Guest guest Posted October 14, 2002 Report Share Posted October 14, 2002 Hi Ann , Yes you can take minocycine alone but actually I think you should be on minocin . Minocin is the brand name to minocycline but minocin is timed released and works much better so see if you can get your dr to write you script for minocin and check in the box DAW ( dispense as written) or they will fill it with minocycline . BIG difference in effect between these 2 drugs . IMO from my experience minocycline powder does not work period . You do not need to do IVs and you do not need to take anything else but this is really only a decision between you and your dr and your disease and its activity as to how to start this therapy . Discuss the timed released version with your dr Hope this info helps warm regards, socjog Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2002 Report Share Posted October 16, 2002 Hi, I live in Canada and the time release minocin has not been available to me so I have been taking the powder filled capsules by Lederle(orange and blue) 100mg ever since jun98 and am now 90% in remission for DM as well as MCTD with crest. Don't be too quick in saying that the powdered form does not work. It works for some. At least the Lederle generic does. Carol/Piney rheumatic mino alone Hi Ann , Yes you can take minocycine alone but actually I think you should be on minocin . Minocin is the brand name to minocycline but minocin is timed released and works much better so see if you can get your dr to write you script for minocin and check in the box DAW ( dispense as written) or they will fill it with minocycline . BIG difference in effect between these 2 drugs . IMO from my experience minocycline powder does not work period . You do not need to do IVs and you do not need to take anything else but this is really only a decision between you and your dr and your disease and its activity as to how to start this therapy . Discuss the timed released version with your dr Hope this info helps warm regards, socjog To unsubscribe, email: rheumatic-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2002 Report Share Posted October 16, 2002 Hi Carol, I think it depends on the generic you are taking. The Lederle does work but some of the others do not. I've taken one that wasn't Lederle and it did not do anything for me at all. Great big difference when I started on the brand name minocin. Saw things happening right away. I was really amazed at the difference. Jeanette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2002 Report Share Posted October 16, 2002 Carol, I think all the same as you mentioned. I live in Japan and minocycline powdered (Minomycin from Lederle) is the only one available here and I'm doing very well on it for rheumatoid arthritis. I've started small AP groups here and several friends are experiencing improvements on the same drug. A few people who read AP mailing list or BB have been very anxious for our not having pelleted minocycline. Your comment on this will please our friends too much. I'll let them know your story on our mailing list. Thanks again for sharing your experience. Norio from Japan Bob and Carol Zarn wrote: > Hi, I live in Canada and the time release minocin has not been available > to me so I have been taking the powder filled capsules by Lederle(orange > and blue) 100mg ever since jun98 and am now 90% in remission for DM as > well as MCTD with crest. > > Don't be too quick in saying that the powdered form does not work. It > works for some. At least the Lederle generic does. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2002 Report Share Posted October 16, 2002 Hi Ann, Yes, you do need to take acidophilis when you are taking minocin. Minocin will destroy a lot of the good gut floral in your stomach and it is important to replace it with acidophilis. The refrigerated acidophilis is the best. You can usually get it at any health food store. Most people take four or more capsuls a day. Hope this helps. Jeanette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2002 Report Share Posted October 16, 2002 Please tell me if you have to take Acidophollis when you are taking Minocin. Seems some people do. Where do you purchase it at? Thanks. Ann Bell maryannbell@... -- Re: rheumatic mino alone Carol, I think all the same as you mentioned. I live in Japan andminocycline powdered (Minomycin from Lederle) is the only one availablehere and I'm doing very well on it for rheumatoid arthritis. I've startedsmall AP groups here and several friends are experiencing improvementson the same drug. A few people who read AP mailing list or BB havebeen very anxious for our not having pelleted minocycline. Your commenton this will please our friends too much. I'll let them know yourstory on our mailing list. Thanks again for sharing your experience.Noriofrom JapanBob and Carol Zarn wrote:> Hi, I live in Canada and the time release minocin has not been available > to me so I have been taking the powder filled capsules by Lederle(orange > and blue) 100mg ever since jun98 and am now 90% in remission for DM as > well as MCTD with crest.