Re: Just more yakking from Reneness --read at your leisure, but know I don't yak much

[Guest guest]

, I love the idea of NS mythology! We already have you, the Gnome Lady, LlamaFairy, the Oyster Man, Elodia the Grits Goddess, and many more. Sounds like a good bedtime story in the making. I wonder if we could write a Round Robin story; one person starts it, the next adds to it, etc. Actually, it probably wouldn't be much of a bedtime story, unless you like to go to sleep with sarc monsters dancing in your dreams! But it would be a fun, creative outlet. Who's in? Rose

Just more yakking from Reneness --read at your leisure, but know I don't yak much

(SERIOUSLY DIVERGING HERE.)My theory: The larger and sicker we become, the more invisible we are to most people.....I tell you, once I was accepted as a Kelty I gained two sisters, three sisters-in-law (all as related to ) a Mom and Dad who have a model marriage and family, not to mention 19 nieces and nephews. At home I live with my very no-frills-absolutely-not-girly mother and my husband and son who have very little fashion sense. I tell you it was GREAT to have my Mom-in-Law across the hall for two days to give me advice about my hair, my make-up and my jewelry. (I know we sound much too jovial, but my in-laws had been in town for six weeks, most of the time at the hospital, with three of their kids bouncing from the Indy area to Fort Wayne so we were happy to finally visit all together.) If my mother-in-law hadn't been around, there were five other sisters-in-law (all girly-girls) to confer with. It was so nice to actually have someone LOOK AT ME when I asked "how does this look?" and then get kind and supportive alternatives if they were available (which shoes look better with this dress?) My own family with whom I live NEVER give positive feedback, and rarely even look when I ask for an opinion. It has been so hard to decorate this house -- we've lived here four years, and the only rooms that are not still white (I was so excited to get a house so I could get away from white apartment walls!) are my living room (in which installed built-in book shelves but has not installed the cabinet doors and the carpet is all ripped up and not replaced) other than that it's just my mother's room. She originally moved in with us because she had some kind of brain accident and was way out of it for four months before she moved in and just three months after, coincidentally -- at which time she decided she had been railroaded into living here to take care of me. When she moved in officially (when she gave up her apartment) she insisted on having the larger bedroom, so my son had to move and mom had to have her room painted powder blue with white accents.They say you either marry you mother or your father. Well, my first husband was a man who preferred the company of his drinking buddies to spending what little common time we had together as a family ( I taught English during the day and he tended bar at night. He hated the idea of his sons going to daycare, yet he did very little to help me build up sick days to take for my babies. ((I went to work two weeks after my first and three weeks after my second -- I frequently had to use sick days to take care of the kids when he pulled an all nighter, or when he just didn't come home at all.)) He also slept around, got so many DUI's that they took away his license for a year( (that was so much fun packing up the kids at 12 PM to pick up daddy)) Oh, hell. I really don't want to dredge up that brutal decade. (Much of his character was like my father, but my father was a much better provider and if he ever got a DUI it's news to me. As for staying out all night and having many different women -- all of his children were fully aware). I took me nine years of marriage to get away from my drunken womanizer. It took my mother twenty-five -- and she has lived alone ever since.After three years single, I married my present husband who has just toooooo much in common with my mom. It was great when it was just the two of us, and especially great when I was too sick to fully take care of my sons. He has been a great father, but we all have faults. Bossiness and grumpiness are two of the character traits my husband and my mother share. Imagine what it has been like living through those crossfires. Talk about hard headed. I am peace keeper over half of my good moments, and I just don't see that it's worth it, but just when I bring up to my mom that she should go for her own state of mine (to bring peace to both of them) then she becomes feeble and helpless and accuses us of wanting to throw her out. And guess where the two of them ALWAYS come when they have a beef with one another? ME (I feel like a dish network commercial). It is really stressful and a great strain on my marriage. As for my three siblings, all of whom live fifteen minutes away (you haven't heard about them because we are the antithesis of the Kelty clan) and all of whom have houses twice the size of mine (remember, I was the honors student that became a teacher -- all hail the non materialistic seventies. Too bad you can't eat memories)-- I have asked, and not ONE family has offered to take my mother in.Now is when I get back to perspective and say suck it up, Nee, grab a handful of my handmade purple bootstraps and stop wallowing in my own troubles. We all have our own battles to fight. It's funny that I worry more about my husband's comfort than my own (the poor guy is sooooo tired and then he has to come home from teaching and not only deal with a teenager but also deal with my mother -- on top of that he goes on house calls at least twice a week --he still wants to stay current as a chiropractor-- and did I mention it's the middle of the football season and he coaches freshman football?)I'm so glad you are all still here, and that this group, while members have come and gone (what happened to Kim in Kuwait and the woman in Maine -- I am ashamed to have forgotten her name -- whose husband only showed up twice a year and who was trying to raise some beautiful dogs ((she posted some of our earliest pictures)).I know what happened to Aisha (I'm still shedding a tear once in awhile because it's so rare I have the energy to post), to Shar (for those of you who joined us after she underwent this last struggle -- she is truly the bravest and perhaps the wisest (she was a psychologist) amongst us. Yet she was fiercely loyal and we used to have the most interesting spats from time to time.And Crystal. What had happened to your dearest moo. Two years ago when we had the first official Neurosarc get together, our pins were blessed by cow figures in honor of Crystal who had a real think for cows.Where ever you are, Aisha (forget not the Ishnee monster), Shar (Weller, weller, weller, Oy, Oy, Oy) and Crystal with your animated detail description of life in the waiting room... how I miss the gleesome threesome.Thanks to all you are still here, and around long enough to remember when I was in speech therapy and recall when my posts made almost no sense of all...Quint, Tracie, , ieBear, Elodia, Rose (I just know I'm going to forget someone I dearly love) Darlene, Debbie, Deborahangel, Shirley, (where did you go, you) See -- I knew I'd have a brain fart. Who's the wonderful laundry pal with eight kids and who brought one son and a fun husband to my house??? God I hate when I draw blanks.There's been very much going on with my body this past year -- some I've talked about some I haven't. I just couldn't see dropping bad news bombs when you all have so much to deal with. And I've been so cheered to become part of NS mythology, being the resident Boot Strap Fairy.That reminds me. The Indiana support group is having another conference this october --I'll post the details in case you didn't get them. I'm going to make bootstraps for all of us. Kay Pullen said this years' conference will cut down on the speakers so there will be more time to visit. just the thought of spending quality time with sarc friends will make the new news we are expecting all that more easy to take.Love you always with purple sparkles and bootstraps for all to flaunt proudly.Reneness~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

