Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 I work one day a week at the Pittsburgh Vision Service; two of the guys in the computer dept. are blind; it is amazing what they can do with the blind and computers; they can even scan a piece of printed paper, and have the computer " read it out to you " ; etc. marie Questions for Diane > > > > At what age did you loose your vision? What tumors caused you to loose your > > vision? > > > > _____________________________________________ > > > > > I was diagnosed with NF2 in 1979 at the age of 14. I have had three > > tumors > > > surgically removed and ten tumors treated with gamma knife. I am totally > > > blind in both eyes, deaf in my right ear, and have a hearing loss in my > > left > > > ear (use a hearing aid on that side). I also have problems with balance, > > > ringing in my ears, seizure disorder, etc. > > > > > > Hope to talk to you sometime soon. > > > > > > Diane Russenberger > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 Hi , I use a speech program (JAWS) with my computer. JAWS reads whatever is on the screen, will say the letters or words as I am typing, etc. It is pretty neat! So, that is how I am able to read e-mails. Thank goodness for technology! Diane riginal Message ----- To: <NF2_Crew > Sent: Tuesday, May 21, 2002 8:11 PM Subject: Re: Questions for Diane How do you use a computer and see emails if you are totally blind??? Id really like to know how you do things, thx. Diane Russenberger wrote: > Hi, > > I was 14 years old when I lost my vision. A lemon-size meningioma was > surgically removed. The tumor had damaged the optic nerves. After surgery, > I woke up totally blind. Some of the symptoms I had before surgery were > terrible headaches and blurred vision. If you have more questions, feel > free to ask. > > Diane > > ---- Original Message ----- > > To: <NF2_Crew > > Sent: Tuesday, May 21, 2002 11:29 AM > Subject: Questions for Diane > > At what age did you loose your vision? What tumors caused you to loose your > vision? > > _____________________________________________ > > > I was diagnosed with NF2 in 1979 at the age of 14. I have had three > tumors > > surgically removed and ten tumors treated with gamma knife. I am totally > > blind in both eyes, deaf in my right ear, and have a hearing loss in my > left > > ear (use a hearing aid on that side). I also have problems with balance, > > ringing in my ears, seizure disorder, etc. > > > > Hope to talk to you sometime soon. > > > > Diane Russenberger > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 WOW MARIE THANSKS FOR THAT INFO CATHERINE Questions for Diane > > > > > > At what age did you loose your vision? What tumors caused you to loose > your > > > vision? > > > > > > _____________________________________________ > > > > > > > I was diagnosed with NF2 in 1979 at the age of 14. I have had three > > > tumors > > > > surgically removed and ten tumors treated with gamma knife. I am > totally > > > > blind in both eyes, deaf in my right ear, and have a hearing loss in > my > > > left > > > > ear (use a hearing aid on that side). I also have problems with > balance, > > > > ringing in my ears, seizure disorder, etc. > > > > > > > > Hope to talk to you sometime soon. > > > > > > > > Diane Russenberger > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 Hi Marie, I have one of those scanners too. It works great! Diane Questions for Diane > > > > > > At what age did you loose your vision? What tumors caused you to loose > your > > > vision? > > > > > > _____________________________________________ > > > > > > > I was diagnosed with NF2 in 1979 at the age of 14. I have had three > > > tumors > > > > surgically removed and ten tumors treated with gamma knife. I am > totally > > > > blind in both eyes, deaf in my right ear, and have a hearing loss in > my > > > left > > > > ear (use a hearing aid on that side). I also have problems with > balance, > > > > ringing in my ears, seizure disorder, etc. > > > > > > > > Hope to talk to you sometime soon. > > > > > > > > Diane Russenberger > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2002 Report Share Posted May 21, 2002 Hi Marie, I have one of those scanners too. It works great for reading any printed material. Diane ---- Original Message ----- To: <NF2_Crew > Sent: Tuesday, May 21, 2002 8:50 PM Subject: Re: Questions for Diane I work one day a week at the Pittsburgh Vision Service; two of the guys in the computer dept. are blind; it is amazing what they can do with the blind and computers; they can even scan a piece of printed paper, and have the computer " read it out to you " ; etc. marie Questions for Diane > > > > At what age did you loose your vision? What tumors caused you to loose your > > vision? > > > > _____________________________________________ > > > > > I was diagnosed with NF2 in 1979 at the age of 14. I have had three > > tumors > > > surgically removed and ten tumors treated with gamma knife. I am