> > Don't be too quick in saying that the powdered form does not work. It > works for some. At least the Lederle generic does. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2002 Report Share Posted October 16, 2002 Hi Carol , I can only make judgments on what happens to me and I thought I was very clear that this was my persona experience . Powdered has NOT worked for a vast majority and why take that chance when major problems could develop in the waiting to see if the powdered works or doesn't work .In Canada there are other better solutions available rather then gambling with powdered minocin . I think you are in the vast minority . Again just sharing my opinion and my experience . Im sorry if you misunderstood my post . Delighted you have done so well . Warm regards, socjog rheumatic mino alone Hi Ann , Yes you can take minocycine alone but actually I think you should be on minocin . Minocin is the brand name to minocycline but minocin is timed released and works much better so see if you can get your dr to write you script for minocin and check in the box DAW ( dispense as written) or they will fill it with minocycline . BIG difference in effect between these 2 drugs . IMO from my experience minocycline powder does not work period . You do not need to do IVs and you do not need to take anything else but this is really only a decision between you and your dr and your disease and its activity as to how to start this therapy . Discuss the timed released version with your dr Hope this info helps warm regards, socjog To unsubscribe, email: rheumatic-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2002 Report Share Posted October 16, 2002 Socjog, if I've understood correctly, we have always been told in this group that it is the brand name that is the most important about Minocin in determining its effectiveness. Your post could unnecessarily and I'm sure, unintentionally, upset people who can't get the pelletized form but who can get the brand name Minocin. From the posts I have read hear over the years, many people have had success with this form. I'm curious as to what other better solutions we have here in Canada. Would you mind expanding on this? Thanks, (RA 25+ years, AP since Nov. 97) rheumatic mino alone Hi Ann , Yes you can take minocycine alone but actually I think you should be on minocin . Minocin is the brand name to minocycline but minocin is timed released and works much better so see if you can get your dr to write you script for minocin and check i! n the box DAW ( dispense as written) or they will fill it with minocycline . BIG difference in effect between these 2 drugs . IMO from my experience minocycline powder does not work period . You do not need to do IVs and you do not need to take anything else but this is really only a decision between you and your dr and your disease and its activity as to how to start this therapy . Discuss the timed released version with your dr Hope this info helps warm regards, socjog To unsubscribe, email: rheumatic-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2002 Report Share Posted October 16, 2002 Hi , Im a bit confused by your question . The brand name minocin (brand) is pellet which is what I posted is best to take . Well I don't want to upset people but rather educate them that there are better choices then powdered minocycline ( generic) . Powdered minocycline did not work for me and many others . I personally do not feel this is worth the risk of waiting to see if in fact powdered would work when there are better choices . Waiting could cause its problems a risk I choose not to take . I'm just sharing my journey cause many may not be aware of these differences . If this is upsetting Im sorry but if it were not mentioned and someone suffered because of this well then I would feel really terrible . Doxy also makes a timed released version which would again work better then powdered minocin . Warm regards, socjog rheumatic mino alone Hi Ann , Yes you can take minocycine alone but actually I think you should be on minocin . Minocin is the brand name to minocycline but minocin is timed released and works much better so see if you can get your dr to write you script for minocin and check i! n the box DAW ( dispense as written) or they will fill it with minocycline . BIG difference in effect between these 2 drugs . IMO from my experience minocycline powder does not work period . You do not need to do IVs and you do not need to take anything else but this is really only a decision between you and your dr and your disease and its activity as to how to start this therapy . Discuss the timed released version with your dr Hope this info helps warm regards, socjog To unsubscribe, email: rheumatic-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2002 Report Share Posted October 16, 2002 Socjog, I think the confusion may be that we have a different form of the brand name Minocin. In Canada, we have the brand name Minocin which is not in pelletized form. For many of us (as seen in the posts through the years), this brand name Minocin works well. I seem to remember that when this topic came up shortly after I joined the group, someone