, I love the idea of NS mythology! We already have you, the Gnome Lady, LlamaFairy, the Oyster Man, Elodia the Grits Goddess, and many more. Sounds like a good bedtime story in the making. I wonder if we could write a Round Robin story; one person starts it, the next adds to it, etc. Actually, it probably wouldn't be much of a bedtime story, unless you like to go to sleep with sarc monsters dancing in your dreams! But it would be a fun, creative outlet. Who's in? Rose

Just more yakking from Reneness --read at your leisure, but know I don't yak much

(SERIOUSLY DIVERGING HERE.)My theory: The larger and sicker we become, the more invisible we are to most people.....I tell you, once I was accepted as a Kelty I gained two sisters, three sisters-in-law (all as related to ) a Mom and Dad who have a model marriage and family, not to mention 19 nieces and nephews. At home I live with my very no-frills-absolutely-not-girly mother and my husband and son who have very little fashion sense. I tell you it was GREAT to have my Mom-in-Law across the hall for two days to give me advice about my hair, my make-up and my jewelry. (I know we sound much too jovial, but my in-laws had been in town for six weeks, most of the time at the hospital, with three of their kids bouncing from the Indy area to Fort Wayne so we were happy to finally visit all together.) If my mother-in-law hadn't been around, there were five other sisters-in-law (all girly-girls) to confer with. It was so nice to actually have someone LOOK AT ME when I asked "how does this look?" and then get kind and supportive alternatives if they were available (which shoes look better with this dress?) My own family with whom I live NEVER give positive feedback, and rarely even look when I ask for an opinion. It has been so hard to decorate this house -- we've lived here four years, and the only rooms that are not still white (I was so excited to get a house so I could get away from white apartment walls!) are my living room (in which installed built-in book shelves but has not installed the cabinet doors and the carpet is all ripped up and not replaced) other than that it's just my mother's room. She originally moved in with us because she had some kind of brain accident and was way out of it for four months before she moved in and just three months after, coincidentally -- at which time she decided she had been railroaded into living here to take care of me. When she moved in officially (when she gave up her apartment) she insisted on having the larger bedroom, so my son had to move and mom had to have her room painted powder blue with white accents.They say you either marry you mother or your father. Well, my first husband was a man who preferred the company of his drinking buddies to spending what little common time we had together as a family ( I taught English during the day and he tended bar at night. He hated the idea of his sons going to daycare, yet he did very little to help me build up sick days to take for my babies. ((I went to work two weeks after my first and three weeks after my second -- I frequently had to use sick days to take care of the kids when he pulled an all nighter, or when he just didn't come home at all.)) He also slept around, got so many DUI's that they took away his license for a year( (that was so much fun packing up the kids at 12 PM to pick up daddy)) Oh, hell. I really don't want to dredge up that brutal decade. (Much of his character was like my father, but my father was a much better provider and if he ever got a DUI it's news to me. As for staying out all night and having many different women -- all of his children were fully aware). I took me nine years of marriage to get away from my drunken womanizer. It took my mother twenty-five -- and she has lived alone ever since.After three years single, I married my present husband who has just toooooo much in common with my mom. It was great when it was just the two of us, and especially great when I was too sick to fully take care of my sons. He has been a great father, but we all have faults. Bossiness and grumpiness are two of the character traits my husband and my mother share. Imagine what it has been like living through those crossfires. Talk about hard headed. I am peace keeper over half of my good moments, and I