Guest guest Posted December 3, 2001 Report Share Posted December 3, 2001 BRAVO!!!! My sentiments are the same! You are all very special people!! We appreciate all you do and give up - to be available to help others. So far I have been on the receiving end of most of this - and I am forever grateful. I have had a few chances to talk with people who are newer thanI to this. It feels good to be able to help in some small way. I look forward to being able to help others too. I am feeling that God puts us in certain sitautions for a reason. If I can help someone else - then it somehow makes sense of the suffering I have endured. I for one SALUTE you all! Love from a grateful heart, Karyn Karyn, ACM I, no syrinx, basilar invagination, surgery soon - no date yet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2001 Report Share Posted December 4, 2001 In a message dated 12/4/01 4:24:00 AM Pacific Standard Time, grigg@... writes: > Energizer bunny NOW that is too cute !!!! And I second that motion !!!!!! Merry christmas Chip, thanks for everything !!!! And you too kathleen !!! And sarah in paradice is awesome too !!! heck tons of helpers out here I love !!!!! Thanks and hugs to all YOU have been life savers !!!!! You are special people and have been sent to us to help us all through this horrible disorder... I am thrilled not horrible for all that has it, but for those that arn't doing well, we needed you !!!!AND YOU ARE HERE !!!!!!! THANK YOU !!!!!!! GINGER IN LAS VEGAS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2001 Report Share Posted December 4, 2001 I also agree with Chip, although seldom said you guys are a great bunch, this means you to Chip. You all go above and beyond your call of duty, everyday, seven days a week. I've seen many times when have taken the heat from members, myself included, and remained cool and collective while in the line of fire. You have never failed to answer our questions, questions that you've probably answered a thousand times. You all are greatly appreciated, sometimes it may not seem like you are, but believe me we do appreciate you. I think taking all the heat from others is part of being a GREAT leader. Your patients is amazing, and your knowledge on chiari could out shine many professionals. I'm truly happy that I've gotten to know each of you, maybe one day all of us will meet in person. Keep up the good work!!!!!!!!!!!!! (you really should ask to go on a payroll) [;-) Hugs, Sharon Benedict Baltimore, MD. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2001 Report Share Posted December 4, 2001 Chip, I more than second that!!! These guys (including you of course ) have been fantastic. You would think they are on payroll with their dedication and commitment and care. I am not happy I have Chiari but through Chiari, I have found this wonderful group with its wonderful managers and for that, I AM VERY HAPPY!! Thank you guys with all my heart!! Leanda Very Chiari Related- > To those who often work behind the scenes- Kathleen, Bernie, Haydee, and > those " You know who you are " members who've contributed may useful years / > hours of guidance and information to the members of the WACMA family. > > You're very much appreciated. Your hours and hours of answering e-mails, > making long distance phone calls (at your own personal expense) and > dedication to helping other " Chiarians " across the globe impresses me every > day. I know what you do is often thankless work, and sometimes you even > submit to taking a certain amount of heat because of the positions you hold > at WACMA. I'm forever thankful for each for each of you. I wish you received > the recognition you deserve, yet I know you're not here because you want any > recognition or any sort of personal gain. > > Thank you. You've improved peoples lives and made a difference. You didn't > stop at " If I can just help one... " > You've helped hundreds and thousands. I appreciate you more than I can say, > and the feedback I get from others echoes the same sentiment. You're very > much appreciated. > > Your commitment to helping your fellow chiarians has made many peoples > lives better. > > > Chip > 5+ years post-op and doing great ! > http://www.pressenter.com/~chip/chiari.htm > > > > > > Help section: http://www.yahoogroups.com/help/ > > NOTE: NCC refers to posts with No Chiari Content > > To Unsubscribe Yourself: chiari-unsubscribeYahoogroups > > WACMA Home: www.pressenter.com/~wacma > > WACMA List: www.eGroups.com/group/chiari > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2001 Report Share Posted December 4, 2001 Chip wrote: > To those who often work behind the scenes- Kathleen, Bernie, Haydee, and > those " You know who you are " members who've contributed may useful years / > hours of guidance and information to the members of the WACMA family. > I think everyone would agree that we wouldn't be here without Chip :-) Chip has always inspired me to keep going, he is kind of like the Energizer bunny. lol Thanks to all of the WACMA members that help make this a great support group. Kathleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2001 Report Share Posted December 4, 2001 Hi! I agree whole heartedly with Chip.Thank you for sharing your lives with me it has made me a better person! Much Love to all! Lee --- Chip wrote: > To those who often work behind the scenes- Kathleen, > Bernie, Haydee, and > those " You know who you are " members who've > contributed may useful years / > hours of guidance and information to the members of > the WACMA family. > > You're very much appreciated. Your hours and hours > of answering e-mails, > making long distance phone calls (at your own > personal expense) and > dedication to helping other " Chiarians " across the > globe impresses me every > day. I know what you do is often thankless work, and > sometimes you even > submit to taking a certain amount of heat because of > the positions you hold > at WACMA. I'm forever thankful for each for each of > you. I wish you received > the recognition you deserve, yet I know you're not > here because you want any > recognition or any sort of personal gain. > > Thank you. You've improved peoples lives and made a > difference. You didn't > stop at " If I can just help one... " > You've helped hundreds and thousands. I appreciate > you more than I can say, > and the feedback I get from others echoes the same > sentiment. You're very > much appreciated. > > Your commitment to helping your fellow chiarians has > made many peoples > lives better. > > > Chip > 5+ years post-op and doing great ! > http://www.pressenter.com/~chip/chiari.htm > > > > > > Help section: http://www.yahoogroups.com/help/ > > NOTE: NCC refers to posts with No Chiari Content > > To Unsubscribe Yourself: > chiari-unsubscribeYahoogroups > > WACMA Home: www.pressenter.com/~wacma > > WACMA List: www.eGroups.com/group/chiari > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2001 Report Share Posted December 4, 2001 Dear Chip, I cannot even begin to tell you personally how Grateful I am for all the help Ive personally had on here since 97, just when I feel at my lowest you all have made me feel comfort and eased the fear and pain. Just when I think my body will not make it, you all make me feel that it will make it and will survive such illness that I never could have dreamed up in my wildest dreams. Just when I think the sun will never shine again you all put some of your sunshine aside and send it to me as if Gods Ray of Light was mailed right to my windows. I can only hope that anyone who enters the WACMA world Learns the meaning of Friendship, Compasionship,Empathy and Hope and Survival, those are life lessons that anyone should learn but we are fortunate enough to have this Group to Gain those Wisdom's. Thankyou ALL (members included) for keeping WACMA alive and here to serve others and Give them Information and Others who have a True Understanding of the Life we all live each in our own way. Love and Peace always Dahli Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2001 Report Share Posted December 4, 2001 Like everyone has said ....my life is different now, I have Chiari and I have y'all ......what a wonderful combination. There are no words to describe the way I feel having you guys out there .........the help has been absolutely amazing and has made my journey fascinating. Thank you Chip, Kathleen, , Faith, , Tina, Joanna, Mike, Karyn, Dhali and all of you for your input and you kindness .....this group truly makes a difference! Hugs Alba in Dallas Re: Very Chiari Related- Dear Chip, I cannot even begin to tell you personally how Grateful I am for all the help Ive personally had on here since 97, just when I feel at my lowest you all have made me feel comfort and eased the fear and pain. Just when I think my body will not make it, you all make me feel that it will make it and will survive such illness that I never could have dreamed up in my wildest dreams. Just when I think the sun will never shine again you all put some of your sunshine aside and send it to me as if Gods Ray of Light was mailed right to my windows. I can only hope that anyone who enters the WACMA world Learns the meaning of Friendship, Compasionship,Empathy and Hope and Survival, those are life lessons that anyone should learn but we are fortunate enough to have this Group to Gain those Wisdom's. Thankyou ALL (members included) for keeping WACMA alive and here to serve others and Give them Information and Others who have a True Understanding of the Life we all live each in our own way. Love and Peace always Dahli Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2001 Report Share Posted December 4, 2001 We love you too Alba! You are a true life inspiration!! Love, karyn Karyn, ACM I, no syrinx, basilar invagination, surgery soon - no date yet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2001 Report Share Posted December 4, 2001 I know Chip wants to drop this, but I just got to this thread and I just had to say my piece...........I'm alone.....I'm sick.....and both my kids are sick.....but I'm truly never alone because I know you are all out there waiting with answers and comfort......I've been here for a year and a half now....and don't know where I'd be without you. Everyone has been so kind and I really have a special friend in in Paradise who has taken us under her wing. I love you all. Thank you so much. Much love, Traci, ACM1, no surgery, hypothyroidism mom of Andre (15 yrs.), ACM1, no surgery, cyst on brainstem, scoliosis and Zoe (9 yrs.), Thalassemia and Familial Mediterranean Fever Only lots of love and laughter keep us going! _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
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