totally > > > blind in both eyes, deaf in my right ear, and have a hearing loss in my > > left > > > ear (use a hearing aid on that side). I also have problems with balance, > > > ringing in my ears, seizure disorder, etc. > > > > > > Hope to talk to you sometime soon. > > > > > > Diane Russenberger > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 Diane, Do you think if they found your mengenomia sooner you would not have lost your vision? ________________________________________________________________________________\ ___ cinnyd@... wrote: >How do you use a computer and see emails if you are totally blind??? Id really >like to know how you do things, thx. > > > >Diane Russenberger wrote: > >> Hi, >> >> I was 14 years old when I lost my vision. A lemon-size meningioma was >> surgically removed. The tumor had damaged the optic nerves. After surgery, >> I woke up totally blind. Some of the symptoms I had before surgery were >> terrible headaches and blurred vision. If you have more questions, feel >> free to ask. >> >> Diane >> >> ---- Original Message ----- >> From: >> To: >> Sent: Tuesday, May 21, 2002 11:29 AM >> Subject: Questions for Diane >> >> At what age did you loose your vision? What tumors caused you to loose your >> vision? >> >> _____________________________________________ >> >> > I was diagnosed with NF2 in 1979 at the age of 14. I have had three >> tumors >> > surgically removed and ten tumors treated with gamma knife. I am totally >> > blind in both eyes, deaf in my right ear, and have a hearing loss in my >> left >> > ear (use a hearing aid on that side). I also have problems with balance, >> > ringing in my ears, seizure disorder, etc. >> > >> > Hope to talk to you sometime soon. >> > >> > Diane Russenberger >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 Hi , I probably would have lost my vision anyway because of the location of the tumor. It was right where the optic nerves cross. Diane Questions for Diane >> >> At what age did you loose your vision? What tumors caused you to loose your >> vision? >> >> _____________________________________________ >> >> > I was diagnosed with NF2 in 1979 at the age of 14. I have had three >> tumors >> > surgically removed and ten tumors treated with gamma knife. I am totally >> > blind in both eyes, deaf in my right ear, and have a hearing loss in my >> left >> > ear (use a hearing aid on that side). I also have problems with balance, >> > ringing in my ears, seizure disorder, etc. >> > >> > Hope to talk to you sometime soon. >> > >> > Diane Russenberger >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2002 Report Share Posted May 22, 2002 again, how do you use the computer if you are totally blind???? I know nothing abt blindness. Diane Russenberger wrote: > Hi , > > I probably would have lost my vision anyway because of the location of the > tumor. It was right where the optic nerves cross. > > Diane > > Questions for Diane > >> > >> At what age did you loose your vision? What tumors caused you to loose > your > >> vision? > >> > >> _____________________________________________ > >> > >> > I was diagnosed with NF2 in 1979 at the age of 14. I have had three > >> tumors > >> > surgically removed and ten tumors treated with gamma knife. I am > totally > >> > blind in both eyes, deaf in my right ear, and have a hearing loss in my > >> left > >> > ear (use a hearing aid on that side). I also have problems with > balance, > >> > ringing in my ears, seizure disorder, etc. > >> > > >> > Hope to talk to you sometime soon. > >> > > >> > Diane Russenberger > >> > > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2002 Report Share Posted May 24, 2002 There must be " different " types of NF2. I have NF2. My doctor said so. I have tumours all over the place that cripple me very bad but my hearing is (after working in a paper mill) not bad; and my sight.......I wear glasses and I have always had a " lazy " eye but not blind. NF is funny in that it affects different people in different ways. I know of a girl in Toronto, Ontario Canada that had a stroke by the time she was 21 from NF. But we carry on. Randy " Probably nothing in the world arouses more false hopes than the first four hours of a diet. " Dan Bennet Questions for Diane > >>> > >>> At what age did you loose your vision? What tumors caused you to loose > >your > >>> vision? > >>> > >>> _____________________________________________ > >>> > >>> > I was diagnosed with NF2 in 1979 at the age of 14. I have had three > >>> tumors > >>> > surgically removed and ten tumors treated with gamma knife. I am > >totally > >>> > blind in both eyes, deaf in my right ear, and have a hearing loss in > my > >>> left > >>> > ear (use a hearing aid on that side). I also have problems with > >balance, > >>> > ringing in my ears, seizure disorder, etc. > >>> > > >>> > Hope to talk to you sometime soon. > >>> > > >>> > Diane Russenberger > >>> > > >>> > >>> Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.