Guest guest Posted February 13, 2005 Report Share Posted February 13, 2005 Why would she take this valuable information away from the public ? A lot people could've used it. Why is she not participating in this group anymore ? Why won't she talk to anybody ? Does she still have ns ? What happened ? , Aisha gave 4 + years to all of us with NS, developing the first comprehensive article that put together a small amount of info on NS. That information is now available thru MANY websites- websites and articles that are written by medical doctors. Since she, (and all of us) are not medical practicioners, the information we share with you is from our own research, and unfortunately, personal experience. Needless to say, that leaves those of us willing to share that info wide open to those who would like to see our information squelched because they want to continue to talk people into their programs, so that "grant" money will still be available for their program. (I can't and won't go into detail--so don't ask.) As far as Aisha, she probably does not have NS. She is still very sick, but the future is getting brighter. She has asked I not share more. One of the greatest challenges of owning, or moderating a group like this- is that WE ALL need help. We're all sick. It takes a tremendous amount of energy to answer and research everyone's questions, and the emotional toll that holding peoples hearts thru a journey like this can and does take it's toll. We become very close to all of you, we share our fears-- and help others when we have no energy to take care our ourself. After 4+ years, she burnt out. Bottom line, final answer-- SHE BURNT OUT! Aisha's love is music, and she is recreating a life where she can find happiness, instead of constant neediness. This is feeding her soul-- and that is what all of us need most. It is what keeps us going, when our body and brains are trying to find healing. Please - there is so much information in the archives-- I can't stress how important it is to go back and look thru those entries-- they are incredible. (Yep, there's some crazy, zany, humor too). Most sincerely, Tracie Co-owner/moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2005 Report Share Posted February 17, 2005 Thank you for responding. I appreciate it. Re: Aisha Question Why would she take this valuable information away from the public ? A lot people could've used it. Why is she not participating in this group anymore ? Why won't she talk to anybody ? Does she still have ns ? What happened ?,Aisha gave 4 + years to all of us with NS, developing the first comprehensive article that put together a small amount of info on NS. That information is now available thru MANY websites- websites and articles that are written by medical doctors. Since she, (and all of us) are not medical practicioners, the information we share with you is from our own research, and unfortunately, personal experience. Needless to say, that leaves those of us willing to share that info wide open to those who would like to see our information squelched because they want to continue to talk people into their programs, so that "grant" money will still be available for their program. (I can't and won't go into detail--so don't ask.)As far as Aisha, she probably does not have NS. She is still very sick, but the future is getting brighter. She has asked I not share more. One of the greatest challenges of owning, or moderating a group like this- is that WE ALL need help. We're all sick. It takes a tremendous amount of energy to answer and research everyone's questions, and the emotional toll that holding peoples hearts thru a journey like this can and does take it's toll. We become very close to all of you, we share our fears-- and help others when we have no energy to take care our ourself. After 4+ years, she burnt out. Bottom line, final answer-- SHE BURNT OUT!Aisha's love is music, and she is recreating a life where she can find happiness, instead of constant neediness. This is feeding her soul-- and that is what all of us need most. It is what keeps us going, when our body and brains are trying to find healing. Please - there is so much information in the archives-- I can't stress how important it is to go back and look thru those entries-- they are incredible. (Yep, there's some crazy, zany, humor too). Most sincerely,TracieCo-owner/moderator ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
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