Re: Results on some of my tests and some are really out of whack!

[Guest guest]

Jane--The CRP is a test that indicates a level of inflamation, and often remains at a high level for those with arthritis, etc. Since you were getting pneumonia it was no doubt elevated even further. Mine is always elevated, although not to the extent that yours currently is.

Usually I think the CRP takes a little longer to go down than the sed rate---which could also have been higher than usual for you because of the pneumonia, although yours is most likely elevated all of the time.

I'm surprised that all of your CBC was low, I would have expected the white count to be elevated with your pneumonia.

OH--I'm reading this and responding at the same time and just got to the thyroid stuff. Are you on Synthroid? Do you take it completely as ordered? If so I'm sure they are doing a dose change.

Just be aware that even when they get it corrected you'll still have to work harder than most to lose the weight. When my thyroid first went I gained weight for a couple of years before they even tested it and it was way out of wack but I didn't need to have the nodules removed luckily. My meds keep mine within range mostly, but the weight doesn't come off very easily---I'm sure that the decreased mobility doesn't help with that, either. I take it from the way you are talking about thyroid symptoms that you aren't on Synthroid at this point, so when they deal with that you should feel much better, but the only things that changed for me is that my hair isn't as dry, my skin is somewhat improved but still dry and at the time they first put me on it my energy level improved, but that was before all this other crap started. It didn't take too long to see the energy improvement.

Back to the CRP---I hope they do a cardiac work up on you because they have found the CRP to be linked to heart disease. Anti-inflams of one kind or another should help get that down.

I hope that they get everything straightened out for you. Try not to stress over-much, that only makes it worse.

(((hugs)))

Kathy

Results on some of my tests and some are really out of whack!

I saw one of my doctors today who has been calling and calling wanting me to come in about blood work I had down several weeks ago. Jim and I have been out of town but I got sick 4 or 5 days after coming back. It takes forever for them to decide to run this full panel and then they call and call and call and I kept telling them I couldn't come in because I was too sick. I had lots of different areas that were out of whack but the 2 that really concerned the 3 things that really concerned him was my CRP which was 213 results on a reference range of 0.0 - 4.9. That could have been the pneumonia that was coming on except we have to find out if it was viral. Medline says:

Since the CRP is a general test, a positive CRP may indicate any of a number of things:

Rheumatoid arthritis

Rheumatic fever

Cancer

Tuberculosis

Pneumococcal pneumonia

Myocardial infarction

SLE

(**The CRP test was veriffied by repeat analysis repeated ab another lab**)

______________________

My BUN reading was 26 when the reference range is 8 - 25 so that not's too bad.

My SED rate result was 101 on a reference range is 0 - 20.

Lymph % was 16% actual on a reference range of 19 - 48.

All my CBC w/differential was low.

Alpha Globulin was 0.6 actual on a reference range of 0.3 - .4

THYROID:

The thing that really seemed to alarm my doctor more than anything though was the thyroid readings.

The T-uptake reading was 40.6 % when the new reference ragne is 22.4 -36.7.

The TSH as 10.84 uIU/mL when the new reference range is .35 - 5.50

__________________________

There were lots of other readings that were out not in the normal range but they were just skirting the edge of the

range. Dr. Zipper wants me to see an endocronologist ASAP. As a matter of fact, he got on the phone and talked to mine while I was there and I now have an appt. for Monday. He says that I am anemic, severely hypothroid even to point that I might have to have the nodules in the thyroid removed. I guess when it comes to that it is called myxedema. If you want to read all about this, it will sound like you are reading my symptoms top to bottom minus very few. This might even explain why I have such a hard time losing weight. Go to the website:

http://www.nlm.nih.gov/medlineplus/ency/article/000353.htmI

ly, I got a little bit excited and scared at the same time.. Dr. Zipper said that this could be the answer to a lot of the problems I have been having but on the other hand, he said it very, very, serious if I don't get it taken care of immediately. I have an appt. with my endocronologist for Monday morning. At least it explaines a lot of little things that have baffled me for years...like why my eyebrows could be so bushy when I was growing up and now just about disappeared completely. Another thing is the recent ability to converse and pull the words out of my brain that I needed to use in a sentence. There are lots and lots of consequences. This could give me hope for getting rid of some of the long term pain in the muscles that they have been able to control but how fast do they have to work before more damage is done?