called the company to verify that the brand name Minocin in powdered form in the orange and blue capsules here in Canada, would work just as well as the pelletized version available in the States. Can some of the long-time members of the group who remember this help me out here? Also, isn't it true that if it's called Minocin, it is the brand name and that if it's called Minocycline, it could be the generic? Further to this, didn't Ethel tell us that there was one generic minocycline that works just as well? I wouldn't want to get all this wrong because, as Socjog points out, we are here to help each other to get the best results from this protocol. But I also want Canadians to realize that the form of Minocin available in Canada can work well too. You stated in your first post that "In Canada there are other better solutions available rather then gambling with powdered minocin . " Would you please clarify this for those of us who are Canadians? Socjog, I hope you don't mind my pursuing these points, but it is very important for Canadians to realize this protocol can work here in Canada with the Minocin that is available to us. (RA 25+ years, AP since Nov. 97) rheumatic mino alone Hi Ann , Yes you can take minocycine alone but actually I think you should be on minocin . Minocin is the brand name to minocycline but minocin is timed released and works much better so see if you can get your dr to write you script for minocin and check i! n the box DAW ( dispense as written) or they will fill it with minocycline . BIG difference in effect between these 2 drugs . IMO from my experience minocycline powder does not work period . You do not need to do IVs and you do not need to take anything else but this is really only a decision between you and your dr and your disease and its activity as to how to start this therapy . Discuss the timed released version with your dr Hope this info helps warm regards, socjog To unsubscribe, email: rheumatic-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2002 Report Share Posted October 16, 2002 on 10/16/02 9:48 AM, Ken and , at kglg@..., wrote: > Socjog, I think the confusion may be that we have a different form of the > brand name Minocin. In Canada, we have the brand name Minocin which is not in > pelletized form. For many of us (as seen in the posts through the years), > this brand name Minocin works well. , I'm in the US, but I clearly remember all the discussions you are recalling, as I was just starting Lederle generic at the time. Several of us compared our capsules one day, someone called Wyeth, they had just bought out Lederle, and they said the active ingredient in their *powdered* *name-brand* Minocin is the same as the pelleted Minocin available in the US. Same active ingredient, although the capsule looks different. Many in Canada have taken it with good results, even though it is powdered, not pelleted. > I seem to remember that when this topic > came up shortly after I joined the group, someone called the company to verify > that the brand name Minocin in powdered form in the orange and blue capsules > here in Canada, would work just as well as the pelletized version available in > the States. Can some of the long-time members of the group who remember this > help me out here? Also, isn't it true that if it's called Minocin, it is the > brand name and that if it's called Minocycline, it could be the generic? Right: they can't call it Minocin if it isn't the real thing. Further, in some parts of the world, the brand name is Minomycin, that is also the real brand product, not a generic. could tell us more about this, I think that's the brand name in Australia. Please don't be concerned, I'm sure you have been taking the appropriate medication, Socjog just wasn't familiar with the forms available outside the US. -- Jean jpro2@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2002 Report Share Posted October 16, 2002 Ken and , You are correct. The generic antibiotic is called minocycline, the ESI-Lederle brand name is Minocin. Prior to September 2001, ESI-Lederle was selling the same pelletized minocycline as a low-price generic and as high-price Minocin. Even the appearance of the capsules was the same. In September 2001, they discontinued sale of the generic, at least here in the U.S. Generic minocycline is manufactured by different companies, perhaps a dozen, using different processes, with varying results for RA. It is my impression that about half of the generics work and half do not -- so problem is to know which generic falls in which category. It would be helpful for as many members of this group as possible to report which generics have worked for them for RA and which have not. Please ask your druggist for the name of the manufacturer. It is my belief that pelletizing does not make a difference per se. Sincerely, Harald At 10:48 AM 10/16/02 -0400, you wrote: >Socjog, I think the confusion may be that we have a different form of the >brand name Minocin. In Canada, we have the brand name Minocin which is >not in pelletized form. For many of us (as seen in the posts through the >years), this brand name Minocin