Guest guest Posted August 15, 2009 Report Share Posted August 15, 2009 Hi Alana: I think I already replied to this topic about how to use IE with medical restrictions, but since you mentioned gluten intolerance, I want to respond to your post. I have diagnosed celiac disease (gluten intolerance) and 6 other delayed reaction food allergies. I completely abstained from gluten after reading an article about CD, before I decided I wanted a medical diagnosis. However, I later learned that the 'gold standard' blood test plus biopsy depend on continuing to eat gluten enough that the intestinal villae are damaged (which shows in the biopsy) or the gluten antibodies leak into the blood (evidenced by IgG mediated antibodies to gluten in a blood test). Because I did NOT want to go back to eating gluten, but I still wanted a diagnostic test, I ordered from Enterolab (http://www.enterolab.com) a set of tests based on a stool sample plus a gene (mouth swab) tests to diagnose celiac disease and dairy intolerance. There are many things which can cause IBS (not a disease, but a label) kinds of symptoms, such as Celiac Disease, food allergies, bacterial infections, candida and parasites. I have experienced all those things. Only by continuing to test me (by blood or stool tests) has my doctor been able to accurate isolate and treat the cause of my symptoms. I'm glad I didn't just experiment with cutting out foods here and there. Even though I felt a little better after cutting out gluten, I still had lingering symptoms. The Enterolab test diagnosed both gluten intolerance (plus the celiac gene) AND dairy (casein) allergy. Casein is the milk protein to which people have delayed reaction food allergies. Lactose is the milk sugar to which people have intolerance because their bodies don't produce 'lactase', the enzyme which digests milk sugar. Most celiacs have damaged intestines which don't manufacture lactase. So they are initially lactose intolerant until their intestinal villae naturally heal after abstaining from gluten. Many people try restricting foods that give them symptoms. However, unless they are obsessively careful, they can overlook problematic foods which appear as ingredients in other common foods. For example, wheat, eggs, dairy, soy, cane sugar, vanilla and nutmeg are common ingredients in many foods. I have diagnosed allergies to all those ingredients. So I must obsessively read labels or accidentally eat one of my allergens which causes painful gut symptoms for at least a week. Nevertheless, I don't feel deprived when I abstain from my diagnosed food allergens. If I did not have diagnoses and only suspected that a food caused problems, I might continue to doubt my decision to abstain, decide to eat the food and blame my reaction on something else. However medical diagnoses plus my painful reaction symptoms convince me that causing myself pain by eating a food to which I have a diagnosed allergy creates more 'deprivation' (of physical comfort) than not eating the food. Besides I have sooooo many more food choices and tasty substitutes (like gluten free breads, dairy free milks and butter spreads, noncane sugar sweetners, etc.). I believe an important aspect of IE is listening to how my body reacts to what I eat. I prefer to choose foods which feel good in my body, rather than foods which just taste good in my mouth, but cause painful reactions. Medical diagnoses and restrictions just give me more information about why certain foods don't feel good in my body. SUE > > > > > > Hi everyone - It's hard to say how long I've been doing IE (or the same philosophy by other names). Probably a few years, although much of that time has been in the chasm between stopping the dieting vs. really listening to my body, embracing food, and accepting myself. Sort of a " well, I'm not dieting now but no promises " place. Last spring, I was in a really good place, working with an IE nutritionist, therapist, and a support group and felt really strong. Then the group ended, the therapist went on leave, and I gradually started sliding back towards the diet mentality. So I'm renewing my commitment - re-reading the book, getting back with the nutritionist, my therapist is returning to work soon, and now I'm really happy to have found this group. > > > > > > A big part of my struggle has been embracing IE while dealing with diabetes, which is not as well-controlled as I like. I often find myself torn between the IE principles and all of the traditional thinking about diabetes - fewer carbs, weight loss being a priority, etc. My naturopath and MD are not bad - certainly better than others I've had - but not totally on board with IE. I often hear my naturopaths (albeit gentle) warnings to cut out grains while I'm making food choices, and it is hard not to get caught up in either complying or rebelling. > > > > > > Thanks, > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2009 Report Share Posted August 15, 2009 That is very interest. Although for myself as I noticed this change since mid-June when roommate of mine and I decide to have a dinner together with other company. I noticed I end up very sick unusual before and decide do same thing next time then find out end up sick very bad with upset stomach worse at night time. Now my doctor want to be sure there nothing serious that may lead to surgey so this coming Monday I will be heading over for X-Ray my stomach, gallblader, appendix, and others to be double check. Eliza > > > > > > Hi everyone - It's hard to say how long I've been doing IE (or the same philosophy by other names). Probably a few years, although much of that time has been in the chasm between stopping the dieting vs. really listening to my body, embracing food, and accepting myself. Sort of a " well, I'm not dieting now but no promises " place. Last spring, I was in a really good place, working with an IE nutritionist, therapist, and a support group and felt really strong. Then the group ended, the therapist went on leave, and I gradually started sliding back towards the diet mentality. So I'm renewing my commitment - re-reading the book, getting back with the nutritionist, my therapist is returning to work soon, and now I'm really happy to have found this group. > > > > > > A big part of my struggle has been embracing IE while dealing with diabetes, which is not as well-controlled as I like. I often find myself torn between the IE principles and all of the traditional thinking about diabetes - fewer carbs, weight loss being a priority, etc. My naturopath and MD are not bad - certainly better than others I've had - but not totally on board with IE. I often hear my naturopaths (albeit gentle) warnings to cut out grains while I'm making food choices, and it is hard not to get caught up in either complying or rebelling. > > > > > > Thanks, > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2009 Report Share Posted August 16, 2009 Wow. Great post. BTW, this might be just a shot in the dark, but...the docs. thought my dd was lactose intolerant...turned out it was actually caseine, a milk PROTEIN, not sugar. Don't know > > > > > > Hi everyone - It's hard to say how long I've been doing IE (or the same philosophy by other names). Probably a few years, although much of that time has been in the chasm between stopping the dieting vs. really listening to my body, embracing food, and accepting myself. Sort of a " well, I'm not dieting now but no promises " place. Last spring, I was in a really good place, working with an IE nutritionist, therapist, and a support group and felt really strong. Then the group ended, the therapist went on leave, and I gradually started sliding back towards the diet mentality. So I'm renewing my commitment - re-reading the book, getting back with the nutritionist, my therapist is returning to work soon, and now I'm really happy to have found this group. > > > > > > A big part of my struggle has been embracing IE while dealing with diabetes, which is not as well-controlled as I like. I often find myself torn between the IE principles and all of the traditional thinking about diabetes - fewer carbs, weight loss being a priority, etc. My naturopath and MD are not bad - certainly better than others I've had - but not totally on board with IE. I often hear my naturopaths (albeit gentle) warnings to cut out grains while I'm making food choices, and it is hard not to get caught up in either complying or rebelling. > > > > > > Thanks, > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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