I see the pulmonist tomorrow. He ran his own set of bloodwork and it will be interesting to see what they say....he was very concerned about family cholesterol history, heart problems, etc. I will then see the neurologist I week from Tuesday when he gets back to find out the results of the EMG, the EEG, and the brain MRI.

Please say some prayers for me I am going to need them until I find out what's going on and get the treatment started .

Jane

__Please visit our website at:http://ACES_Autoimmune.tripod.com

[Guest guest]

Should have also mentioned that my nodules go up and down in size.

Kathy

Results on some of my tests and some are really out of whack!

I saw one of my doctors today who has been calling and calling wanting me to come in about blood work I had down several weeks ago. Jim and I have been out of town but I got sick 4 or 5 days after coming back. It takes forever for them to decide to run this full panel and then they call and call and call and I kept telling them I couldn't come in because I was too sick. I had lots of different areas that were out of whack but the 2 that really concerned the 3 things that really concerned him was my CRP which was 213 results on a reference range of 0.0 - 4.9. That could have been the pneumonia that was coming on except we have to find out if it was viral. Medline says:

Since the CRP is a general test, a positive CRP may indicate any of a number of things:

Rheumatoid arthritis

Rheumatic fever

Cancer

Tuberculosis

Pneumococcal pneumonia

Myocardial infarction

SLE

(**The CRP test was veriffied by repeat analysis repeated ab another lab**)

______________________

My BUN reading was 26 when the reference range is 8 - 25 so that not's too bad.

My SED rate result was 101 on a reference range is 0 - 20.

Lymph % was 16% actual on a reference range of 19 - 48.

All my CBC w/differential was low.

Alpha Globulin was 0.6 actual on a reference range of 0.3 - .4

THYROID:

The thing that really seemed to alarm my doctor more than anything though was the thyroid readings.

The T-uptake reading was 40.6 % when the new reference ragne is 22.4 -36.7.

The TSH as 10.84 uIU/mL when the new reference range is .35 - 5.50

__________________________

There were lots of other readings that were out not in the normal range but they were just skirting the edge of the

range. Dr. Zipper wants me to see an endocronologist ASAP. As a matter of fact, he got on the phone and talked to mine while I was there and I now have an appt. for Monday. He says that I am anemic, severely hypothroid even to point that I might have to have the nodules in the thyroid removed. I guess when it comes to that it is called myxedema. If you want to read all about this, it will sound like you are reading my symptoms top to bottom minus very few. This might even explain why I have such a hard time losing weight. Go to the website:

http://www.nlm.nih.gov/medlineplus/ency/article/000353.htmI

ly, I got a little bit excited and scared at the same time.. Dr. Zipper said that this could be the answer to a lot of the problems I have been having but on the other hand, he said it very, very, serious if I don't get it taken care of immediately. I have an appt. with my endocronologist for Monday morning. At least it explaines a lot of little things that have baffled me for years...like why my eyebrows could be so bushy when I was growing up and now just about disappeared completely. Another thing is the recent ability to converse and pull the words out of my brain that I needed to use in a sentence. There are lots and lots of consequences. This could give me hope for getting rid of some of the long term pain in the muscles that they have been able to control but how fast do they have to work before more damage is done?

I see the pulmonist tomorrow. He ran his own set of bloodwork and it will be interesting to see what they say....he was very concerned about family cholesterol history, heart problems, etc. I will then see the neurologist I week from Tuesday when he gets back to find out the results of the EMG, the EEG, and the brain MRI.

Please say some prayers for me I am going to need them until I find out what's going on and get the treatment started .

