Re: New and question

[Guest guest]

Hi ,

Welcome.

I have tried that diet as I had had so many food allergies.

Itis quite restrictive and when i went off I flared badly.

I did seek out Naet which helped me so much! It is an allergy

elimination technique that for me replaced having to do the diet. I

was cleared for wheat corn cluten as wellas many suppelemts I was

also reacting to.

You can look it up naet.com. So many symptoms are now gone..just from

controlling the allergies as it was more than just the gluten for me.

Love

Marge

> Hi. My name is . I just joined this group. I have been

> researching RA treatments to help a family member who is quite

> disabled with it. We are going to look into the antiobiotic

treatment.

>

> My question is whether anyone here has tried the gluten-free diet

to

> treat RA and if so, whether it has been successful. We started it

in

> my household last week.

>

> Thanks.

>

>

[Guest guest]

,

I tried a gluten-free diet when I first " caught " RA in 1999, but it had no

discernible effect.

Gluten intolerance, or Celiac disease, can aggravate the symptoms of RA,

but it only affects 1 in 133 Americans. The statistical odds are that most

people with RA will not be helped by a gluten-free diet -- but a minority

will be helped. For statistics on gluten intolerance, please see the page

http://www.worldwidehealthcenter.net/article.php?article=248

Treatment odds will be much better with the antibiotic protocol (AP), which

works for an estimated 70%-80% of people. Also, read up on diet and omega-3

rich fish oils, which will help nearly all people with RA.

Regards, Harald

At 04:32 PM 6/30/03 +0000, you wrote:

>Hi. My name is . I just joined this group. I have been

>researching RA treatments to help a family member who is quite disabled

>with it. We are going to look into the antiobiotic treatment.

>

>My question is whether anyone here has tried the gluten-free diet to treat

>RA and if so, whether it has been successful. We started it in my

>household last week.

>

>Thanks.

>

[Guest guest]

To turn Harald's spin around, while 1 in 133 may have sensitivities,

the odds appear to be higher in our group of rheumatic-related

diseases, especially those of us who have low rheumatic tests scores

and are suspected of having a reactive arthritic condition. (No, I

don't have a double-blind study to back me up...so don't flame me.

I'm going by personal experience and what I've seen here and elsewhere.)

YES! a gluten-free diet can help. However, you will have to be very

strict and be on it for at least 4-6 weeks to allow the gluten to leave

your system. This will help you see if you do have a sensitivity to

glutens. I noticed the change...and it was drastic. Obviously, not

everyone has the sensitivity, but you owe it to yourself to find out,

especially if you suspect it to be a culprit.

One of the best things to do if you think that food is the culprit is

to see a nutritionist who specializes in food allergies. Beyond lab

testing, they can teach you ways to monitor food sensitivities for

yourself (which usually means keep a journal of what you eat, then

recording how eating a large quantity of a certain type of food affects

you).

There are some great resources on the net to help get you started.

Start at http://www.food-allergy.org/index.html ,

http://members.shaw.ca/allergies/ and http://www.celiac.com/ (for

specific info on celiac disease). All those sites have extensive links

to other information on the web.

Best wishes to you and your family on your road to wellness.

deano

On Tuesday, July 1, 2003, at 12:31 AM, Harald Weiss, Technical

Marketing Group wrote:

> ,

>

> I tried a gluten-free diet when I first " caught " RA in 1999, but it

> had no

> discernible effect.

>

> Gluten intolerance, or Celiac disease, can aggravate the symptoms of

> RA,

> but it only affects 1 in 133 Americans. The statistical odds are that

> most

> people with RA will not be helped by a gluten-free diet -- but a

> minority

> will be helped. For statistics on gluten intolerance, please see the

> page

> http://www.worldwidehealthcenter.net/article.php?article=248

>

> Treatment odds will be much better with the antibiotic protocol (AP),

> which

> works for an estimated 70%-80% of people. Also, read up on diet and

> omega-3

> rich fish oils, which will help nearly all people with RA.

>

> Regards, Harald

[Guest guest]

At 13.35 01/07/03, you wrote:

>To turn Harald's spin around, while 1 in 133 may have sensitivities,

>the odds appear to be higher in our group of rheumatic-related

>diseases, especially those of us who have low rheumatic tests scores

>and are suspected of having a reactive arthritic condition.

I know that here in Italy, mainstream medicine is now claiming that celiac

disease sufferers are much more numerous than once thought. Apparently

previously only the the more extreme cases were caught, right away as

children, because the symtoms are so dramatic (failure to gain weight,

etc.) but now they have more sensitive tests.

Here they take pasta-eating so seriously that if you are a certified

celiac, you are entitled to a ration of _free_ gluten-free pasta every

month from the pharmacy. Evidently this costs the state health system much

less than having to deal with celiacs who give into the temptation of

eating regular pasta!