works well. I seem to remember that when >this topic came up shortly after I joined the group, someone called the >company to verify that the brand name Minocin in powdered form in the >orange and blue capsules here in Canada, would work just as well as the >pelletized version available in the States. Can some of the long-time >members of the group who remember this help me out here? Also, isn't it >true that if it's called Minocin, it is the brand name and that if it's >called Minocycline, it could be the generic? Further to this, didn't >Ethel tell us that there was one generic minocycline that works just as >well? I wouldn't want to get all this wrong because, as Socjog points >out, we are here to help each other to get the best results from this >protocol. But I also want Canadians to realize that the form of Minocin >available in Canada can work well too. > >You stated in your first post that " In Canada there are other better >solutions available rather then gambling with powdered minocin . " Would >you please clarify this for those of us who are Canadians? > >Socjog, I hope you don't mind my pursuing these points, but it is very >important for Canadians to realize this protocol can work here in Canada >with the Minocin that is available to us. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2002 Report Share Posted October 16, 2002 Thanks for the information you have provided to clarify things--and thanks for your good memory! Re: rheumatic mino alone > on 10/16/02 9:48 AM, Ken and , at kglg@..., wrote: > > > Socjog, I think the confusion may be that we have a different form of the > > brand name Minocin. In Canada, we have the brand name Minocin which is not in > > pelletized form. For many of us (as seen in the posts through the years), > > this brand name Minocin works well. > > , I'm in the US, but I clearly remember all the discussions you are > recalling, as I was just starting Lederle generic at the time. Several of us > compared our capsules one day, someone called Wyeth, they had just bought > out Lederle, and they said the active ingredient in their *powdered* > *name-brand* Minocin is the same as the pelleted Minocin available in the > US. Same active ingredient, although the capsule looks different. Many in > Canada have taken it with good results, even though it is powdered, not > pelleted. > > > I seem to remember that when this topic > > came up shortly after I joined the group, someone called the company to verify > > that the brand name Minocin in powdered form in the orange and blue capsules > > here in Canada, would work just as well as the pelletized version available in > > the States. Can some of the long-time members of the group who remember this > > help me out here? Also, isn't it true that if it's called Minocin, it is the > > brand name and that if it's called Minocycline, it could be the generic? > > Right: they can't call it Minocin if it isn't the real thing. Further, in > some parts of the world, the brand name is Minomycin, that is also the real > brand product, not a generic. could tell us more about this, I think > that's the brand name in Australia. > > Please don't be concerned, I'm sure you have been taking the appropriate > medication, Socjog just wasn't familiar with the forms available outside the > US. > > -- > Jean > jpro2@... > > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2002 Report Share Posted October 16, 2002 People get confused about Minocin in Canada. In the past the name brand Lederle Minocin in canada was powdered, this is different than the powdered generic puchased in the US like Teva. Now I hear Canada is and will be offering pelleted Minocin name brand. As they run out of powdered supply the pelleted will be available. Canada Goverment buys meds in bulk and not all choices are available like it is in the US. My understanding is the powdered lederle Minocin works pretty good compared to the cheap generic powdered, probably because of the fillers and quality control. Re: rheumatic mino alone Hi , Im a bit confused by your question . The brand name minocin (brand) is pellet which is what I posted is best to take . Well I don't want to upset people but rather educate them that there are better choices then powdered minocycline ( generic) . Powdered minocycline did not work for me and many others . I personally do not feel this is worth the risk of waiting to see if in fact powdered would work when there are better choices . Waiting could cause its problems a risk I choose not to take . I'm just sharing my journey cause many may not be aware of these differences . If this is upsetting Im sorry but if it were not mentioned and someone suffered because of this well then I would feel really terrible . Doxy also makes a timed released version which would again work better then powdered minocin . Warm regards, socjog rheumatic mino alone Hi Ann , Yes you can take minocycine alone but actually I think you should be on minocin . Minocin is the brand name to minocycline but minocin is timed released and works much better so see if you can get your dr to write you script for minocin and check i! n the box