Jane

__Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com

[Guest guest]

Jane, I believe the CRP measures the same as the SED rate and as high as your's is, my first thought would be that you have an infection somewhere. Have you had a urine test lately? Mine usually zooms like that when I have a UTI.

It's exciting to be so close to a "real" diagnosis isn't it? I hope they find what it is so they can fix it quickly!

Off to read about the link you sent.........

Christy

Results on some of my tests and some are really out of whack!

I saw one of my doctors today who has been calling and calling wanting me to come in about blood work I had down several weeks ago. Jim and I have been out of town but I got sick 4 or 5 days after coming back. It takes forever for them to decide to run this full panel and then they call and call and call and I kept telling them I couldn't come in because I was too sick. I had lots of different areas that were out of whack but the 2 that really concerned the 3 things that really concerned him was my CRP which was 213 results on a reference range of 0.0 - 4.9. That could have been the pneumonia that was coming on except we have to find out if it was viral. Medline says:

Since the CRP is a general test, a positive CRP may indicate any of a number of things:

Rheumatoid arthritis

Rheumatic fever

Cancer

Tuberculosis

Pneumococcal pneumonia

Myocardial infarction

SLE

(**The CRP test was veriffied by repeat analysis repeated ab another lab**)

______________________

My BUN reading was 26 when the reference range is 8 - 25 so that not's too bad.

My SED rate result was 101 on a reference range is 0 - 20.

Lymph % was 16% actual on a reference range of 19 - 48.

All my CBC w/differential was low.

Alpha Globulin was 0.6 actual on a reference range of 0.3 - .4

THYROID:

The thing that really seemed to alarm my doctor more than anything though was the thyroid readings.

The T-uptake reading was 40.6 % when the new reference ragne is 22.4 -36.7.

The TSH as 10.84 uIU/mL when the new reference range is .35 - 5.50

__________________________

There were lots of other readings that were out not in the normal range but they were just skirting the edge of the

range. Dr. Zipper wants me to see an endocronologist ASAP. As a matter of fact, he got on the phone and talked to mine while I was there and I now have an appt. for Monday. He says that I am anemic, severely hypothroid even to point that I might have to have the nodules in the thyroid removed. I guess when it comes to that it is called myxedema. If you want to read all about this, it will sound like you are reading my symptoms top to bottom minus very few. This might even explain why I have such a hard time losing weight. Go to the website:

http://www.nlm.nih.gov/medlineplus/ency/article/000353.htmI

ly, I got a little bit excited and scared at the same time.. Dr. Zipper said that this could be the answer to a lot of the problems I have been having but on the other hand, he said it very, very, serious if I don't get it taken care of immediately. I have an appt. with my endocronologist for Monday morning. At least it explaines a lot of little things that have baffled me for years...like why my eyebrows could be so bushy when I was growing up and now just about disappeared completely. Another thing is the recent ability to converse and pull the words out of my brain that I needed to use in a sentence. There are lots and lots of consequences. This could give me hope for getting rid of some of the long term pain in the muscles that they have been able to control but how fast do they have to work before more damage is done?

I see the pulmonist tomorrow. He ran his own set of bloodwork and it will be interesting to see what they say....he was very concerned about family cholesterol history, heart problems, etc. I will then see the neurologist I week from Tuesday when he gets back to find out the results of the EMG, the EEG, and the brain MRI.

Please say some prayers for me I am going to need them until I find out what's going on and get the treatment started .

Jane

__Please visit our website at:http://ACES_Autoimmune.tripod.com

[Guest guest]

I'm sure that the CRP is inflammed because of the arthritis I have been on Synthroid at the prescribed dosage for as long as I can remember and I can't remembeer the last time it was adjusted. I know it is not going to be an immeidiate weight loss but if I have the renewed energy, I know I will have interest in trying to get back into shape.

-----

From: Kathy

To: autoimmune-ills

Sent: Friday, June 04, 2004 7:30 AM

Subject: Re: Results on some of my tests and some are really out of whack!