Last year my mainstream rheumy tested me right away for celiac disease

(negative).

After a very bad flare last year of psoriatic arthritis (20 year history,

no treatment besides occasional antiinflammatories), I've cut way down on

carbs and upped the vegetables and other nutrients (omega 3, probiotics),

and cut out junk entirely. I think it has helped immensely--in any case,

after that bad scare, my arthritis has been so slight for a year now that

I've put off trying AP, and have been able to avoid any other treatment,

including NSAIDS:

My psoriasis is better too, and even more noticable, my dry skin did not

itch this winter. Maybe because I finally ate a decent amount of vegetables

regularly, every single day!

I am honestly not sure whether the low carb benefit is simply from:

1. better nutrition for having cut out refined carbs, and thus

concentrating on other, better, foods;

2. or from an improved gut flora from the low carbs;

3. or....because of a wheat or gluten sensitivity.

I did try gluten-free (while continuing with a bit of rice and potatoes)

for 10 days, and it seemed to add no further benefit, (though perhaps I

don't want to know--how inconvenient to have to avoid wheat always!).

Perhaps I should have tried for a longer period. It seems to me that many

psoriatics do better on gluten-free, but like I said, it is not clear for

which of the above reasons (or other reason).

In any case, I suppose that by eating gluten-free pasta and the like, you

might be able to distinguish whether it's the carbohydrates causing

problems (gluten-free pasta is high-carb) or a gluten sensitivity causing

problems.

>YES! a gluten-free diet can help. However, you will have to be very

>strict and be on it for at least 4-6 weeks to allow the gluten to leave

>your system.

Yes--I think you are probably right that it would be worth trying, and if I

get another flare, it is one of the first things I will try.

Thanks to all of you for the postive outlook and good info. The infectious

theory makes a lot of sense to me, and " helping the immune system " is a

much nicer mindset! Hopefully I will continue to feel I can put off doing

AP, but it sure is nice to know you are there " just in case " .

Maureen in Italy

[Guest guest]

Hi ,

I have been on AP for 16 yrs with great success and I have been on the

Atkins for almost 3 yrs with even more success. My weight which had went up

over years of drugs and in activity is near normal and I eat no starches or

sugars and feel great. To me this is the answer. I also HAD sugar and was on 2

sugar pills aday and now I am 106 and I was 180. We all have different problems

with different bodies but I plan to live on Atkins for the rest of my life

which is mainly chicken, fish and veggies, so not really unhealthy but I do have

eggs and bacon and cheese. For me high carbs and sugar were makeing me feel

terrible and ache all the time now no Pain. I Highly suggest everyone get on the

check list on foods and find out what makes your body work best, which may be

different from mine. I think for whatever reason our bodies do react to

certain foods and we can do something about this fairly easy, well compared to

everything else we go through anyway. Good luck and welcome to this great

group.

Just My View from Ohio

[Guest guest]

some docs beleive food allergies are secondary. it seems to help

some of the symptoms to avoid certain foods but i do not beleive it

is the answer. i feel better with less gluten but i do not have

celiac. it would be interesting to know if people doing AP and

improving have a lessening of reactions to foods they were once

sensitive to.

rachael

dermatomyositis

>

> > ,

> >

> > I tried a gluten-free diet when I first " caught " RA in 1999, but

it

> > had no

> > discernible effect.

> >

> > Gluten intolerance, or Celiac disease, can aggravate the

symptoms of

> > RA,

> > but it only affects 1 in 133 Americans. The statistical odds are

that

> > most

> > people with RA will not be helped by a gluten-free diet -- but a

> > minority

> > will be helped. For statistics on gluten intolerance, please

see the

> > page

> > http://www.worldwidehealthcenter.net/article.php?article=248

> >

> > Treatment odds will be much better with the antibiotic protocol

(AP),

> > which

> > works for an estimated 70%-80% of people. Also, read up on diet

and

> > omega-3

> > rich fish oils, which will help nearly all people with RA.

> >

> > Regards, Harald

[Guest guest]

Hi ,

I know for me, gluten was just scratching the surace.

I wa allergic to tos mofe.

I found naet to be very helpful and even found thatI was alleergic to

all vit Bs and Copper.

Since most foods contain B, it was imprtant to clear.

I am now able to eat glueten without any problem at all

Love

Marge

> >

> > > ,

> > >

> > > I tried a gluten-free diet when I first " caught " RA in 1999,

but

> it

> > > had no

> > > discernible effect.