just don't see that it's worth it, but just when I bring up to my mom that she should go for her own state of mine (to bring peace to both of them) then she becomes feeble and helpless and accuses us of wanting to throw her out. And guess where the two of them ALWAYS come when they have a beef with one another? ME (I feel like a dish network commercial). It is really stressful and a great strain on my marriage. As for my three siblings, all of whom live fifteen minutes away (you haven't heard about them because we are the antithesis of the Kelty clan) and all of whom have houses twice the size of mine (remember, I was the honors student that became a teacher -- all hail the non materialistic seventies. Too bad you can't eat memories)-- I have asked, and not ONE family has offered to take my mother in.Now is when I get back to perspective and say suck it up, Nee, grab a handful of my handmade purple bootstraps and stop wallowing in my own troubles. We all have our own battles to fight. It's funny that I worry more about my husband's comfort than my own (the poor guy is sooooo tired and then he has to come home from teaching and not only deal with a teenager but also deal with my mother -- on top of that he goes on house calls at least twice a week --he still wants to stay current as a chiropractor-- and did I mention it's the middle of the football season and he coaches freshman football?)I'm so glad you are all still here, and that this group, while members have come and gone (what happened to Kim in Kuwait and the woman in Maine -- I am ashamed to have forgotten her name -- whose husband only showed up twice a year and who was trying to raise some beautiful dogs ((she posted some of our earliest pictures)).I know what happened to Aisha (I'm still shedding a tear once in awhile because it's so rare I have the energy to post), to Shar (for those of you who joined us after she underwent this last struggle -- she is truly the bravest and perhaps the wisest (she was a psychologist) amongst us. Yet she was fiercely loyal and we used to have the most interesting spats from time to time.And Crystal. What had happened to your dearest moo. Two years ago when we had the first official Neurosarc get together, our pins were blessed by cow figures in honor of Crystal who had a real think for cows.Where ever you are, Aisha (forget not the Ishnee monster), Shar (Weller, weller, weller, Oy, Oy, Oy) and Crystal with your animated detail description of life in the waiting room... how I miss the gleesome threesome.Thanks to all you are still here, and around long enough to remember when I was in speech therapy and recall when my posts made almost no sense of all...Quint, Tracie, , ieBear, Elodia, Rose (I just know I'm going to forget someone I dearly love) Darlene, Debbie, Deborahangel, Shirley, (where did you go, you) See -- I knew I'd have a brain fart. Who's the wonderful laundry pal with eight kids and who brought one son and a fun husband to my house??? God I hate when I draw blanks.There's been very much going on with my body this past year -- some I've talked about some I haven't. I just couldn't see dropping bad news bombs when you all have so much to deal with. And I've been so cheered to become part of NS mythology, being the resident Boot Strap Fairy.That reminds me. The Indiana support group is having another conference this october --I'll post the details in case you didn't get them. I'm going to make bootstraps for all of us. Kay Pullen said this years' conference will cut down on the speakers so there will be more time to visit. just the thought of spending quality time with sarc friends will make the new news we are expecting all that more easy to take.Love you always with purple sparkles and bootstraps for all to flaunt proudly.Reneness~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Hey...Princess might have a few words to add....lol My husband has also been referred to as being a troll. Oh, I think I could manage some kindof a rhyming two-stanza bit...at least for myself. ....... Now you've got my mind working.....I'll see what I can manage while I'm up in the wee hours tonite. S. ahhh...wait a minute ...my mind has been on numb lately....it may take longer than one night for me.....true cognitive failure the last two weeks.Rose wrote:

