Guest guest Posted June 13, 2001 Report Share Posted June 13, 2001 In a message dated 6/13/01 9:14:14 AM Eastern Daylight Time, kittibabies@... writes: > They are afraid to touch me at this point! could really use some feedback > I'm kind of in the same boat but I have the blessing of my episodes being intermittent rather than constant. I have some level of problem about 25% of the time. I know it is difficult to come to terms with this disease but one must do the best you can with self awareness, hydration, effective analgesics, diet, etc. I can only give you my Best wishes Poncho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2001 Report Share Posted June 13, 2001 Hi Newbie, First of all, let me welcome you to our group. You will find lots of sage advice, tips, support and whatever else you need just at the time you need it! What a great place this has been for me! I hope you find what you need here. Secondly, pancreas and surgery are words that are never used in the same sentence in the doctor's office! There are two here that are recovering from surgery, and others who have had it in the past, but docs just don't want to go there. You are so right. They just want to treat the symptoms~pain and nausea~and that is that! Good luck to you. Sounds like you are on the right path. Keep in touch and let us know how you do. Be well, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2001 Report Share Posted June 13, 2001 In a message dated 6/13/01 3:33:34 PM Central Daylight Time, sunflower6668@... writes: > Hi Newbie, > > First of all, let me welcome you to our group. You will find lots of > sage advice, tips, support and whatever else you need just at the > time you need it! What a great place this has been for me! I hope > you find what you need here. > > ditto here also. Debbie Sikes djssekis@... Arkansas Chapter Representative Pancreatitis Association, International Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2001 Report Share Posted August 29, 2001 Greetings Barbara! > First time I've ever heard a male person talk > about men not talking!!! Shhh! I was hoping no one would notice! ;-) Seriously, as a child I spent more time talking with my father by not talking! We worked side by side on projects - even when not saying a word. We now share more than normal. But when we get together, it's not unusual to find us just sitting together not saying much. This isn't " less is more " . It is a realization that best conversations don't require words. Regards, =jbf= B. Fisher Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2001 Report Share Posted August 30, 2001 =jf= You were lucky you had a male parent with whom you could commune in that way. But I now men (and many, many of them) who do not talk and simply evade every issue by not facing up to it. Now, pile on us girls! <3BVP<3 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Hi I am , but my friends call me Stevie. I am 61 years old and I am going to have the surgery in Fremont CA just as soon as I lose 10%. That's a total of 27 lbs. I have lost 7 so far. I am hoping to lose the rest by the end of February or March. Meanwhile I am trying to increase my exercise in preparation for the future. I will tell y'all how I am doing every now and then. I am much encouraged after reading some of your messages. thank you Stevie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2004 Report Share Posted December 18, 2004 Hi Stevie, I am LaWanda and am also a Kaiser Freemont patient as is my husband, Dan. I had 29 pounds to lose when I began, and I am about halfway there. Welcome to the list, this is a warm and caring group of people. Welcome to the journey that we're all taking together, a journey where you'll experience many things, some bad but most of them good. Please let us hear from you, we want to know how you're doing. LaWanda At 08:23 PM 12/17/04, you wrote: >Hi > >I am , but my friends call me Stevie. I am 61 years old and >I am going to have the surgery in Fremont CA just as soon as I lose >10%. That's a total of 27 lbs. I have lost 7 so far. I am hoping to >lose the rest by the end of February or March. Meanwhile I am trying >to increase my exercise in preparation for the future. I will tell >y'all how I am doing every now and then. I am much encouraged after >reading some of your messages. >thank you >Stevie > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2004 Report Share Posted December 18, 2004 Welcome Stevie!!! Huggles > > Hi > > I am , but my friends call me Stevie. I am 61 years old and > I am going to have the surgery in Fremont CA just as soon as I lose > 10%. That's a total of 27 lbs. I have lost 7 so far. I am hoping to > lose the rest by the end of February or March. Meanwhile I am trying > to increase my exercise in preparation for the future. I will tell > y'all how I am doing every now and then. I am much encouraged after > reading some of your messages. > thank you > Stevie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2004 Report Share Posted December 19, 2004 Welcome Stevie, I am just past the beginning of the process, working on my 10% too. > > Hi > > I am , but my friends call me Stevie. I am 61 years old and > I am going to have the surgery in Fremont CA just as soon as I lose > 10%. That's a total of 27 lbs. I have lost 7 so far. I am hoping to > lose the rest by the end of February or March. Meanwhile I am trying > to increase my exercise in preparation for the future. I will tell > y'all how I am doing every now and then. I am much encouraged after > reading some of your messages. > thank you > Stevie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2005 Report Share Posted June 2, 2005 Kurt, I know that you have gotten some replies from the group. Can you share some information about your sister-in-law? How was she diagnosed and what kind of symptoms are progressing rapidly? What kind of doctors is she seeing, and how much experience do they have with sarcoidosis, especially NS? I'm 56, I've have NS for 6 years. I do have some permanent deficits--hearing loss, peripheral neuropathy (numbness & pain in feet)--and some other chronic symptoms like fatigue & muscle weakness that I hope will improve on a new treatment regimen. Please give us as much info as you can, as soon as you can, including what medications she's been on/is on. Rose, moderator new to the group > Hello all, I am new to this group. My sister in law was just diagnosed > with Neurosarcoidosis, and I would like to know what we can do for > her. Apparently it is progressing quite quickly and I would like to > know what we can expect and what to do. > Im now researching this (how I came about you all). > Is there a support group here in South Carolina (Myrtle Beach area)? > Thank you and God Bless. > > Kurt > > > > > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > NS CHAT:- Has been cancelled for now. > > Message Archives:- > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant messengers. > http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
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