need info on kinking and pain

[Guest guest]

Hi all,

I have not posted in a long time but I do manage to check in every so

often. I have pain daily, alot of neuro problems, and I am still

trying to keep working. So as you can see there are times that I just

can't get things done that I would like to do.

I need to find out how many Chiarians have had the decompression and

have a kinking brain stem. I also need to know if the doctor said

that the kinking was due to scar tissue and if they felt it was common

in this type of surgery? Also if you have headaches with it and any

type of neuro problems. Please, any and all information will be

appreciated.

I wish everyone a Wonderful New Year filled with Happiness and No

pain!!!

Debi

ACM, hydrocephalus, PTC, NMH, VP shunt, 5 shunt revisions, 2

decompressions (1992 & 2000 w/tonsil resection), brain stem kinking