, I love the idea of NS mythology! We already have you, the Gnome Lady, LlamaFairy, the Oyster Man, Elodia the Grits Goddess, and many more. Sounds like a good bedtime story in the making. I wonder if we could write a Round Robin story; one person starts it, the next adds to it, etc. Actually, it probably wouldn't be much of a bedtime story, unless you like to go to sleep with sarc monsters dancing in your dreams! But it would be a fun, creative outlet. Who's in? Rose

Just more yakking from Reneness --read at your leisure, but know I don't yak much

(SERIOUSLY DIVERGING HERE.)My theory: The larger and sicker we become, the more invisible we are to most people.....I tell you, once I was accepted as a Kelty I gained two sisters, three sisters-in-law (all as related to ) a Mom and Dad who have a model marriage and family, not to mention 19 nieces and nephews. At home I live with my very no-frills-absolutely-not-girly mother and my husband and son who have very little fashion sense. I tell you it was GREAT to have my Mom-in-Law across the hall for two days to give me advice about my hair, my make-up and my jewelry. (I know we sound much too jovial, but my in-laws had been in town for six weeks, most of the time at the hospital, with three of their kids bouncing from the Indy area to Fort Wayne so we were happy to finally visit all together.) If my mother-in-law hadn't been around, there were five other sisters-in-law (all

girly-girls) to confer with. It was so nice to actually have someone LOOK AT ME when I asked "how does this look?" and then get kind and supportive alternatives if they were available (which shoes look better with this dress?) My own family with whom I live NEVER give positive feedback, and rarely even look when I ask for an opinion. It has been so hard to decorate this house -- we've lived here four years, and the only rooms that are not still white (I was so excited to get a house so I could get away from white apartment walls!) are my living room (in which installed built-in book shelves but has not installed the cabinet doors and the carpet is all ripped up and not replaced) other than that it's just my mother's room. She originally moved in with us because she had some kind of brain accident and was way out of it for four months before she moved in and just three months after, coincidentally -- at which time she decided she had been