DAW ( dispense as written) or they will fill it with minocycline . BIG difference in effect between these 2 drugs . IMO from my experience minocycline powder does not work period . You do not need to do IVs and you do not need to take anything else but this is really only a decision between you and your dr and your disease and its activity as to how to start this therapy . Discuss the timed released version with your dr Hope this info helps warm regards, socjog To unsubscribe, email: rheumatic-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2002 Report Share Posted October 16, 2002 Hi All, This topic has come up before and if memory serves me (which thanks to AP it's been doing lately), the powdered Minocin you get in Canada has worked just as well as the pelleted we get in the states. a in Canada would know more about this. Hopefully she'll see this and dive in. I believe the generic you're talking about is Teva. Regards, Dee rheumatic mino alone Hi Ann , Yes you can take minocycine alone but actually I think you should be on minocin . Minocin is the brand name to minocycline but minocin is timed released and works much better so see if you can get your dr to write you script for minocin and check i! n the box DAW ( dispense as written) or they will fill it with minocycline . BIG difference in effect between these 2 drugs . IMO from my experience minocycline powder does not work period . You do not need to do IVs and you do not need to take anything else but this is really only a decision between you and your dr and your disease and its activity as to how to start this therapy . Discuss the timed released version with your dr Hope this info helps warm regards, socjog To unsubscribe, email: rheumatic-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2002 Report Share Posted October 16, 2002 The generic powdered minocycline I was taking at first was from Canada. I'm not sure which brand it was though but it did not work. We get medicines down here in the Caymans from England, Canada & the U.S. So I know there are some generics in Canada that don't work. Just thought I would add this to get people to really pay attention to what they are getting. Not all are the same. Love, Jeanette wrote: People get confused about Minocin in Canada. In the past the name brand Lederle Minocin in canada was powdered, this is different than the powdered generic puchased in the US like Teva. Now I hear Canada is and will be offering pelleted Minocin name brand. As they run out of powdered supply the pelleted will be available. Canada Goverment buys meds in bulk and not all choices are available like it is in the US. My understanding is the powdered lederle Minocin works pretty good compared to the cheap generic powdered, probably because of the fillers and quality control. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2002 Report Share Posted October 16, 2002 Hi Dee, Okay, look out, here I come. :} My understanding is that it is next to impossible to obtain Lederle generic minocycline in Canada, however, if you buy the brand name Minocin, which comes in a purple and orange capsule that says " Wyeth-Ayerest " and Minocin on it, then you have the right stuff. As an aside, I helped man our local AP support group's table at a recent Arthritis Society conference in Calgary. I noticed a Wyeth-Ayerest table there so I wandered over to have a look at their literature. They put out a lovely brochure on arthritis, including a brief description of the various treatments, highlighting, in the end, their new drug, Enbrel. NO WHERE IN THIS BROCHURE DOES IT LIST MINOCIN AS A TREATMENT! Not being known as a shrinking violet, I marched back to the table and demanded to know from the rep why their own brochure does not list their own medication, Minocin, as a valid treatment. The guy sputtered around a bit while I then sweetly said " I know drug companies are in this for the money and I knew Enbrel can make you a lot of money but Minocin makes profits for you, too. In fact, the support groups I belong to stress the need for brand name Minocin, not generic, so, in reality, we're acting as reps for your company and really deserve a commission. I'll waive mine in lieu of you listing YOUR OWN MEDICATION, MINOCIN, IN YOUR OWN BROCHURE. " By this time, the guy was more or less conceding defeat and admitted it was a bad oversight by Wyeth-Ayerest. I next told everyone back at our support group table about what I'd found and had done and they all proceeded to take turns hitting the guy up as well. I'm sure he was hiding under his table by the end of the day. Since then I've been thinking it might be a good idea for all of us to contact Wyeth-Ayerest to voice our dismay at their failure to properly promote Minocin as a valid rheumatic treatment. Just to make it easy, I've found a toll free number: 1-800-934-5556. Be polite but be persistent and maybe they'll reprint their brochure with the full story in it. :} Hugs a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2002 Report Share Posted October 16, 2002 a, Way to go! Stick it to 'em! I salute your assertiveness in this situation. Mellanie Re: