Re: Rollercoasters and Decompression

[Guest guest]

Sara and roller coaster lovers,

I too love roller coasters. I know from experience that I pay for them

when I do them. If you love them then do them just plan on paying for them

at a later time. Although contrary to what doctors may say and others say

use caution. It is true use caution, but if you love roller coasters like

I do there is no caution! In short it is best to not do them but then

again, we only live once may as well enjoy what we enjoy for a short amount

of time because we are in pain so much it does not seem to matter sometimes.

So do as I say and not as I do. Don't do roller coasters! And if you say to

heck with what you say " I'm doing it anyway! " I say " YOU GO GIRL! "

Amber in Tampa, FL

ACM I 10mm

(Does roller coasters but shouldn't!)

Rollercoasters and Decompression

>

>

> Ok.Here's a good ques for those decompressed.what do you think you would

do

> about rollercoasters?I want to go to Disneyland w/my husband when he gets

> back,but I am unsure about the rides.I LOVE rollercoasters and I want to

> ride but I am open to suggestions(maybe);)any suggestions send to

> zipperwoman@... Thanks & Hugs:)Sara

>

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[Guest guest]

I don't think rollers coasters or even kiddie rides that just " shake " you

are a good idea.......why would you want to risk your neck?

I just sit here and shake my head......well, not literally since my neck is

still inmovilized from surgery......

Can you explain why would you risk going back to square one?

Alba

Rollercoasters and Decompression

Ok.Here's a good ques for those decompressed.what do you think you would do

about rollercoasters?I want to go to Disneyland w/my husband when he gets

back,but I am unsure about the rides.I LOVE rollercoasters and I want to

ride but I am open to suggestions(maybe);)any suggestions send to

zipperwoman@... Thanks & Hugs:)Sara

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[Guest guest]

>I LOVE rollercoasters and I want to

> ride but I am open to suggestions(maybe)

If the 3 or 5 minute ride is worth risking your health, have fun and

hope for the best. If you'd rather play it safe and hang onto your

current state of health, I'd be much more impressed with your

decision. Being a " chiarian " myself, I have come to the conclusion

that there are a few things that I probably should avoid. You people

have helped me determine what sorts of things might be risky and what

is okay.

I'm not meaning to " rip " on you, but I've heard from way too many

chiari patients who were doing very well post-op... until they went

on a roller coaster ride (or had a car accident or other trauma).

It *might* be perfectly okay for you to go on a rooler coaster ride-

but if your symptoms would return.. would you feel it was worth it ?

Chip

Http://www.wacma.com

[Guest guest]

Whoops,

Actually I have not gotten to square one so I don't count. Sorry Sara,

I misread straight through your first line.

My opinion (I think)

still stands,

Amber in Tampa, FL

ACM I 10mm

Rollercoasters and Decompression

>

>

>

>

> Ok.Here's a good ques for those decompressed.what do you think you would

do

> about rollercoasters?I want to go to Disneyland w/my husband when he gets

> back,but I am unsure about the rides.I LOVE rollercoasters and I want to

> ride but I am open to suggestions(maybe);)any suggestions send to

> zipperwoman@... Thanks & Hugs:)Sara

>

> _________________________________________________________________

> Join the world's largest e-mail service with MSN Hotmail.

> http://www.hotmail.com

>

>

> Help section: http://www.yahoogroups.com/help/

>

> NOTE: NCC refers to posts with No Chiari Content

>

> To Unsubscribe Yourself: chiari-unsubscribeYahoogroups

>

> WACMA Home: www.pressenter.com/~wacma

>

> WACMA List: www.eGroups.com/group/chiari

>

>

>

[Guest guest]

Sara....let us know if you come to Disneyland! We have annual passes and are

there all the time.....we just went yesterday! Our passes just got upgraded

to include California Adventure so Zoe and I went yesterday and

no..........we didn't do the rollercoaster. It has a loop (where you go

upside down) and I've learned (for me) that loops make me feel terrible! We

still do the coasters in Disneyland but they're all relatively mild and we

haven't had surgery yet.......Zoe just asked me yesterday... " mom, after you

guys have had surgery will we be able to do rollercoasters? " ......I told her

" No, especially not then! " and she said " I guess I need to be careful too

just in case right? " (she hasn't been checked for Chiari yet). We definitely

have *Rollercoaser Dialogue* going on all the time........but you know

what.........you will still have a FANTASTIC time at Disneyland! Don't let

the rollercoasters stop you.......there's so much more to do and Disneyland

is all about the *experience*!! Let us know what you decide....maybe we

can meet you there!

Much love,

Traci, ACM1, no surgery, hypothyroidism

mom of Andre (15 yrs.), ACM1, no surgery, cyst on brainstem, scoliosis

and Zoe (9 yrs.), Thalassemia and Familial Mediterranean Fever

Only lots of love and laughter keep us going!

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[Guest guest]

After my first surgery (decompression, Laminectomy C1-C3), VP shunt)

I went on rollar costers. That was 15 years ago and I didn't know any

better. My neck always hurt badly afterward but I really didn't think

anything of it.

Since then I have had many other surgeries and many other problems.

It was a car accident 4 years ago that really pushed me over the

chiari edge. However, there is a chance that I was slowly

deteriorating over the years and the trauma made it worse. I was

lucky I lasted as long as I did. I cringe when I think of the damage

I could have done to my neck- all for a few minutes of a rollar

coaster ride. To me, not worth it.

Also when you are waiting on line for the ride they have signs posted

that say if you have had neck or head injury do not ride this ride. I

would listen.

in NY

- In chiari@y..., " chiariowner " <chip@p...> wrote:

>

> >I LOVE rollercoasters and I want to

> > ride but I am open to suggestions(maybe)

>

> If the 3 or 5 minute ride is worth risking your health, have fun

and

> hope for the best. If you'd rather play it safe and hang onto your

> current state of health, I'd be much more impressed with your

> decision. Being a " chiarian " myself, I have come to the conclusion

> that there are a few things that I probably should avoid. You

people

> have helped me determine what sorts of things might be risky and

what

> is okay.

>

> I'm not meaning to " rip " on you, but I've heard from way too many

> chiari patients who were doing very well post-op... until they went

> on a roller coaster ride (or had a car accident or other trauma).

>

> It *might* be perfectly okay for you to go on a rooler coaster

ride-

> but if your symptoms would return.. would you feel it was worth it ?

>

> Chip

> Http://www.wacma.com