Re: HELLO EVERYONE

[Guest guest]

Ypsilanti Township, so we are not far. Im about 1/4 mile from the Rawsonville rd exit of of 94

Anne,

Where near Detroit? I'm in Warren.

Pam

[Guest guest]

Welcome Anne! Great to have you!

Annie

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[Guest guest]

Anne,

Where near Detroit? I'm in Warren.

Pam

> Guess I wanted to introduce myself. I see there is already at least one

> other on this list so I can go by Anne. I live in Michigan near

> Detroit.

[Guest guest]

Anne,

Welcome! I'm glad you got here!

Terry168/157.25/156 (minigoal)/ ? (To be determined)

Visit my web page at www.dtnorth.com

[Guest guest]

H! Handan,

I am so sorry that you are having such a hard time with fibroids. Actually, I

myself also have similar problem like yours. The pain to me is unbearable too.

And I also have hard time to find a good gyn. I would want to have a myo and I

am looking for one now. I live in Berkeley. If I know sonebody, I definitely

will let you know.

cat

steelcatfish02 wrote:

Hi,

>I'm 27 and was diagnosed with uterine fibroids several yrs ago.

>on the other side I'm still struggling with pain. It's now a routine

for me to jump in the tub and hold very hot water for 20 minutes for

4-5 times a day. I've tried every possible prescribed pain killers

from midol to viacodene. The last one was actually a morphin which

did nothing but make me sick to my stomach.

I'm absolutely miserable.I'm looking for a gyn. here in the San

Francisco bay area who will listen and offer me the best

professional help possible. I'm tired of going through exams over

and over again and explain the syptoms to a new doctor only to get a

different opinion from the previous one.

If you would happen to know anyone good in SF pls contact me.

I'm desperate for a quick answer.

[Guest guest]

Hi Handan,

I totally relate to your pain, nothing seems to work

for me either, except maybe a glass of wine or a beer

I don't know if my reference means anything, since

I haven't actually had my surgery yet, but I have

chosen Dr. Alison y to do my myomectomy at the

end of this month. She is at UCSF Women's Health, and

she founded the UCSF Comprehensive Fibroid Center. I

was really glad to find her, she was really calming,

very straightforward, didn't talk down to me and

answered all of my questions before I even asked them.

I think the women of the list will agree with me that

when a doctor says that a myomectomy would be

butchering your uterus, it just means that HE would

butcher your uterus. It doesn't mean that a more

experienced surgeon wouldn't be able to do a good job

of the surgery. There are no guarantees, of course,

and I know how frustrating it is to keep going to

different docs and get three different opinions. What

I decided is to find out as much info as I could,

decide what I thought was the best thing for me to

pursue, and then find someone who could do it for me

without condescending to me, and without hustling me

and trying to sell me a procedure.

I was really really touchy with all the doctors I saw,

and Dr. y is the first one to calm my fears,

demonstrate compassion, and inspire confidence in her

ability and her desire to do what's best for me

personally. The first doctor actually asked me what

my reasons were for keeping my uterus. Uh, what? The

second one told me that I had to get pregnant NOW (I'm

40) and that she couldn't do a myomectomy unless she

did another one LEEP procedure on my cervix first (I

have a history of abnormal pap smears), and then I'd

have to heal from the first procedure for six weeks,

and then she'd perform surgery. When I asked if she

could do the procedure at the same time as the

surgery, since this seemed logical to me, she said no

way. Hmm, when I asked Dr. y if she thought I

needed the procedure, she said " Well, since you'll

already be under for the myomectomy, I could do the

LEEP at the same time. "

My point is, when a doctor doesn't feel competent or

confident enough to do what seems logical, and can't

give you any reasons WHY it won't be possible, then

it's time to stand up for yourself, and find someone

who can answer the question why. I feel lucky. I

found someone who is competent enough to do what needs

to be done to heal my uterus, cervix and ovaries

without putting me through unneccesary stress of

repeated surgeries.

Whew! I hope all that ranting helps, and feel free to

email me offline if you want more details (like I left

anything out )

Best of luck,

B

S.F.

--- steelcatfish02

wrote:

> I'm absolutely miserable.I'm looking for a gyn. here

> in the San Francisco bay area who will listen and offer me the

> best professional help possible. I'm tired of going

> through exams over and over again and explain the syptoms to a new

> doctor only to get a different opinion from the previous one.

> If you would happen to know anyone good in SF pls

> contact me. I'm desperate for a quick answer.

[Guest guest]

thank you barbara.

kim

i am 39yo female living in atlanta

georgia. i am in the diagnostic

> arena, had my first " diagnostic nerve block " last monday and i am

> afraid that rsd will be the diagnosis. right now i feel really

> pissed off because i have been in such intense pain and didn't

really

> know how much until the block, and now the pain is back. i am

seeing

> one orthopedist that only see's me as a tendon and ligaments and

> another that sees me as a screwed up sural nerve(that he wants

> to " cut and bury into a bone " , they both have poo poohed rsd,

> basically said it isn't real and a friend of my sisters that is a

> nurse in a pain clinic is the person that has given me the heads up

> about this disorder and how my symptoms match those of folks with

> rsd. she has told me that time is of the essence in diagnosing and

> treating rsd-i have ! read everything i can find on the internet

(what

> did we do before the internet?)and i am frustrated and anxious.

> if this is the wrong place for me as i haven't recieved

an " official

> diagnosis " , please let me know and i will leave.

> i just never imagined anything like this could possibly be a part

of

> the repair surgery that i had.

> today is not a good day for pain and i apologize for not being a

more

> delightful newbie.

> thanks for listioning...

> kim

>

>

>

>

[Guest guest]

thank you pam,

kim

i am 39yo female living in atlanta

georgia. i am in the diagnostic

> arena, had my first " diagnostic nerve block " last monday and i am

> afraid that rsd will be the diagnosis. right now i feel really

> pissed off because i have been in such intense pain and didn't

really

> know how much until the block, and now the pain is back. i am

seeing

> one orthopedist that only see's me as a tendon and ligaments and

> another that sees me as a screwed up sural nerve(that he wants

> to " cut and bury into a bone " , they both have poo poohed rsd,

> basically said it isn't real and a friend of my sisters that is a

> nurse in a pain clinic is the person that has given me the heads up

> about this disorder and how my symptoms match those of folks with

> rsd. she has told me that time is of the essence in diagnosing and

> treating rsd-i have read everything i can find on the internet(what

> did we do before the internet?)and i am frustrated and anxious.

> if this is the wrong place for me as i haven't recieved

an " official

> diagnosis " , please let me know and i will leave.

> i just never imagined anything like this could possibly be a part

of

> the repair surgery that i had.

> today is not a good day for pain and i apologize for not being a

more

> delightful newbie.

> thanks for listioning...

> kim

>

>

>

>