rheumatic mino alone Hi Dee, Okay, look out, here I come. :} My understanding is that it is next to impossible to obtain Lederle generic minocycline in Canada, however, if you buy the brand name Minocin, which comes in a purple and orange capsule that says " Wyeth-Ayerest " and Minocin on it, then you have the right stuff. As an aside, I helped man our local AP support group's table at a recent Arthritis Society conference in Calgary. I noticed a Wyeth-Ayerest table there so I wandered over to have a look at their literature. They put out a lovely brochure on arthritis, including a brief description of the various treatments, highlighting, in the end, their new drug, Enbrel. NO WHERE IN THIS BROCHURE DOES IT LIST MINOCIN AS A TREATMENT! Not being known as a shrinking violet, I marched back to the table and demanded to know from the rep why their own brochure does not list their own medication, Minocin, as a valid treatment. The guy sputtered around a bit while I then sweetly said " I know drug companies are in this for the money and I knew Enbrel can make you a lot of money but Minocin makes profits for you, too. In fact, the support groups I belong to stress the need for brand name Minocin, not generic, so, in reality, we're acting as reps for your company and really deserve a commission. I'll waive mine in lieu of you listing YOUR OWN MEDICATION, MINOCIN, IN YOUR OWN BROCHURE. " By this time, the guy was more or less conceding defeat and admitted it was a bad oversight by Wyeth-Ayerest. I next told everyone back at our support group table about what I'd found and had done and they all proceeded to take turns hitting the guy up as well. I'm sure he was hiding under his table by the end of the day. Since then I've been thinking it might be a good idea for all of us to contact Wyeth-Ayerest to voice our dismay at their failure to properly promote Minocin as a valid rheumatic treatment. Just to make it easy, I've found a toll free number: 1-800-934-5556. Be polite but be persistent and maybe they'll reprint their brochure with the full story in it. :} Hugs a To unsubscribe, email: rheumatic-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2002 Report Share Posted October 16, 2002 Hi I do know you Canadians do have a different minocin and yes it is not pelleted but perhaps it is made better than other generics and with less fillers rendering it more effective. It does promote confusion though. Love] Marge > Socjog, I think the confusion may be that we have a different form of the brand name Minocin. In Canada, we have the brand name Minocin which is not in pelletized form. For many of us (as seen in the posts through the years), this brand name Minocin works well. I seem to remember that when this topic came up shortly after I joined the group, someone called the company to verify that the brand name Minocin in powdered form in the orange and blue capsules here in Canada, would work just as well as the pelletized version available in the States. Can some of the long-time members of the group who remember this help me out here? Also, isn't it true that if it's called Minocin, it is the brand name and that if it's called Minocycline, it could be the generic? Further to this, didn't Ethel tell us that there was one generic minocycline that works just as well? I wouldn't want to get all this wrong because, as Socjog points out, we are here to help each other to get the best results from this protocol. But I also want Canadians to realize that the form of Minocin available in Canada can work well too. > > You stated in your first post that " In Canada there are other better solutions available rather then gambling with powdered minocin . " Would you please clarify this for those of us who are Canadians? > > Socjog, I hope you don't mind my pursuing these points, but it is very important for Canadians to realize this protocol can work here in Canada with the Minocin that is available to us. > > > (RA 25+ years, AP since Nov. 97) > rheumatic mino alone > > > Hi Ann , > Yes you can take minocycine alone but actually I think you should be on minocin . Minocin is the brand name to minocycline but minocin is timed released and works much better so see if you can get your dr to write you script for minocin and check i! n the box DAW ( dispense as written) or they will fill it with minocycline . BIG difference in effect between these 2 drugs . IMO from my experience minocycline powder does not work period . You do not need to do IVs and you do not need to take anything else but this is really only a decision between you and your dr and your disease and its activity as to how to start this therapy . Discuss the timed released version with your dr Hope this info helps warm regards, > socjog > > > > > To unsubscribe, email: rheumatic-unsubscribe@e... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2002 Report Share Posted October 16, 2002 a, Good for you.Thats exactly the reason as they do manufacture the drugs that cost a patient 1300 a month! Even taking it 2x aday, I come no where near that! It is a shame as their new biologics have a lot of flaws that are known and more to come I am sure.