may not get better (it may, though), but the way you handle it will. many of us have reached a stage of acceptance (even humor, if you can believe that) primarily because of this group. You couldn't pick a more supportive gang. Take care, and hold on. garyjwoolard wrote: >Hello: >I sent an e-mail in fact a very long e-mail to >Neurosarcoidosis last week about my situtation and >apparently I missed up or the moderator didn't post this. I sent >another e-mail last friday to moderator about what to do because I'am >new at this. >All said and done perhaps no one ever has read that first lengthy e- >mail that I sent about myself. >So sumerize whats' going on with myself. I have positive Pulmonary >Sarcoidosis and Sarcoid Arthitis, Musiclar Sarcoidosis, and Neuro- >sarcoidosis of these last three all circumstancial. Although I had an >Arthitic Blood Profile Test and was negative for Arthitis. I do have >Perherial Neuropathy though and may or may not be from Sarcoidosis. >On top of everything else I had sucidual thoughts from time to time. >This is in part why I join this support group. >I got to go now because the library is closing. > >Bye, > > > > > >~~~~ *** ~~~ *** ~~~ *** ~~~~ >The Neurosarcoidosis Community > >NS CHAT:- Has been cancelled for now. > >Message Archives:- >http://groups.yahoo.com/group/Neurosarcoidosis/messages > >Members Database:- >Listings of locations, phone numbers, and instant messengers. >http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 hi gary, welcome to our little family. you will notice that sometimes in here, it is difficult for people to respond right away. many of us are very ill. i am sorry to hear about your battle with sarcoid. it is never an easy ride. just know that for anything, there will be at least one of us here to talk to anytime. suicide is a serious finality and no one here would want that. i am sure you have people that love you as well. sarcoid does its own thing and the only thing you can do to help is keep a positive attitude and a smile on your face as often as you can. just think of all the people that are so much worse off than you. life should be celebrated, your life is wonderful. every day that you open your eyes is a miracle. please, email me whenever you want to talk , even if its privately. my email is niks522@... talk to you soon, hope this finds you well. best, nicole > >Reply-To: Neurosarcoidosis >To: Neurosarcoidosis >Subject: To Everyone: >Date: Wed, 08 Sep 2004 00:56:22 -0000 > >Hello: >I sent an e-mail in fact a very long e-mail to >Neurosarcoidosis last week about my situtation and >apparently I missed up or the moderator didn't post this. I sent >another e-mail last friday to moderator about what to do because I'am >new at this. >All said and done perhaps no one ever has read that first lengthy e- >mail that I sent about myself. >So sumerize whats' going on with myself. I have positive Pulmonary >Sarcoidosis and Sarcoid Arthitis, Musiclar Sarcoidosis, and Neuro- >sarcoidosis of these last three all circumstancial. Although I had an >Arthitic Blood Profile Test and was negative for Arthitis. I do have >Perherial Neuropathy though and may or may not be from Sarcoidosis. >On top of everything else I had sucidual thoughts from time to time. >This is in part why I join this support group. >I got to go now because the library is closing. > >Bye, > > _________________________________________________________________ FREE pop-up blocking with the new MSN Toolbar – get it now! http://toolbar.msn.click-url.com/go/onm00200415ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
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