Guest guest Posted August 1, 2002 Report Share Posted August 1, 2002 Good question. I will ask tomorrow. Scary news Hello; Being T. has NF-2 and is pregnant, can they tell whether the fetus has NF-2? Thanks.. Russ __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2002 Report Share Posted August 2, 2002 I have been having evening sickness mostly. Thank goodness for evening sickness since I have to work up until the last days. Thanks for the tip on the soda crackers. Do you mean saltine crackers or does the box say soda crackers? When I stopped taking the Birth Control pill I put having a baby in Gods hands. I go to the doc for the first time today. I called my NS and his nurses all said congradulations. I sure hope they mean that. Do you notice your tumors growing more during your pregnancy? Re: Scary News I say Congrats to you and your hubby Tiff:) My kids are my everything:) To not have kids must be the hardest thing in the world, I think it may be worse then NF2. Hang in there it will be FINE:) Ive had two:) Are you getting sick yet?? The soda crackers do work keep them by your bed so you can grab one first thing:) I think its wonderful news!!~~Lowi:) Scary News > I took a pregnancy test over the weekend and it came back Posative! I am > happy and scared at the same time. I am not sure what to expect. I know my > tumors can grow much faster during the pregnancy. I was just looking for > any stories on the women with NF2 and pregnancy. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2002 Report Share Posted August 2, 2002 The doctor today just referred me to a baby doctor and said my thyroid was enlarged and my heart was racing. Great, what does that mean?? They ran blood test. What else can go wrong? Re: Scary News I mean like " saltine crackers " Like Premium or Krispy?? I really drank a lot of peppermint tea too. My NF wasnt diagnosed while i was having kids, one in '91 and one in '93 so i didnt have mris done. Whether they grew fast at that time?? I dont know. I was unaffected tho, except some tweaky balance stuff during my second pregnancy. I attributed it to the extra weight, but that might have been tumors. I had no problem taking care of the boys, I nursed them both for a year, a bit longer then that for the second one. I really recommend that:) Nothing like midnight feedings, nursing your baby when you are the only ones up in the house:) It will be fione~~Lowi:) Scary News > > > > I took a pregnancy test over the weekend and it came back Posative! I am > > happy and scared at the same time. I am not sure what to expect. I know > my > > tumors can grow much faster during the pregnancy. I was just looking for > > any stories on the women with NF2 and pregnancy. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2002 Report Share Posted August 2, 2002 The weight gain I am liking acutally. I thought I was going to feak out when I started gaining weight. I use to weigh my self every morning to make sure I was staying the same but I really enjoy eating foods that are not low fat or fat free. I hope I don't gain too much wieght but I am sure enjoying eating for two. Re: Scary News I nearly passed out when i had my first ob appointment:) My heart was racing so, things seemed surreal. Really!! Buttttttttttttt its outta your hands Tiff:) Your body goes into cruise control mode:) It knows what its doing thats why Drs wont mess with you after the first check up:) No more pelvics til the grand event:) Your heart is going off because of nerves. You will be fine!! Thyroid meds arent something that passes thru the placenta barrier (im pretty sure of this some do, some dont). It really could mean you have a slight infection somewhere. The thyroid is the main defense gland, bloodwork will show. Mainly, dont worry ok?? Eat for 2 too!! Because your body will not feed the baby first. Your body feeds you first!! Extra goes to babe, so eattttttttt and take the pre natal vitamins:) End of lecture:)~~Lowi whose thrilled for you but im soooooooooooooooooooooooooooooooooooooooooooooooothankful its not meeeeeeeeeeeeeeeeeeeeeeeeeee:) Scary News > > > > > > > I took a pregnancy test over the weekend and it came back Posative! I > am > > > happy and scared at the same time. I am not sure what to expect. I > know > > my > > > tumors can grow much faster during the pregnancy. I was just looking > for > > > any stories on the women with NF2 and pregnancy. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2002 Report Share Posted August 2, 2002 Thank you everyone for saying congradulations. I really appreciate that. I was thinking some would look down on me for possibly bringing a child into this world with the chance of having NF2. I am hoping that my reason for being alive is to bring this baby and maybe more into this world. Thanks Again, Tiffney Re: Scary News Tiffney CONGRATULATIONS!!. Be Happy. The miracle of being pregnant is a wonderful thing. Try not to let any negative thoughts spoil this special time in your lives. Medical science is moving along and I'm sure in the next decade big advances will have been made. Good luck to you and your husband. ine Scary News > I took a pregnancy test over the weekend and it came back Posative! I am > happy and scared at the same time. I am not sure what to expect. I know my > tumors can grow much faster during the pregnancy. I was just looking for > any stories on the women with NF2 and pregnancy. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2002 Report Share Posted August 5, 2002 CONGRADULATIONS TIFFNEY!!! I hope you have a healthy and stress-free pregnancy! Carol Scary News > I took a pregnancy test over the weekend and it came back Posative! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2002 Report Share Posted August 5, 2002 We are saying alot of prayers. -----Original Message-----From: CarolW Sent: Monday, August 05, 2002 9:49 AMTo: NF2_Crew Subject: Re: Scary News CONGRADULATIONS TIFFNEY!!! I hope you have a healthy and stress-free pregnancy! Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2002 Report Share Posted August 5, 2002 Hi Tiffney, Congratulations!!!! The best advice I could give you for the next nine monthes is forget about NF2. Enjoy it!! Stress can do more damage than the hormones of pregnancy (just my theory). Both of my children were born in the "wonderful state of ignorance". Looking back, I often selfishly dream that we had started having our children sooner and had a few more. Yesterday my oldest daughter, Hilarry, turned 9 and my other daughter, Hannah, is 5. Just relax and enjoy yourself. Many Blessings, ----- Original Message ----- From: Tiffney Compton I took a pregnancy test over the weekend and it came back Posative! I amhappy and scared at the same time. I am not sure what to expect. I know mytumors can grow much faster during the pregnancy. I was just looking forany stories on the women with NF2 and pregnancy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2002 Report Share Posted August 5, 2002 I am going to pray everyday for a heathly baby. A member of my family sent me this memo I have copied below. I am going to read it every time I start to worry. Do not worry about what will happen tomorrow. The same everlasting Father who cares for you today, will take care of you tomorrow, and every day. Either he will shield you from suffering, or he will give you the unfailing strength to bear it. Be at peace, then, and put aside all anxious thoughts and imaginations. ************** Never borrow from the future. If you live in dread of what may happen and it doesn't happen, you have worried in vain. Even if it does happen, you have to worry twice. So do not worry. ********* Though we travel the world over to find the beautiful, only a woman can carry it "within" her. True strength is very delicate. Enjoy this time, Tiff. Your baby is a beautiful gift. -----Original Message-----From: & Larry Orr Sent: Monday, August 05, 2002 12:15 PMTo: NF2_Crew Subject: Re: Scary News Hi Tiffney, Congratulations!!!! The best advice I could give you for the next nine monthes is forget about NF2. Enjoy it!! Stress can do more damage than the hormones of pregnancy (just my theory). Both of my children were born in the "wonderful state of ignorance". Looking back, I often selfishly dream that we had started having our children sooner and had a few more. Yesterday my oldest daughter, Hilarry, turned 9 and my other daughter, Hannah, is 5. Just relax and enjoy yourself. Many Blessings, ----- Original Message ----- From: Tiffney Compton I took a pregnancy test over the weekend and it came back Posative! I amhappy and scared at the same time. I am not sure what to expect. I know mytumors can grow much faster during the pregnancy. I was just looking forany stories on the women with NF2 and pregnancy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2002 Report Share Posted August 5, 2002 These are nice!!!! Carol Do not worry about what will happen tomorrow. The same everlasting Father who cares for you today, will take care of you tomorrow, and every day. Either he will shield you from suffering, or he will give you the unfailing strength to bear it. Be at peace, then, and put aside all anxious thoughts and imaginations. ************** Never borrow from the future. If you live in dread of what may happen and it doesn't happen, you have worried in vain. Even if it does happen, you have to worry twice. So do not worry. ********* Though we travel the world over to find the beautiful, only a woman can carry it "within" her. True strength is very delicate. Enjoy this time, Tiff. Your baby is a beautiful gift. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2002 Report Share Posted August 5, 2002 wow how life can change so fast. no experience here with pregnancy, its a no brainer to tell you to discuss this with your neuro dr too. dare I say congratulations. A new baby :-))))) be happy and cautious tiffany. And keep up posted, this could be learning experience for all women here. In NF2_Crew@y..., " Tiffney Compton " <tiffney@p...> wrote: > I took a pregnancy test over the weekend and it came back Posative! I am > happy and scared at the same time. I am not sure what to expect. I know my > tumors can grow much faster during the pregnancy. I was just looking for > any stories on the women with NF2 and pregnancy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2002 Report Share Posted August 5, 2002 that is great advice from someone who has been there. cindy In NF2_Crew@y..., " & Larry Orr " <larorr@w...