> Ours..well been around a long time.Safe secure. Did you ever why so many docs take minocin.I know I knew of at least 5 that I had come in contact with.Just find that amusing Love Marge > Hi Dee, > Okay, look out, here I come. :} > > My understanding is that it is next to impossible to obtain Lederle > generic minocycline in Canada, however, if you buy the brand name > Minocin, which comes in a purple and orange capsule that says > " Wyeth-Ayerest " and Minocin on it, then you have the right stuff. > > As an aside, I helped man our local AP support group's table at a recent > Arthritis Society conference in Calgary. I noticed a Wyeth-Ayerest > table there so I wandered over to have a look at their literature. They > put out a lovely brochure on arthritis, including a brief description of > the various treatments, highlighting, in the end, their new drug, > Enbrel. NO WHERE IN THIS BROCHURE DOES IT LIST MINOCIN AS A TREATMENT! > Not being known as a shrinking violet, I marched back to the table and > demanded to know from the rep why their own brochure does not list their > own medication, Minocin, as a valid treatment. The guy sputtered around > a bit while I then sweetly said " I know drug companies are in this for > the money and I knew Enbrel can make you a lot of money but Minocin > makes profits for you, too. In fact, the support groups I belong to > stress the need for brand name Minocin, not generic, so, in reality, > we're acting as reps for your company and really deserve a commission. > I'll waive mine in lieu of you listing YOUR OWN MEDICATION, MINOCIN, IN > YOUR OWN BROCHURE. " By this time, the guy was more or less conceding > defeat and admitted it was a bad oversight by Wyeth-Ayerest. I next > told everyone back at our support group table about what I'd found and > had done and they all proceeded to take turns hitting the guy up as > well. I'm sure he was hiding under his table by the end of the day. > Since then I've been thinking it might be a good idea for all of us to > contact Wyeth-Ayerest to voice our dismay at their failure to properly > promote Minocin as a valid rheumatic treatment. Just to make it easy, > I've found a toll free number: 1-800-934-5556. Be polite but be > persistent and maybe they'll reprint their brochure with the full story > in it. :} > Hugs > a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2002 Report Share Posted October 16, 2002 , Now I am confused. I get my Minocin, brand from Canada. They are orange and purple capsuls and contain pellets. ???????? To my understanding Minocin is the brand, Minocycline generic The chemical name of the Minocin is minocycline hydrocloride. Confused yet? You are right, there was a generic Minocycline that was pelleted and was equal to the brand. It was made by the same manufacturer (Lederle<ESI) THEy disontinued that product a year ago and by now all our pharmacies are running out of their stock of it. THat's why we have been scrambling to figure out what to do instead. Take care, Ute Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 .. Please ask your > druggist for the name of the manufacturer. It is my belief that pelletizing > does not make a difference per se. > > Sincerely, Harald > Harald, you have a good idea here. I checked my Canadian Minocin capsule. It is orange and blue and says " Lederle " and " Minocin 100 mg " on the capsule itself. The contents are powdered. It is my experience that this version has helped me greatly and my RA is severe and longstanding. (RA 25+ years, AP since Nov. 97) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 Hi All, When I first started with AP, the pharmacist filled my script with generic. It was Pellitized Minocycline, orange and blue capsules, approximately eighty dollars for sixty capsules. When I requested Minocin, as per this list, the pharmacist filled it with Minocin, pelletized, orange and blue capsules, exactly the same price. Exactly the same drug. When I started AP, I started on too high a dose. I was taking 100mg, bid, six times per week PLUS Zithromax, 500mg three times per week. Way too much drug, even with twice daily acidophilus, it resulted in a major systemic yeast infection. After six months and several different variations, my current dosage is Minocin 100mg bid, three days per week. Zithromax 250 mg three days per week. There was a three month period when I took Minocin only, but my inflammatory markers and symptoms worsened. Adding Zithromax has turned things around. My markers and symptoms are still present, CRP still high, but not through the roof. Symptoms up and down depending on my activity, stress, diet etc. Still life is much better than when on high doses of Prednisone, Methotrexate etc. Kim Gallant, Canadian DM, Ankylosing Spondylitis Minocin 100 mg bid, three times per week Zithromax 250 mg, three times per week Prednisone 10 mg daily Eltroxin 225 ug daily Dessicated thyroid 120mg daily LoEstrin 21 days per month Vioxx 50 mg daily Oxycontin 30 mg bid Calcium/Magnesium/VitD supplement Acidophilus rheumatic mino alone Hi Ann , Yes you can take minocycine alone but actually I think you