railroaded into living here to take care of me. When she moved in officially (when she gave up her apartment) she insisted on having the larger bedroom, so my son had to move and mom had to have her room painted powder blue with white accents.They say you either marry you mother or your father. Well, my first husband was a man who preferred the company of his drinking buddies to spending what little common time we had together as a family ( I taught English during the day and he tended bar at night. He hated the idea of his sons going to daycare, yet he did very little to help me build up sick days to take for my babies. ((I went to work two weeks after my first and three weeks after my second -- I frequently had to use sick days to take care of the kids when he pulled an all nighter, or when he just didn't come home at all.)) He also slept around, got so many DUI's that they took away his license for a year( (that was so much fun packing up the kids at 12 PM to

pick up daddy)) Oh, hell. I really don't want to dredge up that brutal decade. (Much of his character was like my father, but my father was a much better provider and if he ever got a DUI it's news to me. As for staying out all night and having many different women -- all of his children were fully aware). I took me nine years of marriage to get away from my drunken womanizer. It took my mother twenty-five -- and she has lived alone ever since.After three years single, I married my present husband who has just toooooo much in common with my mom. It was great when it was just the two of us, and especially great when I was too sick to fully take care of my sons. He has been a great father, but we all have faults. Bossiness and grumpiness are two of the character traits my husband and my mother share. Imagine what it has been like living through those crossfires. Talk about hard headed. I am peace keeper over

half of my good moments, and I just don't see that it's worth it, but just when I bring up to my mom that she should go for her own state of mine (to bring peace to both of them) then she becomes feeble and helpless and accuses us of wanting to throw her out. And guess where the two of them ALWAYS come when they have a beef with one another? ME (I feel like a dish network commercial). It is really stressful and a great strain on my marriage. As for my three siblings, all of whom live fifteen minutes away (you haven't heard about them because we are the antithesis of the Kelty clan) and all of whom have houses twice the size of mine (remember, I was the honors student that became a teacher -- all hail the non materialistic seventies. Too bad you can't eat memories)-- I have asked, and not ONE family has offered to take my mother in.Now is when I get back to perspective and say suck it up, Nee, grab a handful of my handmade purple bootstraps and stop

wallowing in my own troubles. We all have our own battles to fight. It's funny that I worry more about my husband's comfort than my own (the poor guy is sooooo tired and then he has to come home from teaching and not only deal with a teenager but also deal with my mother -- on top of that he goes on house calls at least twice a week --he still wants to stay current as a chiropractor-- and did I mention it's the middle of the football season and he coaches freshman football?)I'm so glad you are all still here, and that this group, while members have come and gone (what happened to Kim in Kuwait and the woman in Maine -- I am ashamed to have forgotten her name -- whose husband only showed up twice a year and who was trying to raise some beautiful dogs ((she posted some of our earliest pictures)).I know what happened to Aisha (I'm still shedding a tear once in awhile because it's so rare I have the energy to post),

to Shar (for those of you who joined us after she underwent this last struggle -- she is truly the bravest and perhaps the wisest (she was a psychologist) amongst us. Yet she was fiercely loyal and we used to have the most interesting spats from time to time.And Crystal. What had happened to your dearest moo. Two years ago when we had the first official Neurosarc get together, our pins were blessed by cow figures in honor of Crystal who had a real think for cows.Where ever you are, Aisha (forget not the Ishnee monster), Shar (Weller, weller, weller, Oy, Oy, Oy) and Crystal with your animated detail description of life in the waiting room... how I miss the gleesome threesome.Thanks to all you are still here, and around long enough to remember when I was in speech therapy and recall when my posts made almost no sense of all...Quint, Tracie, , ieBear, Elodia, Rose (I just know I'm going to forget someone I dearly love)