> > >

> > > Gluten intolerance, or Celiac disease, can aggravate the

> symptoms of

> > > RA,

> > > but it only affects 1 in 133 Americans. The statistical odds

are

> that

> > > most

> > > people with RA will not be helped by a gluten-free diet -- but

a

> > > minority

> > > will be helped. For statistics on gluten intolerance, please

> see the

> > > page

> > > http://www.worldwidehealthcenter.net/article.php?article=248

> > >

> > > Treatment odds will be much better with the antibiotic protocol

> (AP),

> > > which

> > > works for an estimated 70%-80% of people. Also, read up on diet

> and

> > > omega-3

> > > rich fish oils, which will help nearly all people with RA.

> > >

> > > Regards, Harald

[Guest guest]

Hi ! Geoff here.

> My question is whether anyone here has tried the gluten-free diet to

> treat RA and if so, whether it has been successful. We started it in

> my household last week.

It helps, but it does not cure. It helps chiefly by improving overall

health as a result of the immune system not being stressed by allergens, for

those so stressed. If your family member is a strong consumer of wheat/oat

products, it is well worth trying to help relieve some of the associated

problems, such as fatigue, brain fog, pain, etc. If they could not care

less about wheat stuff and don't consume hardly any, then chances are it

won't help much.

Geoff

soli Deo gloria

www.HealingYou.org - Your nonprofit source for remedies and aids in fighting

these diseases, information on weaning from drugs, and nutritional kits for

repairing adrenal damage; 100% volunteer staffed.

(Courtesy: Captain Cook's www.800-800-cruise.com)

[Guest guest]

,

Here is more statistical on information on gluten intolerance. It is from

Dr. Mercola's latest newsletter:

" For the longest time, it was believed that celiac disease was a very rare

condition only present in one in 5,000 people. However, even as long as

three years ago, I have posted studies that show that one in 33 people have

celiac disease. That is 300 percent more prevalent than this NEJM study shows.

Most people don't realize that there are many reactions to wheat, aside

from celiac disease, that can cause health problems. Most of us are

addicted to breads, bagels, pizza, pasta, waffles and pancakes and would

rather die than give them up, and many people do just that, die from the

side effects of eating wheat. "

Regards, Harald

At 04:32 PM 6/30/03 +0000, you wrote:

>Hi. My name is . I just joined this group. I have been

>researching RA treatments to help a family member who is quite disabled

>with it. We are going to look into the antiobiotic treatment.

>

>My question is whether anyone here has tried the gluten-free diet to treat

>RA and if so, whether it has been successful. We started it in my

>household last week.

>

>Thanks.

>

[Guest guest]

I have my allergies and know that virtually everything in nature has some

resulting allergic reaction associated with it thanks to our exceedingly

competent immune systems. Someone, somewhere is probably allergic to my big

toe. Regardless, I see Mercola's name and my interest piques. So naturally

to be fair I visited his site looking for these posted studies and get a

feel for what statistically he considers as " many. " In the process, I did

find one standard Mercola declaration - " My experience is that the true

incidence is probably much higher still, PERHAPS on the order of 1 in 10

people. " He does not elaborate on what experience he is referring to -

observation? interviews? polling? Perhaps, I need to read his book to get

the answer - what was it called again? How much is it?

- ----Original Message Follows----

From: " Harald Weiss, Technical Marketing Group " <hw@...>

" ucccathy " <ucccathy@...>,rheumatic

Subject: Re: rheumatic New and question

Date: Wed, 02 Jul 2003 08:18:15 -0700

,

Here is more statistical on information on gluten intolerance. It is from

Dr. Mercola's latest newsletter:

" For the longest time, it was believed that celiac disease was a very rare

condition only present in one in 5,000 people. However, even as long as

three years ago, I have posted studies that show that one in 33 people have

celiac disease. That is 300 percent more prevalent than this NEJM study

shows.

Most people don't realize that there are many reactions to wheat, aside

from celiac disease, that can cause health problems. Most of us are

addicted to breads, bagels, pizza, pasta, waffles and pancakes and would

rather die than give them up, and many people do just that, die from the

side effects of eating wheat. "

Regards, Harald

At 04:32 PM 6/30/03 +0000, you wrote:

>Hi. My name is . I just joined this group. I have been

>researching RA treatments to help a family member who is quite disabled

>with it. We are going to look into the antiobiotic treatment.

>

>My question is whether anyone here has tried the gluten-free diet to treat

>RA and if so, whether it has been successful. We started it in my

>household last week.

>

>Thanks.

>

_________________________________________________________________

Protect your PC - get McAfee.com VirusScan Online

http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963

[Guest guest]

Thanks Kathy, I will request those! My DAN doc. thinks it might be a yeast

increase issue from the LDN so we're doing Diflucan and taking a break from

the LDN for a while. We will be doing methyl B-12 and enzymes supps soon.

Colleen V.