Jane--The CRP is a test that indicates a level of inflamation, and often remains at a high level for those with arthritis, etc. Since you were getting pneumonia it was no doubt elevated even further. Mine is always elevated, although not to the extent that yours currently is.

Usually I think the CRP takes a little longer to go down than the sed rate---which could also have been higher than usual for you because of the pneumonia, although yours is most likely elevated all of the time.

I'm surprised that all of your CBC was low, I would have expected the white count to be elevated with your pneumonia.

OH--I'm reading this and responding at the same time and just got to the thyroid stuff. Are you on Synthroid? Do you take it completely as ordered? If so I'm sure they are doing a dose change.

Just be aware that even when they get it corrected you'll still have to work harder than most to lose the weight. When my thyroid first went I gained weight for a couple of years before they even tested it and it was way out of wack but I didn't need to have the nodules removed luckily. My meds keep mine within range mostly, but the weight doesn't come off very easily---I'm sure that the decreased mobility doesn't help with that, either. I take it from the way you are talking about thyroid symptoms that you aren't on Synthroid at this point, so when they deal with that you should feel much better, but the only things that changed for me is that my hair isn't as dry, my skin is somewhat improved but still dry and at the time they first put me on it my energy level improved, but that was before all this other crap started. It didn't take too long to see the energy improvement.

Back to the CRP---I hope they do a cardiac work up on you because they have found the CRP to be linked to heart disease. Anti-inflams of one kind or another should help get that down.

I hope that they get everything straightened out for you. Try not to stress over-much, that only makes it worse.

(((hugs)))

Kathy

Results on some of my tests and some are really out of whack!

I saw one of my doctors today who has been calling and calling wanting me to come in about blood work I had down several weeks ago. Jim and I have been out of town but I got sick 4 or 5 days after coming back. It takes forever for them to decide to run this full panel and then they call and call and call and I kept telling them I couldn't come in because I was too sick. I had lots of different areas that were out of whack but the 2 that really concerned the 3 things that really concerned him was my CRP which was 213 results on a reference range of 0.0 - 4.9. That could have been the pneumonia that was coming on except we have to find out if it was viral. Medline says:

Since the CRP is a general test, a positive CRP may indicate any of a number of things:

Rheumatoid arthritis

Rheumatic fever

Cancer

Tuberculosis

Pneumococcal pneumonia

Myocardial infarction

SLE

(**The CRP test was veriffied by repeat analysis repeated ab another lab**)

______________________

My BUN reading was 26 when the reference range is 8 - 25 so that not's too bad.

My SED rate result was 101 on a reference range is 0 - 20.

Lymph % was 16% actual on a reference range of 19 - 48.

All my CBC w/differential was low.

Alpha Globulin was 0.6 actual on a reference range of 0.3 - .4

THYROID:

The thing that really seemed to alarm my doctor more than anything though was the thyroid readings.

The T-uptake reading was 40.6 % when the new reference ragne is 22.4 -36.7.

The TSH as 10.84 uIU/mL when the new reference range is .35 - 5.50

__________________________

There were lots of other readings that were out not in the normal range but they were just skirting the edge of the

range. Dr. Zipper wants me to see an endocronologist ASAP. As a matter of fact, he got on the phone and talked to mine while I was there and I now have an appt. for Monday. He says that I am anemic, severely hypothroid even to point that I might have to have the nodules in the thyroid removed. I guess when it comes to that it is called myxedema. If you want to read all about this, it will sound like you are reading my symptoms top to bottom minus very few. This might even explain why I have such a hard time losing weight. Go to the website:

http://www.nlm.nih.gov/medlineplus/ency/article/000353.htmI

ly, I got a little bit excited and scared at the same time.. Dr. Zipper said that this could be the answer to a lot of the problems I have been having but on the other hand, he said it very, very, serious if I don't get it taken care of immediately. I have an appt. with my endocronologist for Monday morning. At least it explaines a lot of little things that have baffled me for years...like why my eyebrows could be so bushy when I was growing up and now just about disappeared completely. Another thing is the recent ability to converse and pull the words out of my brain that I needed to use in a sentence. There are lots and lots of consequences. This could give me hope for getting rid of some of the long term pain in the muscles that they have been able to control but how fast do they have to work before more damage is done?

