Guest guest Posted July 15, 2005 Report Share Posted July 15, 2005 What's even worse is when you are accused of being a Hypochodriac. That hurts more than the pain you mail feel already. Many people who do not suffer from such illnesses really have no understanding until they have been there themselves. Alane rheumatic Invisible Illness > Don't be fooled by the invisible > > For most of us, " You look so good, " is a compliment. But to a disabled > person with no visible signs of disability - no wheelchair, no > deformity -such a comment can be interpreted to mean, " I don't see > anything wrong with you. " > > Isn't that also a compliment? To a person whose life is severely > limited by extreme fatigue, dizziness, weakness, pain or cognitive > impairment, such well-meaning statements can add to the frustration of > coping with the disability. Educating family and friends - and > strangers - about an invisible medical condition is often an added > burden. > > To read the entire article click here: > http://www.thereporter.com/editorials/ci_2862629 > > > > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2005 Report Share Posted July 16, 2005 Well, this is strange! Clicked " reply " to digest and now the digest has disappeared---not in new mail, or in old mail, so can't find the original subject line!!! I know it was regarding invisible illness though. " They are probably just groping around trying to find some way of signaling to you that they are still there, and sending food is a common one. " And maybe, if there's family in the home, a way to help with your caretaking responsibilities? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2007 Report Share Posted September 17, 2007 i agree i have a heart condition which people can see the scares and i have a perment bluish tinge of my lips adn fingers they can see and people are always commenting my hands are cold and do it feel well. but i also have PPMS which will cause me to limp but on my good days i don't so people think i am faking the limp to get attention and i also suffer from ADHD/ bi-polar and that makes me want to do more and mind races and get the things done and i get mad at myself when i cannot or if i procrastinate. if i wore a brace then people would see that i had a back problem and if i were in my wheelchair permentaly and unable to walk even short distances then people would understand but they don't and i wouldn't do that is why i don't always use my w/c or my cane or even wear my back support and that is why i do over due it and push myself till i am close to the high pain level and breaking point. but is that of part of having a chronic illness where when my husband has a cold he enjoys being babied and fussed over? where me on the other hand i don't like it i get mad at myself having to get help from others and when i cannot do it myself and know the other day i could have or if someone without the illness would be able to do it or have the stenama to do it. later k Quote Link to comment Share on other sites More sharing options...
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