Darlene, Debbie, Deborahangel, Shirley, (where did you go, you) See -- I knew I'd have a brain fart. Who's the wonderful laundry pal with eight kids and who brought one son and a fun husband to my house??? God I hate when I draw blanks.There's been very much going on with my body this past year -- some I've talked about some I haven't. I just couldn't see dropping bad news bombs when you all have so much to deal with. And I've been so cheered to become part of NS mythology, being the resident Boot Strap Fairy.That reminds me. The Indiana support group is having another conference this october --I'll post the details in case you didn't get them. I'm going to make bootstraps for all of us. Kay Pullen said this years' conference will cut down on the speakers so there will be more time to visit. just the thought of spending quality time with sarc friends will make the new news we are expecting all that more easy to take.Love

you always with purple sparkles and bootstraps for all to flaunt proudly.Reneness~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

, I love your posts and your stories. My mind is not too cohesive at the moment but I can certainly agree with your theory. I think the real me is also becoming more invisible to myself, too. I am also abit on the girly-fashion side and so miss getting all dressed up and made-up and to go out. My sisters-in-laws(7) always look to see what jewelry I have on. My own sister is not much like that. Even though I'm sick in bed 24/7 barely a month goes by without me ordering something from a catalog or else. Right now I am debating with myself over this pair of pink suede short boots...... Oh, who am I kidding?! I know I'll order them...lol. I have a purse exactly in the same color! lol My husband says that everything looks good. Hey purple is one of my winter/cool colors and I think I could use a boatload this week. bootstraps, that

is. In my mind I'll attach them to purple suede short boots .... When I'm in inflammation I have to have ice cuz my whole body is on fire. Maybe that's what causes spontaneous combustion, hey? lol Ever watch What Not to Wear?.... love and hugs S.rkelty wrote:

(SERIOUSLY DIVERGING HERE.)My theory: The larger and sicker we become, the more invisible we are to most people.....I tell you, once I was accepted as a Kelty I gained two sisters, three sisters-in-law (all as related to ) a Mom and Dad who have a model marriage and family, not to mention 19 nieces and nephews. At home I live with my very no-frills-absolutely-not-girly mother and my husband and son who have very little fashion sense. I tell you it was GREAT to have my Mom-in-Law across the hall for two days to give me advice about my hair, my make-up and my jewelry. (I know we sound much too jovial, but my in-laws had been in town for six weeks, most of the time at the hospital, with three of their kids bouncing from the Indy area to Fort Wayne so we were happy to finally visit all

together.) If my mother-in-law hadn't been around, there were five other sisters-in-law (all girly-girls) to confer with. It was so nice to actually have someone LOOK AT ME when I asked "how does this look?" and then get kind and supportive alternatives if they were available (which shoes look better with this dress?) My own family with whom I live NEVER give positive feedback, and rarely even look when I ask for an opinion. It has been so hard to decorate this house -- we've lived here four years, and the only rooms that are not still white (I was so excited to get a house so I could get away from white apartment walls!) are my living room (in which installed built-in book shelves but has not installed the cabinet doors and the carpet is all ripped up and not replaced) other than that it's just my mother's room. She originally moved in with us because she had some kind of brain accident and was way out of it for four months before she moved

in and just three months after, coincidentally -- at which time she decided she had been railroaded into living here to take care of me. When she moved in officially (when she gave up her apartment) she insisted on having the larger bedroom, so my son had to move and mom had to have her room painted powder blue with white accents.They say you either marry you mother or your father. Well, my first husband was a man who preferred the company of his drinking buddies to spending what little common time we had together as a family ( I taught English during the day and he tended bar at night. He hated the idea of his sons going to daycare, yet he did very little to help me build up sick days to take for my babies. ((I went to work two weeks after my first and three weeks after my second -- I frequently had to use sick days to take care of the kids when he pulled an all nighter, or when he just didn't come home at all.)) He also slept around, got so many DUI's that they

