Re: Leg symptoms anyone?

[Guest guest]

Hi Elena,

My legs are about 60% of my problem. And when I became symptomatic

about 4 years ago it was my legs that gave me trouble first. I had surgery in

99 but it didn't help my legs at all. I have muscle weakness, twitches,

cramps, stiffness, jerks. My neuro said I have spasticity along with hyper

reflexes. I can't walk very far or sit or stand very long.

Take care, Kathy In Ohio

[Guest guest]

I have all those symptoms plus terrible spasms in my calves and I don't have

a syrinx.

Much love,

Traci, ACM1, no surgery, hypothyroidism

mom of Andre (15 yrs.), ACM1, no surgery, cyst on brainstem, scoliosis

and Zoe (9 yrs.), Thalassemia and Familial Mediterranean Fever

Only lots of love and laughter keep us going!

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

[Guest guest]

--- Wfsshoe40@... wrote:

> Hi Elena,

> My legs are about 60% of my problem. And

> when I became symptomatic

> about 4 years ago it was my legs that gave me

> trouble first. I had surgery in

> 99 but it didn't help my legs at all. I have

> muscle weakness, twitches,

> cramps, stiffness, jerks. My neuro said I have

> spasticity along with hyper

> reflexes. I can't walk very far or sit or stand very

> long.

> Take care, Kathy In

> Ohio

Hi Kathy,

I have alot of problems with my legs.It is really

bad in the morning.I feel like I have lead boots on.My

legs fatigue easily.

They get muscle burn walking short distances.My feet

bother me too.They burn and ache.So you are not alone!

Hugs,

Lee

__________________________________________________

[Guest guest]

-----------original message------------

Hi Elena,

My legs are about 60% of my problem. And

when I became symptomatic

about 4 years ago it was my legs that gave me

trouble first.

Hi Everyone

Its strange the comment came up about leg problems. 13 years ago when I

first took ill before they even knew what was the problem it was my legs

that first caused problems. I think thats why it was so hard to figure out

what was wrong. How can leg problems boil down to chiari? I had surgery

after 12 years of fighting to solve what was wrong with me last Nov and to

this day I have leg problems.

I wake up at nite because my legs hurt so much. I guess I should actually

say my right leg hurts more than the left. I rub the top of my leg and pace

because it hurts so much and niether rest or pain meds help.

I have another question for you all. I had decompression surgery in Nov of

2000 as well as c1 removed and cervical fusion well in english terms I had

three disks removed c5, 6, 7 and spacers inserted with titanium plate

surgery in Mar of this year. I still find myself in pain at times.

Yesterday in the van while driving the car in front of me stopped

immediately in front of me driving at a speed of 80km. I had to make an

abrupt stop. I never noticed my neck sore last nite.

Today I have such a nasty headache where both my head and neck are very

sore. Could it be from the van incident yesterday and I won't be sore until

I moved this morning to get out of bed. During the nite I had a headache

but just laid in bed. I never moved until this morning.

I wonder if maybe I should be contacting the doctor but if this is just

normal I don't want to be a pest since today is Sunday.

Any advice I would love to hear.

Thanks Group Your great

Regards

(Canada)

decompression surgery Dr Oro

Cervical fusion Dr Oro