we're back.....from MAW trip

[Guest guest]

Bethany,

So glad you and yours had a wonderful time. Our 's

wish is the same and we are hoping to go the week of Christmas! If you have any other little tidbits to share please email me.

Horsley

leehorsley@...

[Guest guest]

what a wonderful make-a-wish trip! we went to give kids the world

and all the disney/universal/sea world parks. what fun!

they treated us so wonderfully....we were definitely spoiled! anna

grace loved the barney show at universal, feeding the dolphins at sea

world, and all of the kiddie rides at disney.

all of the parks bend over backwards for wish children....and i can't

say enough about give kids the world (it is a resort in itself)....so

those of you who have upcoming disney trips be prepared for a great

vacation.

please feel free to email with any questions.

bethany

mom to brennan 5, palmer & anna grace (leighs) 2 1/2

[Guest guest]

Bethany,

So glad you had a great experinece. Disney is also very accomodating even

without the make a wish!... We got a handicapped pass for party of 8.. for

my son wiht autism as he cant' wait in lines.. they were all so great!.. well

he did have to wait until I figured out how to get into the exits.. but did

not have to make him wait in a line to find out.. so happy that your make a

wish came true for you..

Kathy

[Guest guest]

I do have one question

our neurologists office called today as they were filling out the medical papers to say he was well enough to go...I had a question about GTKTWV...do they have any medical equipment there? only sometimes needs to take a breathing treatment...I don't wanna lug it there b/c it is likely we wont use it at all, but I wondered if they had one there we could use if the need arises...i am assuming once we get our packet it will have more info or I can call them directly, but I thought I would go ahead and ask...

deb

[Guest guest]

I told the neuro but she didn't think she needed to check it...i will talk to our wish-granters when they call again...

deb

[Guest guest]

Deb,

You need to let your MAW team know about the medical needs. They will

then have the equipment available for you. At least that's the way it

worked with us.

Sue & Jack-worn out parents to the greatest kids on earth in Las Vegas, NV-

12 & 10-Both w/Leigh's Disease (?), MR (mild), g-tube,

w/fundo, larynotracheomalacia, trach, vent 24/7. Visit us!

http://u2.lvcm.com/jscb

> I do have one question

>

> our neurologists office called today as they were filling out the medical

> papers to say he was well enough to go...I had a question about

GTKTWV...do

> they have any medical equipment there? only sometimes needs to

take a

> breathing treatment...I don't wanna lug it there b/c it is likely we wont

use

> it at all, but I wondered if they had one there we could use if the need

> arises...i am assuming once we get our packet it will have more info or I

can

> call them directly, but I thought I would go ahead and ask...

>

> deb

>

[Guest guest]

Bethany, Glad you had a great trip! I am interested in hearing more abput Grace, and how she and Russ might be similar - haven't found many like him! I don't want to tie up the board though, could you email me at batt504@...? Kim

we're back.....from MAW trip

what a wonderful make-a-wish trip! we went to give kids the world and all the disney/universal/sea world parks. what fun!they treated us so wonderfully....we were definitely spoiled! anna grace loved the barney show at universal, feeding the dolphins at sea world, and all of the kiddie rides at disney.all of the parks bend over backwards for wish children....and i can't say enough about give kids the world (it is a resort in itself)....so those of you who have upcoming disney trips be prepared for a great vacation.please feel free to email with any questions.bethanymom to brennan 5, palmer & anna grace (leighs) 2 1/2Please contact mito-owner with any problems or questions.

[Guest guest]

Bethany, Glad you had a great trip! I am interested in hearing more abput Grace, and how she and Russ might be similar - haven't found many like him! I don't want to tie up the board though, could you email me at batt504@...? Kim

we're back.....from MAW trip

what a wonderful make-a-wish trip! we went to give kids the world and all the disney/universal/sea world parks. what fun!they treated us so wonderfully....we were definitely spoiled! anna grace loved the barney show at universal, feeding the dolphins at sea world, and all of the kiddie rides at disney.all of the parks bend over backwards for wish children....and i can't say enough about give kids the world (it is a resort in itself)....so those of you who have upcoming disney trips be prepared for a great vacation.please feel free to email with any questions.bethanymom to brennan 5, palmer & anna grace (leighs) 2 1/2Please contact mito-owner with any problems or questions.