took away his license for a year( (that was so much fun packing up the kids at 12 PM to pick up daddy)) Oh, hell. I really don't want to dredge up that brutal decade. (Much of his character was like my father, but my father was a much better provider and if he ever got a DUI it's news to me. As for staying out all night and having many different women -- all of his children were fully aware). I took me nine years of marriage to get away from my drunken womanizer. It took my mother twenty-five -- and she has lived alone ever since.After three years single, I married my present husband who has just toooooo much in common with my mom. It was great when it was just the two of us, and especially great when I was too sick to fully take care of my sons. He has been a great father, but we all have faults. Bossiness and grumpiness are two of the character traits my husband and my mother share. Imagine what it has been like living

through those crossfires. Talk about hard headed. I am peace keeper over half of my good moments, and I just don't see that it's worth it, but just when I bring up to my mom that she should go for her own state of mine (to bring peace to both of them) then she becomes feeble and helpless and accuses us of wanting to throw her out. And guess where the two of them ALWAYS come when they have a beef with one another? ME (I feel like a dish network commercial). It is really stressful and a great strain on my marriage. As for my three siblings, all of whom live fifteen minutes away (you haven't heard about them because we are the antithesis of the Kelty clan) and all of whom have houses twice the size of mine (remember, I was the honors student that became a teacher -- all hail the non materialistic seventies. Too bad you can't eat memories)-- I have asked, and not ONE family has offered to take my mother in.Now is when I get back to perspective and

say suck it up, Nee, grab a handful of my handmade purple bootstraps and stop wallowing in my own troubles. We all have our own battles to fight. It's funny that I worry more about my husband's comfort than my own (the poor guy is sooooo tired and then he has to come home from teaching and not only deal with a teenager but also deal with my mother -- on top of that he goes on house calls at least twice a week --he still wants to stay current as a chiropractor-- and did I mention it's the middle of the football season and he coaches freshman football?)I'm so glad you are all still here, and that this group, while members have come and gone (what happened to Kim in Kuwait and the woman in Maine -- I am ashamed to have forgotten her name -- whose husband only showed up twice a year and who was trying to raise some beautiful dogs ((she posted some of our earliest pictures)).I know what happened to Aisha (I'm still

shedding a tear once in awhile because it's so rare I have the energy to post), to Shar (for those of you who joined us after she underwent this last struggle -- she is truly the bravest and perhaps the wisest (she was a psychologist) amongst us. Yet she was fiercely loyal and we used to have the most interesting spats from time to time.And Crystal. What had happened to your dearest moo. Two years ago when we had the first official Neurosarc get together, our pins were blessed by cow figures in honor of Crystal who had a real think for cows.Where ever you are, Aisha (forget not the Ishnee monster), Shar (Weller, weller, weller, Oy, Oy, Oy) and Crystal with your animated detail description of life in the waiting room... how I miss the gleesome threesome.Thanks to all you are still here, and around long enough to remember when I was in speech therapy and recall when my posts made almost no sense of all...Quint, Tracie, ,

ieBear, Elodia, Rose (I just know I'm going to forget someone I dearly love) Darlene, Debbie, Deborahangel, Shirley, (where did you go, you) See -- I knew I'd have a brain fart. Who's the wonderful laundry pal with eight kids and who brought one son and a fun husband to my house??? God I hate when I draw blanks.There's been very much going on with my body this past year -- some I've talked about some I haven't. I just couldn't see dropping bad news bombs when you all have so much to deal with. And I've been so cheered to become part of NS mythology, being the resident Boot Strap Fairy.That reminds me. The Indiana support group is having another conference this october --I'll post the details in case you didn't get them. I'm going to make bootstraps for all of us. Kay Pullen said this years' conference will cut down on the speakers so there will be more time to visit. just the thought of spending quality time with sarc friends

will make the new news we are expecting all that more easy to take.Love you always with purple sparkles and bootstraps for all to flaunt proudly.Reneness~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database