Re: need info on kinking and pain

[Guest guest]

Me... I have a kinked brain stem. No other information, however.

Lillian Santana

JEHOVAH-JIREH FARM

Seguin, Texas

Proud backyard breeder of cockers, chihuahuas,

and Great Pyrenees dogs, and Barbados Sheep

Lotsafur and lotsaluv

ACM 1, 10mm, decompressed 5-2-01

Too good for my own good!

[Guest guest]

My second decompression was due to scar tissue. I had all of my

symptoms come back and then some. There were no pulsations of CSF

visible when they opened me up. Hmmm.... My brain activity doubled

once the decompression was enlarged.

Take care-

in Texas

> Hi all,

>

> I have not posted in a long time but I do manage to check in every

so

> often. I have pain daily, alot of neuro problems, and I am still

> trying to keep working. So as you can see there are times that I

just

> can't get things done that I would like to do.

>

> I need to find out how many Chiarians have had the decompression

and

> have a kinking brain stem. I also need to know if the doctor said

> that the kinking was due to scar tissue and if they felt it was

common

> in this type of surgery? Also if you have headaches with it and

any

> type of neuro problems. Please, any and all information will be

> appreciated.

>

> I wish everyone a Wonderful New Year filled with Happiness and No

> pain!!!

>

> Debi

> ACM, hydrocephalus, PTC, NMH, VP shunt, 5 shunt revisions, 2

> decompressions (1992 & 2000 w/tonsil resection), brain stem kinking