> wrote: > Hi Tiffney, > > Congratulations!!!! The best advice I could give you for the next nine monthes is forget about NF2. Enjoy it!! Stress can do more damage than the hormones of pregnancy (just my theory). > > Both of my children were born in the " wonderful state of ignorance " . Looking back, I often selfishly dream that we had started having our children sooner and had a few more. > > Yesterday my oldest daughter, Hilarry, turned 9 and my other daughter, Hannah, is 5. > > Just relax and enjoy yourself. > > Many Blessings, > > > ----- Original Message ----- > From: Tiffney Compton > > > I took a pregnancy test over the weekend and it came back Posative! I am > happy and scared at the same time. I am not sure what to expect. I know my > tumors can grow much faster during the pregnancy. I was just looking for > any stories on the women with NF2 and pregnancy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2002 Report Share Posted August 5, 2002 don't quote me: but i think there is a test but its in the embroyonic stage for people who would consider abortion. there theres the test they can do on anyone with a blood draw, its very expensive and what do you do with the results?? bottom line is its 50/50 the baby can have it, will hope it doesnt but will get by if it does. In NF2_Crew@y..., " Tiffney Compton " <tiffney@p...> wrote: > Good question. I will ask tomorrow. > > Scary news > > > Hello; Being T. has NF-2 and is pregnant, can they > tell whether the fetus has NF-2? Thanks.. > Russ > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2002 Report Share Posted August 5, 2002 Tiffney CONGRATULATIONS!!. Be Happy. The miracle of being pregnant is a wonderful thing. Try not to let any negative thoughts spoil this special time in your lives. Medical science is moving along and I'm sure in the next decade big advances will have been made. Good luck to you and your husband. ine Scary News > I took a pregnancy test over the weekend and it came back Posative! I am > happy and scared at the same time. I am not sure what to expect. I know my > tumors can grow much faster during the pregnancy. I was just looking for > any stories on the women with NF2 and pregnancy. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2002 Report Share Posted August 5, 2002 THIS BEAUTIFUL CAROL THANK YOU FOR POSTING IT CATHERINE Re: Scary News These are nice!!!! Carol Do not worry about what will happen tomorrow. The same everlasting Father who cares for you today, will take care of you tomorrow, and every day. Either he will shield you from suffering, or he will give you the unfailing strength to bear it. Be at peace, then, and put aside all anxious thoughts and imaginations. ************** Never borrow from the future. If you live in dread of what may happen and it doesn't happen, you have worried in vain. Even if it does happen, you have to worry twice. So do not worry. ********* Though we travel the world over to find the beautiful, only a woman can carry it "within" her. True strength is very delicate. Enjoy this time, Tiff. Your baby is a beautiful gift. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2002 Report Share Posted August 5, 2002 I say Congrats to you and your hubby Tiff:) My kids are my everything:) To not have kids must be the hardest thing in the world, I think it may be worse then NF2. Hang in there it will be FINE:) Ive had two:) Are you getting sick yet?? The soda crackers do work keep them by your bed so you can grab one first thing:) I think its wonderful news!!~~Lowi:) Scary News > I took a pregnancy test over the weekend and it came back Posative! I am > happy and scared at the same time. I am not sure what to expect. I know my > tumors can grow much faster during the pregnancy. I was just looking for > any stories on the women with NF2 and pregnancy. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2002 Report Share Posted August 5, 2002 I want a baby :-( Lori Phibbs wrote: > I say Congrats to you and your hubby Tiff:) My kids are my everything:) To > not have kids must be the hardest thing in the world, I think it may be > worse then NF2. Hang in there it will be FINE:) Ive had two:) Are you > getting sick yet?? The soda crackers do work keep them by your bed so you > can grab one first thing:) I think its wonderful news!!~~Lowi:) > Scary News > > > I took a pregnancy test over the weekend and it came back Posative! I am > > happy and scared at the same time. I am not sure what to expect. I know > my > > tumors can grow much faster during the pregnancy. I was just looking for > > any stories on the women with NF2 and pregnancy. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2002 Report Share Posted August 5, 2002 I didn't post them, Tiffney did. She deserves the credit for beautiful words! Carol Re: Scary News THIS BEAUTIFUL CAROL THANK YOU FOR POSTING IT CATHERINE Do not worry about what will happen tomorrow. The same everlasting Father who cares for you today, will take care of you tomorrow, and every day. Either he will shield you from suffering, or he will give you the unfailing strength to bear it. Be at peace, then, and put aside all anxious thoughts and imaginations. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2002 Report Share Posted August 6, 2002 Congradulations from me too . I did not know about my NF2 when I had Lee, so I didn't have your added worries. This was 16 years ago and I am still kicking though! ) And I am like Lowi, Lee is precious to me. I wouldn't give anything in the World for him. Hope you have a rather SAFE pregnancy! Donna from Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2002 Report Share Posted August 6, 2002 From: wrote: I want a baby :-( wrote: Sorry , I hear your pain. ((((((((big hugs)))))))))))))))))))) Love & blessings, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2002 Report Share Posted August 6, 2002 You know to beat a horse, but to settle your fears Tiff. There has been advances to surgery and radiation that are nothing short of amazing. The treatments for NF2 are still harsh yes, BUT we are living longer and healthier lives. I think before too long medical advances will be able to make for an effective treatment and eventually a cure. NF2 will be a thing of the past like many old diseases. Your child only has a 50% chance of inheriting this, if he/she wins the genetic pool and is a carrier of this, Im know they will be able to benefit and it will be a great thing to see:)~~Lowi Re: Scary News Congradulations from me too . I did not know about my NF2 when I had Lee, so I didn't have your added worries. This was 16 years ago and I am still kicking though! ) And I am like Lowi, Lee is precious to me. I wouldn't give anything in the World for him.Hope you have a rather SAFE pregnancy!Donna from Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2002 Report Share Posted August 6, 2002 I mean like " saltine crackers " Like Premium or Krispy?? I really drank a lot of peppermint tea too. My NF wasnt diagnosed while i was having kids, one in '91 and one in '93 so i didnt have mris done. Whether they grew fast at that time?? I dont know. I was unaffected tho, except some tweaky balance stuff during my second pregnancy. I attributed it to the extra weight, but that might have been tumors. I had no problem taking care of the boys, I nursed them both for a year, a bit longer then that for the second one. I really recommend that:) Nothing like midnight feedings, nursing your baby when you are the only ones up in the house:) It will be fione~~Lowi:) Scary News > > > > I took a pregnancy test over the weekend and it came back Posative! I am > > happy and scared at the same time. I am not sure what to expect. I know > my > > tumors can grow much faster during the pregnancy. I was just looking for > > any stories on the women with NF2 and pregnancy. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2002 Report Share Posted August 6, 2002 Just had my son last year and I had hyperthyroid the whole pg. He had no effect from the meds. Any??? email me Jens Scary News > > > > > > > I took a pregnancy test over the weekend and it came back Posative! I > am > > > happy and scared at the same time. I am not sure what to expect. I > know > > my > > > tumors can grow much faster during the pregnancy. I was just looking > for > > > any stories on the women with NF2 and pregnancy. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2002 Report Share Posted August 6, 2002 This is exactly right, Lowi!! You will love your kids and they will love you just as much. NF2 or no NF2. My congrat Tiff and wishing you all the best!! Re: Scary News > I say Congrats to you and your hubby Tiff:) My kids are my everything:) To > not have kids must be the hardest thing in the world, I think it may be > worse then NF2. Hang in there it will be FINE:) Ive had two:) Are you > getting sick yet?? The soda crackers do work keep them by your bed so you > can grab one first thing:) I think its wonderful news!!~~Lowi:) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2002 Report Share Posted August 6, 2002 I nearly passed out when i had my first ob appointment:) My heart was racing so, things seemed surreal. Really!! Buttttttttttttt its outta your hands Tiff:) Your body goes into cruise control mode:) It knows what its doing thats why Drs wont mess with you after the first check up:) No more pelvics til the grand event:) Your heart is going off because of nerves. You will be fine!! Thyroid meds arent something that passes thru the placenta barrier (im pretty sure of this some do, some dont). It really could mean you have a slight infection somewhere. The thyroid is the main defense gland, bloodwork will show. Mainly, dont worry ok?? Eat for 2 too!! Because your body will not feed the baby first. Your body feeds you first!! Extra goes to babe, so eattttttttt and take the pre natal vitamins:) End of lecture:)~~Lowi whose thrilled for you but im soooooooooooooooooooooooooooooooooooooooooooooooothankful its not meeeeeeeeeeeeeeeeeeeeeeeeeee:) Scary News > > > > > > > I took a pregnancy test over the weekend and it came back Posative! I > am > > > happy and scared at the same time. I am not sure what to expect. I > know > > my > > > tumors can grow much faster during the pregnancy. I was just looking > for > > > any stories on the women with NF2 and pregnancy. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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