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At the beginning of the month I told my respite agency I needed to go out of town July 30, 31 for a business conference. I asked the woman giving me my weekend respite (we call it respite but I rarely leave them alone because it takes at least 2 people to handle the Mikster) if she could do it, pick Miki up from ARC take her home, spend the night, get her off in the a.m and pick her up in the p.m again, and I would be home at 9-10 pm. She said "sure". So I went on my merry way paying for the conference, hotel, meals. Now mind you I haven't been able to work full time for the 8 yrs. I've had her, so it's eat or grow the business I am now doing from my home (where noone will fire me because I need to take a day off for my kid). I figure this is why credit cards were invented. On Saturday I again reminded the respite woman

that it was coming up this week. She looked at me with a dazed look and said "I thought it was the weekend, I have another case I do from 5-9pm." She didn't show up on Sunday and Miki started to tantrum at 2:30 and kept it up until she fell asleep at 9:30. On Sunday I also had a huge fiasco at Walgreens re: her meds. I went to the drive-in to pick up a med and they told me to come in because there was a problem with her Medicaid (she's on the waiver). I've had this problem with Walgreens for many years, they input the wrong info into the computer and blame Medicaid. While there for an hour Miki ransacked their ice cream freezer. On Monday the respite agency told me they never looked at a calender to make note that 30+ 31 are during the week. Baffles me how everyone thought it was the week end when I said "pick her up from ARC, get her ready the next day. They couldn't offer me anyone else that

would be good with Miki and I felt comfortable giving the key to my house. I was about to cancel my trip which gave me the only hope of climbing out of the financial mess I'm in, when I called a woman that works at ARC during the school year. She graciously said she could do it. I also called the regional manager of Walgreens and after having words with him they delivered the meds to my house. I'm single and my sisters live in Jersey. Other than other parents I only have Miki's therapists. It's dificult enough having her illness to deal with, but it is even more difficult dealing with some of the people I need to use because of her illness. I so need to get away this week, I hoping the conference will give me the info to grow my business, Pray for us please, and if anyone knows anyone that needs health or life insurance, ...email me!

Jayne....a very exhausted Miki's mom

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