Guest guest Posted September 4, 2002 Report Share Posted September 4, 2002 Hi Deb, I am just wondering if you could just get a pulse ox at home in the meanwhile to keep an eye on his sats? We have one and they are very easy to use. This way if he drops you will know and then let the dr's know. I think they are hard to get unless you know for sur ethere is a problem. Actually (hope I didn't post this already) today the girl from the sleep clinic thinks that doing a Video EEG and an overnight pulse oxemetry will do the trick...so I guess if he drops then we can get one. Interestingly enough, I ran into my old boyfriends wife at Target a couple months ago (we are cool with each other and all) and found out they have an 18 month old with a rare pulmonology disease...so she has a pulse ox and I am going to run andrew over next time he is really winded and see waht it says...if it is otu of whack then I will take him on to the ER and let them document it. Of course I have no idea at what reading to take action, but I am assuming she will. deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2002 Report Share Posted September 4, 2002 Hi Deb, I am sorry to hear the hospital is not accomadating you. We had a sleep study/ video EEG ran together. Chelsea's neuro (at my request) called and ordered more EEG leads to be put on so more brain activity could be monitored, this was for an already sceduled sleep study. Ironically I have never heard the results from her neuro about the seizure episodes that happened during the nite. As for the needing oxygen issue, if it was life threatening, you would be seeing cyanosis (bluing of extremities, nose, lips), and probably gasping for breath and/or hyperventilating. Chelsea started using O2 with her pneumonias. Eventually she was dx's with sleep apnea. She has periodic dips of her O2, due to apnea and decreased lung function. If 's problem is more like Chelsea, you would probably see excessive daytime sleepiness because he is not getting good sleep at nite. Hope you are doing well, e, Chelsea's mom(non-specific mito) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2002 Report Share Posted September 5, 2002 As for the needing oxygen issue, if it was life threatening, you would be seeing cyanosis (bluing of extremities, nose, lips), and probably gasping for breath and/or hyperventilating. well I have two things on this...one, since is back, I probably do'nt notice as easily but am going to try to remember next timehe is laboring...he does have cold extremeties sometimes (and the dysautonomia with temp issues so not sure about that). The other thing is Fred and i were watching Mattie on the telethon and he has a vent/trach and would do this gasp thing in between his words...I had alreayd thought it but Fred said it out loud...that sounded like that sometimes and without a trach...what do you make of that...kinda like the sudden intake or he can't keep talking...(I am a vocal coach and understand breathing but it isn't that) and I was wondering if that was intermittent air hunger they talk about... anyway, I appreciate everyone's help deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2004 Report Share Posted January 13, 2004 n, you mean you'll be off the oxygen completely?? That is amazing. I've had knee pain for about 15 years, loosing the cartilage. Last year it got so bad, I thought I wouldn't be able to put the brake on in the car. I did, but was in tears. I saw an orthopedist, who did an MRI and x-rays, and told me what I think I already knew, arthritis. It still doesn't make sense though that the pains were so sharp. It's only happened twice for about 4-5 days. So, take a pill, but unfortunately the pills prescribed are Ibuprofen based. I had to explain this to my pcp. I had been told by the kidney doctor to never take Ibuprofen because of the kidney problems. They said that was all there was to take, so I haven't been taking anything, especially since the surgery. The kidney doctor gave me a RX for something else, but being leery of medications, I researched it first, and the side effects and interactions with medications I was already taking was scary, so I didn't get it. But as I lose weight, the pain is less and less. I haven't had any pain in one knee for several weeks, and only minimal in the other knee. So, when you do see the doctor, if he/she prescribes medication, find out if it's Ibuprofen based. I too hope it isn't anything major. Good luck. Joan LAP RNY 11/18/03 Dr. Higa, Fresno, CA 282pre-op/275surg/236/140 Quote Link to comment Share on other sites More sharing options...
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