I see the pulmonist tomorrow. He ran his own set of bloodwork and it will be interesting to see what they say....he was very concerned about family cholesterol history, heart problems, etc. I will then see the neurologist I week from Tuesday when he gets back to find out the results of the EMG, the EEG, and the brain MRI.

Please say some prayers for me I am going to need them until I find out what's going on and get the treatment started .

Jane

__Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com

[Guest guest]

I just have a feeling with the neuroloogist and endocronologist involved now, there should be be a combined effort that hopefully that will zero in on some of my real problems.

Results on some of my tests and some are really out of whack!

I saw one of my doctors today who has been calling and calling wanting me to come in about blood work I had down several weeks ago. Jim and I have been out of town but I got sick 4 or 5 days after coming back. It takes forever for them to decide to run this full panel and then they call and call and call and I kept telling them I couldn't come in because I was too sick. I had lots of different areas that were out of whack but the 2 that really concerned the 3 things that really concerned him was my CRP which was 213 results on a reference range of 0.0 - 4.9. That could have been the pneumonia that was coming on except we have to find out if it was viral. Medline says:

Since the CRP is a general test, a positive CRP may indicate any of a number of things:

Rheumatoid arthritis

Rheumatic fever

Cancer

Tuberculosis

Pneumococcal pneumonia

Myocardial infarction

SLE

(**The CRP test was veriffied by repeat analysis repeated ab another lab**)

______________________

My BUN reading was 26 when the reference range is 8 - 25 so that not's too bad.

My SED rate result was 101 on a reference range is 0 - 20.

Lymph % was 16% actual on a reference range of 19 - 48.

All my CBC w/differential was low.

Alpha Globulin was 0.6 actual on a reference range of 0.3 - .4

THYROID:

The thing that really seemed to alarm my doctor more than anything though was the thyroid readings.

The T-uptake reading was 40.6 % when the new reference ragne is 22.4 -36.7.

The TSH as 10.84 uIU/mL when the new reference range is .35 - 5.50

__________________________

There were lots of other readings that were out not in the normal range but they were just skirting the edge of the

range. Dr. Zipper wants me to see an endocronologist ASAP. As a matter of fact, he got on the phone and talked to mine while I was there and I now have an appt. for Monday. He says that I am anemic, severely hypothroid even to point that I might have to have the nodules in the thyroid removed. I guess when it comes to that it is called myxedema. If you want to read all about this, it will sound like you are reading my symptoms top to bottom minus very few. This might even explain why I have such a hard time losing weight. Go to the website:

http://www.nlm.nih.gov/medlineplus/ency/article/000353.htmI

ly, I got a little bit excited and scared at the same time.. Dr. Zipper said that this could be the answer to a lot of the problems I have been having but on the other hand, he said it very, very, serious if I don't get it taken care of immediately. I have an appt. with my endocronologist for Monday morning. At least it explaines a lot of little things that have baffled me for years...like why my eyebrows could be so bushy when I was growing up and now just about disappeared completely. Another thing is the recent ability to converse and pull the words out of my brain that I needed to use in a sentence. There are lots and lots of consequences. This could give me hope for getting rid of some of the long term pain in the muscles that they have been able to control but how fast do they have to work before more damage is done?

I see the pulmonist tomorrow. He ran his own set of bloodwork and it will be interesting to see what they say....he was very concerned about family cholesterol history, heart problems, etc. I will then see the neurologist I week from Tuesday when he gets back to find out the results of the EMG, the EEG, and the brain MRI.

Please say some prayers for me I am going to need them until I find out what's going on and get the treatment started .

Jane

__Please visit our website at:http://ACES_Autoimmune.tripod.com Please visit our website at:http://ACES_Autoimmune.tripod.com