Advice

[Guest guest]

Hi Again,

I want to thank everyone who wrote me about finding a Dr in Seattle,

and to those who just wrote to say hello and wish me well. I cannot

believe that this group would disband--I have just found you all, and

you are my link to the hope I can get through this, and conquer this

disease! Please Please continue, as there are those of us who

desperately need advice and guidance and an ear for the tough times as

well as good.

That said I do have questions, plenty, actually. My rheumatologist

was actually willing to prescribe the minocin, but he doesn't have the

expertise I need to acurately treat my disease. Thus I am still

looking for someone, and do have good leads, thanks to you all.

The good news is, that my flu like symptoms have resolved, I am eating

food again, my weight has stabilized, and my strength has returned.

Oddly enough, I was on an antibiotic for a sinus infection before I

started the mino (Avelox-a broad spectrum antibiotic) and I had what I

believe was a herxheimer's reaction which lasted 3 days. Then

suddenly, I began to get better, my symptoms cleared up, and the

number of joints which ached reduced dramatically. I was down to one

finger joint aching!

Now I am off the avelox and began the mino, and my symptoms seem to be

returning slowly (but no herx reaction yet). Oddly too at the same

time my daughter got a strep infection out of the blue. Could I have

given this to her? (I had a history of infections as a child). In

reading the Scammell book, it sounds like I should be on something for

the strep as well. Any thoughts, advice as to what to ask for with my

Dr? Also dosage and for how long? Can I take it while on the mino?

Sorry for all the questions, but I am feeling my way through the dark

here. Thanks to all of you for your support. I couldn't do it without

you!

in Seattle