should be on minocin . Minocin is the brand name to minocycline but minocin is timed released and works much better so see if you can get your dr to write you script for minocin and check i! n the box DAW ( dispense as written) or they will fill it with minocycline . BIG difference in effect between these 2 drugs . IMO from my experience minocycline powder does not work period . You do not need to do IVs and you do not need to take anything else but this is really only a decision between you and your dr and your disease and its activity as to how to start this therapy . Discuss the timed released version with your dr Hope this info helps warm regards, socjog To unsubscribe, email: rheumatic-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 Hi Kim, I've been on minocin for a little over two years now. I got my doctor to prescribe zithromax for me once a week a few weeks ago to help give a kick to my AP. I had wanted to get on clindamycin but he refused that because he doesn't like it. I am glad to see others on zithromax too. Keep us posted as to how you are doing on it. I think it is helping me and giving a boost to the minocin. I wanted it more often but that's all he would go. He's not an AP doc so I'm having to tell him what I need. However, I'm glad to say that AP is working after having had RA for 28 years. This third year is even better! Keep tackeling that yeast problem. I know how hard it is as I struggle with it too. Diet does help a lot. I stay away from sugar and carbs. Jeanette, RA Minocin & Zithromax Kim Gallant wrote: > Hi All, When I first started with AP, the pharmacist filled my script > with generic. It was Pellitized Minocycline, orange and blue capsules, > approximately eighty dollars for sixty capsules. When I requested > Minocin, as per this list, the pharmacist filled it with Minocin, > pelletized, orange and blue capsules, exactly the same price. Exactly > the same drug. When I started AP, I started on too high a dose. I was > taking 100mg, bid, six times per week PLUS Zithromax, 500mg three > times per week. Way too much drug, even with twice daily acidophilus, > it resulted in a major systemic yeast infection. After six months and > several different variations, my current dosage is Minocin 100mg bid, > three days per week. Zithromax 250 mg three days per week. There was a > three month period when I took Minocin only, but my inflammatory > markers and symptoms worsened. Adding Zithromax has turned things > around. My markers and symptoms are still present, CRP still high, but > not through the roof. Symptoms up and down depending on my activity, > stress, diet etc. Still life is much better than when on high doses of > Prednisone, Methotrexate etc. Kim Gallant, CanadianDM, Ankylosing > Spondylitis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 a, You go girl! Let me at that phone! Dee Re: rheumatic mino alone > Hi Dee, > Okay, look out, here I come. :} > > My understanding is that it is next to impossible to obtain Lederle > generic minocycline in Canada, however, if you buy the brand name > Minocin, which comes in a purple and orange capsule that says > " Wyeth-Ayerest " and Minocin on it, then you have the right stuff. > > As an aside, I helped man our local AP support group's table at a recent > Arthritis Society conference in Calgary. I noticed a Wyeth-Ayerest > table there so I wandered over to have a look at their literature. They > put out a lovely brochure on arthritis, including a brief description of > the various treatments, highlighting, in the end, their new drug, > Enbrel. NO WHERE IN THIS BROCHURE DOES IT LIST MINOCIN AS A TREATMENT! > Not being known as a shrinking violet, I marched back to the table and > demanded to know from the rep why their own brochure does not list their > own medication, Minocin, as a valid treatment. The guy sputtered around > a bit while I then sweetly said " I know drug companies are in this for > the money and I knew Enbrel can make you a lot of money but Minocin > makes profits for you, too. In fact, the support groups I belong to > stress the need for brand name Minocin, not generic, so, in reality, > we're acting as reps for your company and really deserve a commission. > I'll waive mine in lieu of you listing YOUR OWN MEDICATION, MINOCIN, IN > YOUR OWN BROCHURE. " By this time, the guy was more or less conceding > defeat and admitted it was a bad oversight by Wyeth-Ayerest. I next > told everyone back at our support group table about what I'd found and > had done and they all proceeded to take turns hitting the guy up as > well. I'm sure he was hiding under his table by the end of the day. > Since then I've been thinking it might be a good idea for all of us to > contact Wyeth-Ayerest to voice our dismay at their failure to properly > promote Minocin as a valid rheumatic treatment. Just to make it easy, > I've found a toll free number: 1-800-934-5556. Be polite but be > persistent and maybe they'll reprint their brochure with the full story > in it. :} > Hugs > a > Quote Link to comment Share on other sites More sharing options...
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