Re: Update on Glenda!

[Guest guest]

Glenda, I agree, I couldn't live without Ultram. It is truely a life saver

for me. Glad to hear that you are feeling better.

Have a good weekend

[Guest guest]

Elaine,

I am feeling much better, thank you. The Pred. and the Ultram have kicked

in. I think that Ultram is the wonder drug. You take it and in just a

little while all the pain is gone. I try not to take it too often but with

the flare I decided it was time. I get sooo grouchy from the pain that I

don't even realize it. My poor husband!

Hope you had a good visit with your friend today. Too bad they took her off

the drugs she was taking before. If it worked they should have left her

alone. Well at least she will get the help she needs and get better and

tell them to leave her meds alone.

Thinking of you and your friend! Hope you are resting!

Lots of Love

Glenda

On Fri, 15 Sep 2000 09:52:20 -0700, Rpolychondritisegroups wrote:

> Hi Glenda,

> Sounds like you have a decent doc now. I'm on 40mgs of pred as well as

10mg

> of methotrexate and I'm feeling better. Haven't been on Imuran though.

Hope

> you are feeling better soon and that your son lets you on line.

> Take care and get some rest,

> Elaine

>

> Update on Glenda!

>

>

>

> Hi All,

>

>

> I went to the dr. this morning first thing. This is only the second

> time that I have been to see him. I was impressed with him today.

> He is having a hard time trying to figure out what to do because he

> was only sent the last 2yrs of my files for the other #@*@@()* & # dr.

> He doesn't know my case but seems to know alot about RP. Him and my

> dr. that retired used to and probably still do talk about their cases

> together. He doesn't think I have vasculitis but isn't going to rule

> it out. He put me on 40mg of pred. for a week and I am to call him

> next week to let him know how I am doing. Also gave me option to

> call him before if I needed to.(WOW I wont know how to act) He also

> gave me a prescription for Imuran 1 every 6 hours as needed. I have

> taken this before and it seems to really help. I don't abuse it, in

> fact half the time I don't take it unless I am in dire straights. On

> Tuesday I was in dire straights. I was really feeling bad. I felt

> like I was in a full blown flare. That is what I have a Question

> about. Dr. said that I didn't look like I was having a flare. My

> sed rate was normal for me. Can you have a flare with a normal sed

> rate? All I know is I feel like I used to before the got my RP on an

> even keel. He said I might just be starting a flare! Who knows I

> just know what I feel. He wanted to know how I feel and I tried to

> discribe. It's hard to describe what RP feels like. I know it feels

> like $#!+. LOL Dr also gave Miacalcin nasal spray. It is suppose to

> put calcium back in your system faster and keep you from getting

> osteo. Suppose to be a good means to get calcuim. Anyone know

> anything about this? I know I am full of questions!LOL This is the

> first major flare I have had in a looooong time. I just hope all

> this crap really works! I have had some pretty rough days.

>

> I haven't been on line much! Between fighting with my 25 yr. old son

> for computer time and not feeling well. I haven't been reading my e-

> mails even. I just now got caught up.(for the moment)

>

> I sure miss you guys when I can't get on. No I'm not addicted to you

> guys at all. Anyway to get to the important stuff.

>

> The chat was good yesterday. Sorry I wasn't up to cutting up with

> you all. Maybe by Friday!

>

> I will shut up for now! But just for now! Like Heidi I will be

> back! You are always in my thoughts and prayers even if I'm not here.

>

> Lots of Love

> Glenda

>

>

>

>

> DISCLAIMER!!

> WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS

RECEIVED

> HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE

TRYING

> ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN

AND

> ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE

> DIFFERENT FOR MANY OF US. THANK YOU

>

>

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