Guest guest Posted March 4, 2005 Report Share Posted March 4, 2005 > Dear Tracey, I have my eyes examined every year from the Wilmer Institute at s Hopkins Hospital. The last visit I had was last spring and they told me that he saw something, but given my diagnosis he would not do a biopsy because most likely it was the Sarcoidosis. My concern is that it is getting worse. I feel like I am looking through a dirty windshield all the time. The only medication I am on at this time is Toporol XL 100 mg, Hydrochlorothiazide 35 mg and Potassium. I was on Prednisone and Minocycline. I went off of it because I hade been on Prednisone for two years and then I started with high blood pressure. I went into remission for two years and now I have problems again but I refuse to go back on the Prednisone. The side effects can be worse than the disease. Right now I am waiting for my next visit to my doctor at Hopkins. I have been seeing her every three to six months and she is wonderful. She knows about this disease and runs a clinic that people come to from all ove Terry > From: tiodaat@... > Date: 2005/03/03 Thu AM 08:51:49 GMT > To: Neurosarcoidosis > Subject: Re: Flashers and Floaters > > In a message dated 3/3/05 12:12:52 AM Pacific Standard Time, > terrykoogle@... writes: > > > > . I have been breaking out in hives every day. I have to take benedryl > > just to keep that under control. I have floaters in my eyes, typical joint > > pain and frequent infections. > > Terry, I'm not sure what the hives are about-- but we know the joint/ligament > pain can be sarcoidosis. > I am concerned about the floaters tho-- most often they are just that > " floaters " , little bits of vitreous (the stuff that fills the eye between the pupil > and the back of the eye) but when they happen on a real regular basis-- you > definately want an OPHTHALMOLOGIST MD to take a look at your eyes. They can be a > sign of retinal tearing (as into rip a piece of paper apart) and you need to > make sure that this isn't happening. Are your eyes light sensitive also? > What meds are you on? > > Let me know, and I'll see what we can come up with -- the hives may very well > be caused by meds. > Tracie > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2006 Report Share Posted January 2, 2006 Terry, my cataracts started out as a feeling that I was looking through lace. But this is one Pred side effect I didn't mind. The surgeries were a piece of cake and for the first time in my life I can't see well without glasses or contacts. Rose Re: Flashers and Floaters > > > > In a message dated 3/3/05 12:12:52 AM Pacific Standard Time, > > terrykoogle@... writes: > > > > > > > . I have been breaking out in hives every day. I have to take benedryl > > > just to keep that under control. I have floaters in my eyes, typical joint > > > pain and frequent infections. > > > > Terry, I'm not sure what the hives are about-- but we know the joint/ligament > > pain can be sarcoidosis. > > I am concerned about the floaters tho-- most often they are just that > > " floaters " , little bits of vitreous (the stuff that fills the eye between the pupil > > and the back of the eye) but when they happen on a real regular basis-- you > > definately want an OPHTHALMOLOGIST MD to take a look at your eyes. They can be a > > sign of retinal tearing (as into rip a piece of paper apart) and you need to > > make sure that this isn't happening. Are your eyes light sensitive also? > > What meds are you on? > > > > Let me know, and I'll see what we can come up with -- the hives may very well > > be caused by meds. > > Tracie > > > > > > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > NS CHAT:- Has been cancelled for now. > > Message Archives:- > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant messengers. > http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
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